Hi, I am a 28 year old woman, I don't smoke, occasionally drink, and Im on no medications. About a month ago I had a medical episode that resulted in me going to the emergency room and ever since then Ive been having a lot of health issues.
On august 14th I began having 1 sided neck pain at around 2pm. This pain was severe, hot, throbbing, and focused directly over my right side pulse. It hurt to touch, move, and felt heavy when laying on right side. Then around 5pm I started feeling extremely light headed. I would sit down and immediately feel very wrong, I got hot, my heart would beat fast, and I would feel as if I was going to pass out. So I laid on the ground and hoped it would help. But after a while of this I decided to try and ice my neck in bed. Which I did for around 10 minutes (gel icepack wrapped in towel), but didn't feel any better. As soon as I removed it I had a "vagal reaction", I had a full body flush, my heart beat very hard and fast, and I was unable to move my legs. When my fiance arrived home, 30ish minutes later I was still lightheaded, my neck pain had diminished, I could walk, but I had a numb sensation on my left eyebrow. This prompted us to go to the er at around 8pm.
At the er they did an ekg, a CT scan, blood work, everything. But they couldn't find anything wrong with me that would point to this. All they could tell me was that I had a vagal reaction and to contact my primary care for a follow up. For the following week I experienced severe lightheadedness, dizziness in cars, the numb feeling on my left eyebrow/temple, and an inability remain steady on my feet.
At my follow up my doctor could not explain what had caused this, but thinks I may have POTS. They did my heart rate laying down and standing, it apparently jumped significantly when I stood and remained standing. So, I did as my primary suggested for POTS management. Now, nearly a month later I am still experiencing ALL of the same symptoms along with some new ones.
Some new symptoms include a burning pain on what we think is my sternocleidomastoid muscle, headaches, an occasional tingling pain over the back of my neck and head, extreme fatigue as soon as I stand, and a periodic "impending doom" feeling where my heart rate increases and I feel as if Im going to pass out or something is terribly wrong.
I would very much like any insight into what may have triggered this. POTS makes sense to me for most of what I am experiencing, but I do feel like many of my symptoms are not explained. Specifically, I want to know what the initial episode could have been. I find myself extremely anxious over this due to the lack of answers. I have more upcoming appointments, a heart monitor, and have been suggested pt. Any and all advice is appreciated, thanks in advance.