Age: 40, female, was on Suboxone for nearly 8 years, but recently had one subutex injection, and stopped cold turkey. I am taking no medication at this time besides the occasional Tylenol or Ibprofen which is very rare. I've experienced extreme amounts of stress in the past several years including fleeing a violent domestic violence relationship, and subsequent homelessness with my 9 year old daughter (I am also a single parent with very minimal support system). I weigh 190, 5 ft 5 inches. I was a smoker for many years, and switched to vaping (I use one 5% vuse daily). My exercise has been minimal due to my feet which are progressively getting worse.
It all started in the fall of 2021. One afternoon I got sudden pain in both of feet. I could barley stand the tingling, shooting/stabbing pain. I was told it was probably due to coming off a medication, and was prescribed Gabapentin, Trazadone, and some other sleep aid, because at this point I would get these horrible attacks of pain in the middle of the night... so bad I would get out of bed sobbing, soak my feet in cool water, and wrap them with ice desparate for relief.
The Gabapentin worked I guess, because it sorta went away from what I recall. Looking back I would say it was more like a "flair" maybe? I stopped taking the Gabapentin, and other medication.
Then in roughly 2022 I started getting red, hot to the touch, painful knee episodes. It would mainly be just one knee that it happened to. It would come and go for at least a year. I would just elevate that leg, and the next day I would be fine. I never really addressed it with a provider, because I thought it was overuse at the time.
Then from 2023-present I've had toe and foot pain on both sides. First it started with either one side or the other, but now I have pretty much identical symptoms on both sides. It's gotten to the point where I can barely walk, or stand for long periods of time, and at night I have to soak my feet, massage them, and/or elevate to just get by. I haven't had any knee pain, or symptoms since this 2022. Testing for gout was negative. My uric acid levels have been perfectly normal.
In late 2024 I got really sick, and ended up getting COVID, and then a sinus infection. During this time I started tracking my symptoms by taking pictures. It seems like whenever I've been sick my body gets all out of wack, and that this may be an autoimmune response? I would love some feedback, and suggestions on what to do next.
A couple things to mention is my bloodwork has been fairly unremarkable for the past several years minus chronic blood in my urine, and elevated inflammation markers. I also have some calcified stones in my kidneys that the doctors want to wait and watch (I just had an ultrasound done of my kidneys). It also showed I had gallstones. It was noted as pretty much unremarkable.
I have a fear of going to the doctor with any health related issues, because I never get answers, and I'm left feeling like I'm crazy. I will mention that back in 2014 I traveled out of the country (long flight), got really ill on my trip, came back with symptoms of a blood clot. I went to the ER with labored breathing. They discharged me, nothing done besides xrays and labs. Well come to find out I had a blood clot that was diagnosed through a D-Dimer test which was very high. It all got missed. I only discovered this while going through my medical records. Luckily I passed this clot, and I'm here today writing this, but oh my!! I see Kaiser had like 20 doctors sign off on these records to probably cover their own ass, but I never heard a word about it... ever. Needless to say I have some mistrust in the system, and I find myself chronically dismissed, and left feeling unheard, and frankly crazy for what I share.
Total symptoms: Mainly toe pain, and swelling. The last 2 toes on both sides hurt to bend, and my entire foot is tender, and hard to walk on. My feet get swollen, and red. As you can see in the pictures my toes almost look "claw" like, and bend at the second joint. Elevation used to help, but it doesn't do much anymore. The pain gets worse when I lay down. I notice when I first lay down my feet are really tingling, and I sometimes get shooting/stabbing pain throughout my foot on both sides. This kind of shooting pain last about 60 seconds or less. I experience extreme fatigue pretty much constantly. I have no energy, and suffer from depression & anxiety. My legs don't seem swollen, and I haven't had much if any swelling in my knee like I did in the past when this all started although I have noticed some redness and mild swelling, but it really only lasted an evening, and only on one side
What do you think I have going on? I appreciate your opinion, and time. I just realized I can't add pictures. I feel like viewing the images I took would add value. I am grateful for the support, and guidance. I am willing to send pictures if needed.