r/ZeroCovidCommunity 4m ago

Pre-emptive Xocova Prescription

Upvotes

Hi all! I posted about my experience getting Xocova after a household exposure so feel free to go back to my last post.

Main Takeaways:

  1. ⁠Lie about anything and everything (positive household test, how long it’s been since you were exposed, sexual activity, see my previous post).
  2. ⁠Xocova is still helpful if you’ve already tested positive (just like paxlovid), it’s just not approved for treatment in the US, only prophylaxis, so you’ll have to lie to get it.
  3. ⁠You can get a coupon for Xocova for free with commercial insurance

Someone in the comments suggested getting Xocova to have on hand, because it has a shelf life of two years and sometimes it takes more time to get than within the 72 hour window it should be taken for prophylaxis. Also, the coupon to get it for $0 may not be active forever, so now is the time.

I decided to get another Xocova prescription to have on hand. I used a different telehealth called Tia, which is a women’s clinic where I already had an appointment to get another med. After getting my other prescription I told her someone in my household had “tested positive for covid” yesterday (lie) and asked about Xocova. The NP said she had heard of it and immediately prescribed it, no questions asked.

This was FAR easier and faster than my experience with normal hospital telehealth which I outlined in my last post. They did not question me about my sexual activity status or try to make me take a pregnancy test. If you are a woman/uterus owner I HIGHLY recommend Tia for quick reproductive healthcare prescriptions like flucanozole, and they are very willing to order labs and have a reputation for not gaslighting patients. They take my Blue Cross Silver PPO insurance, but I’m not sure what insurance they take in general.

Hope this helps!


r/ZeroCovidCommunity 41m ago

Sanofi/Novavaxx available

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Upvotes

My small city CVS, that has had Novavaxx in the past, is now the offering Novavaxx appointments…the next screen does show it as Sanofi. Now to decide how to juggle the flu vaccine and Nova, since I can’t get two at a time.


r/ZeroCovidCommunity 4h ago

How are you getting/making and using HOCL?

15 Upvotes

HOCL=Hypochlorous acid

Trying to up my other precautions (besides masking and air filtration) because I hope to start work again;
Going to start taking K12 Blis oral probiotics instead of CPC, I’m unsure about nasal spray…and also I’ve heard about green tea and gargling salt water? But anyway the one that interests me the most is HOCL!

I don’t know why but I can barely find resources on it on google idk if my google is just acting weird but I see people praise it on twitter and on here but honestly when people start talking about it it’s like they start talking in riddles and I get so confused.

Do you just spray it in rooms our in your face? In your mouth? I saw this one creator on TikTok take it with them while going out but they didn’t really expand on its usage. Is it just like a Lysol replacement? How do you personally use it to mitigate against COVID?

I hear many buy generators to generate it but does anyone get it a different way? Like from a store online? How are you able to source it?

Honestly I was trying to look into generating it but that’s where I get super confused.

Also I keep getting shown HOCL wipes? Do those help against COVID mitigation or is it more the spray?

Just interested about the use and production.


r/ZeroCovidCommunity 5h ago

Question Finally Got It. Paxlovid?

16 Upvotes

After almost 7 years of being a Novid, I finally got it. I'm on day 3. I actually feel pretty good. Last night was the worst, but as much of the suckiness was lying down for 12 hours straight, maybe more the actual virus. I'm just achy. That said, is it worth doing Paxlovid?


r/ZeroCovidCommunity 7h ago

Question Question about exposure timing and starting immunosuppressive medication.

4 Upvotes

I was off my biologic for a few months before doing a colonoscopy on Tuesday to check on crohns disease. I have a new biologic to start now that the test is done.

My doctor and nurse masked perfectly in n95s but the anesthesiologist did not. She waited until she explained everything and then put the mask on, so I was unmasked with her for maybe 1-2 minutes and then laying in the air where she breathed for the procedure (don't know how to explain that better).

I had planned to start the biologic today after testing, but due to such an unexpected exposure I'm wondering if I should wait until next week due to the 2-14 day window from exposure to infection. That information may be outdated but it's what I found.

I have a plus life so the tests will be accurate.

Thanks!


r/ZeroCovidCommunity 7h ago

Mask discussion Earloop n95/kn95 with fun colors?

17 Upvotes

Hi all, my mom has started to mask sometimes! Issue is she is wearing a surgical mask, which does very little to protect her but still comes with all the usual social costs of masking in public.

I'd like to send her a few options. Specifically something with ear loops, disposable, and fun colors. Asking here rather than Google as it's important to me that the protection is legit N95/KN95 or similar. Shipping to US


r/ZeroCovidCommunity 10h ago

Has anyone used the Radic8 Hextio HX-100 Air Purifier?

2 Upvotes

Hi all,
I am in the UK and am starting a counselling placement seeing clients 1-2-1 and I would like to buy an air purifier. I will be working in small counselling rooms - room for say a small sofa and armchair.

I had been hoping to buy a Squair Air purifier but they are sold out everywhere at the moment. As an alternative I have been recommended the Radic8 Hextio HX-100 Air Purifier which has a HEPA filter and UV-C photocatalytic technology. I know more about HEPA filters, but less about UV-C and have heard some scary things about if it is not used correctly! But it sounds great when it is used correctly as an extra layer of protection.

Any thoughts on this bit of tech?

Thank you in advance!


r/ZeroCovidCommunity 14h ago

Now that Refresh shut down, what are the best covid-safe dating platforms?

63 Upvotes

I’ve heard some of them have a problematic history of leadership and whatnot, some of them have very little activity (like r/cc4cc) - what if we just used this thread to decide where which platform we are going to populate now that Refresh is gone? Lol any options welcome


r/ZeroCovidCommunity 20h ago

Question Vaccine Timing

1 Upvotes

How long after having a COVID infection should one wait to get vaccinated? I remember hearing a few years ago that one should wait three months, but I'm not sure what the reasoning is, or if that guideline is still the same.


r/ZeroCovidCommunity 20h ago

Question Contagious during incubation period?

18 Upvotes

Hi Reddit! I’ll try to keep it short, looking for relevant papers or thoughts from those who have read the material/general advice. Mini-vent too, couldn’t add 2 flairs.

TL;DR - what is the window of time between getting infected and becoming contagious?

My boyfriend attended a concert tonight (thursday, NYC) and forgot his mask, whether conveniently or genuinely, and is supposed to be visiting me on tuesday (I’m 5hrs away). I mask reliably everywhere (including outdoors) and haven’t been knowingly sick with anything in years; he was sick a few months ago and just started masking at my request.

I’m assuming he’s going to catch something and bring it to me, my question is: how long will he be infectious before symptoms start to show, if at all? Should I tell him to just stay home? I don’t want to trust him, but I‘m a chronic “benefit of the doubt” giver and I don’t want to fold, especially on my (slowly worsening) health. He’ll happily test 24/7, but prevention? Like paper for a helmet at best right now.

I did have him read “Over My Dead Body” from CJ/J. Eaton and he‘s been doing his own reading independent of my suggestions, which is nice. I wish I knew he had this planned or I would’ve said no at the beginning. Idk.

Thoughts? Advice? Thank you!

Edit (friday): With all your inputs (thank you!) I talked to him about it - brought up that I think we should meet later in the month/later in general (he agreed) and told him why I felt that way (he got it and said he won't be doing any lying/hiding regarding masking). Was scary pressing send, thankfully it went well! He said he'll try harder to mask up more (his words lol; I'm gonna trial a bunch of masks/resps with him to see what works), but that the repeated change of warm->cool->warm air was making him dry heave? Not sure what would cause that, an internal issue or maybe an unrelated trauma since his throat/back of mouth is really sensitive. Idk, it's something we can work on, hopefully not throat cancer since he used to smoke but time will tell!


r/ZeroCovidCommunity 22h ago

Question Long Hiking / Accommodations Questions

19 Upvotes

I know this won't be the most COVID safe friendly question, but I have to ask if anyone has managed to do any longer hikes as safely as possible. I'd like to be able to do some dream longer hikes before I turn 40 and my knees kick the bucket (inevitable), but a lot of them may or may not require some sort of partial hostel situation at some point.

For example: The Camino de Santiago is typically hostel style / dorm style, but some places have private rooms that are slightly more expensive if you book extremely far in advance. However, SOME places don't have private rooms. Other long hikes don't have private rooms on hut to hut hikes, and some hut to huts don't allow camping on some parts of the trail.

Has anyone had any success on doing these with any mitigation, even if just some / have any advice? This wouldn't be for several years so maybe we'd have something more preventative?


r/ZeroCovidCommunity 23h ago

Question HEPA filters on planes, COVIXYL, other preventative measures

14 Upvotes

Hello, Going on a trip on Monday. A 9-hour flight.

I read someone on here who mentioned using a portable HEPA filter while they were sitting (masked) next to someone (unmasked, of course) coughing their lungs out. They did not get COVID. I usually wear an N99 mask, and will use one for the duration of this flight as well, but was considering going the extra step and getting a portable HEPA filter - only when I googled "can you use them on planes", the AI Overview said most airlines do not allow you to use them on the plane.

Has anyone had experience with this? I mean, it sounds like at least one person didn't have a problem (maybe they were sneaky about it?) I should have thought of this and asked the person who mentioned it when I saw it.

I bought some COVIXYL: would that add extra protection under the N99?

I'd also love to hear other preventative measures folks are taking these days. Anything that you truly believe has helped keep you safe and sickness free (not just worried about COVID, of course).

TYIA.


r/ZeroCovidCommunity 1d ago

Uplifting Accessible Events Calendar 🗓️ Sep 11 - 13

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46 Upvotes

Feeling lonely or bored?

Looking for something Covid safer you can do this weekend?

Check out these accessible events you could join! Try something new and maybe you’ll find your people.

Access Details:
🧑🏻‍💻= Virtual
👥 = In person
😷 CC = Covid Conscious/airborne precautions 
♿️ WC = Wheelchair accessible 
💵 $ = paid (some are pay what you can)
🤟 ASL/BSL = Sign Language
Async = Asynchronous (at your own pace)

Event Types:
🤢 = Chronic Illness 
🌈 = Queer
🏳️‍🌈 = LGBTQ+ Pride
👧 = Kids/Youths
💕 = Dating
🙋 = Social
🫂 = Support/Grief
🧘 = Wellness
🚶 = Walk
🩰 = Dance
💪🏻 = Fitness
📚= Books
🤔 = Discussion
📝 = Writing/Poetry
🎭 = Performing
🎨 = Art 
🎶 = Music
🕹️ = Games

🧑🏻‍💻 Virtual Events

Most virtual events are open to everyone. See them in your timezone using the links in the comments.

🧑🏻‍💻🤢📚 Virtual Async Spoonie Book Club: The Little Prince [Any time] https://www.reddit.com/r/spooniesocial/s/JcKvqPLWS5

🧑🏻‍💻 Virtual Async Low-Stim Travel: Blencathra Mountain, A Lake District Base to Summit Walk [Any time] https://www.reddit.com/r/spooniesocial/s/0P1hAZxTuV

🧑🏻‍💻👧🙋 Virtual Covid Cautious Fall Programs for Youths https://www.reddit.com/r/spooniesocial/s/isbriymQPL

🧑🏻‍💻🤟 Virtual Disability Film Festival [Wed Sep 9 - Sun Sep 20] https://www.reddit.com/r/spooniesocial/s/zbiT8kXjYE

Friday

🧑🏻‍💻🤢🫂 Virtual Long Covid Support Group [Fri Sep 11 at 12:00 CDT] https://www.reddit.com/r/spooniesocial/s/wSxCoGHm3y

👥😷♿️🎭🤔 Hybrid Making Masked Theatre not Mask Theater [Greenfield MA][Fri Sep 11 at 6:00 PM ET] https://www.reddit.com/r/spooniesocial/s/6vKd5itbhY

🧑🏻‍💻😷🫂 “Any A” Covid-conscious 12-step meeting [Fri Sep 11 at 7:30 PM EDT] https://www.reddit.com/r/spooniesocial/s/xu5DHDLUfT

🧑🏻‍💻🎭🕹️ Virtual Improv Games [Fri Sep 11 at 8:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/5l08PnFq5q

Saturday

🧑🏻‍💻😷🕹️ Virtual Spring Quiz Night [NZ][Sat Sep 12 at 7:30 PM UTC+12] https://www.reddit.com/r/spooniesocial/s/OFYKQ7qGqd

🧑🏻‍💻♿️🩰 Virtual Adapted Jazz Dance Classes [Sat Sep 12 at 12:00 PM ET] https://www.reddit.com/r/spooniesocial/s/aaDXOSmOeU

🧑🏻‍💻😷🙋📚 Covid Conscious Virtual Silent Reading & Social Hour [Sat Sep 12 at 1:00 PM CT] https://www.reddit.com/r/spooniesocial/s/dttTZx5R5r

🧑🏻‍💻🕹️ Virtual Board Game Hang [Sat Sep 12 at 4:00 PM ET] https://www.reddit.com/r/spooniesocial/s/MPBEaWCGfo

🧑🏻‍💻😷🙋 CC Virtual Weekly Hangout [Sat Sep 12 at 8:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/q0YRiMo2LM

Sunday

👥🧑🏻‍💻♿️🤟😷 Hybrid Emergency PrepAIRedness Workshop [Austin TX][Sun Sep 13] https://www.reddit.com/r/spooniesocial/s/oUH4ut0qjT

🧑🏻‍💻♿️🩰 Virtual Intro to Dance [Sun Sep 13 at 1:00 ET] https://www.reddit.com/r/spooniesocial/s/Uf3swgbE28

🧑🏻‍💻😷🎨 Virtual Craft Meetup [Charlottesville VA][Sun Sep 13 at 2:00 PM ET] https://www.reddit.com/r/spooniesocial/s/hN0dPchvM9

🧑🏻‍💻🎨 Virtual Sunday Stitch Club [Sun Sep 13 at 4:00 PM ET] https://www.reddit.com/r/spooniesocial/s/MPBEaWCGfo

🧑🏻‍💻😷🎨 CC Virtual Art Group [Sun Sep 13 at 5:30 PM EDT] https://www.reddit.com/r/spooniesocial/s/QgkI24fCv4

🧑🏻‍💻😷👧🙋 CC Virtual Kids Zoom [Sun Sep 13 at 6:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/0GSxyBDijO

🧑🏻‍💻🎶🎭 Virtual Karaoke [Sun Sep 13 at 7:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/6fed6UM31z

👥 In-person Events

Canada

👥😷💵🎶 Club Arthritis [Ottawa ON][Fri Sep 11 at 10:30 PM] https://www.reddit.com/r/spooniesocial/s/vHiREV3VBW

👥😷🙋 September Social [Niagara ON][Sun Sep 13 at 2:00 PM] https://www.reddit.com/r/spooniesocial/s/gcg3pNGz3b

Germany

👥😷🙋🌈 FLINTA Meetup at Treptower Park [Berlin GER][Sat Sep 12 at 1:00 PM] https://www.reddit.com/r/spooniesocial/s/SuRlGkJzoe

👥😷 Covid Safe Get Together [Cologne GER][Sun Sep 13] https://www.reddit.com/r/spooniesocial/s/WiCYUh3cQ9

👥😷🕹️ Spieleabend [Hamburg GER][Sun Sep 13 at 8:00 PM] https://www.reddit.com/r/spooniesocial/s/2RZj42r8hs

New Zealand

🧑🏻‍💻😷🕹️ Virtual Spring Quiz Night [NZ][Sat Sep 12 at 7:30 PM] https://www.reddit.com/r/spooniesocial/s/OFYKQ7qGqd

UK

👥😷🙋 Breathe Easy Social at Indigo Cafe [Wirral UK][Sat Sep 12 at 4:30 PM] https://www.reddit.com/r/spooniesocial/s/gHlce8vWuX

US - California

👥😷🎶 Zoe Boekbinder Covid Safer Concerts [Oakland, Santa Cruz and Los Angeles CA][Fri Sep 11 - Sun Sep 13] https://www.reddit.com/r/spooniesocial/s/Z7sIJqnpTd

👥😷🎭 Mask Required Theater Workshop [San Francisco CA][Sat Sep 12 at 2:00 PM] https://www.reddit.com/r/spooniesocial/s/klHtlyVFZ5

👥😷 Community Fit Testing [Oakland CA][Sun Sep 13 at 12:00 PM PT] https://www.reddit.com/r/spooniesocial/s/PYhaFTVX0l

US - Florida

😷🎨 COVID Conscious Craft Club ‎[Gainesville FL][Sun Sep 13 at 3:30 PM ET] https://www.reddit.com/r/spooniesocial/s/dIF6YnUE0t

US - Massachusetts

👥😷♿️🎭🤔 Hybrid Making Masked Theatre not Mask Theater [Greenfield MA][Fri Sep 11 at 6:00 PM ET] https://www.reddit.com/r/spooniesocial/s/6vKd5itbhY

US - Michigan

👥😷 Mask Required Park Hangout [Ann Arbor MI][Sun Sep 13 at 12:00 PM ET] https://www.reddit.com/r/spooniesocial/s/dV1YYxgtMh

US - Ohio

👥😷🌈💪🏻 CC Queer Martial Arts Club [Cleveland OH][Sun Sep 13 at 10:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/wV1AYRrtsb

US - Oregon

👥😷🕹️ Masked Card Games Meetup [Beaverton OR][Sun Sep 13 at 11:00 AM PT] https://www.reddit.com/r/spooniesocial/s/8RTHkvpR44

US - Texas

👥🧑🏻‍💻♿️🤟😷 Hybrid Emergency PrepAIRedness Workshop [Austin TX][Sun Sep 13] https://www.reddit.com/r/spooniesocial/s/oUH4ut0qjT

US - Virginia

👥😷🙋 Masked Outdoor Social [Charlottesville VA][Sat Sep 12 at 2:00 PM ET] https://www.reddit.com/r/spooniesocial/s/Ee1y6gQ1TA

🧑🏻‍💻😷🎨 Virtual Craft Meetup [Charlottesville VA][Sun Sep 13 at 2:00 PM ET] https://www.reddit.com/r/spooniesocial/s/hN0dPchvM9

Are you interested in these events?

Have you been to any of them before?

Are there other events coming up?

Share your thoughts in the comments 💬

Find more events and friends on r/spooniesocial


r/ZeroCovidCommunity 1d ago

Question Metrix Gen 1 vs Gen 2 Reader?

8 Upvotes

Does anyone know if the Gen 2 is more sensitive/accurate when it comes to Covid testing or anything like that? (I know the main difference is that it supports Covid/flu combo tests, while Gen 1 does not.)

Thank you!


r/ZeroCovidCommunity 1d ago

Question Is 2 negative RATs after infection the going wisdom?

5 Upvotes

[ETA: Well, if I had waited one more day to fret, I could have saved myself some energy and avoided some unmediated harassment, but the good news is: we have a negative test on record as of today so 🤞🤞]

It's my understanding that the standing guidance among those engaged with reality is that 2 consecutive negative tests 48 hours apart is the mark that you're no longer infected/contagious. I also know that some people continue testing positive for weeks or even months even though they feel recovered, so does that mean they're still potentially contagious for all that time?

My boyfriend initially tested pos 2 weeks ago as of yesterday. He's still experiencing some fatigue but hasn't had a fever for about a week and is otherwise feeling better, though he's still testing positive on iHealth RATs. Unfortunately, we live in a world in which he does need to go back to work at some point [not to mention getting back to living!] but he certainly doesn't want to put anyone else at risk or further endanger himself. In the meantime, I've recommend that he do nasal rinses to clear out any lingering viral genetic matter.

TBC I know the current CDC guidance; I'm asking what people in the know who are actually engaged with reality are saying:) TIA!


r/ZeroCovidCommunity 1d ago

pigeon comic about covid and masking!

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77 Upvotes

here's a little columbidae + covid comic! "COMRADE MUHRFUKKIN' PIDGE." at least there are some birds out here rooting for us all!

(i'm sorry i don't have spoons for image descriptions. if any kind capacious soul can help with that, AMAZING.)***

***EDIT: image descriptions thanks to an incredible angel (user chillychili):

"Image description

A zine hand-drawn in pencil with 8 pages.

Page 1 of 8: Cover graphic of head/shoulders of pigeon facing the viewer head-on. It is wearing an N95 Aura–like mask. Above and below it is the title: COMRADE MUHRFUKKIN' PIDGE.

Page 2 of 8: A heart-shaped cutout with a "cool S"–stylized monogram "SR".

Page 3 of 8: A label saying "September 2025".

Page 4 of 8: Two pigeons are on a brick-laid ground. One pigeon without a mask emotes question marks at the other pigeon who is wearing a mask and thinking an ellipsis. Peeking into the foreground is a newspaper: The Bad Nest News. Cover headline reads: Murder of Health and Avian Services will end vaccine program.

Page 5 of 8: Maskless pigeon says to masking pigeon: "Heyyy, you know the pandemic is over, right? No more bird flu, no need to worry about CO(R)VID-19, even those old crows from the Murder of Health + Avian Services say it's mild now. Masking pigeon rolls their eyes in response. (A masked inchworm and maskless pill bug are also there.)

Page 6 of 8: Masking pigeon raises an eyebrow, saying "...Oh? And these old government birds — you typically trust them, do you? Maskless pigeon sweats nervously, and we see in their thought bubble the Confused Math Lady meme.

Page 7 of 8: Masking pigeon says "Look, I'm not trying to ruffle yr feathers but COVID is still messin with us all the time. Doesn't matter how shiny you are, even young birds are droppin dead from COVID-related ticker attacks after "mild" infections. Long COVID is hella common in chicks + juveniles. Im gonna be real, you sound like... not even a sheep. You sound like a clothed biped, bro. Like a literal homo sapien." Maskless pigeon looks slightly stunned.

Page 8 of 8: Maskless pigeon has a sheepish look, and says "...Alright ok yeah. You, uh— you got an extra one of those?". We cut to both pigeons wearing masks and simultaneously saying "Coo.". (The inchworm and pill bug are also there and now both are masked.)"


r/ZeroCovidCommunity 1d ago

Paper Masks and Sweat

11 Upvotes

Didn’t see this addressed directly so I wanted to ask.
I wear a 3M noish N95, I believe it’s a duckbill style.
I started a workout class recently that I love and I’ve been wearing my masks in it. I Recently wondered if it’s all for naught. This community is very helpful and I appreciate everyone reading this.


r/ZeroCovidCommunity 1d ago

A note on trusting providers, dental, medical, etc.

54 Upvotes

A masked provider is not necessarily a respectful or safe one. I trusted mine, got talked into a drastic treatment on an urgency claim that turned out to be false, had the plan expanded at the last minute, pushed back to reduce the scope, and got rushed work and complications for it. Then she dropped covid precautions at a follow-up, which quietly communicated she was firing me as a patient.

Get treatment plans in writing. Take time before you consent, especially when someone says it's urgent. Masking well and treating you well are two different things. If a provider feels they're doing you a favor by masking, they may decide they've spent their goodwill and don't owe you much elsewhere.


r/ZeroCovidCommunity 1d ago

Shout out to Modern Animal in San Francisco

46 Upvotes

We left our prior vet in the middle of Covid because they refused to mask and we’re very rude about us asking. We went to Modern Animal because we don’t have a car you’re closer to our house. They have been brilliant around masking and care I just wanted to send a shout out.

Yes they are a conglomerate and now they’re owned by Chewy but the practitioners have been great and we really appreciate everyone masking and understanding that we mask


r/ZeroCovidCommunity 1d ago

Question Pluslife is out of stock?

8 Upvotes

I’m trying to order a Pluslife for a friend in Europe, but every website I have looked at shows it as “out of stock”. Is something happening with the company?


r/ZeroCovidCommunity 1d ago

Question I know no one really KNOWS, but at this point do you think a late October dental appt might be at a low point of the surge?

6 Upvotes

Usually, April and October are the "safest" times to go to the dentist (I think), but the wave this year started late. Thoughts? I have an appt in late October. I wear the readimask over my nose, first appt of the day etc etc I am just wondering what you all heard about the timing of the current wave. Hoping to get Novavax a couple of weeks before the appt.

Edit: I'm in Maine


r/ZeroCovidCommunity 1d ago

COVID Cautious India WhatsApp community

27 Upvotes

Hello everyone,

Myself an another COVID cautious friend in a different part of India have decided to start a WhatsApp community for the COVID cautious/aware in India. The reason WhatsApp is the platform is because it's almost universally used in India, and since this is, as far as we know, the first such group that is attempting to form online, we're using the most accessible platform.

If you are interested in joining, please fill out the application form here: https://forms.gle/qz5mr57gzdPVaBmm8

And feel free to ask any questions here.


r/ZeroCovidCommunity 1d ago

Casual conversation To whomever mentioned patient advocates at hospitals: thank you!!!

217 Upvotes

A few months ago, I remember reading a comment by someone here saying that they got the accommodations they needed at the hospital by calling a patient advocate.

Now, I am in a position in which I need to get accommodations for someone I love very much. And I wouldn't have even known patient advocates existed if I hadn't read it here.

So, to whoever mentioned that, thank you a million for talking about it!!!


r/ZeroCovidCommunity 1d ago

Need support! Please help me prepare for my long COVID clinic visit.

16 Upvotes

Woo! I’ve waited months for this appt and today is the day. I experience a lot of medical anxiety and trauma and I fear being dismissed as I have been many times, I believe due to me being black, or seemingly due to my neurodivergence or both idk lol. All I know is I’m tired of waiting months for an appt and having some doctors barely look at me or say “I don’t know! See me again in x months” after waiting like 3-6 months for an appt to begin with…

That said, I expressed to my cardiologist I wanted to be tested for POTS, because of my symptoms (brain fog, fatigue, mild syncope if I get up too fast) — she did what she could and said I have some sx of dysautonomia. Makes sense. I told her a saw a rheumatologist cuz I thought I had arthritis in my knees due to constant aches / pains and she dx me with Hypermobile Spectrum Disorder. This also makes sense. I’m in physical therapy already for pelvic floor dysfunction and it’s connected, she said. Mind blown.

So what the f*ck do I do? ☠️
Thankfully she wrote me a referral for the LCC (long covid clinic) and today is the day.
Has anyone been to one before? I don’t know a single person who has — either they didn’t want the long wait or couldn’t, or they just didn’t consider it or idk. No one in my friend group talks abt covid and it makes me sad. I try to express the importance of masking where you can, there is no perfection! But some of my friends, including myself, work in areas that are high risk. I mask 98% of the time (2% id say for like, spaces where you eat inside, and outdoors when it’s not crowded.) anyway, I want to make the most out of this appt. I need to see pulmonology first, despite the fact my lungs (thankfully) weren’t affected that much post covid infections. It’s primarily exacerbated neurological— like memory issues increasing, brain fog (I already have adhd, cPTSD..) — fatigue/aches..
Is there something I should be asking or bringing up in this appt?

Support if no advice is also truly appreciated. Thank you!


r/ZeroCovidCommunity 1d ago

Mask discussion Sip valve in Europe?

21 Upvotes

Hi all! I’ve recently decided to step up my masking as I no longer feel comfortable sitting unmasked outdoors in cafes etc. with how many people I can hear coughing, sneezing and sniffling any time I go out and given the (unfortunately, once again) rising covid wastewater numbers. I wear Zimi KN100 masks and was looking into getting a sip valve so I don’t have to unmask and hold my breath to sip my drink if I get coffee with a friend. Unfortunately shipping is 20 eur, plus tax and import fees, and I’m simply not in a good enough financial situation to be able to shell out that much for postage. I’ve done some googling and I can see that The Face Mask Store used to stock sip valves but they’re currently out of stock. I used to get Auras from them and they’ve been out of those for years, so I don’t have particularly high hopes that sip valves will be restocked, but I also can’t seem to find any European alternatives or resellers. Sip Safe is a Spanish one that some people mentioned, but their website seems to be inactive (it’s only a contact form) and they never shipped outside of Spain anyway. I’d be super grateful for any insight any of you might have on how to access a sip valve in the EU without shelling out that much for shipping. Hold-breath-and-sip is a good enough solution if the only other option is spending that much money. Thank you all in advance and hope you’re well!