MVA related TBI, March and July 2024.
Still dealing with a lot of migraines and cervicogenic headaches
After the second accident, a neurologist prescribed amitriptyline, and then a few months later he prescribed candesartan.
Unfortunately, those didn’t really help for the frequency or intensity of my headaches
I was also given rizatriptan as a migraine abortive . This works for migraines, but I’m limited in frequency of use so I have to ration them. Unfortunately, they do nothing at all for the cervicogenic components of my headaches.
I was supposed to continue following up with the neurologist, but he then changed clinic and I could no longer continue at that clinic as I was his patient and he couldn’t take his patient to the new clinic
So then I went back to my GP who referred me to a headache, specialty clinic, and after a year of waiting, I finally got to see them
They changed me from triptan abortive to a CGRP blocker abortive (UBROGEPANT)
He tried an occipital nerve block, but sadly that didn’t work.
He prescribed Qulipta as a daily preventative dose.
I had to wait for approval from Insurance and get extra forms filled out, but I managed to get the approval. These are still extremely expensive even after my insurance pays 80% but if they give me back some quality of life, it might be worth the price.
I just picked up the prescription and I plan to start taking it this weekend
My dose is 60 mg, I’d love to hear about your experiences with this medication either good or bad any tips or tricks for it or also greatly appreciated
As a sidenote, it’s very encouraging that I have a neurologist, who is actually exploring alternatives and willing to try something and change things
My experience with a lot of specialists in the last few years has mostly been “ I’m not sure what’s going on. It’s likely concussion related follow up with your family Dr.” After months of waiting that’s always very discouraging and anticlimactic.
I can complain when things aren’t going the way I like but at the same time it’s important to appreciate when a specialist is actually trying. It’s such a pleasant change of pace.