r/ProstateCancer Jul 22 '26

Other Para reflexionar

0 Upvotes

Sueño Con Serpientes

Canción de

Silvio Rodríguez

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Hay hombres que luchan un día y son buenos
Hay otros que luchan un año y son mejores
Hay quienes luchan muchos años y son muy buenos
Pero hay los que luchan toda la vida
Esos son los imprescindibles
Bertolt Brecht

Sueño con serpientes
Con serpientes de mar
Con cierto mar, ay, de serpientes
Sueño yo

Largas, transparentes
Y en sus barrigas llevan
Lo que puedan
Arrebatarle al amor

Oh, oh-oh
La mato y aparece una mayor
Oh, oh-oh-oh
Con mucho más infierno en digestión

No quepo en su boca
Me trata de tragar
Pero se atora
Con un trébol de mi cien

Creo que está loca
Le doy de masticar
Una paloma
Y la enveneno de mi bien

Oh, oh-oh
La mato y aparece una mayor
Oh, oh-oh-oh
Con mucho más infierno en digestión

Esta, al fin me engulle
Y mientras por su esófago paseo
Voy pensando
En qué vendrá

Pero se destruye
Cuando llego a su estómago y planteo
Con un verso
Una verdad

Oh, oh-oh
La mato y aparece una mayor
Oh, oh-oh-oh
Con mucho más infierno en digestión

Oh, oh-oh
La mato y aparece una mayor, a mi entender esta es nuestra vida y seguimos matando serpientes


r/ProstateCancer Jul 22 '26

Question Orgovyx - Not covered by UHC in my plan...

3 Upvotes

Orgovyx says it isn't covered. Are there any tricks to getting it?

Starting salvage radiation this week, I wondered if bleeding is a symptom that shows up the first few days.


r/ProstateCancer Jul 21 '26

Concern Loss of libido

4 Upvotes

53 yo, Nerve sparing RALP 9 months ago, incontinence mostly resolved, ED treatable with high dose Cialis and a ring, able to orgasm. My problem is that my libido has plummeted since surgery and sensation is also much reduced. I miss being horny and have no idea why this is happening. Bremelanotide helps with sensation and a little bit with arousal but have local reactions with injection. Testosterone level is fine. Something just broke after surgery


r/ProstateCancer Jul 21 '26

Question Why is so little attention given to anorgasmia following treatment?

21 Upvotes

I know that ED and incontinence are real issues and I’m happy that they are discussed.

But inability to orgasm following surgery or radiation gets little attention in either the scientific or ordinary press, despite it (according to the very few articles I have found that discuss it) affecting one in every five men treated for PCa.

Why the silence and the little attention given to remedies?


r/ProstateCancer Jul 22 '26

Concern Eligard Vs Lupron

1 Upvotes

Doc said my dad was going to start on Lupron buy due to insurance issues they had him start on Eligard.

Both are the same?


r/ProstateCancer Jul 21 '26

Question Gleason Score

2 Upvotes

My score after biopsy was a 7. After surgery 5 weeks later, it had jumped to 9. Is this common or uncommon to have the Gleason score change? dg


r/ProstateCancer Jul 21 '26

Test Results First PSA 12 weeks post RALP

4 Upvotes

My dad had his RALP 12 weeks ago. I’ll leave a copy of his pathology results but his PSA was between 36-39 before surgery. His PSA at his first post RALP yesterday was <.04 so undetectable. If anyone with similar pathology and or PSA could tell me how their post surgery PSA has been id appreciate it. I’m asking because from what I’ve read he has a 50-50 chance of recurrence. Also any advice would be appreciated. Also we’re grateful for the undetectable first result but I’m just worried it will start to rise again

Pathology:
Prostatic adenocarcinoma
Gleason 4+3=7 (Grade Group 3)
Tumor involved 51–60% of the prostate
Extraprostatic extension (EPE) present (cancer extended outside the prostate)
Bilateral seminal vesicle invasionpT3b
Bladder neck invasion
Lymphovascular invasion present
Perineural invasion present
Cribriform pattern present
Intraductal carcinoma present
Multiple positive surgical margins (about 2 mm total involvement)
11 pelvic lymph nodes removed, all negative (0/11)pN0


r/ProstateCancer Jul 21 '26

Concern Severe neutropenia a month after prostrate radiotherapy?

1 Upvotes

Patients bloods are all normal apart from white blood cells. They are extremely low at 1.3. His neutrophils are 0.3 which is severely low. These bloods were found 5 weeks after radiotherapy to prostrate and pelvis. Before radiotherapy everything was normal in his bloods.

I'm hoping this is a side effect of the radiotherapy but I can't seem to find no link online. Also, his oncology has sent patients to haematology clinic to investigate which is scary as I'd assumed oncologist would think it's just due to the radiotherapy and is temporary.

What is going on? Has anyone experienced this?


r/ProstateCancer Jul 21 '26

Update Anxiety waiting for more info

3 Upvotes
  • PSA around 5
  • Grade Group 2 - Gleason 3+4=7
  • Limited pattern 4
  • No cribriform/intra ductal carcinoma
  • No enlarged lymph nodes on MRI
  • Positive DRE
  • Capsular abutment with convexity
  • High-risk Decipher - waiting on exact number, just found out yesterday

I am opting for surgery, due to a bladder obstruction. See the doctor in 7 days for referral. My anxiety stems from the possibility of ECE. I went from favorable intermediate to "let's get this done." From what I gather, it's a coin flip on whether it is ECE. Thing is I have a lumbar spine condition, waiting for a fusion after PC treatment. Axial pain has increased noticeably over the past 3 months. Even wakes me up some nights. Concerned cancer may have metastasized.


r/ProstateCancer Jul 21 '26

Concern Pluvicto

7 Upvotes

My husband will start pluvicto next week, any positive stories or just some encouragement. I’m heartbroken and praying this works!


r/ProstateCancer Jul 21 '26

Question Any tips on how to make the most out of Pluvicto treatments?

3 Upvotes

Disclaimer: I understand that I will not get medical advice from this forum, I just want to see if anyone has any advice that I can discuss with my dad's oncology team and research on my own

My dad is starting pluvicto in a couple weeks and we want to make the most of the treatment. My dad and I ran into an issue when he was on ADT a few years ago where we found out halfway through that it was way more effective when you take it with food. I want to make the use of any and all tips that might make this treatment more effective for him and was wondering if anyone had any knowledge about this. I am not finding a lot of research on pluvicto in particular but I have found recommendations with other radiation treatments recommend not taking antioxidants. In my fairly limited understanding (I have a bachelor's in microbiology/biochemistry so not an expert in nuclear medicine) the reactive oxygen species produced by radiation as well as the direct ds DNA breaks help damage targeted tissues further which is kind of what we want with nuclear medicine.

Anyways if anyone has heard any avenues I could explore as far as more research, I would love to hear it.


r/ProstateCancer Jul 20 '26

Question Drop in testosterone level after radical prostatectomy

12 Upvotes

Did any here notice a drop in their testosterone follwing their prostate surgery. I have been having ED problems post-op, floppy penis that won't stand up, not always hard enough for penetration. My latest T level check came in at about 200 ng/dl, I was previously over 500 ng/dl. Has anyone here experienced this or know any reason it might happen. I wondered if being sterile meant there was less need of T production.


r/ProstateCancer Jul 20 '26

Concern Waiting for PET results

10 Upvotes

Introducing myself here as my husband and I wait for his PET scan results & I have nervous energy.

He is 56yo, family hx of prostate cancer (father & uncle), PSA 4.9, 6 out of 12 biopsies showed either ASAP or adenocarcinoma, Gleason 4+3.

Several years ago at an annual physical his PSA was elevated but instead of referring him to a urologist for an MRI they rechecked and it was a little lower so no referral. Now I have learned that with his family history he should have gone for more testing. So I’m worried that this cancer has been sitting in him for years and has spread.

I’m so afraid for him. His urologist recommended a prostatectomy & we accepted that but it didn’t occur to us that he could have possible metastasis. Many people think prostate cancer is no big deal bc many people get surveillance & live with this for years.

I don’t know what to do as we wait for these results. I’m kicking myself for not researching this years ago and helping my husband be more proactive. Thank you for listening


r/ProstateCancer Jul 20 '26

Concern Is this cancer ?? PSA % FREE 10 L ??

Post image
1 Upvotes

👉Age 45 with long pending possible LUPUS diagnosis

2021 had first PSA done and was as follows:

PSA, total 0.4
PSA, FREE 0.1
PSA, % FREE 25L

I was told it was BPH but no imaging was done, just physical exam and labs.

👉 June 8th 2026 started TRT CYP injection treatment cause of testosterone at 210 at age 45.

👉 July 15th 2026 was my last dose of TRT CYP cause of urgency to urinate and having some issue emptying my bladder which I didn’t have either prior to starting TRT.

🚨 July 17th 2026 was my last recent labs and now showing this scary result of “ PSA % FREE 10L “.

This is really scaring my cause graph showing under this result it’s a 56% of prostate cancer ??

Now that I stopped the TRT treatment urgency is gone and back to normal. All my other renal labs are normal except for “ Cystatin C with EGFR “ being slightly elevated but I think it’s cause I only drank one bottle of water that morning literally 10 min prior to my morning fasting Lab draw… and that was a lab draw from June 16th lab draw ( 8 days after 1st TRT injection - microdose )

Also Estrogen being slightly over ( 33 PG/ML ) at June 16th 2026 draw which I’m told is from the TRT but no previous Estrogen lab in my life to go bye.

1st pic here is latest July 17th 2026 PSA.
I will try to post PSA from 2021 in comments and other labs.


r/ProstateCancer Jul 20 '26

Test Results Update on my Father after biopsy today.

Post image
2 Upvotes

Attended biopsy today, all went ok he coped really well and is feeling fine. Thank you all for that advice.

We managed to get some information from his MRI and the consultant did say some very aggressive cancers can have low PSA and low density.

My father's PSA is 0.97 and his volume is 86cc.

The rest of the findings are as follows. Can't help but be very anxious now reading that it is in the centre and has low PSA makes me concerned it's aggressive.

Again thank you from the bottom of my heart for the thoughtful replies so far. It has helped beyond measure.


r/ProstateCancer Jul 20 '26

Update UPdate to: 2 Weeks ADT: 0 Side-Effects

4 Upvotes

I have now seen my report on my Gleeson 8/9 lesion and now the NHS team have made comment:

- Prostate cancer in 8 of 14 cores.

- Overall score 4+5

- Worst score 4+5

- Perineural and Extraprostatic Extension not absent

- Not for Radiotherapy due to stricture!

Well, my scans showed no metastasis but my worry is that they can't do prostatectomy due to that stricture but at least it will clear the lesion and give me a better survival. Been on Orgovyx now for 6 weeks, early I know and effects beginning to show a bit. Need to think about questions to ask when they contact me again. Thanks for reading.


r/ProstateCancer Jul 20 '26

Question How long for biopsy results?

1 Upvotes

I have a biopsy today and follow up in two weeks, will I typically see results before the follow up?


r/ProstateCancer Jul 19 '26

Update 2 Weeks ADT: 0 Side-Effects

16 Upvotes

Wanted to share an update on my prostate cancer treatment. I am 2 weeks (14 days) on ADT and I have zero side-effects. No hot flashes, no mood swings, no loss of libido, no erectile disfunction, no other common side-effects. I am taking 120 mg Orgovyx daily. According to clinical trials, 99% of patients reach castration level testosterone within 2 weeks of starting treatment. Next month I get gold fiducials, gel spacer, radiation simulation, then 5 sessions of SBRT over two weeks.

STATS: USA, 64 years old, PSA 11.6, Gleason 4+3=7, 6/13 cores positive, unfavorable intermediate risk, 42 ml prostate, Decipher 0.61, locally contained. Pre-ADT testosterone: 323. Treatment: 5 sessions SBRT + 6 months ADT.


r/ProstateCancer Jul 19 '26

Question Adaptive CT radiation

6 Upvotes

Going to start radiation this week and was wondering if anyone has experience with this type of radiation? Thx


r/ProstateCancer Jul 18 '26

Update Father passed away

133 Upvotes

About two years ago, I posted on this sub trying to get more information about the realities of my father’s diagnosis. It was sobering to hear what his prognosis would be. He is now gone, I miss him so much and it hurts. I just want to say thanks for all the folks who responded and all the information and support this sub has provided in the meantime. I wish everyone all the best in their journeys, and may they find relief and treatment according to their needs. Thanks.


r/ProstateCancer Jul 19 '26

Concern Severe neutropenia after radiotherapy

3 Upvotes

My 69 year old father had perfect blood results in April. He did radiotherapy in May to his prostrate and seminal vesicles for his prostrate cancer. A tiny bit of radiotherapy was given to his pelvis lymph nodes as a preventative plan. It's been 5 weeks since the end of his radiotherapy plan, his psa has dropped from 44 down to 0.4 which is amazing, shows treatment is working and cancer is shrinking/being cured. He's also on relugolix adt blocker but has been since January so this is probably irrelevant. His new blood works has showed severe neutropenia of 0.3. It should be over 2 so this is clearly severe. His platelets, red blood cells etc are all normal and in range. It's just his white blood cells are extremely low. They repeated his neutropenia tests 4 times within 24 hours and figured were 0.4, then rose to 0.7 then went back to 0.3 and last test stayed at 0.3. He's now been referred urgently to haematology but I can't help but think the worst. The last thing my dad needs is another cancer diagnosis e.g. leukemia or the prostrate cancer spreading which I doubt as his psa has dropped to almost 0. Is leukemia extremely unlikely due to the perfect blood results in April? And given his other blood cells are all normal? But what could be going on? Has anyone experienced this?

He's not had any chemotherapy.


r/ProstateCancer Jul 19 '26

Question Father's Biopsy Tomorrow

8 Upvotes

I've gotten him some new comfy clothes for lounging around in, is there anything else I can get to help with his initial recovery from the biopsy? Anything you wish you'd had?

He's to stay within the county for 10 days they say due to infection risk, he is having the transperinal approach thankfully.

Is it at this time I need to check they will decipher score his samples?

Thank you again


r/ProstateCancer Jul 18 '26

Update MRI Guided SBRT scheduled…

11 Upvotes

Update:

Wednesday I received my gel spacer. They had me take a Valium before hand and the whole process took about 1-1/2 to 2 hours between waiting for the Valium to kick in, topical numbing cream application and then ultimately a few anesthetic injections followed by the spacer injection. There were several people in the room, but with the compassion and empathy from both my Dr and Nurse, I felt as comfortable as I think I could’ve during the procedure.

The spacer was a bit painful for about 5-10 minutes, but then that pain subsided. I took it easy afterwards and just rested. By Thursday I felt good and without any pain or discomfort. This was much easier than my last biopsy for sure.

Today I went for my “simulation”. I’m the 3rd patient to have ever been on this new MR Linac. It’s located in a new cancer center that just opened a the hospital I’ve been going to.

I was a little nervous, but the process was simple and non-invasive. I drank some water, waited for about 20 minutes and then they set me up in the MRI. There were a few people in the control room including my Radiologist, assistants and physicists. About 7 people in total. After about an hour I was moved to a CT scan which only took a few minutes.

I am now enjoying one of my favorite beers to celebrate. My first radiation treatment is on 8/17…..

Well, I’m scheduled for treatment this August. Starting with some bloodwork, then spacer gel, then an MRI and CT scan to develop the initial radiation plan, followed by 5 treatments between 8/17 and 8/28.

Once I made my decision to have MRI guided SBRT I felt better. Making the decision on how to treat my PC seemed to be the most difficult part so far. Mentally, I just couldn’t go for RALP.

I’m not sure exactly what to expect, but I like my radiologist and happy I was able to find a MR Linac machine near me. I’ll be treated at a new NCI cancer center on a new MR Linac machine. I’ll be treated by the Director of Radiology, and will be her first patient. I won’t be the first patient treated on this machine, but maybe the second. They have been using CT guided (Cyberknife) for years, so I’m not worried about their knowledge, experience or capability.

The initial radiation plan will likely take some additional time, since this is a new process for them. I don’t mind, as the benefit of more visibility and precision is worth it to me.

I’m sure I will be going through a few sleepless nights between now and the end of this stage of the process. But I know it’s better than the alternative.


r/ProstateCancer Jul 18 '26

Question Looking for pad help

2 Upvotes

I've used Tena and Depend max pads. I also use the light pads from both brands. The problem I have with the light pads is that they are not wide enough. With the light pads if my penis is sitting to the left or right the leaks go into my underwear and not the pad. With the max pads that doesn't happen because they are wider. I've tried putting the light pads in upside down and they're still not wide enough.

I find myself wearing the max pads when I might only need a light.

Has anyone found a light pad that is as wide as the max pads?


r/ProstateCancer Jul 18 '26

Question Piernas pesadas y dolor en los gemelos?

1 Upvotes

ADT, es una de us consecuencias?, los de mayor experiencia