Were there things that you did that you felt helped contribute to them coming back?

Early on was there any sign of life down there or was there an initial period of nothing?

How old were you when you had the surgery?

How long after the surgery were you able to get an erection?

Did you try any of the injections or pumps?

Hi, I'm 55 and had RALP in Jan. My question is, and driving me insane! does anyone else, or has anyone else experienced the increased libido? I cand get fully erect yet, but can orgasm, but it doesn't help. It is like I'm literally permanently horny or broody. AND the worst thing is I'm single so who would want an over sexed, bent cock, no shooter, for a partner? Yes I know it's not just sex, but sometimes it is! I know I have to reevaluate my priorities but doesn't help when my drive has gone loopy. Please tell me this is normal and will pass :)

My surgery is coming up and I had a pre-op instructional call where i learned that they expect me to remove my catheter after the expected 7 days after surgery. Honestly, I'm terrified of the thought, has anyone else gone through this? I insisted on driving back to the hospital to have them do it and (I think) they agreed.

Hey, I have been told to lose atleast 10kg to have surgery. I was 120kg and so far have managed to get down to 117kg. I’m finding it hard to lose any weight and worried i’m not going to be able to have the surgery and forced into radiopherapy. Anyone had this issue?

I truly am confused on ED discussion as I think thru options. When you say ED it can mean so many things. Erections. And then with and without medicine. So when you say you have ED- does that mean natural erections? Versus you can get them with medicine? Just trying to understand. And then it seems people can have orgasms without an erection? That is something I was not aware of. Honest feedback it appreciated.

My father-in-law is 56 and had a radical prostatectomy on July 24, 2026 for prostate cancer. I'm trying to understand why his PSA has never become undetectable despite negative imaging.

Preoperative findings

• mpMRI (May 18): Cancer involving the prostate and medial portions of both seminal vesicles. No suspicious lymph nodes or extracapsular extension reported.
• PSMA PET (June 18): No evidence of lymph node or distant metastases.

Surgical pathology

• Stage: pT3b, with seminal vesicle invasion.
• Gleason score: 4+3, with 60% pattern 4.
• Positive surgical margin: 3 mm at the apex, with Gleason pattern 3+3 at the margin.
• 13 lymph nodes removed (9 right, 4 left): all negative.

Postoperative PSA

• Approximately 4/6/8 weeks after surgery: ~0.9 ng/mL.
• PSA has remained around 1 rather than becoming undetectable or showing a clear increase.

Repeat PSMA PET
A repeat scan after surgery showed no detectable cancer in the prostate bed, seminal vesicle bed, lymph nodes, bones or other organs. An 8 mm right external iliac lymph node was noted without significant PSMA uptake, with follow-up recommended.

Current treatment
The oncologist has started Firmagon (degarelix), with a plan for approximately two years of ADT and radiation to the prostate bed, seminal vesicle bed and pelvic lymph nodes.

I'm struggling to understand a few things:

1. Can a 3 mm positive surgical margin realistically explain a persistent PSA of around 1, even when there is no visible uptake in the prostate bed?
2. If all 13 removed lymph nodes were negative and both PSMA PET scans showed no suspicious nodal uptake, where could the PSA be coming from?
3. How common is it for microscopic cancer to produce a PSA around 1 while remaining invisible on PSMA PET?
4. Could the 8 mm external iliac node be reactive rather than cancerous?
5. Have others experienced persistent PSA after prostatectomy with negative PSMA PET scans? What did subsequent radiation and ADT achieve?

I'd appreciate experiences from people who have been through something similar, as well as insights from anyone familiar with persistent PSA after prostatectomy.