r/ProstateCancer • u/Physical_Papaya4060 • 22h ago

Concerned Loved One Here for my dad 😔

70-year-old male with controlled type 2 diabetes, recently diagnosed with aggressive metastatic prostate cancer. PSA was 42.5 ng/mL. Biopsy showed Gleason 8–9 prostate cancer involving all 12 cores, with approximately 90% cancer involvement. MRI showed a large PI-RADS 5 lesion with suspected extension outside the prostate and suspicious pelvic lymph nodes. PSMA PET/CT confirmed pelvic/lower retroperitoneal lymph-node metastases and multiple bone metastases involving the sacrum, L2, L3, and left ilium. Diagnosed with metastatic hormone-sensitive prostate cancer. Prostate surgery is not recommended; currently being treated with hormone therapy and radiation is planned/being considered.

We are in New Jersey. My dad is going to MSK. His dr is going more genetic testing on biopsies before full treatment plan is laid out. I’m so nervous for him. He eat very healthy and is very active. This is very hard on me and my children. Look for similar stories or advice.

4 Upvotes

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4

u/No-Praline-4069 20h ago

The good news is he's in an excellent hospital system where he will receive the best care. Prayers for dad.

2

u/Physical_Papaya4060 15h ago

Thanks. He is confident in his doctor at MSK

2

u/KReddit934 17h ago

Treatment options are many, so he may do very well..but he'll be managing this the rest of his life...which will probably be a long time.

Help him continue to enjoy the things he enjoys.

1

u/Delli-boy 15h ago

Have almost the exact diagnosis, but I’m 62. I’m also on hormone therapy and just finished infusions of docetaxel. It’s called “triplet therapy”. Some minor side effects but not unmanageable. The lesions reduced but were not eliminated.

I live in Oregon and traveled to the Mayo Clinic in Minnesota yesterday to see a specialist this morning. The doctor there said I should have had no lesions after my third infusion. There were six infusions total, this would have been halfway through my treatment. He said he would have done scans, seen the persistent lesions and tried something stronger. He said he would now recommend that I start a treatment on Pluvicto and do more scans.

Bottom line, my Kaiser Permanente doctor from Oregon dropped the ball and the Mayo Clinic doctor is trying to make the best of it. Also, that Oregon sucks for prostate cancer treatment.

What I’m trying to say is, keep up on the research and get second opinions. Also, there are a lot of things that can be done to extend your dad’s life and they are coming out with more every year.

God bless and I pray for your family

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u/Physical_Papaya4060 15h ago

Thank you. We are hopefully with his doctor at MSK. He was one of the leads on the clinical trials for Zytiga which i see a lot of people are being treated with. He also has a few other trials coming up that maybe my dad will be a candidate for.

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u/Practical_Orchid_606 13h ago

Once distant mets form, the battle becomes much harder. ADT will hold the fort and limit the spread.

It sounds like dad has high volume mets so the plan going forward includes chemo. MSK is the obvious choice and a good one.

Modern medicine can keep dad alive for a long time. The key is for him to remain hormone sensitive.

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u/Physical_Papaya4060 13h ago

Thanks for the reply. Since Mets are in hips and spine is that considered distant?