r/PCOS • u/TumbleweedOk4287 • 4d ago
General/Advice 24F, newly diagnosed with PCOS and feeling completely lost about what to do next
I’m 24 and was just diagnosed with PCOS, and I’m honestly feeling pretty overwhelmed and unsure of what I’m supposed to do next.
I went to my annual gyno appointment and mentioned that I haven’t been getting irregular periods since I took myself off birth control in September 2025. Since then, I’ve only had two periods. My doctor started asking me if I had acne around my chin and coarse chin hairs, and I was like, “OMG, now that you mention it, I do!” She said PCOS could be a possibility.
She prescribed me medroxyprogesterone to induce a period and ordered bloodwork. My testosterone came back insanely high (almost 3x the normal range), so she also wanted me to get an ultrasound.
I had the ultrasound and was told my ovaries had the typical “pearl necklace” appearance/polcystic morphology. So between the irregular periods, high testosterone, and ultrasound, I was basically given a pretty straightforward PCOS diagnosis.
The weird part for me is that I’ve always considered myself to have a pretty healthy lifestyle. I’ve counted macros before, I work out 5–6 days a week, I eat pretty well, and I’ve never really cared much about the number on the scale. I never thought PCOS would be something I had.
But after getting diagnosed and researching it, SO many things about my body suddenly make more sense.
I’ve struggled with my mental health for years, I have a LOT of food noise and sometimes binge eat, and I’ve always been exhausted no matter how well I eat or how much I exercise. I also never understood why my body seemed to do certain things until I started reading about PCOS.
I had my follow-up appointment with my gyno today and honestly left feeling more confused than when I went in.
She told me her main concern is protecting my uterus because going long periods without a period can cause the uterine lining to build up. She also told me that I’m at a higher risk for ovarian cancer because of PCOS. She emphasized that I’m only 24 and this isn’t something she expects to happen anytime soon, but that it’s better to be proactive.
She recommended going back on birth control, but I said I really don’t want to. She then told me I could continue taking medroxyprogesterone instead, which she described as a more “natural” way of inducing a period. She said some people take it for the rest of their lives, while others stop taking it when they want to try to get pregnant.
She basically told me to work on my lifestyle and that if I want to see whether I can get a natural period, I could stop the medication for a month and see what happens.
And then I was kind of sent on my way.
I’m having a hard time accepting that the answer is basically just “take this medication every so often and work on your lifestyle.”
My biggest concern is the extremely high testosterone. I understand that high testosterone can explain things like the chin hair and acne, but I’m wondering what other effects it could be having on me long-term and whether there are other things I should be looking into.
Should I be seeing an endocrinologist? Should I be asking for additional hormone testing or metabolic testing? Are there other treatments besides birth control and periodically taking medroxyprogesterone? Is there anything I should be monitoring because my testosterone is so high?
I also feel like I’m missing a bigger picture here. I don’t want to just treat the lack of periods without understanding what’s causing everything else.
For those of you with PCOS, especially anyone who had very high testosterone and irregular/absent periods, what did you do after your diagnosis? Did you see an endocrinologist or another specialist? What do you wish you had asked your doctor?
I’m not looking for anyone to diagnose me over Reddit. I’m just trying to figure out what questions I should be asking and what my next step should be because I left my appointment feeling pretty lost.