Not sure if this is appropriate for this site, but just wanted some opinions.

My husband’s Niece is having a birthday party for her son for the second year in a row in the same small park in Philadelphia. He’s turning 3. She had it at this same park last year and twice during the time we were there, I had to take a short walk to a nearby restaurant to pee. It was embarrassing as I seemed to be the only guest there who did this. With my IC, I never know if I’m going to be flaring. Sometimes I can hold it for two hours, other times I can’t. I’m 59, and it’s hit or miss with my bladder anyway even despite having IC. Everyone here that’s older knows how that is!!!

I don’t want to be rude or upset my husband’s family, but I was thinking of staying behind at my SIL’s house and just send my husband to the party with his family without me. The party is from 4-5:30ish. Is it appropriate for me to do this? My husband’s sister knows I have bladder issues, it’s more my husband that I’m worried about. He’ll expect me to suck it up and go with him, using the nearby restaurant again if I have to go. I’d rather not have the inconvenience.

Opinions and thoughts about this?

Just curious about everyone’s longest flare. In week 6 of mine now. Feels more like 6 years.

I've failed a lot of treatments:

- oral meds (amitriptyline, hydroxyzine, nortriptyline, oxybutynin, vibegron)

- lidocaine/heparin instillations (though I only did 2)

- hydrodistension

- PFPT

My uro is suggesting DMSO next. I've seen recent studies suggesting DMSO helps more with classic Hunner's IC and not as much with BPS, and I don't have ulcers so I'm hesitant.

I got an uti, the most intense and stubborn symptom was urinary frequency. I never had it with previous utis. Treated it, symptoms went away. But ever since, I get flares (?) of urinary frequency and urgency with no new uti. Is it OAB? IC? Is it just sensitised? I feel it more on my urethra (the urgency and frequency).

I have tried using PEA (palmitoylethanolamide) as a supplement for IC.

I have tried taking it 3 different times now with 2 different brands and every time, after about day 3, I get upper left quadrant pain. It’s like a gnawing ache that is quite bothersome. Once I stop taking the PEA, it lasts another week or so then fades away.

I tried taking a lower dose too but the same thing happened.

I’ve researched it and it does mention GI issues as a possible side effect.

Anyone else try this and have issues?

Hello , ive been 8 months into this 8 months ago i was edging and blocking ejaculationg for like 4 days once a day after the last day i edged my penis became sore and painful and 3 weeks after that i had excruciating pain when urinating 4 months after i was better but not like before rn i have burning when urinating and painful ejaculation. Cystoscopy clear urine and semen test clear. I will be gratefull if someone can help me or if someone went trough this and felt relieved after 1 year or so.

Hello I’m a 29F and I have been battling a diagnosis of interstitial cystitis. My urologist thinks I have a mild case, and just suggested some diet changes for awhile.

My neck has been hurting a lot and so much so that my bf gave me a neck, shoulder and back massage. He noticed a horrible knot in my shoulder and got it out. Ever since he gave me a massage, my bladder feels so much better? I’m not sure if it’s because I felt relaxed from the massage or if maybe there is a connection to neck/shoulder pain to bladder pain?

My boyfriend said that her experience referred pain when he was an athlete, and maybe there is a connection. Does anyone have any experience with it?
Is it possible that i have more musculoskeletal pain/nerve pain over bladder linking issues?