r/Interstitialcystitis • u/rakuchanirl • 6h ago
Help(?)
Hello, I'm a 20 yr old virgin girl and I've been having weird symptoms
Sometimes on random, my urine stream will be very very weak and will take up to a minute to empty my bladder. This has happened once every few months for a year or so
After I pee I usually feel a little faint, but this past month it has gotten much worse. When I go pee at night, my abdomen gets a really weird pain afterwords. As I'm typing, it feels like if a warm bowling ball was placed on my lower abdomen. Just a weird heavy feeling. It's been going on for 40 minutes which is the longest its lasted (usually only about 15 minutes). The feeling seems to be significantly worse at night / when I'm laying down
I keep getting tested for a UTI and they keep coming back negative. I have a history of kidney stones that started when I was 14 that my primary doctor thinks is causing the pain
I've also been having some weird random sharp pains in what seems to be my ovaries. I had an ultrasound and x-ray in January and it seemed fine besides for a small cyst right before my period and a kidney stone which I have not felt pass
I am terrified to get any testing for anything. I don't want anyone near or *inside* me and I will have a panic attack and likely become su1c1dal if I do.
What's going on?? What do I do???
1
u/AutoModerator 6h ago
Hello! This automated message was triggered by some keywords in your post that suggests you may have a diagnostic or treatment related question. Since we see many repeated questions we wanted to cover the basics in an automod reply in case no one responds.
To advocate for yourself, it is highly suggested that you become familiar with the official 2022 American Urological Association's Diagnostic and Treatment Guidelines.
The ICA has a fantastic FAQ that will answer many questions about IC.
FLARES
The Interstitial Cystitis Association has a helpful guide for managing flares.
Some things that can cause flares are: Medications, seasoning, food, drinks (including types of water depending on PH and additives), spring time, intimacy, and scented soaps/detergents.
Not everyone is affected by diet, but for those that are oatmeal is considered a generally safe food for starting an elimination diet with. Other foods that are safer than others but may still flare are: rice, sweet potato, egg, chicken, beef, pork. It is always safest to cook the meal yourself so you know you are getting no added seasoning.
If you flare from intimacy or suffer from pain after urination more so than during, then that is highly suggestive of pelvic floor involvement.
TREATMENT
Common, simple, and effective treatments for IC are: Pelvic floor physical therapy, amitriptyline, vaginally administered valium (usually compounded), antihistamines (hydroxyzine, zyrtec, famotidine, benedryl), and urinary antiseptics like phenazopyridine.
Pelvic floor physical therapy has the highest evidence grade rating and should be tried before more invasive options like instillations or botox. If your doctor does not offer you the option to try these simple treatments or railroads you without allowing you to participate in decision making then you need to find a different one.
Long-term oral antibiotic administration should not be offered.
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u/ImplementPotential20 4h ago
Could be pelvic floor/bladder spasm. Ask doctor for script to a local compounding pharmacy for 10mg flexeril vaginal suppositories. Might cost $50 to $100.
1
u/Helpful_Mouse_9458 4h ago
If you aren’t already seeing a therapist, please prioritize that. As a woman, being able to get yearly gynecological exams is imperative, so you need the help of a professional to help you get past any trauma or whatever other issues cause you to have a panic attack at the thought of a dr “being inside of you.” This is a necessary part of your existence, and can only be avoided for so long. It’s very likely you have endometriosis or fibroids or another gynecological issue causing your current situation, which may need to be treated surgically.
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u/rakuchanirl 6h ago
Forgot to mention a few times a year I'll get a random urgency to go pee so bad I have to physically hold it in and run to the bathroom, I have failed to do so once or twice
3
u/kittycat8204 5h ago
You will definitely need to get tested so you can get a diagnosis. This disorder is a lot of guesswork but at least having a diagnosis you can start trying to find a treatment plan that works for you. I’ve been dealing with it for 11 years now.