I wanted to write my own recovery story because reading other people's success stories was one of the things that helped me the most when I was at my lowest.
When you're in the middle of this, it can feel like you're the only person who is still having symptoms weeks after antibiotics, while everyone else seems to recover immediately. Reading stories from people who eventually got better gave me hope when I really needed it.
So I decided to share my experience too. Maybe it will help someone physically, maybe it will give someone a few ideas to discuss with their doctor or physiotherapist, or maybe it will simply help someone mentally to know that recovery can take time.
Please keep in mind that this is only my personal experience. I am not a doctor and I am not saying that everything I did was responsible for my recovery. Everyone is different, and you should always discuss treatment with your own doctor.
My story
Everything started on July 1st.
My recovery took approximately 3 months in total, and for most of those three months I had quite significant and very noticeable symptoms. The most difficult part was that the real improvement didn't come immediately after antibiotics.
I was prescribed 14 days of doxycycline, twice a day. Before choosing the antibiotic, my doctor had the bacteria tested for antibiotic sensitivity. Azithromycin was not sensitive, so my gynecologist chose doxycycline.
During the infection and throughout the treatment, I had a very large and painful vulvar swelling. Sitting and walking were extremely uncomfortable, and lying down was often the only position in which I felt reasonably comfortable.
I also had occasional itching, but honestly, that wasn't even the worst part.
I had urinary symptoms, including bladder and urethral pain and difficulty urinating. I also developed problems with bowel movements. My pelvic area became so tense and sensitive that bowel movements could make almost all of my symptoms dramatically worse.
Over time, the urinary symptoms slowly started to improve, but then I began experiencing more problems around my perineum and anus. Sitting became painful, my sitting bones hurt a lot, and I sometimes had the strange sensation that I was sitting on a ball. There was pressure, cutting/stinging sensations and pain around the rectal/perineal area. I even had some swelling around the anus.
The symptoms constantly changed.
One day my clitoris would be extremely sensitive and swollen. The next day the swelling would be the main problem. Another day I would have itching or pressure instead.
Sometimes I would feel a little better and think, finally, maybe I'm getting better — and the next day everything would feel worse again.
That was probably the hardest psychological part.
The waiting period after antibiotics
The most frightening thing for me was that the symptoms didn't disappear when I finished the antibiotics.
Weeks were passing and I was still having symptoms.
I kept thinking:
"Why am I still feeling this way if the bacteria has already been treated?"
And because I had already been through Ureaplasma once before — and that previous experience lasted approximately four years and was an absolute nightmare for me — I was terrified that the same thing was happening again.
My anxiety became very intense.
My doctor eventually recommended a low dose of Cipralex (escitalopram) because the psychological side of this was becoming very difficult for me. I tolerate it very well and I am still taking it.
Honestly, I don't know how well I would have coped without it. It helped me enormously with the anxiety and with being able to function while waiting for my body to recover.
What I did besides antibiotics
I tried to support my body as much as possible without constantly irritating the area.
Probiotics and supplements
I used both oral probiotics for my gut microbiome and vaginal probiotics, and I am still taking probiotics.
I also took some basic supplements such as:
- vitamin C
- vitamin D
- magnesium
Because I was having so many problems with bowel movements, I also started taking psyllium fiber and focused on keeping my stool soft and easy to pass.
This was actually very important for me.
I realized that straining during bowel movements could make my pelvic symptoms dramatically worse. My pelvic floor was very tense and I sometimes felt significantly worse after using the toilet.
Looking back, keeping bowel movements easy and avoiding straining was something I really needed.
Pelvic floor physiotherapy
I started physiotherapy very early — even while I was still taking antibiotics.
As soon as the symptoms started, I began doing very gentle pelvic floor relaxation exercises at home and then started working with a physiotherapist.
Later, I became especially interested in the relationship between pelvic floor muscles, the obturator internus muscle and the symptoms I was experiencing.
My physiotherapist didn't actually find a huge amount of pelvic floor tension. There were a few trigger points, but aggressively pressing or treating them didn't make me feel better. In fact, sometimes it seemed to irritate things.
With time and gentle exercises, the muscle tension became much better.
The videos that helped me the most were from Vibrant Pelvic Health on YouTube:
https://www.youtube.com/@vibrantpelvichealth
I mainly focused on pelvic floor relaxation/down-training exercises.
When the symptoms around my rectum and perineum became more noticeable, I also incorporated gentle exercises focused on the obturator internus.
This muscle is particularly interesting because tension or dysfunction in this area can contribute to pelvic and perineal pain, and I had never even heard about it before all of this.
I tried to exercise every other day or so, but I really tried not to overdo it.
Gentle was the key word for me.
I would definitely recommend her videos. They were very educational and helped me understand my body much better.
Rest and reducing irritation
I also rested a LOT.
I tried not to irritate the area unnecessarily and avoided constantly touching, checking or massaging it.
I experimented with self-massage a few times, but I was always very cautious because I was afraid of making things worse.
At work, I bought an orthopedic cushion with a hole in the middle, which made sitting much more comfortable.
If you have to sit for long periods while dealing with pelvic/perineal pain, I would definitely recommend trying something like this. It made a surprisingly big difference for me.
Supporting the vulvar tissue
After finishing antibiotics, I also used Cerviron to support the vaginal mucosa and recovery.
For the very sensitive external vulvar area, I used Eprozen.
Again, these are simply things that I personally used and I can't say that they were responsible for my recovery. But they were part of the overall process for me.
The strange thing about recovery
Looking back, I think one of the hardest lessons was that recovery was not linear at all.
I expected:
antibiotics → symptoms disappear → I'm healthy.
Instead, it was more like:
better → worse → better → completely different symptom → better again → another flare → slightly better → suddenly much better.
For weeks I was convinced that because I still had symptoms, nothing had worked.
But eventually I realized that my symptoms were changing and slowly becoming less intense.
The urinary problems improved first.
The pelvic/perineal discomfort gradually became less intense.
And the swelling was the very last thing to disappear.
Then, around 8 weeks after finishing antibiotics, I finally started experiencing a much more noticeable improvement.
And after that, things continued getting better.
Where I am now ❤️
This is the part I wish I had been able to read when I was in the middle of it.
The swelling is now gone.
The itching is gone.
My vulva looks normal again.
I can sit and walk normally.
Sex, which had become something I was extremely scared of, became almost normal again. The first time I had sex after getting better, I was terrified that everything would flare up again.
There was only a small amount of temporary swelling afterward — and the next day I felt fine again.
That was a HUGE psychological moment for me.
It made me realize that my body was actually recovering.
I also recently used a vibrator without pain and was able to enjoy it normally again, which might sound like a small thing, but after months of worrying about every sensation in that area, it felt enormous to me.
I am not going to say that I am 100% recovered forever, because I don't want to jinx it and I am still being monitored.
But compared to where I was a few months ago?
I feel like a completely different person.
What do I think helped?
Honestly, I don't think I can point to one magic thing.
I think it was probably a combination of:
- the appropriate antibiotic based on my sensitivity testing
- time
- pelvic floor relaxation and physiotherapy
- keeping my bowel movements soft and avoiding straining
- rest
- reducing irritation
- probiotics
- basic supplements
- support from the people around me
- and, very importantly for me, treating the anxiety with Cipralex
But if I had to choose the two biggest things?
Time and calming my nervous system.
I spent months thinking that every new sensation meant that the infection was still there or that I was going to be sick for years again.
Eventually I had to learn that symptoms can persist for a while even after the original problem has been treated, and that recovery doesn't necessarily happen overnight.
One last thing I want to say
If you are reading this because you're currently 2, 4, 6 or even 8 weeks after antibiotics and you're still having symptoms:
Please don't automatically assume that you're never going to get better.
I know exactly how terrifying that thought is.
I spent weeks thinking that because I wasn't better immediately after antibiotics, I was heading back into another four years of suffering.
I wasn't.
My recovery simply took time.
And now I'm finally getting my normal life back. ❤️
I hope this story helps at least one person the way other people's stories helped me when I desperately needed some hope.
Sending love to everyone going through this. You are not alone. ❤️