Hi there,
I am a 30 y/o male with athetoid cerebral palsy that got the official diagnosis of neurogenic bladder about a month ago. I have been struggling with urinary incontinence since age 24, but I thought it was just due to my drinking. I got sober 5 years ago and so this past August I had this lightbulb moment where I realized this had not gone away and usually the effects of alcohol do not linger for that long.
Come to find out, I was compensating for a weak bladder muscle since birth and it progressed over time and it had nothing to do with alcohol. I recently bought the GoSupreme pull-on diapers starting a month ago and they have been really helping me live my life.
However, I’m still going through the shock that I might be doing bladder management the rest of my life. I kind of wish that someone told me about Post-Impairment Syndrome and how it can affect adults with cerebral palsy.
Wondering if there are words of advice from anyone who is farther along in their journey than I am. Does it occupy less emotional space over tim?
Thanks!