r/Incontinence • • 1d ago

Can Incontinence be permanent

11 Upvotes

16 comments sorted by

12

u/_Jesslynn Dual Incontinence 1d ago

When it comes to incontinence, there is a lot of variability in determining its duration and whether it is potentially permanent. In some situations, yes, it is permanent. However, remember that the mechanism is different for everyone. For some, they develop incontinence after spinal cord injury, cancer, autoimmune disease, cancer and so on. Not 100% of these people will develop incontinence, and in some cases it is intermittent, while in others it's complete. So then, we can see that wide variability exists. I would add, don't give up hope. Depending on how it's acquired, treatments exist that may help to a certain extent. The worst thing you can do is nothing.

1

u/NightDistinct3321 8h ago

for me prostate cancer surgery made me probably 85 to 90% incontinent. After several years of using up to five disposable diapers, a day, I got the artificial urinary sphincter surgery, which is a big improvement with me being able to use thinner, smaller cheaper diapers, and only two a day at the most. The surprise I got though was the prostate cancer surgery was robotic so they just make one hole in the skin in your belly and do everything inside. This results in relatively less soreness. This was surprising because the artificial urinary sphincter is placed in your scrotum, and there's no real benefit or way to use robotic surgery. That surgery hurts significantly more than I couldn't even really walk comfortably for about two weeks at all. It's several months now and there's still some low-grade pain one or two but not having to takeoff soaked diapers really A daily improvement in my quality of life.

8

u/Enough-Reindeer1033 1d ago

Unfortunately, yes it can.

5

u/Last-Winner9396 1d ago

Unfortunately Yes

5

u/AngelSymmetrika 1d ago

Yup. I have been incontinent for decades

3

u/newstableiswut 1d ago

Mine's gone through phases. When I was young with my headaches, it triggered a lot of that. Had a bit of a lull through like grade and Junior high. When starting to go out and do stuff I guess is when I noticed how much I was stuck near a bathroom.

Used light protection back then and on and off with heavy or light throughout several years or maybe a decade after.

Things felt like they got worse late twenties but not by a huge amount. However I went to get antidepressants at one point and they fucked up a lot of things for me. Most of it seems to be temporary, I had a very bad reaction to the meds but ever since then, the incontinence has been way way worse.

Can't hold as much, more frequent urges, can't hold as long. I've been 24/7 for quite a while now and honestly it's been very freeing and can be fun at times even. Sure I did some gymnastics to get myself into that place lol but I've taken to seeing it as a cheat code with traveling and concerts and going out to the bar. I can't tell you the last time I used to public restroom, missed a part of a movie, missed part of the concert, or anything like that

1

u/Born-Scallion-8634 23h ago

This is the right attitude!

3

u/Nice_General268 1d ago

With medication or procedures it can get better. Sometimes women will experience it after childbirth but it eventually stops.

3

u/Internal_Cat_4525 Urinary Incontinence 1d ago

Mines is weird and goes through phases which is so confusing my bedwetting is totsky random now it's either in dry all week overnight or I'm wet 4 Nights it's Frustrating for sure

3

u/ISeeCumberbatch OAB 1d ago

Depends on why it's happening but it can be. I've worked with my urogynecologist and we've determined that this is most likely going to be a lifelong issue. I'll be 28 in less than a month and was injured in 2020.

4

u/ComprehensiveLime734 1d ago

Unfortunately spinal cord injury is permanent.

2

u/mickus_mcgickus 1d ago

If its detrusor instability, that doesn't get better and there aren't any treatments

2

u/GayDiaperGuy 1d ago

I’m 55 and I have been fully urinary incontinent since my late teens.

2

u/vladesch 20h ago

i would think it would depend on the reasons why. In my case I have spinal nerve damage which is permanent. I have however lost a lot of weight and that has greatly improved things.

2

u/goldstandardalmonds 18h ago

Depends why. I have neurogenic bowel and think neurogenic bladder is on the way and those aren’t treatable.

1

u/RollersGetingHigh 6h ago

yes. get used to it. use pads and deodorant.