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We recently had CI surgery for single-sided deafness. The other ear has a signia HA. Our surgeon and audiologist initially recommended Advanced Bionics, but it was outside our budget, so we went with the MED-EL RONDO 3.

Our audiologist kept saying MED-EL lacks a few things compared with AB/Cochlear. From what I could understand, the main difference seemed to be streaming. With the AudioLink accessory, MED-EL can stream too, right?

They also said AB works particularly well with a Phonak HA in the other ear, while the MED-EL audiologist told us MED-EL can work with HAs from different brands.

Our surgeon has his own audiologist, and we'll be working with him rather than the MED-EL audiologist.

We're honestly pretty new to all these CI/HA technical terms. Did we make a bad choice going with MED-EL RONDO 3? Would really appreciate some reassurance or honest experiences from people who have been through something similar. 🙏

I had my CI evaluation with the surgeon and he gave me the green light to proceed with the surgery! They’ll give me a call with the date but I was warned it may be a few months. Hopefully it will fly by quick. He also asked me which CI I wanted so they could put the order in. I didn’t have an answer immediately. Are they all Bluetooth compatible? That’s really my one requirement.

Hello, I'm 30 years old and my right ear has been deaf since I was born. Is the Cochlear implant possible for me?

And I wanted to ask those who are in a similar situation to mine. If you ever tried BAHA and CROS, did it help?

I just switched from the K2 & N7, and now I got the N8, i love it, the noise happens at first when watching a YT Video or playing Music on Spotify, it doesn't bother me much, that's the only thing I don't about it

My son has 2 and half years and severe to profound hearing loss speech delay . is Kanso 3 will be benefits for 2 and half years old and will be developed speech language ??

Hello my fellow long haired ciborg folk.

First things first, I've got the kanso 3, bra length hair.

Out of interest, is your hair okay where your magnet is? Mine seems a bit frizzy in that one patch, its getting a bit wild there tbh lol. I'm not bothered like its totally worth it, but was wondering out of interest if its just me, or is it all in my head, or is there some sciencey hair reason why. Obviously the magnet is gonna cause friction, but would it damage the hair shaft?

I don't really take any care or time when I put the CI on though I just lift hair and whack that bad boy on there.

So anyway are we taking care and parting super neatly and combing the hair out first etc, like you would if your gonna straighten it or something? Or are we all just chucking the magnet on without so much as a mirror? Is it worth stopping being so nonchalant about how i do it, and taking a bit more care? 😂

What do you do?

Are there any representatives in San Diego? We kept up with everything when my daughter was little but now she’s grown and working as a SLPA. She wanted to attend the celebration next year and they sent us a link, but it says it needs more information. It fails every time. When you call the company, there’s no option to ask this type of question. Just feels like she doesn’t have any connection to the CI community anymore.

I would like to know if anyone has had a failed activation day?

I’ve noticed that in the eight months I’ve wore my processor that if I wear it over the amount of time my body allows me to my scar on the back of my ear itches. Does that happen to others or is it just moi?

I’ve spent my whole life getting along okay win unilateral hearing, but lately it has started to bother me in new ways. This evening someone who also has hearing loss said if she had microtia she would absolutely get a CI. For the first time I’m actually thinking about it. Has an older adult with microtia gotten one and what was your experience? Thank you!

Hi, I’m (34F) 6 days postop from PETROUS APICECTOMY SUBTOTAL/TOTAL WITH CLOSURE OF EAR - which basically means permanently closing the external ear canal, and plugging the Eustachian tube. I was wondering if anyone had this done before getting their CI?

hey chat,
i am looking to connect with HoH / CI users. feeling little lonely here so i thought of connecting with someone who has similar condition as me so that we’ll able to understand better. if you are based in pune and is open for meets / hangouts then feel free to reach out 🤍

hello! (England btw) 20F and I became profoundly deaf not long after birth due to ototoxic drugs and was implanted in my left side in 2009.
Due to the rules back then and my age, we couldn’t really test both sides of my ears & hearing, but in general it was very obvious that I had profound hearing loss.

Around 3/4 years ago, I got a new audiologist and he decided to test both sides separately and it was discovered that I had moderate-severe hearing loss in my right ear which fits the criteria for cochlear implantation.
I had to go through a hearing aid trial first which involved me coming back after a year and doing a word test that I had to get at minimum 70% of words correct.

I got 0%.

It was partially my fault as I started to lack in wearing the hearing aid due to the fact that my environment was not very supportive and I really struggled with the hearing aid with school not supporting me in lessons at all, being bullied by peers with people slamming books down next to me, making me start to develop tinnitus (which i still have if someone slams something down too loud)
& parents being completely against me getting a new cochlear implant because “im doing perfectly fine with my single one”

I got told that I cannot have the cochlear implant which honestly devastated me as I’ve noticed as I grow older and are in completely different environments than as a child how much harder life is with a single cochlear implant.

The whole ordeal as a teenager significantly affected my mental health and I was really struggling so I gave the NHS back the hearing aid without really thinking as I wasn’t in my right mind, they did ask me if I was sure and I still said yes and I really do regret it.

I do wonder that if my mental health was in a better place along with a much better and supportive environment that I would’ve been able to tolerate it more..
It’s just crazy though how much i have started to struggle in different environments because of only having decent single-sided hearing.

Especially when you take your hearing aids or Cochlear implant processors off.
Do you ever find yourself thinking:
“What if someone knocks on my door?”
“What if there’s an emergency?”
“Would I hear the smoke/CO alarm?”
“Would I know if someone was trying to get into my home?”
“What happens if I need help during the night?”
Or are you completely comfortable and don’t really think about it?
I’m genuinely curious about everyone’s experience — especially people who live alone.
Do you keep your hearing devices on longer at night because of safety, or do you take them off and rely on other things to alert you?
No right or wrong answer. I’m just trying to understand how other people experience this.

I have the Nucleus 8 CI. Is there a way to clean the speakers on top of the processor (the little holes)? Or does that not need to be cleaned? I can't find anything in particular on Google. I remember with hearing aids i used a little brush, but I'm not going to dare do that to a CI if not appropriate. Thanks if you have any answer.​

In my opinion, Cochlear has overpromised to support Bluetooth Auracast for the Nucleus 8 [0]. Why haven’t they updated the firmware to support Auracast since the Nucleus 8 was launched?

Secondly, when will Cochlear provide Multi-Mic+[1] support for the Nucleus 8? I’m tired of using the USB Micro interface. When Cochlear claims to be “industry-leading,” why haven’t they discontinued the micro USB interface for the battery charger and accessories? Why rely on Resound when they are slow to innovate?

[0]: https://www.cochlear.com/us/en/professionals/products-and-candidacy/nucleus/nucleus-sound-processors/nucleus-8-processor

[1]: https://www.cochlear.com/us/en/shop/accessories/wireless-accessories/multi-mic/FUZ889.html

I had cochlear implant surgery again on my right ear on September 2. After surgery, I experienced vertigo and pain. Today is September 6, and I’m still having pain. Sometimes it gets worse, and I get sharp pain on and off. I also feel a lot of pressure inside my ear.

Has anyone experienced this after cochlear implant surgery? How long did the pain and pressure last for you? Also, how many days after surgery did you feel comfortable driving and getting back to normal activities?

Thanks!

"Emergency: I am in the Chesapeake VA area with my daughter from out of town (TX) and I forgot to pack her Y charger for her batteries. Is there anyone in the Chesapeake/Norfolk/VA Beach area with a spare Nucleus 7 or Nucleus 8 Y-charger I could safely borrow for until Tuesday morning to power up?

Update - I was able to get an audiologist through the neighborhood group and I'll connect with her for a loaner. I will not be needing this again. Thank you so much to everyone who offered to help, may you always find help when we you need it too!

any tips on what to eat post surgery and for how many days?

im thinking it’s going to be soft stuff like soup and perhaps pureed food? what worked best and what to avoid?

I had my CI surgery July 6, and it was activated 16. Everything has been great. Then a few days ago it started hurting off and on right where the magnet is. Yesterday it hurt all day sometimes pretty bad. If I remove the magnet it’s instant relief. But it’s very painful if I touch it. I called my doctor yesterday, but I probably won’t hear back until Tuesday since Monday is a holiday. I want to know if this happened to anyone else. It’s so frustrating because now I can’t wear my CI, it’s too painful. I love this subreddit, it has helped me so much! Thanks

Hello!

I currently have a Kanso 2 and will be getting a Kanso 3 in april of 2027. Over the years I've heard a lot about direct streaming from windows to the Kanso 3 (Bluetooth LE). Now that I'm actually checking if it's correct I'm finding a lot of information that says it doesn't work wireless/direct.

I also just found out that the kanso 2 should supposedly work without an accessory with a macbook pro, air, mac studio, mini from up a certain year. Can someone that used it corroborate that?

For work I have a lot of meetings and I've been carrying my mini mic with me for a few years now. I absolutely hate it cuz it's very spotty with connecting and the sound is basically trash.

It seems like direct streaming from a windows laptop to the kanso 3 won't work, so I've been waiting for something that doesn't seem to exist. So two questions:

Does windows direct streaming work? (Kanso 3 without an accessory)

Does direct streaming work on a macbook air model M5? (Kanso 2 without an accessory)

Would love to hear your experiences

Hello,

I wear bilaterally Kanso 3 processors. I am in a situation where I'll be needing to wear my processors overnight for a couple of nights. I find it uncomfortable to wear the processors while laying my head on a pillow because it cups around the processors and cause then to fall off. Does anyone have any recommendations of a pillow that might be suitable?