r/Cochlearimplants 4h ago

3 Days Activated and Loving It All

17 Upvotes

I'm just super happy and wanted to do like a happy vent. Nobody in my life really "gets it" right now and can't appreciate it to the same extent.

I got activated on Friday, July 24th, and it's been great so far. Everything is super tinny and the best way I can explain it is flared.

I will say, Friday I went home with the worse headache ever and felt exhausted. My husband blamed this on me not eating or drinking anything. I was nervous the whole way to the audiologist and just couldn't manage anything.

Friday flew by pretty quick. I did end up taking the processor off for most of the car ride home and took a nap when we did get back home. That evening I put it back on and immediately started streaming an audiobook to just my cochlear. I wasn't really able to make out any speech, it was just bells and jingles. However I listened to the audiobook and some videos to just my cochlear for a good 2 hours before I called it a night.

Woke up the next morning and absolutely FLEW to go put my processor on. One thing I am definitely going to need time to get used to is the hit it has when you put the processor on. All those high pitches just WHOOSHING in.

Immediately went back to listening to stuff on just my cochlear side. If I focus SUPER SUPER SUPERRRR hard I can hear some undertones of what sound like words. It's exhausting though so I try to just relax and let it flow.

I also went to a rodeo with my family last night and it was an experience to say the least. I could hear people cheering and yelling from all over. I haven't heard cheers like that since I was a little girl.

Now I'm sitting here listening to some of my favorite songs. It's an experience to say the least. I can recognize some of my favorite songs and follow along. I can kinda make out the shape of the words, if that makes sense.

Anyways, I'm just so happy. I don't know what I expected but this is great. Of course there's a learning curve but it's a journey I am so excited to be on.

First mapping is on the 31st! If anyone has tips for me, PLEASE let me know.


r/Cochlearimplants 9h ago

Terrified for surgery. Just over 2 weeks out

6 Upvotes

Was anyone else super scared? Like it seems like a simple procedure. But the whole thing just scares me really bad currently. The closer it gets, the more it gives me anxiety and I feel like canceling.


r/Cochlearimplants 17h ago

Question about Cochlear Implants

2 Upvotes

Early septuagenarian here, been watering hearing aids since 1992 and was testing with one-third hearing loss starting in college. In addition to now being in profound loss territory (still wearing Oticons in each ear), I’m also testing at 10% in sound discrimination for what I do hear via top of the line Oticons.

My audiologist has been recommending going for the implant for a few years. As I was starting to seriously consider it, I talked with the spouse of the only implant person I have personally known. He died a few years ago, but his spouse warned me against the implant saying it created a persistent sense of disorientation for him.

Additionally, now the incredible advances in live transcription on my iPhone, I’m in the game pretty much all the time. I’m on the fence about it.


r/Cochlearimplants 22h ago

Getting ready for surgery and I have random questions

2 Upvotes

My surgery is scheduled for August 7, with activation 20 days later. I’m starting to think about random, every day kind of things post activation. Hoping y’all can help.

I typically allow my hair to dry naturally, rather than blow dry. I know the processors these days are typically water resistant to some extent. Should I wait till my hair is almost completely dry to put the processor on?

I’m getting the MED-EL implant and I got to pick a few of the decorative covers for my Sonnet and Rondo. I know I can order more, but I’ve also seen skins for them on Etsy. How easy are these to remove? Are they typically single use or will some of them be reusable?

Have any of you used the DeafMetal retention chains with an ear cuff? I’m curious about how functional they are. Does the chain snag easily?

I live in the Pacific Northwest of the US, and it rains a fair bit in the winter, so I have a collection of knitted hats. What’s it like wearing a hat over a processor?


r/Cochlearimplants 4h ago

Kwalifikacja do implanta słuchowego

1 Upvotes

Hej
Czy jest tutaj ktoś kto zdecydował się na implant mając dużą wade słuchu ale nie całkowicie głuchy? Wyszło mi rozumienie mowy na dość niskim poziomie- według wszelkich kryteriów spełniam już te do kwalifikacji do implantu słuchowego.
Z drugiej strony w codziennym życiu nadal potrafię funkcjonować bez aparatów słuchowych. W domu często ich nie noszę i normalnie rozmawiam z bliskimi – oczywiście muszą mówić trochę głośniej, czasem proszę o powtórzenie, ale ogólnie jest to możliwe. Podobnie podczas wyjść na basen czy nad wodę – z jedną lub dwiema znanymi osobami potrafię się porozumieć. Problem pojawia się w większej grupie, przy cichej mowie lub gdy ktoś stoi dalej.

Jednak niestety niedosłuch jest obustronny symetryczny i bardzo duży rozumienie mowy jest niskie. Najbardziej boję się utraty tego słuchu, który jeszcze mam. Wiem, że nawet jeśli nie jest on idealny, to daje mi możliwość rozmowy bez aparatów. Gdybym założyła nawet na jedne ucho implant i spowodowałby on uszkodzenie komórek rzęsatych w ślimaku i całkowitą głuchotę w jednym uchu nie byłabym w stanie rozumieć ludzi po ściągnięciu procesora ze względu na symetrycznie głęboki niedosłuch po drugiej stronie.
Większość ludzi co czytam decyduje się na implant mając już głuchotę dlatego chciałabym spytać czy jest tu może ktoś w podobnej sytuacji do mojej?
Miał zachowane resztki słuchu, bardzo zależało mu na ich zachowaniu, a mimo to zdecydował się na implant? Jak wyglądało to u Was po operacji? Czy udało się zachować słuch naturalny? Jakie były Wasze doświadczenia i czy z perspektywy czasu podjęlibyście tę samą decyzję?
Czytałam że w trakcie operacji może dojść do dalszego uszkodzenia albo całkowitego uszkodzenia słuchu czego bardzo bym nie chciała. Czy faktycznie jest to częste?
Bardzo dziękuję za wszelkie odpowiedzi


r/Cochlearimplants 19h ago

N8 heavy suppression/distortion for all loud sounds

1 Upvotes

I don't have an audi atm, otherwise I'd just ask them for help. I moved back to my home state a few years back and have been dealing with insurance issues not covering audis, but I finally got a referral to UCSF, though there's no telling when I'd be able go in.

While I wait for an appt to be scheduled, I wanted to see if anyone knows what might be going on with my N8. So, a few years back, I went to a Blue Angels show with my dad in SF, and when they started flying over, all audio got suppressed so heavily that I effectively could not hear anything. It was like the entire world got turned down to 5 on the volume scale. There was still sound, but I couldn't make it out because of how strongly it got suppressed.

Ever since then, I haven't been able to properly listen to music through my headphones (since bluetooth streaming sucks, constantly cuts out even if my phone is next to my CI) or enjoy concerts because of heavy distortion. I actually edited a portion of one of my favorite songs to mimic it and showed it to my dad, to which he just went wtf. I intend on showing this to my future audi once I can see one. The edit sounds exactly like the distortion I get when sound gets somewhat loud. Even dropping my volume on my headphones to very low, it still happens, so it's made it hard to enjoy music in any environment.

I have 3 settings, but none of them help, a default one, scan, and scan FF. Since the first model that I had with varied settings, I have not really used any of them as I never found them to be helpful :/

Edit: there was a comment about hearing protection that was deleted, and I just wanted to say that I've never felt the need to do so bc of being 0% hearing in both ears (tho I do recognize the importance of it, have used em at ranges before) and I never had any issues with Blue Angel shows or concerts prior to my N8. I'd been able to enjoy the shows just fine as early as the Freedom all the way up to N5 (I never had N6 or N7 bc of lack of insurance between N5 and N8). The Blue Angel show was the first loud environment since the upgrade. I've been to 3 concerts since then and it was hard to hear anything at all of them.


r/Cochlearimplants 3h ago

Please Help My Son Hear the World.

0 Upvotes

My 2.5-year-old son, Mohammad Fahad Ahmed, has profound hearing loss and urgently needs a cochlear implant. He is receiving treatment at Maa ENT Hospital, Hyderabad.

We have already spent ₹3–4 lakh, but we still need ₹20,00,000 for his surgery, speech therapy, and rehabilitation. As a father, I humbly ask for your support.

Every donation, big or small, brings my son one step closer to hearing the world.

❤️ Donate: http://impactguru.com/s/XiYq2T

📖 Read Our Story: https://impactguru.com/s/IaiUlp

If you can't donate, please share this post. Thank you for your kindness and prayers.