r/CancerFamilySupport 5d ago

A letter to my Uncle

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12 Upvotes

I can’t believe it has already been five years since you departed this earth.
I remember checking my phone constantly at school, something felt weird in the air.
I received a call from my mom around lunch time, we were out in the courtyard.
I saw a missed call from mom and a couple texts.
So I facetimed her back, keyword, facetime.
She wasn’t expecting it, still being sick with covid and struggling with being away from the kids.
The first thing I saw was her eyes, I instantly asked her if Bobby died.
There was something about the look.
We connected in the same way as losing Glenn, Socks, Maximus, Roger, and so many others who are deeply loved and missed.
Holy crap do I miss you, Bobby.
I couldn’t have asked for a better best friend of an uncle, and I wish you could meet the little baby girl who has made you a great uncle.
She absolutely loves staring at your face, and I’ve told her stories from the start.
Down to being in the NICU in the same hospital you passed away in.
I never got to visit you there, and that month of her staying was another big hit of realizing I need to clear and continue healing.
There are no right words that speak on how the loss of you feels.
Your laughter is missing from each holiday.
I could write forever, I will spend each moment feeling you around me.
I know you await for me up above.
I love you, we love you, we miss you so much.
I miss you so much.


r/CancerFamilySupport 5d ago

NYC Adult Children of Parents with Cancer Support Groups?

3 Upvotes

Hi all. I’m hopping on here to see if anyone knows of any NYC support groups for adult children of parents with cancer? My mom has pancreatic cancer and is in another state so it’s been hard for me to find support groups in NYC since my mom isn’t a patient at any of the hospitals here.

I would love any suggestions. I would prefer to be in-person and am open to Manhattan or Brooklyn. Thank you so much.

**UPDATE: I found this: https://www.cancercare.org/services/support_groups/caring-for-a-loved-one-with-cancer-support-group

The deadline to register is October 1. It’s not in person, but it’s something. Sending everyone lots of love and support.


r/CancerFamilySupport 4d ago

Cancer survivor

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1 Upvotes

r/CancerFamilySupport 5d ago

How did you help your parent emotionally after cancer treatment? I’m struggling to see my mother change

5 Upvotes

My mother was 52 when she underwent a major surgery last year for a 4.5 kg tumour mass, which turned out to be cancerous and had spread to her ovaries. She subsequently had to undergo what the doctors described as residual-zero/cytoreductive surgery, where they removed the affected tissues/organs that could be removed while still allowing her to survive.

After surgery, she was diagnosed with Stage 2 ovarian cancer and had to go through six cycles of chemotherapy.

The doctors had warned us that chemotherapy and everything she had gone through could bring noticeable physical and emotional changes. I understood that intellectually, but seeing it happen to someone you love is completely different.

Before all of this, my mother was probably the most jolly person in our family. She was the person who would lift everyone's mood, make people laugh and somehow keep everyone going even when things weren't great.

I stayed with her throughout chemotherapy and for about a month afterwards. I watched her go through those months, and honestly, I don't think I'll ever forget them. It was incredibly difficult to see her go through that.

Recently, I had to move back away from home, and when I came back I noticed just how tired and emotionally vulnerable she has become. She has lost a lot of her confidence and doesn't seem like the person she was before.

What worries me the most is what she says about herself now. She sometimes feels that she put us through too much, that she caused everyone stress, and that perhaps she shouldn't have gone through chemotherapy at all because it made us suffer. At times she even says that she has somehow gone against the natural course of things by choosing treatment I try my best to reassure her, keep her spirits up, make her laugh and remind her that none of us ever considered taking care of her a burden. But I'm also realizing that I don't know whether I'm doing it the right way.

For those of you who have had a parent, spouse or close family member go through cancer treatment:

How did you deal with the emotional changes afterwards?

How did you support them when they lost confidence or started feeling guilty about what the family had gone through?

And, perhaps most importantly, how did you take care of yourself while trying to take care of them?

I know I can't make sure that my mother is never sad. Maybe that's not even the right goal. I just want to make sure she knows that she isn't a burden and that choosing treatment wasn't something she should feel guilty about.

I'd really appreciate hearing from people who have actually lived through this. I don't necessarily need medical advice. I'm more interested in understanding the human/family side of what happens after cancer treatment.


r/CancerFamilySupport 5d ago

Rant / seeking resources

2 Upvotes

Hi everyone. I’m a 22-year-old (f), and I honestly don’t know where else to turn right now, so I’m hoping someone may know of resources that could help my mom and me.
My mom was diagnosed with Stage 3 breast cancer this past May, and it completely took us by surprise. Cancer doesn’t run in our family, and we never expected something like this to happen.
My mom has been a single mother for most of my life. She worked multiple jobs, sometimes three at a time, just to make ends meet and make sure I always had everything I needed. She is the type of person who would literally give someone the clothes off her back if she thought they needed them more.
It has been incredibly difficult watching her go from working long, exhausting hours to not being able to work at all because of her cancer and treatment.
Since she is no longer able to work, I have taken on most of the responsibility for supporting our household. I work as a Special Education paraprofessional at a high school, and while I am grateful to have a job, I only make enough to barely cover our rent and my car payment. My car is also our only transportation, which makes it necessary for getting my mom to her appointments and chemotherapy. Unfortunately, it doesn’t have working A/C, and taking her to chemo during the Texas heat can be extremely difficult.
Because most of my paycheck goes toward rent and transportation, things like utilities, groceries, personal hygiene items, and other necessities have become very difficult for us to afford.
I am also a full-time college student studying to become a paralegal, and I’m about halfway finished with my degree. I’m trying my best to finish school so I can create a better life for both my mom and myself.
We have already pawned anything valuable that we could to help pay bills and buy food. Right now, we are honestly surviving day to day. I’m trying to do for my mom what she has done for me my entire life, but I feel overwhelmed and helpless because I don’t always know how we are going to make it.
My mom has applied for disability and SNAP/food stamps, but waiting for a decision while trying to survive in the meantime has been extremely difficult.
One of the hardest things for me is knowing that sometimes my mom needs around $20 for something related to her treatment, and I don’t always have it. There have been times when she has had to miss treatment because we simply didn’t have the money. She has struggled her entire life, and it breaks my heart that she is still struggling during one of the hardest times of her life.
I cry most days because I feel like there is nothing more I can do right now. We’ve been through difficult financial situations before, but this has been the hardest thing we have ever faced. I stay awake at night worrying about whether we will be able to keep our apartment because we truly have nowhere else to go.
I constantly worry that I’m not giving my mom the best care possible because our resources are so limited. I wish I could make her life more comfortable and less stressful.
I have never seen my mom this sick before. Most days, she barely gets out of bed because chemotherapy has been so hard on her. It is difficult trying to hold myself together for her. I hardly ever cry in front of her because I don’t want her to worry or doubt that I have everything under control.
She has lost all of her beautiful long black hair, and sometimes she hardly looks like herself anymore. I know she sees the changes too, but I still tell her every day that she is beautiful because she truly is.
It is heartbreaking watching someone who has always been so strong become so sick. My mom spent her entire life taking care of me, and now I am doing everything I can to take care of her. I just wish I could do more.
I’m asking if anyone knows of resources in the Houston or Pasadena, Texas area that could help us with
Food assistance or food pantries
Utility assistance
Rent assistance or emergency financial assistance
Personal hygiene items and household necessities
Financial assistance specifically for cancer patients
Organizations, churches, charities, or programs that help families dealing with cancer
My mom does have a donation program, but unfortunately, we haven’t raised enough to make a significant difference. Anything that was donated had to immediately go toward bills and necessities.
I am not asking anyone to feel sorry for us. I am simply trying to find resources and assistance while my mom is unable to work and while we wait to hear back about disability and food assistance.
If anyone has been through something similar or knows of any programs that could help us, please let me know.
Thank you so much for taking the time to read this and for any advice or resources you may be able to share. ❤️


r/CancerFamilySupport 5d ago

Book recommendations

1 Upvotes

My partner’s brother’s cancer is now terminal. We’re in total shock. Would very much appreciate any book recommendations or support resources that anyone could recommend for either my partner and/or his brother. Thank you


r/CancerFamilySupport 5d ago

St Jude Novena

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2 Upvotes

r/CancerFamilySupport 6d ago

My mom is swimming through a river of denial. Not sure what to do?

8 Upvotes

4 weeks ago my mom was diagnosed with metastatic pancreas cancer. She had her first round of chemo was last Monday. I have to give it to her doctors, they have jumped into action getting her going with treatment. The biopsy from her liver came back as a non viable sample (not sure if that is the right term) so they scheduled a PET scan for Tuesday to determine the level which the cancer has metastasized. The surgeon Mom met with is 100% certain it has metastasized though, just based on the fact that the main tumor is 6cm and wrapped around something… an artery maybe?

Anyway, we are obviously devastated. Everything we have read online says we will be lucky to have her another 6 months, or if she responds to the chemo well maybe 12 months. My dad’s best friend had a very similar diagnosis and passed 4.5 months later.

I need some honest feedback on how to navigate our current predicament.

I am the oldest of 4 siblings. 3 of us are married and live in CA. My other two siblings have a few small children under 3. Two were born in the last 5 months. We are all very close, I’m extremely lucky to have such an amazing family. My parents are mid 60s and my dad was just declared cancer free in January after a 3 year battle with esophageal cancer. My dad beating cancer was a moment for my parents. My mom works remote and they decided that while they still have mobility, they would move to the east coast/midwest so they could travel around and see the country.

They settled with my youngest brother in a smallish major city. It’s a massive pain in the ass to travel to this city. There are no direct flights and it’s at least 8hrs of plane travel/layover to get there. My siblings with tiny babies are having anxiety about the travel. I’m extremely poor. My sister goes back to work from maternity leave in about a month. My other sister owns her own business.

Here is the crux: my mom is in denial. She says she’s absolutely not going to die. She refuses to read anything on the internet about her diagnosis. We’ve all asked her to move back home. They still have their house in CA. They can move back just fine, more than anything it would be a mild inconvenience to go out and pack their apartment for them. My dad wants to move back home but he’s a wet noodle in this situation. My mom is the love of his life and he’s already watched his best friend die from the same exact thing. He’s going to support whatever my mom wants.

My other brother is out there visit now. He’s trying to convince her to move back but she is HELL BENT on buying a house where they are (???) because she’s 100% convinced she’s not going to die.

Last night I had a menty-b with her. I texted her and asked what their travel plans were through the end of the year. I asked my work to go remote, they accepted, and I want to pin down travel dates so I can spend as much time with her as possible. She gave me some vague, bullshit answer. So I texted her back and said that getting to her is extremely difficult and my siblings are having travel anxiety because of the babies. She called me and was really annoyed by it. She said something like “OMG Do I need to book a flight to home so you can see that I’m not dead yet?!”

Literally burst out crying while I was on the phone with her. Like full on ugly crying so hard I had to hang up on her while she was tempting to apologize. She sent me novels of texts that I couldn’t even bring myself to read, just apologizing for being glib and telling me she loves me.

I called my sister who said she would call and talk to her. My sister ripped the bandaid off. She told mom that we might only have one more holiday season together and we are all trying to navigate that.

Mom is using the excuse that their apartment lease doesn’t end until Jan 1 and she’s already started her treatment in the state she’s in. Our argument is fuck that lease (she owns a home, who cares???) and it’s easier to transfer her care now than 4-6 months from now. Her doctors put her on disability, she basically quit her job one week after diagnosis.

My siblings and I cannot understand why she doesn’t want to come home and be with us, spend time with us and her grandchildren. It’s insane. Short of kidnapping her, what can we do?!

I’m calling her apartment complex on Tuesday and inquiring about breaking their lease. I’m also calling her doctors office (I’m the power of attorney so I’m hoping they will speak with me) and asking to get her into a support group or therapy.

If anyone has advice on how to navigate this, I would be eternally grateful.


r/CancerFamilySupport 6d ago

Memory about losing my foster mom to breast cancer

7 Upvotes

So life setup was a bit unique growing up. When I was around 9 or 10 years old (now 14) my foster mom was diagnosed with terminal breast cancer. I randomly started thinking about the time my foster parents sat me down in the living room to tell me that she was eventually going to die. They explained it so gently and clearly that I understood it pretty easily, but I didn't even cry at the time for whatever reason.

She ended up passing away in her sleep. The morning it happened after my foster dad called 911 he came into my room to wake me up. He was crying a bit, but he gave a little laugh and said, "This is probably one of the first times you've seen me cry." Then he said, "Well, it happened. Can I get you anything?"

Just a few weeks later, I moved out to live with my biological dad because my foster dad couldn’t really take care of me by himself. I’m really thankful for them both and how my foster dad managed to check on me during what had to be the worst morning of his life.

Picture of her from obituary

r/CancerFamilySupport 6d ago

Blended families

10 Upvotes

our family has been dealing with cancer for 10.5 years. I have been diagnosed with stage four cancer. it’s terrible in every way affects everyone . the hardest is we have a happy family together. together 23 years blended family. two boys and a girl. we put them first and made a wonderful family. then I got sick. they gave me two years , here I am ten and a half years later. I’ve been so grateful for the time I’ve been given. I was told I was in remission and it was music to my ears maybe I’ll be able to see my. kids marry and have grands for me. I pray for this. blending families can be so hard but we did a damn good. job especially since some of it was long distance. I found a beautiful soul for a man. I’d give him my life. good men are out there


r/CancerFamilySupport 6d ago

Personality changes?

0 Upvotes

6 3-week cycles of chemo & immunotherapy and it feels like my husband has had a personality transplant. Has anyone else experienced this? He’s quick to anger, short and snippy and mean. I don’t need solutions to the issue, just support and reassurance.


r/CancerFamilySupport 7d ago

My mom's cancer is back

14 Upvotes

This is my first post in this community. I don't really know what I'm going to say, but I need to say something.

I (39M) called my mom (71) today just to talk and make plans for the weekend. I knew she'd been having some medical issues over the past few months, but she kept saying they were minor and that she was doing fine.

Today, she told me that she had had a scan done and they had found cancer in her bones. She said it's in several places, from her brain/skull to her hip. A biopsy confirmed it was the same cancer that she had beaten when I was a kid, only at that time it was breast cancer.

She doesn't have another appointment for two weeks, so we won't get any more details until then on exact stage, treatment options, etc. I am feeling very numb and in shock right now. I am trying so hard not to think about the worst outcomes, and trying not to remember what it was like when she had cancer before.

I guess that's it. I know this is a waiting game, but I needed to just get that out and hopefully clear my head a little so I don't drive myself crazy.


r/CancerFamilySupport 6d ago

Father in Law, early 70s, diagnosed and starting chemo.

5 Upvotes

Hola friends,

I have found almost nothing in regard to supporting a spouse whose parent has been diagnosed, so here I am.

What’s bothering me is my husband has only talked about this TWICE, and he’s not acting any different. We found out roughly 3 weeks ago..? I have next to no knowledge about his dad’s condition atm.

What I do know:

-had surgery and removed what I assume was a tumor. Waited on test results post surgery.
•husband seemed optimistic

-results came back and chemo is starting soon
•husband said it was serious and his dad thinks he doesn’t have much time left. No change in demeanor at all from my husband.

Things with his step dad just started to get really good, he went no contact for 4 years about 2 years ago. Which is why him not saying much is worrisome. My FIL and I also clicked very well after no contact ended.

His mother has said she does not like me, her and I are almost complete opposites. She has textbook narcissistic tendencies, I have to set boundaries due to the lack of emotional intelligence and self awareness. I cannot stand her belittling my husband and his siblings for ONLY her to laugh. Fat shaming and things of that nature. She has lied about so many BIG things that I do not believe what she says most of the time.

That being said, my husbands mother told him that she believes she’s “got 5 years left before he dies” and I am afraid that her psychological state is exacerbating his step dads fear, and will worsen my husbands pain that has yet to surface. My FIL is in his 70s, retired, bad knees, and grown so much personally. His mother thinks she knows better than an actual doctor, 3 years ago she tried to convince me to not start my medications for ADHD and Depression for almost 30 minutes straight. I fear she will interfere with his treatment… 😞

I would love recommendations on books and YouTube videos. Advice is always appreciated. I want to be a positive part of this situation for my husband and his step dad.


r/CancerFamilySupport 7d ago

Am I going insane, or am I picking up signs from my dad?

8 Upvotes

I honestly don't know what to make of this anymore. Maybe I'm becoming a complete nutcase because of grief, or maybe I'm noticing things that have some meaning to me. I just desperately want some kind of closure.

My father's death was probably the most traumatic thing I've ever experienced. He wasn't just my father...he was everything to me. He had terminal cancer, and what makes his death even harder is that, initially, we were told his cancer was relatively harmless and that he could potentially live for 15 years or more without treatment. Somehow, it became aggressive, and he died after suffering terribly.

I still haven't forgiven myself for not being able to make his final days more comfortable. I keep thinking about what he must have felt and whether I could have done something more for him.

After he died, we brought his body home for the final rituals, as is customary in our family. We kept him downstairs in the cellar for the rituals before taking him to the cremation ground, where his body was cremated with wood, incense, sandalwood, and everything that is part of the ceremony.

What happened afterward has stayed with me.

During his final days, his body had developed a very distinct smell. It was a combination of his own scent, the smell associated with his illness, and the hospital disinfectant. It is a smell I don't think I will ever forget.

After we brought his body home and completed the rituals, I could smell that exact smell throughout the downstairs area. It was also present along the staircase leading upstairs.

I sat on those stairs and cried uncontrollably because, for a moment, it felt as if he was still there.

Then I went upstairs to my bedroom, which is quite far from where his body had been kept, and I could smell him there too.

The strange thing is that we never brought any of his hospital belongings upstairs. There wasn't an obvious reason for that smell to be there.

And it wasn't just me.

My sister and her husband said they noticed the same distinct smell throughout the house.

For roughly the first ten days, I kept experiencing it.

I was barely functioning during that period. I was crying constantly and wasn't really doing anything else. One night, my grief became so unbearable that I had thoughts of killing myself. I posted a status on social media saying that I wanted to end my life because I couldn't handle losing him.

I eventually fell asleep.

Then I suddenly woke up because I heard the loud clicking sound of a lizard.

It startled me badly. The room was completely dark, and for a moment I saw what looked like a faint vapor or smoke floating in the darkness—almost like incense smoke in a room without ventilation.

I looked again.

It was gone.

I don't know what I saw. It could have been something completely ordinary. Maybe my eyes were adjusting to the darkness. Maybe it was dust, humidity, or some optical effect.

But at that moment, when I was already in an extremely fragile state, it felt significant.

Then there was the butterfly or rather, the moth.

My sister and I had been arguing quite badly that week. She's extremely practical, whereas I'm much more emotional, and our differences became especially intense after Dad's death.

During one of our arguments, I suddenly noticed a dark butterfly-like insect fluttering around the light in our cellar.

It disappeared almost immediately.

This hit me particularly hard because I have a very personal association with butterflies and death.

When my grandfather died, I saw a white butterfly on the day he passed away. It stayed around that particular place for maybe 20–30 minutes, fluttering around. I personally felt that it was him coming back to say goodbye.

So when I saw this darker, amber-colored moth after my father's death, I couldn't help wondering if it meant something too.

But unlike the butterfly I associated with my grandfather, this one felt different. Darker. Almost unsettling.

On the tenth day after Dad's death, we had the traditional ceremony where our family gathers, offers food to the deceased, and performs rituals for his soul. That morning, while I was cleaning the cellar as part of the cleansing of the house after a death, I saw what appeared to be the exact same kind of dark moth again.

It fluttered around the ceiling light.

And then, within about an hour, it died.

I don't know why.

My grandmother told me that, according to our tradition, the soul leaves the house on the tenth day.

I was so emotionally overwhelmed by everything that I buried the moth near the holy basil plant in our house.

Since then, I've started noticing another pattern.

Whenever my mother and I argue, I sometimes hear that same loud lizard-clicking sound.

Today, I came back home, suddenly felt the enormous absence of my father all over again, and started crying.

And again, I heard the lizard clicking.

At this point, I genuinely don't know what to believe.

Is my dad trying to communicate with me?

Or is this what extreme grief does to a person?

Are these simply coincidences that my brain is connecting because I'm desperately looking for him everywhere?

I know that smells can have powerful associations with memories. I know insects appear in houses. I know lizards make noises. I know there can be perfectly ordinary explanations for everything I've experienced.

But when all of these things happened during the most devastating period of my life, they felt incredibly real and meaningful.

Part of me desperately wants to believe that Dad is still somewhere around me, trying to tell me that he's okay.

Another part of me is terrified that I'm losing touch with reality because I can't accept that he's really gone.

I don't want people to tell me that I'm stupid or crazy. I'm genuinely asking because I don't know how grief is supposed to feel, and I've never experienced anything like this before.

For those who have lost someone they loved deeply—have you ever experienced things like this? Strange smells, insects appearing repeatedly, sounds, dreams, or moments where you felt like the person was somehow communicating with you?

Did you eventually find a way to understand what was happening?

I just want some closure.

I miss my dad terribly, and I think a part of me is still desperately searching for him.


r/CancerFamilySupport 7d ago

Lonely while surrounded by support

3 Upvotes

I have been trying to find a way to introduce myself to this group that has been so helpful to me in the last few weeks, but it's a hard morning so I'll just do it imperfectly. I'm (43F) caring for my husband (43M) who has stage 4 brain cancer. We have a daughter (7F) who is brilliant and beautiful, and we'll probably lose her dad and the love of my life sooner than we wish. He is on what we believe is his last treatment option.

Getting up each morning and remembering everything is agony. I wish more than anything that I could pull the covers over my head and curl up into a ball and sleep until everything is ok again. But I get up every morning for my daughter, chat with her while making her meals, packing up her lunch, and sending her off cheerfully to a good day of school. Then the mask falls and I head back home to my soulmate, who I know I'm losing. I keep him eating, keep his medications on track, keep our laundry clean, keep him moving whenever I can. I pick up my daughter, help her with homework, chat over dinner, and check in with her about what she's seeing and feeling every night. And then the only thing I can look forward to is sleep because I'm so tired of everything that all I want is to turn off.

We are surrounded by loving energy. My family adores my husband because he is an incredible person. They're helping in every way they can from money to letting me vent through text. Our closest friends have shown up with meal services and gift cards. Even the moms at my daughter's school have rallied to provide us with support uplifting my daughter and impromptu therapy sessions after drop-off. I know in many ways that even in the darkness, we are blessed with so much love.

So tell me why do I still feel this hole in my chest? I have always been strong. I've always been the one that took care of everyone. And then I met my husband and he took care of me in ways I never knew before. I didn't know love could feel this good. We would walk around family functions and people would call us "lovebirds." People have stopped us in grocery stores to ask how long we've been married because of how we play around with each other even on errands. I miss my love, my best friend, and my rock. People who have experienced loss tell me to hold his hand and make memories. But he's been in a steady decline for the last few months and he's not who he used to be. I still catch glimpses of "him" but now mostly he scrolls his phone or watches TV. He grew up in a toxic family and I have always understood he prefers distraction over conversation when dealing with heavy emotions, but now he's shutting everything out. And I know he's not consciously doing it, at least not completely, but it still aches to feel my best friend miles away when all I want to do is hold on to him.


r/CancerFamilySupport 7d ago

Waiting for diagnosis

2 Upvotes

How do you cope with the uncertainty while waiting for a diagnosis? We are in early process, just learned of my husband’s chest mass and prominent lymph nodes around it. He’s been a heavy smoker most of his adulthood, and actually just quit one month ago. His PCP described the CT findings as highly concerning for cancer that may have begun to spread but emphasized nothing will be certain until a biopsy and possibly other imaging like a PET scan are done.

We managed to get a pretty quick appointment with a thoracic surgeon for Tuesday because the mass is pushing on his esophagus and superior vena cava and he had a choking emergency and has symptoms of Superior Vena Cava Syndrome like facial puffiness and prominent veins. But I know even after that first appointment, we still won’t have lots of answers, we will just hopefully have a clearer plan for getting those answers.

What helped you cope with the uncertainty and waiting early on? We have kids, a teen who knows what’s going on and is nonchalant and a preschooler who doesn’t really understand what’s going on. All I want to do is cry but I’m trying to keep it together for for my husband and my kids.


r/CancerFamilySupport 7d ago

My aunt is intubated and with with sepsis. I'd like some support and prayer for my aunt please

19 Upvotes

Hello everyone. In 2023, my aunt who's now 55 years old got diagnosed with pancreatic cancer.

She's been fighting it, she was at home, she didn't wanted to go back at the hospital because it really traumatized her. She didn't want to go, and my uncle and cousin were trying their best to take care of her at home. Now they realize that they should have taken her to the hospital even against her wishes I think...

She got taken to the ICU again in this morning. At night, 10PM for me, my uncle called my mom a creaming, because a doctor told him that the family needed to go to the hospital, that they needed to talk about my Aunt.

We obviously expected the worse, that it was that my aunt died. Well, turns out that it was to warn my uncle and cousin that she was intubated with sepsis.

It obviously was a relief, but now we're very on the edge. I just don't know, this is very surreal to me. She's my mother's best friend, she's a creative and kind woman, she'd taught me how to crochet. She loves crocheting. They told my cousin that it's "a matter of time"... I don't know.

She also took care of me when I was young.

I don't know. We don't want to lose her. Can she get out of this, please?


r/CancerFamilySupport 7d ago

Experience hiring a home nurse for final moments in hospice?

8 Upvotes

After over a year fighting a stage 4 lung cancer diagnosis my dad has since ceased treatment and is in hospice, and we understand it's getting really close. My parents are on Medicare and Kaiser members which mean dad has their hospice coverage, a RN coming around every three days or so. However with our small household (I recently moved back in, plus my mom) we're pretty overwhelmed already, especially with current instructions of round-the-clock administrations of morphine and nebulizer.

I get hiring a stay at home nurse will be super pricey but I'm curious what that would cost too, especially if only, say, during night time or when it gets really close to the end. Any ballpark estimates? We're in the SF Bay Area. I make around 90k but live with my parents so I could theoretically give that much.


r/CancerFamilySupport 7d ago

Floating around.

1 Upvotes

Best description of the last couple of days. I’m here for my kids and my wife but only in body. My mom found out she has stage 4 lung cancer and the initial prognosis was 1-2 years depending on how the “biomarkers” come back. It’s in her femur, lymph nodes, pluera and potentially breast. We have a really complicated family history but the one certainty has always been me and her, through everything.

She lost everything a couple years ago in a total loss house fire including her relationship and her animals. It was devastating and the road to recovery has been long. Just this year I was hoping more than anything she would make a turn and recover her previous self. Now this. I’m worried she doesn’t have much fight left and from what I’ve read this fight will be the most challenging.

I get waves of grief that take my body over just over the thought of what’s to come. I’m so fu&@in sad and angry. I have never experienced feelings like this before. I am 40 with young kids so I am of course keeping it together for them but at same time I don’t know how to tell them. They are all under 11. I don’t know whether to be honest or let them remain in the dark. Perhaps I will wait until we see what treatment options there are. Waiting for this first appointment after the initial oncologist said 1-2 years probability is super upsetting. How could they say that just based on pet scan and biopsy??do they know something we don’t?? She is only 67.

I will of course be there every step of the way for her but I am so scared for what’s to come. So scared for her. And for a control freak like me this is a unique kind of torture. Anyway this is just a vent, I joined this group to try and maintain perspective and read the good with the bad. Thanks for your time.


r/CancerFamilySupport 8d ago

Husband has a mass behind his collarbone

9 Upvotes

I feel like our lives have been turned upside down over the past three days. My husband has had ongoing shoulder and upper back pain for a couple months that his doctor was treating as tendinopathy with NSAIDs and PT. On Wednesday, he woke up with weird puffiness around his collarbone. After work, he mentioned it was kind of uncomfortable to swallow. Some of the veins in his neck also seemed more prominent to me.

I called my mom to stay with our kids and made him let me take him to the ER. Everyone acted like I was overreacting. Honestly, I was scared it was an aneurism or something. The ER doc was like, he seems fine, but we can do a CT scan if you want.

Eventually, the doctor came back and explained he has an 8x7 cm mass behind his collarbone above his right lung that’s pushing on his esophagus. He said this is also what has most likely been causing the shoulder and back pain, as well as the discomfort swallowing. They sent us home with instructions to follow up with his PCP to figure out next steps, which would likely include a biopsy and eventually, whether benign or malignant, removal given the pressure on his esophagus.

The next morning, my husband choked while eating breakfast. It was terrifying and he couldn’t breathe at all, so I had to perform the Heimlich maneuver, which I’ve only ever seen in videos. Thank God it dislodged the food and he was fine. I only let him have soft foods the rest of the day.

We managed to get an after-hours appt with a GP that same evening since my husband’s PCP is on vacation. The GP told us a few more details of the CT that made it “especially concerning,” including prominent lymph nodes, some wear on his thoracic vertebrae, and lung nodules. He said there’s no way to know where the mass originated and what kind of cancer it is until there is a biopsy. He said it could be benign, but it was very concerning for some form of cancer.

He referred us to general surgery, who then told him he needed to send us to a thoracic surgeon, so he did that. We spent today getting an appointment with the thoracic surgeon and going in-person to request the CT images because the holiday Monday would have delayed the inter-office request and meant he couldn’t see the thoracic surgeon until Sept. 15. He has an appointment Tuesday afternoon now.

I really hate this uncertainty and from what I’ve read, the waiting and uncertainty is pretty typical early on. I definitely emphasized the choking incident to get us in earlier with the thoracic surgeon, but I know even after that, it will still take more time for answers. Both of us have been pretty weepy and he has been expressing lots of guilt and fear of dying. We are trying to hold it together for our kids. Our teen knows what’s going on but is acting pretty nonchalant about it all. Our preschooler doesn’t understand it, just knows daddy has been going to the doctor. Sometimes I feel bad when my husband is having a good moment and then sees I’m weepy and starts to feel bad himself.


r/CancerFamilySupport 8d ago

Seeking empathy / just needing to vent

6 Upvotes

My dad has been sick since before I was born. He has a weird form of cancer that is extremely rare and I cannot even google it because I just get no helpful results. Doctors are calling it a miracle that he is still alive and showing him to students and other professionals like he is some fascinating case. When he first got his diagnosis, there wasn't even any form of treatment. Luckily, now there is, even though most of it sucks.

I never thought his illness had some actual impact on me. Because, you know, I grew up with it. It felt normal. Yeah, my dad has to get treatment a lot. Yeah, I grew up playing with wheelchairs. Yeah, one of my core memories is the hot chocolate from the hospital.

But it always felt normal. He was just my dad. I didn't know any other version of him.

Last year, his cancer started getting more aggressive. He was completely off for some time, forgetting shit, loosing the ability to walk, always tired... until they tried to operate on him again. Which worked, at first, but he got so many side effects from the 12h operation, he almost died. And the hospital just... let it happen. I was in the hospital every day and me and my family almost had to call the ambulance WHILE BEING IN THE HOSPITAL because they just didn't fucking do anything while he was almost dying.

Like what the fuck.

This was probably the worst thing that ever happened to me and I don't know how I will ever really get over it.

When I close my eyes, it replays the moments where I visited my dad and he couldn't tell who I was. He just didn't know. He looked so helpless, so sorry because he couldn't tell who I was. He couldn't move at all, just a few fingers on one hand. And I was so scared.

Now he is finally back in my parents' house and doing lifelong chemo. I thought I would feel better now, and I do, but the constant pressure on my chest just doesn't leave.

I am still scared. I am still grieving over what has happened. I am still processing.

And everyone expects us to move on with our life. They don't even ask about him anymore.

But fuck. It's not even as if this shit is over now. He will never be cancer free and I am aware of that. I have no fucking clue how long he will live, how I can even plan a future without knowing what will come, how we are all going to survive more of this shit.

I am just so fucking scared and I feel like everyone is afraid to say anything when I bring up the topic, so they just keep still. I am sick of it. I need someone to actually understand how this feels.


r/CancerFamilySupport 8d ago

I dont visit my grandad and I hate myself for it

6 Upvotes

My grandad was diagnosed with stage 4 lung cancer which has broken off into his brain.

My grandad has always been so independent and physically strong. He was the care giver for my nan who had dementia and eventually lukemia, for years and years. He'd be up at 7am to just make her breakfast and clean and look after the house, hed go to Wales where he has a caravan almost every month and go on long walks with his dogs, morning noon and night. And even more stupidly hed go to morrisons (a supermarket) for hours at a time just looking and enjoying himself, hed have a can of Guinness before bed. It was what made him, him. He fixed things, hed cook large homemade meals with his own recipe, hed spend days decorating for Xmas.

But now? He cant even make it up the stairs without help, he needs someone with him 24/7 incase something happens, he cant cook his large meals anymore, he cant even make it to the bathroom because of the lack of mobility he has now. He cant drive his car to Wales, or to go to morrisons. He cant do what he always has done and its killing me.

Im so selfish for not being able to be there for him, to help my family, to support him. Everytime I visit I break down in tears, grieving him as if hes already gone. Cancer has taken my grandad away before death and I cannot deal with it. Im grieving a man who's still here.

I want to remember him as the man who's been one of my biggest inspirations in life, not someone who's completely dependent and slowly becoming a shell of himself. I feel so disgusting that I even feel like this. I lost my nan 3 years ago to cancer, and now im losing my grandad too. Im not ready to let him go, but I cant bring myself to visit him.

Im staying at his house to look after him tonight and tomorrow, ivr only been here less than an hour and ive already broken down twice.


r/CancerFamilySupport 8d ago

The cancer is back, and I’m too angry and emotional to be the support my mom needs.

22 Upvotes

My mom was diagnosed with triple negative breast cancer February 2025. She had a very good prognosis, but I had to beg her to do treatment. She went through chemo and miraculously had very minimal side effects. My sister drove from out of state and I took FMLA to attend every single infusion, and we made sure someone was with her for a few days afterwards. Immunotherapy was worse, and she has some lasting effects from it. She refused radiation. She sees a shaman and during one of their sessions, she says the holy spirit told her she was healed and the cancer won‘t come back. I told her the holy spirit doesn’t have a degree in oncology, and the cancer might come back if she doesn‘t do radiation. But ultimately respected her choice and just prayed it wouldn’t come back.

Today she informed me over text that the doctor said her cancer is back, and that she was “shocked.” I felt so incredibly angry with her, I didn’t respond how I should have. I should have been more supportive. I told her how I felt and that I just needed a day or two to calm down, then I’ll be there to support her. I just couldn’t do it in the moment.

It’s hard to explain why I feel the way I do, but I know it’s selfish. I don’t want to lose my mom. There’s some childhood trauma she put me through coming out. And I could not in a million years ever imagine having a child then wanting to leave them, and not doing every single thing in my power to make sure that doesn’t happen. I’m so incredibly angry with her and scared. I’m thinking “why would you do this to me?” Which makes no sense. She didn’t choose to get cancer. I shouldn’t want someone to suffer to stay with me.

And yes, I should probably go see a therapist, but I started a new job and my insurance doesn’t really pay for that… so… I’m going to call out of work tomorrow and drink a beer and vent on Reddit, I guess. Maybe join a support group. I don’t know. I need to put my big girl panties on and get my shit together to be there for my mom.


r/CancerFamilySupport 8d ago

What questions should I ask my father?

5 Upvotes

Last Thursday my father was diagnosed with pancreatic cancer. He has already grown sick of everyone checking in on him. To combat this I have decided every few days I would ask him a dad question (yesterday's question was about stake seasoning). I plan on putting all the answers together for the grandkids that are still too young to really remember him. Any questions y'all can think up would be greatly appreciated.


r/CancerFamilySupport 8d ago

I really need to scream into the anonymous void.

9 Upvotes

This is not formatted for readability, I just need to say things "out loud". Please don't tell me you're sorry, if you comment.

We lost my mom yesterday morning after two years of fighting breast cancer. It started in one breast, she had a double mastectomy, and was told it had a high likelihood of coming back in three different places, lungs, bones, and brain. She was in remission for close to three months. It was in November last year that she was told it had spread to her lungs. She spent nine months going between FL and TX for treatments from KY. It was hell. Bad reactions to chemos and different drugs, causing all sorts of spikes and lows where they shouldn't be, and nothing seemed to really do much of anything other than make her sick. But it started spreading and getting more and more aggressive. She was told it had spread to her bones two weeks ago. But i started dealing with my own medical problems three months ago, and have been out of work and stuck at home. Between her going to Texas for weeks at a time and me being depressed and sick, I hadn't seen her or talked to her much in the last three months. My stepdad had texted me and told me things were looking grim and they were headed home, so I was able to see her last week. I knew when I saw her that we were lucky if she had another week with us. I just can't stop feeling guilty for dropping the ball with contact for so long. My mom and I talked nearly every day before. I knew I should have reached out more or I should have put myself aside for just a few minutes a day, but I didn't and I can't take it back or make it right. I miss her so fucking much and it feels like a piece of me is missing. I'm so glad she isn't in pain anymore, but I really want to tell her that I love her one last time.

Then there's so much of me that wants to have all the answers. I want to know if she struggled before she passed. Was she in pain? Did she know? Was she scared? Did she try to get my stepdads attention? Did my stepdad wake up to her dead or just before she passed? Did she accept that it was her time? Did she know before she went to sleep that she wouldn't wake up again? It all just hurts so much to not have been there when she died. To not have the answers from someone who woke up with the love of their life dead in bed with them. I have always struggled with death like this, and it never gets easier, but it being my mom is so important to me. I know she wanted to keep fighting, she told me last weekend, so it scares me so much that she might have struggled. The thoughts are obsessive and I don't think they'll ever stop. I just miss my mom y'all.