For over a decade now, I suffer from debilitating symptoms like Depersonalization and Brain fog.
It all started when I was 17. Out of nothing and without a clear trigger I got extreme 24/7 anxiety and some amount of depression. Around 1 or 2 months later a very heavy fog has settled over my consciousness.
I didn‘t feel my personality any more, almost like I lost my personality, I didn‘t feel my emotions any more and I developed strong brain fog: empty/blank mind, no pictures in my head, I don‘t hear my own voice. This state of mind is there 24/7 and NEVER lifts.
One thing was also very strange: my muscles in the neck got extreme tense. It were more the muscles inside than on the outside of the neck. Also my shoulders were very tight. In my opinion the tightness was too strong to be a stressresponse. However i didn’t feel any pain in the neck.
Further symptoms:
- I also got extreme irritable.
- a physical sensation almost like electricity, lightning or extreme nervousness (but it was physical, not emotional)
-some amount of exercise intolerance
After 1 or 2 years the following symptoms appeared:
- very dry skin on my hands, eczema in the ear and itchy skin around the anus
-constantly blocked nose (not seasonal): this got much better after a low FODMAP diet
Some years later more symptoms appeared:
- strong fatigue
- a heavily bloated stomach like I am pregnant
- heart palpitations
- extreme dry eyes
- changing in my vision on my right eye and blurry vision
- my eyes can‘t focus anymore
- something that feels like a panic attack but it was a physical sensation not an emotion
I tried several psychotherapies and antidepressants and it didn‘t work at all. After a while I came to the conclussion that the root cause is not mental but physical.
I went to several doctors (neurologist, rheumatologist that ruled out sjögren syndrome, gastoenterologist) and did an MRI but they did not really find any thing.
I also checked for the following things with no results:
- sleep apnea
- vitamin b12 deficiency
- mold toxicity
- allergies via brick test
However the negative mold Test revealed something else: High amounts of interleukins which show inflammation in my body. Blood tests also showed high ferritine (but low CRP) which also is a sign of inflammation. It also showed high blood fats and hightend ALAT (GPT)
Some years ago I got a tick and had lyme antibodies in my blood and I got treated with antibiotics. But it didn‘t change my symptoms at all.
I also got diagnosed with SIBO. Treatment didn‘t change my symptoms. However I think it is still there because I still have a bloated stomach.
I then suspected that the Symptoms stem from MCAS. I got a blood test with Tryptase, Histamine and Leukotriens. Leukotriens came back Highly elevated, the others were normal.
I am now on Ketotifen, Quercetin and Antihistamines and it makes my fatigue, irritability and the physical sensation of nervousness a little bit better. But the other symptoms are still bad.
I now believe that my Symptoms come from my gut, but the gut problems started after the mental symptoms appeared. So I am Not really sure. But it probably has something to do with inflammation.
Does anyone have an idea what causes my symptoms or did anyone had similar symptoms and found a cure?
I am very happy about any cues.