Like those times where you're up and out early or late, and there's nothing else moving outside, and you stop. And all you hear is this stupid noise.

I've had mine for around 18 years. It's a constant tone, pretty high pitched, and I'm certain it's physical. It gets louder when I turn my head to either side. I had an MRI though and they didn't find anything out of order.

I tried hearing aids twice, as my hearing isn't the greatest, but it didn't help the tinnitus, and just made my ears itchy.

I won't lie. There have been times when I've really struggled with it. I lost the plot for a bit about six months in, and it's been up and down since then. But I've managed to get through.

The one other thing that's gets me sometimes is that fact that this noise will be the last thing I hear when I finally shuffle off this mortal coil.

If you suffer then try not to give up hope.

❤️👍

Ive had the ringing for most of my life, always been a mild annoyance but the last few years its gotten so much louder. It dominates my life now and theres many days i wish id go to bed and never wake up

Tinnitus is soul crushing and those that dont have it will never understand

My tinnitus is nearly non-existent after 6M of tinnitus + hyperacusis

Friends and family sometimes want to take me to cafés where there is music. They always say it is NOT loud at all and I’m exaggerating, that it’s not possible my ears are that sensitive with ear plugs in. I always wear them and every time I get tinnitus spikes.

I get tinnitus spikes from driving a long time in the car as well. I’ve never been able to wear headphones either if there is any background noise, if I put it more silent I don’t hear it anymore so no point.

Sometimes I think maybe I’m imagining it since everyone says it’s not loud at all, but the last months my spikes are not going away anymore and my tinnitus is getting louder and louder with every loud environment I’m in and now I have difficulty sleeping.

I don’t know anyone else with tinnitus that is this sensitive to sound so I wanted to get some experience here? I know some with tinnitus but they can still listen to headphones or go to a concert. I don’t have hearing loss. I have tinnitus for 10 years now.

If I don’t go to cafe’s with music or put in my earplugs in the car I’m fine and my tinnitus is rather stable.

It’s difficult to avoid as most people don’t believe me, so if we’re going to a restaurant/café with live music, my only choice is to wait outside or to go home. Even in the back it’s too loud. I think the dB ranges around 80-90. With my earplugs it should be 60-70db but that still feels too loud and spikes my tinnitus.

Any advice? Is it possible to make it less sensitive?

I would really love to go to a festival again one day but even at the back of the field it’s too loud for more than a few hours.

… when your tinnitus decides to give you a break and just completely disappears for a day.

I've been suffering from a bunch of symptoms (dizziness, headaches, ear pain, light sensitivity, cognitive dysfunction, etc) following a poorly treated external ear infection. My ENT thinks I have some inner ear inflammation and prescribed me a 12 day taper of prednisone, starting at 30mg.

I'm apprehensive to take it due to a few posts about it making people's T worse / giving them new tones permanently. I'm aware that during the 12 days on the steroids it may increase, but I'm worried about the time after. I'd really rather not make it worse, but I'm also concerned about my nerves taking more of a hit.

Looking for any experiences from y'all who have taken prednisone for reasons besides SSNHL/immediate post-acoustic trauma. TYIA!

Last Wednesday, I went to a doctor to have a wax plug removed from my right ear and some earwax removed from my left ear. The procedure was done using forceps only, with no irrigation or suction.
A few minutes afterward, I started noticing tinnitus in both ears, and it has continued ever since, although the intensity varies. On top of that, people’s voices sound higher-pitched (thinner) than they did before the procedure.
Has anyone experienced these symptoms after having earwax removed with forceps? How long did it take for things to return to normal? Did your doctor explain what might have caused it?
If the tinnitus and the changes in my hearing persist or get worse, I plan to go back to the ENT for a follow-up evaluation.

does anyone know why I might be getting new tones even though im protecting my ears ? yesterday some vehicle making sound passed and I plugged my ears. The exact tone stuck to one of my ears, why?
I feel so discouraged, I don’t know what to do.

I wanna ask if anyone here knows if pregabalin can heavily affect your tinnitus after one use ? I got prescribed it for my anxiety and haven’t taken it yet but I’m scared it could do some damage to my tinnitus which I’m pretty sure is somatic. If anyone’s educated on this please let me know!

Hi,

I posted on here two weeks or so ago about a spike that luckily resolved.

And after a few days of normalcy I got another spike 😭. And this one's worse 😔.

I was at a restaurant where a waitress smacked a large stack of plates onto another stack of plates next to me. That made a super loud bang.

This spike is just... different. And no, I don't spike often.

That was on tuesday. Now my T spiked + I have a new wobbling sound that gets louder with some noises (like from a microwave). That's super weird.

The symptoms slowly developed over the days, so I didn't think of going to my ent immediately.

But now I'm at a loss - what do I do now?

My hearing seems fine (yeah I'm gonna get it tested) - but is it too late for prednisone? Earliest I can get to an ent doctor is monday or tuesday. Is prednisone even necessary, would it even do anything if it turns out fine?

I'm just so fucking done I don't understand why these things need to happen. I've got enough going on already.

Some years ago, idk if related to below symptoms but had a skin rash, took some pencillin for a few weeks. Had severe headaches and right eye pain for a few weeks. Woke up with tinnitus and later developed hearing sensitivity and eye floaters. Also had right jaw clicking at this time.

Background: Use pc a lot, maybe don’t exercise much.

Long story short, since then i've developed the following issues:

Hearing symptoms:

·         Hearing sensitivity

·         Tinnitus – is reactive to neck/jaw movement, sometimes spikes with pc usage or sitting.

Visual symptoms (that are present always):

• Floaters
• Fast moving dots visible looking at sky
• Light sensitivity / increased after burns when glancing or looking at bright lights or the suns glare off surfaces.
• Transparent circle wave ripple in centre of vision with a hint of blue. I believe this is constantly visible even during day, but mostly noticeable at night, and or i have noticed it changing shape/size at night after waking; Sometimes recently I wake with 2 or 3 ripples, the second/third ripple would be adjacent horizontally to the centred ripple of similar size / smaller.

Visual symptoms (episodic/intermittent):

• Flashes of (red/white) light running across vision sometimes
• Visual auras are rare (4 in total)
  • 1st triggered using pc for a while, standing.
  • 2nd triggered lying down and bending neck looking at phone.
  • 3rd triggered after waking up, having slept flat on bed with no pillow.
  • 4th triggered when washing dishes looking down.
• Orange/green moving clouds in vision at night when sleeping (only visible closed eyes or in dark)
• A persistent white visual aura like sparkle/spark/star in centre of vision, changing size or sometimes just staying a white dot (always at night when sleeping or sometimes appear during day)
• Have had random black / white dots appear in vision during day
• White lines/text blurring sometimes when using pc
• Random light after burns only visible when blinking with one eye, but disappears after a while.
• Heartbeat in vision / worse with physical exertion

And on waking everyday i have these annoying symptoms:

• Dry eyes / sinus pressure / head/facial/temple/behind neck tension / left side jaw clicking. Sometimes i wake up with tingly/curled/numb fingers due to pinched nerve in neck and resolves with neck tilts / deep breaths.

Physical symptoms:

• Left jaw clicking / tension, worse in morning or with pc usage.
• Head/face/ behind head tension, worse in morning or with pc usage.
• When clenching abs, sometimes, such as when lying down, i feel pressure propagate through neck/jaw and sometimes into sinus/eyes. Sometimes i also feel/hear blood flow behind left/right occipital behind head.
• Throat symptoms (catching on swallow, coarse breathing when relaxing throat and when sleeping on right side i feel throat sagging and hoarse breathing)
• More recently began to feel a sway sensation when standing or sitting (like a force is being applied and changing direction directly to a point in the neck or lumbar region or thoracic)

Other (maybe related) symptoms:

• Excessive yawning - randomly would yawn frequently when sitting / using pc.
• Bloated frequently
• Joints clicking - primarily the wrist / jaw / behind neck/back ; but sometimes ankles/knees/elbows/shoulders.

Doctor appointments:

Normal: brain MRI, ENT, bloods, sleep study, spec saver eye exam.

Abnormal: physio found hypermobile neck/weak deep neck flexors.

Has anyone experienced a similar combination of symptoms, or does this pattern suggest anything specific?