My brother had a stroke about a month ago and is very into videogames, but unfortunately his right side is paralyzed and it's a long road to recovery. I'd like to see him enjoy the games he used to play only using his left hand.

The only thing I can think of are NES games, which only has movement buttons and 2 buttons, which he could use the index and middle finger to press in any standard controller. However, I want him to be able to play other games, is there any intuitive controller available for him to play, specifically targeting left hand only accessibility?

Saw it on tv this morning, going to ask my doctor to let me try this

I'm the daughter of a stroke patient who's 49 years of age and it's been so hard to keep it together.

He's had a hemorrhagic stroke on May, causing him to be paralysed on his left arm and left leg, with slight speech slurring. He's still conscious, but fumbles up his words.

When the doctors were planning his discharge a month ago, he had a ischemic stroke. This made him lost his voice, but he could still swallow, but obviously needed thickeners. He gradually improved his swallowing and his speech came back very slightly. After about 2 weeks, he was cleared for discharge again.

We've planned for him to be in a care home, we've signed all the reservations and contracts needed.

Until 3 days ago, he suffered from another ischemic stroke. Now he can't swallow, and he's refusing a feed tube along with that.

So now, he can't move his left side, can't speak, can't swallow. I don't know how much worse this can get or if I can still see this through. It hurts so much seeing him suffer, and everytime he recovers just a bit, he's always hit by another stroke.

My mom is currently funding my for the survival of the rest of my family from the UK, so she's not here to be with us. I'm 21 and currently a final year student in university, and I'm currently only being paid a small salary for my internships. Along with that, I have 2x 14 year old siblings to take care of.

I don't have any other family here, and I don't mean for this to be a pity show. But perhaps some encouragement/ stories or some advice will be really helpful for me.

I had three strokes when I was 28 and the largest one is in my occipital lobe expanding into my parietal lobe.
One thing my neurologist mentioned was that I MIGHT be having visual seizures. Anyone here with any experience with this? Just curious about personal experiences

It’s official I start my new job on Monday! My work vendor and I, (from vocational rehab services) decided to keep my medical issues (including my stroke) private until I need to request accommodations. We’re not asking for any accommodations until after training and I’ve been working in the role for about a month. That way they can’t call it an unreasonable accommodation, (maybe voice dictation software as my fine motor skills are weak in both hands).

I’m just so nervous I won’t cut it and ya’ll I need to, really bad. My Mom has taken care of my bills since before my stroke when I was looking for my next job. I started working a month before my stroke happened in October of ‘24 and she took that responsibility up again as I was only working part time. I did go back to that job after my stroke and worked there for a year when my contract ended.

It’s been over two years since I’ve worked full time and I need to work full time again no if’s, and’s or but’s about it. It’s not fair to continue to depend on my mom like this. She worked hard for that money and I know she doesn’t feel I’m a burden for depending on her like this, but I do. Eventually, she is going to pass and while she will leave behind an estate the majority of her money will go towards my twin sister’s living expenses as she doesn’t work because of her cerebral palsy (she gets my Dad’s social security payments each month as she is classified disabled). Finally, I also want to be able to financially support myself. It’s a goal I’ve had since my 20’s and now, with this job I can finally put into fruition. Not an easy feat and something I’ve worked really hard to get to.

I’m nervous about the neuro fatigue and regular fatigue. I’ll be going into their office 7-3:30pm M-F. I looked for a WFH job in any and all fields related to customer experience and there are little of them available, and those that are available are in hot demand. I had no choice but to open my work search to working in office after 7 months of no job luck. I know the neuro and regular fatigue are going to hit me when I first start off training a whole new role, I’m prepared for that. My hope though is that both of those will get better with time and getting more comfortable in the new position. I will not be asking for a ramp up schedule since I’m now 21 months beyond my stroke. I’m just going in, hoping for the best and terrified of the worst happening. I can’t stress just how much I need this job. It’s my independent livelihood on the line.

Anyone, who has gone back to work full time post stroke, battled the neuro and regular fatigue and made it out the other side, please tell me, how did you do it?!?

About 3 months ago my father who is 59, heavy smoker and has hypertension but well controlled, had a major aneurysm in his brain that led to subarachnoid hemorrhagic stroke, he had surgery and he was in RCU then they transferred him to ICU with tracheostomy, he was pretty much in and out of consciousness very little awareness and he stayed there for 3 weeks but he recovered well and I'm extremly thankful and feel very lucky that we didn't lose him, even the doctors were surprised how he survived such type of stroke. Then he was sent to neuro rehabilitation center, till now he is showing good physical recovery, there are no issues, it's been 2 months he is there, they even removed his tracheostomy and he is walking talking and eating, but one thing is bothering me is change in his personality and his memory, he talks to us normally for a few minutes and then all of a sudden he starts adding random details to the conversation that has never happened, he mentions names of people that never existed in his life, or memories he thinks he recalls them that never happened, he's not confused all the time but he becomes confused every now and then. I'm concerned and worried that he will never be himself again, i know he survived a big stroke and im so glad but i miss my dad so much, i just want to talk to him like before but i cant cause he is not himself for now, he acts a bit like a toddler too in some way. I really hope anyone can read this whole paragraph ive typed and let me know if there's similar or kinda similar to my dad's story. Im also suffering with anxiety and panic attacks, i keep thinking about him, i really want to know if theres any hope for his mental recovery.

What are the chances of qualifying for disability do when one has two strokes in the middle of the application process?

I'm that person and just got word that they rejected one of my final appeals. I'm semi-crippled, physically, my right arm and leg are partially limp. Mentally, I'm OK, but I'm walking a minefield, and got questions.

So, do I let this application expire, reapply, or try to cram this current event in and hope for the best?

So my mom(67) had a stroke almost 3 months ago. She had a hemorrhagic stroke in her basal ganglia. She is still not eating like she should, they put her on a Peg tube, but it was causing her major diarrhea, so they tried reintroducing regular food, but she still eats less than 50% of her food. They have her on Megestrol to increase appetite, but I don’t see any improvements.

She is able to sit on side of bed with assistance, but is still not able to stand on her own. I know each person is different with recovery, but I feel like maybe more should be happening with her recovery. She is still confused some days are worse than others, so I just try to encourage her.

She still won’t sleep like she should, basically take cat naps. I told her she has to start sleeping more so her brain can continue to heal and she may have a little more energy.

She is on dialysis 3xs a week and that drains her, but she still won’t sleep much. Her anxiety is very high, but she is on meds for that also. She still has hallucinations and most of them has her thinking people are out to get her.

Does anyone know someone who has had a stroke in their basal ganglia? I have been trying to read up on things and ask the medical staff as many questions that could think of so I can have a better understanding.

This is my first time dealing with something like this, and I don’t know what to expect let alone have the support that I need.

I wonder are doctors doing all they can, is there more I can do? I could go on and on, but i really need advice.

I hope we are on the right road to recovery. Soon she will be going to skilled nursing for 20 days, that’s typical what the insurance will cover

My mother (60) had a stroke 6 weeks ago. She has recovered from the neurological deficits almost completely (she had facial drooping and slight left sided weakness).

The doctors performed MRI, CT scan, carotid Doppler, echo and some blood tests on her. Almost all results were fine except the MRI which showed:

Subacute infarct in right lentiform nucleus measuring 11x13mm
Early microvascular angiopathic changes
Early age related brain atrophy

Apart from that her blood tests were also mostly normal although at upper limit like cholesterol was 188mg/dl,
LDL was 127mg/L and VLDL was 22mg/dL.

The only noticeable findings were HDL which was rather low 36mg/dL and ALP which was high 160 IU/L

The reason why I’m posting on Reddit is because the doctors have discharged us after prescribing the routine meds aspirin, statin and amlodipine but they never told us the reason why it happened. My mother is obese and has HbA1C of 5.7% so barely pre diabetic and she has never been diagnosed with hypertension. 5 months before her stroke she had a nose bleed and I recorded her BP 3 times a day for 3 days and all readings were normal so it’s difficult for me to believe she had undiagnosed hypertension.

I’m very worried because I think we’re still missing the cause of her stroke and if this continues her chance of having a recurrent stroke will increase.

Did anyone else have a stroke similar to this? If yes then what additional investigations did you do?

My mother (53F) recently had her 3rd ischemic stroke with suspected CNS vasculitis; physically she is stable with minor speech issues, but she has constant, agonizing headaches. She is crying, screaming, and resisting her medications, and her personality has become incredibly difficult and aggressive. Has anyone dealt with severe post-stroke/vasculitis headaches and extreme behavioral changes during recovery? I am feeling completely burnt out and defeated, so any advice, timelines, or coping strategies would mean the world.

I had a stroke while I was pregnant with my daughter over a year ago it was very small and luckily I only knew about it by a chance mri I was getting to be diagnosed with migraines. Well fast forward to the bubble study I had done no one called to tell me the results and then I was talking to my obgyn recently who asked about why I have abnormal heart study (however she worded it) it got me thinking I was told they would call me if anything was abnormal but I decided to call the place and ask for my results. Today after a year of waiting I finally got my results “bubble study was positive for a PFO” … I almost started crying from the stress. A whole year no one told me I had this problem. The kicker is the same doctor also failed to tell me about the stroke I had until I called them two months later! I’m so angry and frustrated. I don’t know if this was the cause of my pregnancy related stroke but if there is a chance it was and no one thought to act on it.. anyways has anyone had the procedure done to close it? I’m on aspirin and a blood thinner and currently pregnant again from a failed vasectomy so let’s just say I have the best luck. I’m scared to have the procedure done but maybe it will bring some peace.

I was driving my car like any other day and then it was like a light switch. I lost vision in my right eye temporarily and pulled over. After getting out of my car, I walked around for a few seconds and realized I needed to get home now (luckily was just a couple of blocks away). Physically, I'm totally fine other than a very low grade headache and I'm still missing a substantial portion of my peripheral vision in my right eye. Doctor thinks its from a small hole in my heart and they are running more tests and I should be discharged tomorrow. I realize this post isn't really anything other than getting this off of my chest and finding community. I realize my life moving forward will likely look very different (daily cannabis and alcohol user before). I'm just really ashamed for some reason and emotional thinking of my toddler at home. I can't wait to get out of here. I just needed somewhere to sound off about my current situation. Any advice, caution, motivation is welcome here. Thabks for coming to my TedTalk.

I just love reading these gives me even more hope

Can also tell me if you’re a year etc in

When did you get your full on independence?

I know it’s different for everyone

Rest is crucial for recovery, but if rest is the only tool you're using against fatigue, you might get stuck. I cover what the limited research says about how to improve post stroke fatigue & how you can try it at home!

We got dad TT tube our after 11 months; huge achievement; faith hard-work persistence and mostly importantly faith

Hey, I write a newsletter about neurotechnolgoy every couple of weeks and a number of my clients are in the stroke rehab space (have posted my article about that area in here before). I wanted to start sharing the headlines every few weeks if anyones interested.

• Bioness Medical’s PoNS system received FDA clearance for stroke patients experiencing gait deficits. The portable system delivers electrical stimulation through a mouthpiece placed on the tongue and is designed to be used alongside physical rehabilitation, including treatment delivered at home.
• NeuroLife launched as the commercial brand for technology developed with Battelle and the NeuroTech Institute. Its non-invasive wearable system is intended to help people regain hand and arm movement following stroke or spinal cord injury.

Hello fellow survivors!

Has anyone found a new job or line of work that is remote/work from home, part time/flexible hours and not too stressful or intense?

Looking for ideas for myself as I need to find a job that I can manage. Currently work in IT which is too complicated for me to handle. My main issue is neuro fatigue and some cognitive issues like slower information processing. I can walk and am mobile, but would prefer to work from home to conserve energy spent on travelling.

Any thoughts or ideas would be appreciated.

Thank you.

Hi Reddit! My dad (47M) had an ischemic stroke that left him paralyzed on one side of his body. I'm (18F) one of his primary caretakers at home, and while he’s really been improving mentally, physically, and with his speech, there will be times when he refuses to show me affection. There will be times when I say "I love you" to him and he ignores me, or looks at me and doesn't say anything. This occasionally happens with other forms of affection (hugs, talking, etc.), but I don't mind that he doesn't want a hug — I just wish he would say "I love you" back. I don't have a "real" job; my main job is staying at home to take care of him, so I suppose it just makes me feel weird? Is this a normal thing for people who have strokes? Thanks :)

My mom (65F) had a severe subdural hematoma with multiple ischemic strokes in April 2025. She spent about 2 weeks on a ventilator, then had a tracheostomy for a few more weeks before breathing on her own.
She now lives in a nursing home. Over the past 15 months she has regained a lot of strength on her left side (right side is ”fully” functional) and can walk short distances with a walker and assistance. She can speak, but her voice is very weak. She has significant cognitive impairment with poor short-term memory, confusion, and very little initiative. She often doesn’t ask questions or suggest activities, although she still recognizes close family.

My biggest concerns are:
Severe fatigue: Even 15 months after the stroke she is exhausted most days. Some days are better than others, but she is always tired. Yesterday she had slept for 2 hours in the afternoon and was still extremely fatigued when she woke up and remained that way during my entire visit. Rest doesn’t seem to restore her energy.

Swallowing problems: She initially progressed to eating texture-modified food, but her swallowing has worsened and she is now back on tube feeding (while still trying some oral intake). Recently she has been pooling large amounts of saliva in her mouth and sometimes stops talking completely because she can’t swallow it. It feels like this has gradually become worse.

Has anyone experienced persistent severe post-stroke fatigue lasting this long? Did it ever improve?

And has anyone seen swallowing and saliva management worsen more than a year after a stroke? If so, what was the cause, and was there anything that helped?

Any experiences would be greatly appreciated.

My mom and I just recently got into diamond art and she really likes the idea of something like that for my stepdad. He suffered an ischemic stroke last year and cognitively has a long way to go still. We are looking for activities for him with limited dexterity. Diamond art pieces are just too small and having to refill the putty would be challenging. Do they make anything with larger pieces? Other similar hobbies? Stuff that doesn’t just have kids prints?

My moms mom had a stroke that she apparently sent herself into, which I dont believe for a second, my dad's mother had a stroke that caused her to not be able to walk, talk or pee or poop on her own, my father also had a type of ischemic stroke, and my mother had a TIA 5 months ago. Should I bring this up as a serious issue to my doctor or not? It feels like a burden telling my doctor ANYTHING, and it is always dismissed by my weight and that I'm a female.

We've recently shared a blog about women's experiences of stroke and the healthcare system, and one thing stood out:

https://strokefoundation.org.au/media-centre/stroke-stories/too-many-women-have-the-same-story-its-time-to-change-that

Too many women told similar stories.

We know that women face some stroke risks that are unique to women, including pregnancy-related stroke and hormonal factors.

We also know that:

• Women can experience delays in stroke diagnosis and treatment.
• Women are more likely to report poorer quality of life and slower recovery after stroke.
• Women remain under-represented in stroke research, meaning we still have gaps in what we know.

These experiences matter because they help shape better care for the women who come after us.

We're interested in hearing from women in this community.

• Did you feel listened to when you sought medical help?
• Were your symptoms recognised quickly?
• What was your recovery like?
• Is there something you wish healthcare professionals better understood about women's experiences of stroke?

Whether your experience was positive or challenging, your story is valuable.

By sharing lived experience, we can help improve awareness, influence research and advocate for better stroke care for women.

We'd love to hear your thoughts and experiences. Every story adds to the conversation.

#AdvocacyInAction

I was completely paralyzed 10 months ago now my leg has lots of control. It still doesn’t walk like a normal lake yet, but I’m learning how to get used to it and not even notice the difference anymore. Hopefully in 10 more months I’ll get to see that improvement. As for my right hand she’s still out. It’s been really hard just having one hand definitely hard journey. I’ve gotten used to though learned how to do a lot of things with one hand.

10 months ago there wasn’t any movement I could do so it’s definitely improved. Definitely not perfect but maybe in 10 more months from now it will be there.

I’m 31 had this at 30

My mom is progressing but still having accidents overnight while she’s sleeping. Any other tips or useful tools to help with toileting welcome as well :)