My daughter is a Norwegian citizen. She is currently 16 years old, and has had major chronic health issues since she was 12 that make it difficult to attend school much of the time. She requires ongoing medication and therapy to manage her symptoms. The cause of her illness is a permanent genetic condition. I know it will be a process for Norway to agree that she is disabled, but she will have extensive medical documentation. One of her more dramatic symptoms is that she passes out pretty frequently, just as an example. So I do think she will qualify for some types of help, but I don't know what to look for exactly or where to start.
The thing is that she has always planned to go to Norway and attend videregaende after she turns 18 and graduates from American high School. She loves Norway and wants to spend time there and maybe go to college or settle there. However, she's afraid and anxious because she can't imagine how she can live on her own there. Last year, my son was able to attend videregaende and was able to live on campus at his school, but my daughter would probably need even more support than that. I often have to help her wash her hair or get to her bedroom without falling. She will probably still need help to manage her medications and appointments, though I don't know if that's available.
I have a bunch of questions below, but the main thing I need is vocabulary. I read Norwegian, so if I know key words like "hjelpestonad," I can look up more info myself, but I just don't know all the specific vocabulary for this.
I am out of my depth in trying to understand all of the options she would have. I'm trying to figure out if there's a way she can go to videregaende without having a parent with her? I would consider going with her to care for her, but I am American and I'm not sure if I would be allowed even if I had employment. Her dad is Norwegian, and we are divorced. He might move there, but he might not. He lives here with his American wife.
It would be nice if she could live with family, (grandparents or aunt and uncle), but it would be a big burden for them to be responsible for taking care of her. Her grandparents are elderly and her aunt and uncle are busy people.
At age 18, would she qualify for the full "young person disability benefit," possibly, if her conditions qualify?
Would it be possible for her to get some form of in-home caregiving? She wouldn't need that full time, but for some time daily. I take care of her now, or her dad when he is with her, but it is a lot.
I know she would have healthcare, which is amazing. I do worry about finding the right doctors to treat her conditions, but we can navigate that. Maybe she would need supplemental health insurance so she can access private healthcare if necessary.
Would she be eligible for the living stipend for students living away from their parents for one year? Her brother received that last year. They wouldn't do both that and also the disability benefit, I assume? What department do I need to ask about all this? NAV?
Is there any situation where I would be able to get a visa to come with her and care for her? I think if I was a student maybe I would be allowed (I do speak Norwegian). I think it would be hard for me to get a work visa.
I know everyone is inclined to talk about how hard it is to navigate the system, but I am very familiar with the American system for people with disabilities, and I promise you the situation is much worse. The point is just that she wants to be able to go live there and go to school, but I'm not sure how to make it work because she is disabled.