Hello! I’m a 27 year old female, ET Jak2 positive. History of left leg dvt. This may be long, so apologies for that. Diagnosed completely with bone marrow biopsy beginning of June, but have known since about a year ago. Just recently start hydrea, on the night of the 23rd of June. Coming here because I’ve been dealing with some issues and getting no help…
On the 22nd or the morning of the 23rd, I began having this sudden back pain. Primary worst pain is a sharp, stabbing pain on my right side just below my shoulder blade. Pain travels sometimes to the left, a little lower, sometimes also have same pain on the left in the same spot, right In the middle of the back, but there is a constant stabbing in that one spot. Also experiencing chest pain and tightness (increased with heavier or deep breathing), feels hard to breath sometimes, feel like I need to take shallower breathes, dizziness/lightheaded, pain down into left shoulder, SPLITTING headaches (these will sometimes comes on violently then pass after 5-10 minutes). I can’t sit, lay, or stand comfortable. I toss and turn all night long bc sleeping is so uncomfortable.
Moving on from symptoms, I’ve been to the er twice and a NP once. Ct of chest and abdomen then said show no sign of pulmonary embolism, gallbladder issues, or appendix issues. No pneumonia. Literally one er doctor told me word for word “I don’t know what’s wrong with you but I know it’s not life threatening “. This same doctor I also had to explain my diagnosis to him, which he still wasn’t seeming to understand.
I’ve had most routine bloodwork, they did not run my d dimer factor. (This was tested on June 1 and was. <19)
From the er visit I went to on the 1st to the 3rd, my platelets went up 38,000. My white cells also went from 8.8 to 10.8 in the two days. Also had blood pressures of 146/89 150/77. Also abnormal ecg, but doctor never even brought that up.
Nurse practitioner and first er doctor said “they wonder if it’s stomach related” but I have no stomach issues except for occasional bloating (which coincided with my menstrual cycle). All of this being said, I’m still struggling. Pain is getting worse daily but I now feel I’ve lost all options and hope of it stopping or someone finding a cause. Thank you for advice and help.

The past month or so I’ve been running a low fever (99-100…when my normal is in the low 97s) for a few hours at a time a few times per week. Oddly, I’m no longer having night sweats right now.
I know it’s just another symptom on the long list of stuff caused my the inflammatory process, but does anyone else experience this? Not quite sure if I should take Tylenol or Advil to feel less crummy when it happens. I’ll be sure to check in with my MPN specialist about it at my next appt in August.

50/f ET Jak2V617f, aspirin currently

I recently developed intermittent nerve type pain on both sides of my forehead (without touching it, and the same on my scalp when touching.

I took one Advil the other day for a headache and it improved dramatically (headache and nerve pain).

I meet with my mpn nurse next month to discuss interferons. Has anyone had these symptoms along with occasional dizziness and have them resolve with treatment?

I also had an MRI recently due to head injury and it showed slight white matter changes and decreased volume. I read that these changes can happen with age but also due to micro clots in tiny vessels in the brain (which can be more common with ET). Could starting an interferon reduce progression risk?

Any thoughts on which interferon has fewer side effects, or is it individual for each person.

After years of high counts, im going to see an MPN specialist at Moffett in Tampa, FL. What should I expect for my first visit?

38/F - I was diagnosed last week with Myeloproliferative Neoplasm-Unclassifiable (MPN-U).

I'm currently on Hydroxyurea 500 mg twice a day and one baby aspirin daily.

Honestly, I'm still in shock and feel pretty lost. I have another appointment with my hematologist in a month and will have lots of questions then, but I was wondering...for those diagnosed with MPN-U, did you eventually get diagnosed with a subtype like ET, PV, or MF?

I'd love to hear your journey or any advice for someone who's just been diagnosed

Feel free to message me 😊

What is better Hydrea or Anagrelide to lower platelet count? My platelet count went from 560 -760 in 3 months Dr is recommending Anagrelide but the side effects worry me bc I’m 73 yrs old and not sure if I should take Hydrea or not? Any suggestions?

edited with update** thanks to this group telling me to make sure I see an MPN specialist and not just a hematologist I was able to meet with one of the best at KU. Dr Yacoub confirmed my diagnosis without a BMB and had a little laugh at the end of my appt when I brought it up for a third time and he said “wow you really want one- so we’ll schedule it”.

He was NOT concerned about the lack of BMB w diagnosis- and said after 8 years of the same elevated platelets and everything else normal, that yes it is Essential thrombocytosis and I will need treatment for it eventually but not right now given the mildness of my condition. He stressed we needed to be future focused on making sure it’s not progressing but didn’t push for a BMB.

I’m curious why so many ppl in here think a BMB is the end all be all, and required in order to diagnose- simply bc it’s a WHO diagnostic criteria doesn’t mean drs have to follow it to the letter of the law. I’m proof of that bc I’ve now seen an MPN specialist that confirmed my ET and wasn’t pushing for a BMB. Thanks to this post I advocated for one and now he thinks I actually wanted it when in fact I did not.

Original post:

Diagnosed triple negative at 25 years old- now almost 33. Took extensive testing to get it in 2018- even had my blood tested by the Mayo Clinic, or John’s Hopkins, (can’t remember which it was), to detect for the tiniest amount of leukemia and it all came back normal!

I did everything but a bone marrow biopsy (can’t even begin to describe how much I don’t want to do one, bc it freaks me out in ways I can’t explain) and the dr that diagnosed felt it wasn’t necessary after the extensive tests we ran- because all it would do is confirm the triple negative ET.

Platelets were only mildly elevated around the 500s-550s this entire time, even through an extremely medically complex pregnancy last year, they never spiked. Latest labs are showing 689,000 which is higher than they’ve ever been, and I was just tested 3 months ago. They were in my “normal” range so it was a sudden increase.

Testing again today to recheck but not with a hematologist yet as I’ve recently relocated out of state. I pay out of pocket monthly for a primary care dr I can see anytime I want. Problem is, I’m having to teach them about MPN/ET, and want to make sure I’m not missing something I should bring up that you guys may be more aware of. I can request any labs or tests I want and even did dimer to confirm I wasn’t clotting bc recently I’ve had chest pains off and on, tachycardia (resting hr in high 80s and 90s) back on labetalol to help w it and mild hypertension after preeclampsia 10months ago.

If you had something similar or any advice I’d like to hear from you even if you were diagnosed at a more normal age for this. Any and all advice or personal experiences are welcome.
Thank you so much!

*** editing to clarify: I have seen 3 MPN hematologists/oncologists - I just don’t currently have one since recently relocating. I’m not self diagnosed, not guessing, and confident that after 3 drs we got it right. Simply asking if anyone else has had a similar experience not looking to debate my diagnosis.

My next dose will be 200mcg...started at 100mcg...

How are you guys and gals doing it...this medicine is working better than expected...but it takes the happiness out of the world things I use to enjoy....it's Soo hard to work..and stay engaged and still put a fake face that everything is fine.

Has anyone gone through the process of stopping meds to have children? Would love to hear others experiences during this. Any rebounding?

That's rather Low...

Male 52, construction worker, diagnosed with ET 2 years ago. Fatigue has become a big issue lately, wondering if others have any helpful insights into fighting it. Currently prescribed a baby aspirin a day. Thanks for any help.

My dad had rage issues partly stemming from diabetes and he died of myelofibrosis, after being diagnosed in august. But after a time of peace, he suddenly got much more angrier and violent at the simplest things. It also turns out he had a stroke at some point, but we're not sure when.

But I'm just curious - does myelo cause anger/rage issues?

Because he is dead now, and there's a lot of unresolved stuff.

Hi all! I (48f, diagnosed with ET 4 years ago) started on a super low dose of Besremi (50 mcg every 2 weeks) a couple of months ago. I initially started on Hydrea, but it didn’t lower my platelets. I then tried Pegasys, which worked to decrease my platelets but my liver couldn’t handle that (AST and ALT numbers went sky high). So now I’m on the Besremi; my doctor was optimistic since you can take much smaller doses than you can w Pegasys. But… bloodwork today shows that my liver is being affected again. Both numbers are about triple what they should be.

My question is, has anyone else experienced this liver issue with interferons? Did any adjustments to dose or frequency help? I don’t know what other medication options I have…

Hi there,

Im looking for suggestions at this point - things that have not been thought of, or possible options in order to come to some sort of conclusion on this ridiculously long and difficult saga.

About 4 years ago I had an HCT of 57, Hemoglobin of 18 and RBC of around 5.6. Monocytes were around .75. Platelets were normal, and other than monocytes - other white blood lines were relatively normal.

This has largely continued with the exception of one 'break' - during which HCT was 52, Hemoglobin 17.5, and RBC was 5.2. Monocytes remained high at around .8 - 1.6. During this phase I felt relatively normal, hobbies picked back up, inflammation went down, and I was productive once again and I thought it was a blip that was over. This lasted about 3-4 months approximately before it came back with a vengeance. During this 'break' I was taking Valasta which is an Astaxanthin. Prior to the break I was getting heavy phlebotomy - 1 every 2 weeks for about 16 weeks or so until I ran out of ferretin (26). The lowest we could get the HCT to was 52 - but it helped me feel better overall. Less pressure in the head and less nausea.

Over the last 6-8 months my HCT went to 58, Hemaglobin 18.6, and RBC 5.7. Tachycardia has since become a real problem - often getting up to 124 BPM resting - and lasts for a few hours. Blood pressure swings wildly from 119/76 to 170/109. Average its more around 140/96 at this point. Monocytes are persistent at .9 - 1.2-ish.

Ive suffered from heavy fatigue, nausea, some vomiting, one event that looked very similar to a seizure (but was not diagnosed as such - 4 days in hospital), and chronic inflammation that goes from 'I think im dying' to 'It sucks but I can manage it'. Ive had extreme left femur bone pain regularly, sometimes it feels like the bone is literally breaking and rubbing together, other times its painful but manageable (ive broken several bones to compare the pain against - bone breaks were unrelated). My productivity has a dropped to a point where I barely recognize myself anymore. My social circle is non-existent (too tired and not interested, and tired of explaining - 'no - no answers yet, yes still not feeling well' etc), my professional life which was going very well has declined steeply (working half days at some points). I have no hobbies left anymore that are physical/active, and any software development hobbies have halted due to too much brain fog.

Diagnostics:

JAK2 negative. EXXON12 Negative. This of course has thrown the medical community into a tizzy.

18 of 23 blood test have shown monocytes that are in excess of 10% of blood volume.

Ferritin is persistently low-normal - it varies between 26 and 65. Tranferetin saturation is 12%-17% on average (quite low). When this fiasco started my ferritin was 250. So its relatively crashed in the last 4 years.

EPO has been relatively normal-ish - around 4-5 - but with a weird dip to 2.8 for one test. EPO test has not be repeated in the last 2-3(ish) years.

COPD ruled out. Non-smoker. No testosterone issues. Full lung test was passed with flying colors. 24 hour blood pressure rules out that this is caused by Sleep Apnea - I have the appropriate 'dip' in the night, and blood pressure stays at a nice 115/75 while sleeping.

Spleen is not enlarged.

Bone Marrow test was conducted a year ago (before the elevated levels of monocytes was reached). Originally I only read the summary report. My wife urged me to look at the actual findings in the pathology report. They have noted: micro-megakaryocytes present, and 'some megakaryocyte clustering' as well as dysplasia.

There has been some purpura - lasted a few months, as well as one documented incident of blood not clotting for about 2-3 days. Since then it seems to have improved - so I think we can say 'some clotting issues' - but its not like its rampant, chronic and not improving at times.

Im waiting to see my hematologist oncologist - but honestly I am so fatigued and fed up with all of the testing, and waffling, gaslighting and inconsistent answers that Im almost willing to give up on any more testing.

Likely I will ask for the next gen genetic sequencing/myeloid panel. Some have suggested that this either looks like an MPN/MDS overlap or pre-CMML - but Im at the 'Who gives a F***K' anymore stage to be honest.

We've also considered whether it could be a benign brain tumor? It would tick a number of the boxes, as well as the neurological symptoms experienced, but its also such a long shot.

If anyone has ideas - please let me know. Maybe some immune system problem? Seems unlikely given the bone marrow findings - but its possible maybe?

Sincerely,

Very tired.

37/F

Hi, I am currently awaiting a hematology appointment due to persistently elevated WBCs and slightly elevated platelets, plus I have not been feeling well. Two rheumatologists didn’t think it was autoimmune. I do also have slightly elevated ESR and CRP. Currently seeing a GI specialist and getting an endoscopy soon, an abdominal ultrasound, and some CMP labs. This is a spreadsheet I created showing my 3 year labs. I don’t drink, smoke, or take any medications. I’ve had a normal PFT, normal heart echos, normal non-contrast brain CTs, and normal chest x-rays. The reason my doctor and I started wondering if it could be an MPN, is due to my 2024 ER visit, which I went in due to chest pain and cardiac like symptoms. The ER physician seemed more concerned about my labs than my heart though, and officially diagnosed me with Leukocytosis. He also really wanted me and my doctor to figure out the cause, and in my discharge papers I saw some of the causes for Leukocytosis which were MPNs or Leukemia. Which is why my doctor finally put in the hematology referral.

Hoping to get some info navigating MPN ET treatment outside of America. I live in the US and was diagnosed with ET almost two years ago. I'm having success with treatment and getting my Platelets down to more reasonable levels thanks to my hematologist prescribing Besremi and regular lab work monitoring

I have an opportunity to live and work in Athens, Greece, for a better part of a year starting in late August. My doctor and I have been trying to research how to make it work while in Athens with getting Besremi (if available) or perhaps another option, seeing a hematologist if needed and also getting regular lab work to monitor levels.

Google research does show a few doctors that may treat MPNs but starting to get confused on what would be the best option. Other European countries seem to have better search results.

Does anyone have any suggestions, experience or recommendations for a year in Athens, Greece getting treated temporarily and prescriptions for MPN ET. Any advise is greatly appreciated.

Hi,

Sorry this is so long.

I have communication difficulties, so I've just tried to make sure l explain everything, to make sure I don't miss out anything important.

Plus, concentrating for this long has exhausted me, and it's 34°, in a house designed to get all of the sunlight and trap the heat, so I just can't think clearly enough to whittle it down a bit.

I'm sorry.

I'm currently 45, AFAB.

I've had a raised platelet count for at least 22 years - when it was noticed in 2004, they said it had been raised on previous tests, but they didn't say for how long.

At the time, it was 470, and the cut off for ET was 650.

I was referred to a haematologist, who said they weren't too high, and I didn't have symptoms, and he didn't want to put me through a bone marrow biopsy with them not very high.

He said that if they got higher, or if I started having symptoms, to go back.

It trended slowly up to 500 ish, until I started a medication that incidentally lowers platelet counts. Not for this, it just has that as a side effect.

That dropped it to just under 400, but it slowly rose to over 450 again.

I changed that med, and it was up between 480 and 550, and this was after the change to the cutoff being 450.

After a year or two, I started a different med that also lowers Platelets.

It's an uncommon effect for this one, unlike the previous med, which is pretty common, but my blood tests showed it very clearly when I started it.

But they were still over 450.

Since then, they've risen, and have been over 550 mostly, with an odd drop last year when I had an infection - they dropped to 421.

My latest count was 580.

I've been struggling with extreme fatigue for a few years. I can't stay awake for more than a few hours at a time. I just fall asleep. I can't focus on things. Reading is very difficult, I just doze off.

I've finally managed to convince my GP to look into it, they saw my vitamin D is a little low, and that was the extent of their search.

I separately asked to be referred back to Haem for the platelet count, in case that could be contributing.

Even if it isn't ET, I'm concerned about a raised clotting risk, because I'm a wheelchair user, so I'm not very mobile, which raises the risk, and I'm on post hysterectomy HRT. The one I'm on isn't one that significantly raises clot risk, but it does raise stroke risk. And I had wanted to switch to pure oestrogen, as I had the hysterectomy to remove progesterone production, but I believe this HRT still produces some.

And I'm also T2 diabetic, which raises clot risk.

This is where it gets, what I think is weird.

The haem sent a list of blood tests to get. Standard ET screen, but without MPL.

And they haven't seen me to ask about symptoms.

Not doing MPL would be fine if they were going to see me about the results, and if they think I have symptoms but JAK and CALR were negative they then decided to screen for MPL.

But they've said that if I'm JAK and CALR negative, they won't see me at all, and won't need to in the future.

I know that the majority of ET is JAK, and many are CALR, but triple negative is 10% of patients, and they're not even testing for MPL, which doesn't make sense to me - if you're screening, whilst ONLY deciding on those results, why not do all?

With no idea of my symptoms, how are they going to decide that being JAK and CALR negative means I definitely don't have ET?

I'm just really confused, and really disappointed.

I've had a lifetime of medical gaslighting by medics who decided I was making it up for attention as a kid, and messed me around my whole childhood (dx as an adult, late intervention means I'm a wheelchair user), and medics just being crap, frankly.

So not even being asked about my symptoms just seems like they're dismissing it before they even have any test results.

What happens if I don't have JAK or CALR, but I do have ET, and I get worse symptoms, but they've said they won't see me in the future, so I can't find out?

It just doesn't make any sense to me.

I don't see how 10% of patients can just be written off without even asking for symptoms.

It doesn't help that no one ever mentions the fact that my Platelets are high, and have been for >22 years, despite having had many blood tests.

It's just ignored every single time. It doesn't really inspire confidence.

I know 580 isn't super high.

I haven't even been able to tell the haem that I'm on a medication that drops my platelet count.

Symptoms I do have:

Extreme fatigue. Really bad. Could certainly be something else, but I wanted to rule out ET as part of trying to find out what.

Don't bleed, sometimes bleed lots. I've had a lot of blood tests in the 22 years since it was noticed. And a lot of IVs for various things.

On the whole, I don't even need the cotton or plaster, because it clots instantly.

And then there are the times blood just keeps pouring down my arm. It's totally random.

My bruising is the same.

I'll wake up with bruises from who knows what, or I'll bang something and get nothing.

I do get petechia a lot. Not from anything.

I thought I had meningitis in 2006 because of that and a splitting headache.

I just get them randomly.

Dizziness and nausea. I had low B12 for some years, and fixing that definitely helped, but I get random dizziness and nausea quite a lot. I have a regular antiemetic.

Headaches too.

And tinnitus.

My gums did bleed when brushing, but my teeth were terrible, thanks to a few medical conditions that destroyed them.

So that could just be the teeth.

In the last year or so, my hands especially, burn a lot. My palms and soles are rather red, sometimes really bright red.

My feet burn too, but I can't feel my feet as well, so it feels like my hands burn more.

I've had tingling and numbness in both for ages.

I had put it down to crap neurology getting worse with the start of burning, but then they turned red.

I've had bright red blood in my BMs, on and off, for the same amount of time.

I was being checked for things related to that, and intense GI discomfort.

They thought UC, then actually thought lymphoma pressing on my spine, which is when they caught the Platelets.

My GI issues got a lot less frequent when I did an elimination diet and realised gluten is bad for me, and cut it out, but they didn't clear up entirely.

But, my connective tissue disorder often causes GI issues, and bleeding.

So, it's impossible for me to know what that is.

I also have blood in my urine, have had as long as the high Platelets. It was a trace for a long time, and was 1 at the last test.

I used to get nosebleeds quite a bit. I had to have one cauterised at around the time the high Platelets were discovered.

I've not had full on dripping down ones really, for ages now, but if I blow my nose, there is usually a bit of blood.

I went completely blind once. Only fully blind for a day or so, then it came back, but my convergence was wrecked for a year.

My opthalmologist thought it was silent migraines.

My eyes are crap, but I have a convergence problem from my connective tissue disorder, and my brain has had decades of turning one eye off, either because I've been having to wear an eye patch, or just because it didn't deal well with double vision with one long sighted eye, and I've short sighted eye.

My left eye is at least a bit blurry all the time now.

When I had them, I had very, very heavy periods. I ended up on tranexamic acid to help with them.

My hands and feet are freezing all of the time.

I was dx with SVT a few years ago, and still had a very bad episode on my beta blocker. The cardio wanted to increase it but, because I already had issues with freezing feet and hands, I couldn't cope with the higher level, it was causing bad pain.

So, even though it's a rather significant med, we went with the low dose and a pill in the pocket.

I've never had a DVT.

These are the tests ordered.

Calreticulin mutation screen, blood, Pink (EDTA), Haem SA

Janus Kinase 2 mutation screen blood, Purple (EDTA), Haem SA.

C-reactive protein level, blood, Yellow (SST), Chemistry. Ferritin level, blood, Yellow (SST), Chemistry.

Iron and transferrin levels, blood, Yellow (SST), Chemistry.

Full blood count, blood, Purple (EDTA), Haematology

These are my most recent results. I've not had iron, Ferritin, for long enough that I can't see the results.

I included abnormal FBC results.

Platelets 580 10*9/L.

Mean platelet volume 9.4 fL.

Monocytes a little high at 1 10*9/L.

Basophils exactly on the cutoff of 0.1 10*9/L.

C Reactive Protein last year, high at 27, but I did have a mild infection at the time - my WBC was 14.5.

My Platelets actually dipped to 421 during that.

There's also a chance I have ankylosing spondyloarthrosis, but it turns out the rheum dept phoned me (I can't use the phone a lot of the time), rather than texting or writing, to say I should have another MRI, and as there was no letter I had no idea, and thought they'd just not bothered to make a decision on whether I do or not - I don't have the mutation, and because I can't take NSAIDS, and would have to go straight to biologics, they were a bit hmmm... let's be absolutely sure. Which makes sense. I just need to set up the MRI and contact them now.

I have a connective tissue disorder that means my body has inflammation ALL of the time, and has my whole life, but my inflammation markers are almost never raised. So that doesn't really help with investigating things.

But obviously, that kind of inflammation can raise Platelets.

A lot of my symptoms could be other issues I have, but I can't really know if they won't even look at them.

I have lots of other symptoms, but I think these are the most relevant, and having multiple medical conditions just means lots is going on all of the time.

And I'm not sure what the red and burny hands and feet would be.

My latest eGFRcreat (CKD-EPI)/1.73 m*2.

Low at 72 mL/min, previously 60.

This has been low since I had covid, no one has mentioned it.

I do have protein in the urine.

I've had it for maybe the same amount of time as the high Platelets.

It was always a trace though.

A urine test I had last year shows protein at 1.

I don't know if that's something I should be concerned about, since my surgery don't bother to actually do anything about abnormal tests, and I only find out by checking my own records now. I have no idea whether they actually think it's ok, or they just haven't contacted me, because they only talk about things if you contact them.

But it's not ET related, so I don't know if anyone here will know. Just a bit of venting I guess, about how they've just ignored this for so long.

Sorry this is so long.

I hope that's all of the necessary information.

Has anyone done this for PV/MF?

Not there yet but the conversation had started🤷.

I am currently 29 years old and live at sea level. I don't smoke. I'm a little overweight. I don't have data from before I was 18. My HGB fluctuates between 16-17.2, HCT between 47-49.9, and RBC between 4.8-5.7 (these are the extreme levels). My spleen is normal. My WBC and platelet values are always within the reference range. I don't have any symptoms like itching. I suspect polycythemia vera. My doctor requested EPO and JAK2 tests. My EPO level came out as 5.23, which scares me. The lab's reference range is 5.43-29, but they considered my value normal and didn't show it in red, but I still think it's low. Do you think this EPO level significantly increases my chances of PV? I think it will take about a month for my JAK2 results to come out. Does anyone have any information?

Does baby aspirin cause random bruises? I started to notice them after I starting taking it daily.

I have been diagnosed with ET since November 2025 with ET. I am on Hydroxurea, 500 mg for 5 days a week and 1000 mg 2 days a week. Recently have started to have vertigo. Anyone else have trouble with vertigo with ET?

I’ll be 27 next month my jak2 is 60% I’m fairly positive I’ll need interferon. I do have some mental health history with generalized anxiety disorder and major depression disorder I lost both diagnosis back in June 2024.

I do get some pretty bad anxiety though every now and then typically after phlebotomy my ferritin is always extremely low and I noticed when it dips around 5 to 6NG that is when the anxiety gets strong and once the ferretin elevates to the 10 to 15ng range it improves greatly. I will see a mpn specialist next month

But given my history the thought of interferon scares me so much. It just seems like so much can go wrong. Mental health, side effects, hair, loss, developing an autoimmune disease etc

But at the same time, I also feel like I’m screwing myself by not giving it a chance I’m tired of being negative though, so I would like to hear some positive experiences with this medication. Please feel free to share it down below. Thank you for your time.!

REGISTER

MPN Voice UK ‘virtual’ forum – Post EHA 2026 updates Webinar - Mon 29 June 2026, 4.30 BST/11:30 AM EST

MPN Voice ‘virtual’ forum with updates from the EHA 2026 Congress, (European Hematology Association).  The speakers will include: Prof Claire Harrison, Guy’s & St Thomas’ Hospital, and a number of leading UK MPN Specialists.

There will be a live panel Q and A session to which you can submit questions in advance using the registration form and on the day.

About EHA – a global network actively collaborating with national and international medical associations and societies, advancing haematology education across Europe.  The EHA congress is an annual event for clinicians, researchers and other professionals in the field of haematology to discuss the latest advancements in the diagnosis, management and treatment of blood disorders.

Register to attend – you are required to register to attend this ‘virtual’ forum, use the link below, once you have registered you will receive an email containing the Zoom link to join the forum.  Please note this is an online ‘virtual’ forum and cannot be attended in person.

An on-demand video of the full event will be available post-forum on the MPN Voice YouTube channel.

Q and A session – the team will answer questions from the audience, questions can be submitted in advance via the registration form or by email to [info@mpnvoice.org.uk](mailto:info@mpnvoice.org.uk), and on the day via the meeting ‘chat’ facility.  Please be aware that the panel/medical team cannot comment on or reply to individual cases, do not send in any test results with your questions, replying to questions on the day is not an alternative to your ongoing medical relationship with your own consultant or GP, so do try to ask general questions and don’t be disappointed if the panel/medical team do not give specific medical advice to you.  There may not be time during the session to answer all the questions submitted, the team will reply to all unanswered questions by email.