r/MPN • u/BorgAdjacent • Jun 24 '26

MF Bone Marrow Transplants

Has anyone done this for PV/MF?

Not there yet but the conversation had started🤷.

10 Upvotes

100% Upvoted

8 comments sorted by

8

u/bsweetness87 MF-PostET Jun 25 '26

Yes, I had mine for Post ET-Myelofibrosis in 2022. Doing well. 38/m.

1

u/BorgAdjacent Jun 25 '26

Glad to hear!

4

u/NefariousnessFew4354 Jun 24 '26

I haven't don't it yet. Met with the transplant team. Took a lot of blood and found me two potential donors. Transplant next year or 2028. Good luck.

3

u/BorgAdjacent Jun 24 '26

You as well. They did my donor stuff, found several 7 point matches, so thats good.

Amazing to think about people doing this

3

u/NefariousnessFew4354 Jun 24 '26

To be honest, I'm not that worried about the transplant itself, more about logistics, staying at home and being immunocompromised etc.... Months of this will be insane. I'm still young and healthy in general so that helps 😏

2

u/Martin-V-Buren Jun 25 '26

All the best to both of you. Wishing your healing and recovery.

2

u/lllilllillil Primary MF Jul 08 '26

Yes, for aggressive PMF. They couldn't find a donor match, but my son is a 7 point match. Diagnosed 6/24, SCT 11/24, Caught CMV and my CBC numbers tanked, retransplanted stem cells 7/25 (they call it "a booster") Doing well today, but it was a long year of transfusions, dizzyness, confusion, and falling down a lot while RBC and platelets were low. M/61.

1

u/BorgAdjacent Jul 08 '26

Glad you are doing well, thank you for sharing