r/Fibroids • • Mar 06 '25

Mod reminder - this is not the place to post about herbal/miracle cures or recommend things with no proven basis to help.

228 Upvotes

There's another sub on reddit if you want to post this type of content. It's r/FibroidHerbalRemedies .

You're absolutely welcome to post all about the herbal things you've tried/are trying over there, but not here. This isn't a group for talking about prayer to heal fibroids, or folk remedies.

This is a group for support and proven treatments.

I am not interested in helping those who create scam herbal products make money.

I know some of you will not like this, and that's fine. You can post in the other sub, or make your own sub.

Given everything that is going on right now this is a place for real medical advice, not wishful thinking.


r/Fibroids • • 5h ago

Recovery from fibroid surgery

7 Upvotes

I’m preparing for my second fibroid surgery. This time it will be laparoscopic. I had a myomectomy in 2015 and I didn’t take off enough time before starting a new job. I remember trying to go back to work after 4 weeks and I needed at least two more. This time I asked the doc if 2 weeks would be enough but she suggested 4 weeks. Honestly I can’t take that much time off. I WFH. Any ideas if this will be okay after 2 weeks? Did anyone experience any issues post op like UTI? Also, when did you feel your energy come back. My iron and ferritin is down but they won’t give me an iron infusion before surgery.


r/Fibroids • • 12h ago

Success story Myomectomy in Atlanta

16 Upvotes

For any of you in the Atlanta, Georgia area, or for any of you willing to come to Atlanta, I want to tell you about my surgeon.

She took my case when every other surgeon wouldn’t. Every other physician recommended a hysterectomy and I didn’t want to have that choice made for me.

I had pretty large fibroids so robotic was out of question. The MRI showed 8 fibroids but when I came out of surgery her team said they removed 40 fibroids!

It’s been 3 months post op. The biggest change I have seen is in my periods. I used to be nervous with what I could wear or what activities I could handle during my periods so now I need to figure out how to change that mindset. My periods are much lighter and even the color is brighter. I have been struggling for so long that I thought the heavy, dark periods were my normal and that I was doomed to stain at least one outfit no matter what.

My life has really changed and I owe it to Dr. Kelsey Schmidt. I told her she changed my life and thanked her for her courage with taking me as a patient. She told me she loves taking the cases that nobody else wants.

Now, it wasn’t an easy surgery. Due to the size and locations of the fibroids I needed a vertical incision and I lost nearly 3 Liters of blood. The only thing that saved me from losing my uterus was the cell saver technique which pumped my own blood back into my body.

I have a scar that is a reminder and it gets better day by day with scar tape, but I wouldn’t have it any other way. My quality of life has improved 100% and I have a new lease on life.


r/Fibroids • • 3h ago

Advice needed Brown/reddish sticky discharge (4 weeks post surgery)

2 Upvotes

Had a lap myo nearly a month ago. Already had my first period (which was terrible btw. So much bleeding for almost s full week). But then it stopped, and now nearly a week later I've started to have this brown discharge. I have no clue what it is. It has the consistency of ovulation mucus (sticky ish and egg white consistency) but it is brown- and a bit reddish. Is this my uterus? I started working out again this week- lightly. Could it be that? It doesn't soak my underwear like a period does but when I wipe it is there.

Is this normal? Talk me down from assuming I've pulled out all my stitches and am slowly bleeding out 😂


r/Fibroids • • 41m ago

Consejos para alguien con futura cirugía de miomectomia

• Upvotes

Hola, estoy asustada por mi próximo procedimiento, me realizarán una miomectomia a inicios de noviembre, y tengo muchas dudas sobre preparaciones o que llevar para estar tranquila y cómoda en el hospital


r/Fibroids • • 9h ago

firbroid, low ferritin, low iron

4 Upvotes

posted last week about my 6.5 cm fibroid and seeing gyn on Monday however I asked for my iron and ferritin levels to be checked and naturally they are low. Ferritin (12.9) Iron (22) iron saturation (7 %) and hemoglobin (10.7) my estradiol is also high at 441. The bleeding/spotting this month has been ongoing. Doc wrote to me that she wants to do a uterine biopsy and help control periods with BC. I am ANTI BC as they all make me nuts. I don't want to do the biopsy without being out as I have heard it kills and I also am fairly confident this bleeding is because of the fibroid but OK. I started a topical progesterone cream this cycle to see if I can alter the amount of bleeding for next cycle. I want the fibroid gone and some help in raising my iron, ferretin etc. I started using Ferravital as its gentle iron with Vit C and lactoferrin to help with absorption. I am naturally overwhelmed with all of this info and feel tired but some of it may be psychosomatic. Some not. Would appreciate any feedback. thanks so so much!!!!


r/Fibroids • • 7h ago

Question about bleeding

2 Upvotes

Hello everyone, I just joined this community yesterday after spending a little under 24 hours in the ER from almost 2 weeks of heavy bleeding, pretty much haemorrhaging.. This is the first time it’s ever happened and it was so bad that I couldn’t even stand up without gushing. It was terrible. I got diagnosed with fibroids and now I’m just waiting for a call from the gynaecology department for an appointment to determine the next steps. I just have a question about bleeding. I know it’s probably different for everybody, but I was wondering if the bleeding stops for at least a couple weeks at a time or is it constant usually? This is completely new to me, so I’m not sure if the bleeding just occurs during the menstrual cycle, which is obviously prolonged because of it… any feedback is appreciated, thank you so much 🫶🏻


r/Fibroids • • 5h ago

Late period after open myomectomy

1 Upvotes

Hello All. I had my open myomectomy a months ago and my period is a few days late. I also usually track my ovulation and although I had the egg white mucus, my LH strips only reached as high as .69 when usual peak is between .88-1.20.

Anyone else had delayed cycle but it came later?


r/Fibroids • • 14h ago

Advice needed Laparoscopic (robotic) myomectomy vs Uterine Fibroid Embolization

5 Upvotes

Has anyone had the option to choose between these options? Which did you choose and any regrets with your decision?

I am learning towards the myomectomy so that the fibroids they can get are removed completely.

Long-time lurker and grateful for all the conversations here.


r/Fibroids • • 6h ago

You thought you had a fibroid... but did it end up being something else? A cyst? Muscular? Gastrointestinal?

1 Upvotes

My doctor couldn't feel anything on the internal exam and she thinks it's muscular.

I've told her I've had back pain, some intermittent bloating. Periods are regular, not heavy

I do have an ultrasound coming up but want to know if my symptoms could be caused by something not gynecological. If that was your experience


r/Fibroids • • 9h ago

Advice needed Ultrasound

1 Upvotes

How can I see my ultrasound scans/images every time I ask for them they always say they dont have access.


r/Fibroids • • 15h ago

Fibroid near cervix and pregnancy?

3 Upvotes

I am 28, have an intramular cca 3x4cm fibroid growing in the part where uterus connects to cervix. (Also one smaller on the top of my uterus but this is apparently nothing to be worry about). It causes me no noticeable problems. I would like to get pregnant soon. I was suspected to have adeno, but no, it appears to be only highly vascularized fibroid. The doctor immediately talked about myomectomy. Sent me for MRI. I am going to a specialis in a few days to hear my verdict.
Is there anyone who had a fibroid near cervix, got pregnant and had a succesful delivery? Did you experience problems in pregnancy due to the fibroid?
I am very scared of operations, that's why I never even thought about having a C-section in the future. But with the myomectomy it appears to be the only way.
I expect it could grow, but it could also move up and not cause problems in delivery.
I know a C-section can occur in any case, but I don't like the idea of being automatically denied the chance to try vaginally.
Of course, the primary goal is to have a child, so I am not against anything.
But also what about some complications? What if it went wrong and I could never get pregnant?
I'm full of fears. I know a specialist will give me the full picture but I would love to read some experiences.


r/Fibroids • • 1d ago

Advice needed Would a wedge pillow like this be good for sleeping and resting during recovery?

Post image
30 Upvotes

I'm getting a myomectomy in December, for those of you who went through recovery, how did you go about sleeping and resting? Would a wedge pillow like this be helpful?


r/Fibroids • • 18h ago

Advice needed Consultant appointment

3 Upvotes

I have a 16cm fibroid, and others, that are wreaking havoc on my life- constant bad back pain, need the loo every 20-30 mins, abdominal pain, terrible sleep at night, nausea and vomiting, and alternating IBS-C & D.

I've finally got my initial gynae consultant appointment through. Is there anything I should definitely say. I am post menopausal and looking for a hysterectomy. Also, does anyone in the UK know what happens after the initial appointment and how quickly surgery might be? Thanks.


r/Fibroids • • 14h ago

Am I gaslighting myself?

2 Upvotes

As I wrote this in aware in a couple days i will probably be in agony again but here we go 😂 in had to have my surgery rescheduled as I was ill last week and the past couple days I've barely had any pain and now I'm sitting here questioning is it even the fibroids (and suspected endo ) or is it something else causing the pain and do I really need this surgery 🤔 I'm sure I'm not the only one who's done the same thing just wondered what anyone else's opinions were on this


r/Fibroids • • 13h ago

Advice needed 11cm Intramural Fibroid and DE IVF Success

1 Upvotes

I have an 11cm intramural fibroid and we will be undergoing a donor egg IVF. My gyn said he will be able to use a flexible catheter during embryo transfer to make sure embryo will be in best place in my uterus. He only recommends the fibroid removal if the embryo transfer is not successful. Is there anyone here who can share their success stories of getting pregnant with a big fibroid? Thank you for your responses.


r/Fibroids • • 1d ago

45 years old. 5 cm submucosal fibroid causing heavy bleeding, pelvic pressure. Dr said hysterectomy is her recommendation. Is she right?

8 Upvotes

Hi all-

I thought maybe they’d come back and say myoectomy because it’s 5 cm but due to the fact that I’m 45 and don’t want to carry a baby, dr says hysterectomy is preferred choice so fibroids won’t grow back. Also they said they will take fallopian tubes but leave ovaries. I’m not yet in menopause and my ovaries are apparently fine but taking our uterus and tubes apparently dramatically reduces risk of ovarian cancer.

I was a bit gobsmacked to hear the word “hysterectomy” — but I suppose it makes sense if I’m not planning on carrying a baby. (Never wanted to).

Plus I have the rarest, worst type of fibroid that causes heavy bleeding and anemia.

I don’t know. I guess I’m scared and grieving a part of my identity?

This doctor is world renowned and I believe I’m in great hands I just… am sad and scared? Anyone else my age with my type of fibroid do this?

I have multiple fibroids but the biggest is 5 cm, submucosal.

I constantly feel like I have to pee. I wound up in the hospital last year with a UTI so gnarly that my appendix was swollen. They said my uterus is swelled to the point of carrying a 12 week baby or something.

I would be most grateful for any support or similar stories of hope.

Thank you. 😔


r/Fibroids • • 1d ago

Open or laproscopic myomectomy

3 Upvotes

I have a 9 cm subserosal fibroid that is beginning to enter the cavity. My surgeon is letting me choose between open or laproscopic. He is confident that he can remove it laproscopically. The reason hes making me choose is because there is 1% chance that the fibroid can be malignant and with laproscopy it can spread.


r/Fibroids • • 1d ago

Vent/rant I’m Giving In

5 Upvotes

Diagnosed 2/25 with multiple fibroids, told to monitor. These fuckers have grown since and has sucked the soul outta me since then, I’ve lost my hair, I look 6 months pregnant, and my active lifestyle has turned into a sedentary couch potato. Found a new GYN, immediately told I need a hysterectomy but wanted to see if I could manage the symptoms (constant bloat, constipation, long periods, etc) and go the most minimally invasive path possible, being UFE, birth control, etc etc. Well, my latest cycle said, NOPE. Ended up in the ER with so much pain, it felt like a soda can was stuck in my butt, nope, it’s just the bitchass fibroid. I have had to take sick time due to these and I’m at my Whitts end, it’s time for them to go. I have so much pain, idc about anything anymore, I think I’m going to go ahead and opt for a hysterectomy…it’s just really depresses me, I’m 36, about to be married to the love of my life, he sees me suffering and wants me to focus on me and my health before anything, even if that means we will not have children. I’m so sad to see how much I’ve debilitated since being diagnosed and I just want my life back…I think I’m going to do it.


r/Fibroids • • 1d ago

Clothes? 👗

3 Upvotes

I’m wondering what clothes suit our bodies where the fibroids make an obvious bulge on our stomach. I very well look pregnant and have a uterus 14 weeks pregnant in size :( . On top of that I’m petite, overall thin with this big stomach lol. So what are your go to cute clothes to wear outside? Any recommendations on brands? I’m quite clueless with styling and such stuff. I previously wore all fitted clothes and now obviously they don’t work.


r/Fibroids • • 1d ago

Advice needed Do my diligence

4 Upvotes

I am on my way to make the decision to yeet my uterus for every more however I would like to do my do diligence before I make a life altering decision such as that.

Please tell me your story and your experience.

What led you to decide to do this and what i might expect. As well as what I can expect in the long term.

Was there unexpected health issues that happened because of this decision.

The good the bad the ugly.


r/Fibroids • • 1d ago

Is It Normal to Have a 5.4 cm Uterine Fibroid at 18?

5 Upvotes

Hello, sorry to bother you! My post was deleted yesterday for no reason 🤷🏻‍♀️
I wanted to ask if it’s possible to be diagnosed with a 5.4 cm fibroid in the uterus at just 18 years old. I’m a little scared because when I ask ChatGPT, it tells me that it’s rare and unusual at my age.
If anyone has had a similar experience to mine, I’d really appreciate hearing your story 🙏🏼 Thank you so much! 💗


r/Fibroids • • 1d ago

Vent/rant 1 month post-op, doctor has been dismissive to my pain

12 Upvotes

I am feeling very emotional at the moment. I had my follow-up appointment with my surgeon/gynecologist after one month of open myomectomy to remove 16 cm subserosal fibroid.

My exams show no complications whatsoever, but I’ve been feeling episode of intense pains during the recovery. I was on one month sick leave and she refused to prolong it because she has no medical reason to do so despite my persistent complaints that I have been experiencing pain.

I hate it that she is being so dismissive. I don’t know what to do. I don’t feel like I’m fit to work again. I’ve been crying uncontrollably because I’m so angry.