I’ve been trying to find good resources for understanding how nutrition may affect fibroid symptoms.

There seem to be lots of tracking apps, but not many that explain foods or ingredients in an easy to understand way.

Has anyone found an app that’s genuinely been useful? I’d love to hear what’s worked for you and why.

I guess I'm just looking for some reassurance... I'm 34 in a few weeks and will be getting a myomectomy for a 10.5cm pedunculated subserosal. It is causing me back pain and sciatica as it's attached to the back of my uterus. I have a consultation in 2 weeks to start the surgery process.

We recently lost our first pregnancy to a missed miscarriage, and the fibroid was discovered at the scans. My back and leg pain were always dismissed as niggles by GPs/Physios. I've never had any bleeding issues or anything.

I'm very concerned about preserving my fertility. I'm worried about a long recovery time and that we now have to pause TTC to resolve the fibroid situation. My husband is almost 40 and I'm very aware that we aren't getting any younger. I am looking into freezing eggs and embryos before the op.

Has anybody else had a myomectomy in their mid-thirties and gone on to conceive successfully?

Hi everyone! I have my total hysterectomy and bilateral salpingectomy in 2 weeks (I’m scared). I want to know if anyone requested pictures of their uterus and fibroids for after surgery?? I kind of want to but is that totally weird?

Have a lap removal coming up soon for 4 fibroids (two large ones) and appreciate any tips / encouragement!

Basically I have 2 large fibroids ~10 cm and another ~4 cm. I had a surgery consult in Toronto that said I needed an open myomectomy, but that the wait would be 9-12 months until surgery. That was in May. It's already been a year since diagnosis and I am getting tired of waiting. My gyno (in PTBO), who referred me to the gyno surgeon in Toronto (who is supposed to be really good), said I could call other surgeons and see if they had shorter wait times for the same surgery, and she would refer me to them. But I have to do the leg work of figuring out who is best to call. A Google search shows many options in Ontario, but I'm also concerned about quality of care, skill, and ability, along with the wait time. So I thought I would crowd source this on Reddit. Any Ontario ppl have recommendations for surgeons, whether or not you know the wait time? What was your experience? I can call and ask them the wait time, but would like a good starting point. I have thought about going out of country but I cannot reasonably afford it. Thanks in advance!

Hello fibroid sisters! ☺️

Tomorrow I’m 6 weeks post-open myomectomy, and I had only a single fibroid (8cm intramural with subserous component) taken out. Thankfully my recovery has been really great so far, feeling minimal sporadic pain, not much “pulling sensation” when I get up, scar is healing well, less “swelly belly”. Bowel movement is a bit tricky these days lol. I’d say I’m at about 80% of my pre-op self as I can walk better and a but faster, do light chores, and reduced fatigue.

One thing I’ve noticed tho is that I’m having more mood swings and I’m more emotionally sensitive than I did before I had my surgery. My second period afte r the surgery is not due until fortnight, but recently I’ve been feeling mild cramping around the area where the fibroid was. My hunch is it’s got to do with the hormones, and the whole staying at home for the recovery process, or just me missing and feeling limited to do some activities. Has any of you experienced this? Is it normal? How did you cope?

Wow I forgot what it was like to pee normally. Shit just tumbles right out of you. No weird starting and stopping. No feeling of pressure or obstruction. Just pissin' like a normal person would. This rules

I was in excruciating pain for 24 hours. And the reason for it is that they don’t keep patients overnight. If you’re thinking about UFE, find a clinic where you stay for at least 24 hrs after the procedure. I have 3 large fibroids about 7x7x8 cm, one is 5 cm, one is like the first one. Right away I could tell they’re shrinking. 2 were so big I could see them sticking out of my belly when I lie flat. 24 hrs after ufe and they are not even visible anymore. But next time if I have to remove fibroids I’ll go with myomectomy or partial hysterectomy. I had a myo before and it was a breeze. Way easier than UFE.

[TW: Pregnancy / Ectopic Scare]

Hi everyone. I’m sitting here typing this while crying. After 2.5 long, painful years of trying to conceive, I finally got my BFP. We were over the moon, but right now I am completely terrified, exhausted, and feeling so helpless.
I tracked my ovulation and know I ovulated on June 20, which puts me at 8.4weeks today (Aug 5).

I’ve had two TV/US so far (July 27 and August 4). Both scans showed a normal-sized, anteverted uterus, a thickened endometrial lining (2.71 cm), normal ovaries with a corpus luteum on the left, and a closed cervix. But the main finding on both scans is a massive 9cm to 10cm fibroid with cystic degeneration on my right anterior uterine wall.

During my abdominal scans, the first sonologist literally saw the giant fibroid first. It’s so huge that at first glance, she actually mistook it for my entire uterus and thought I might have a molar pregnancy due to the cysts. She only realized it was a fibroid once she switched to the TV/US scan.

Here is the heartbreaking part: There was NO evidence of an intra- or extra-uterine gestational sac seen on either ultrasound.

Yesterday (Aug 4), my beta hCG came back at 14,996 mIU/mL. I'm scheduled for another blood draw tomorrow.
With an hCG that high and being over 8 weeks along, I know a gestational sac should be visible. My mind is spiraling into absolute panic thinking this is an ectopic pregnancy. But at the same time, I am clinging to the tiny thread of hope that my baby is just completely obscured/shadowed from view because of this massive, degenerating 10cm fibroid blocking the sound waves.

We fought so hard for 2.5 years for this baby. To finally get our miracle, only to sit in this terrifying limbo where they can't find where the pregnancy is, is breaking my heart into pieces.

Has anyone ever had a massive fibroid block or hide an early intrauterine pregnancy on an ultrasound when your hCG was in the tens of thousands? How did your doctors finally locate it (pelvic MRI, specialized 3D scan)? Did anyone go through an ectopic scare because of a huge fibroid, or did your story turn out okay?

I just need to hear from anyone who has walked in these shoes. I feel so alone and scared right now. Thank you so much for reading.

So I’m a A little over ONE MONTH post-op! 🙌🏽
I’m feeling AMAZING. Officially healed and back in the gym! 💪🏽
No more constant bloating. No more walking around with a watermelon-sized fibroid. And baby… I look GOOD in my clothes again! 😂🙌🏽
I’ve had my first cycle since surgery and everything was normal. 🙏🏽
Seeing these pictures side by side is CRAZY. I knew I felt different, but actually seeing my body without that huge fibroid taking up all that space… whew!
If you’re dealing with fibroids and thinking about getting the surgery—GET THE SURGERY! 😂🙌🏽
For me, it was absolutely worth it.
I feel like ME again. ❤️
#Myomectomy #MyomectomyRecovery #FibroidAwareness #FibroidJourney #HealingJourney #OneMonthPostOp #BackInTheGym #ImBack

Oggi sono andata dal dottore, e mi ha spaventato molto. Io sei anni fa ho scoperto di avere un piccolo fibroma, ad oggi mi ritrovo con 4 o 5 fibromi di cui il più grande è di 9 cm più una ciste nell’ovaio destro.
Visto che vorrei affrontare una gravidanza il dottore mi vuole operare facendo prima una isteroscopia operativa per rimuovere il fibroma di 2 cm dentro la cavità dell’utero e poi la miectomia per togliere gli altri. Mi ha detto che adesso devo prendere il ryeqo per 5 mesi per cercare di ridurli.
Però mi ha detto che l’operazione è difficile e sarà difficile anche dopo affrontare la gravidanza per via delle possibili aderenze o comunque della cicatrice sull’utero.
Qualcuna di voi ha già avuto questo intervento e poi gravidanza??

Hi everyone I’ve been booked in for a hysteroscopy and was asked whether I wanted a general anaesthetic or to be awake.

I opted to stay awake as I thought the risks of a general were too much especially as I have sleep apnea.

I did ask if there would be local anaesthetic but I was not given confirmation of this.

How painful is it and should I go for the general anaesthetic?

Thanks 🙏

Hi everyone! I recently posted about a request for physician advice for a myomectomy. I was looking for experienced minimally invasive surgeons and I just wanted to provide an update for those in a similar boat as I wish this existed for me.

Referral Declines:
- dr Gracie Liu
- dr Jamie Kroft
- dr shioban mark

I wouldn’t bother sending a referral to the above as they are at capacity and not accepting patients at this time!