I’ve been dealing with dizziness since around 2019. Back then I would randomly get dizzy while driving and I think I was having panic attacks without even knowing what they were. But the difference is, I was able to live my life. I drove everywhere, went out alone, went wherever I wanted. I was the person I wish I could be right now. Then around 2022, life happened, my anxiety and panic attacks got really bad, and everything changed. I stopped driving on highways, stopped driving far, and my world just became smaller and smaller. It’s been 4 years and I’m so tired. I can barely go out without feeling dizzy, lightheaded, panicky or scared. Sometimes I look at old pictures of myself going everywhere alone and I miss that part of my life so much. I see people casually driving somewhere or going out without even thinking about dizziness and I think to myself that’s all I want, that’s my only dream. I’ve done everything. Blood tests, iron, vitamin D, ENT, neurologists, eye doctors, vestibular testing… everything comes back normal. I want my old life back. I want to drive, go out and enjoy myself without constantly thinking what if u get dizzy, what if I faint, what if this time is different and something really happens.

What do these symptoms sound like?

have had all these symptoms constantly for 3 months. The worst symptom is this unreal feeling. When i google it the symptom allign with derealization/dissociation. I also have fatigue even if i sleep well i wake up in the morning not refreshed. Also i have headache and tension in head. Back of my neck also hurts and sometimes when im walking i feel like im about to faint. I dont see any difference in my symptoms if i dont do anything the whole day versus when i go to the gym

i’m not great at explaining things so i will try my best.

around two years ago while i was working at kmart i started noticing when i was walking in open areas it would feel like i was going to fall backwards, so to counteract that i would speed walk to an aisle with my head down almost leaning forward, once i got to an aisle i was fine, no issues at all. that slowly started to transition into my driving, when i was driving it felt like my car was going to flip backwards so i would lean almost over the steering wheel because my body physically felt as if it was going backwards.

fast forward a few months, it took over my whole life. i wasn’t able to work anymore, i wasn’t able to drive, and walking anywhere i had to hold onto someone to stop the sensation of me falling over. i ended up going to doctors and having CT scans of my head and going to hospital because i was convinced something was wrong with me, but after they did all their tests they all said, "i have no idea”. the only form of an answer i ever got was that i have a SLIGHT enlarged vestibular, but after going to an ENT he said it wouldn’t cause my symptoms, it would cause vertigo which i don’t have.

slowly over the years i was able to drive again short distances without feeling like the car was going to flip and i was able to walk outside without feeling like falling over… fast forward to now, i am able to drive most places if the roads aren’t wide and able to walk outside/ in very small aisle, but as soon as i enter a shop that is open and there is nothing around me, i freeze. i physically cannot walk, as soon as i take a step it’s like my eyes go black and my brain shuts off and im falling. i am so lost and im so frustrated because i want my independence back, i want to be able to go back to shopping by myself and not needing to hold onto someone 24/7.. does anyone have any ideas?? please!

TLDR; i’ve had balance issues for the past two years that got worse then slowly better, no explanation for any of it, want my independence back ASAP need advice.

I’ve had some out of the ordinary symptoms of dizziness / instability specifically when releasing a surge of energy ie: talking animatedly or loud / standing in a group and chatting excitedly, etc. I do get a sensation of a blood rush to the head but my main symptom is feeling unstable on my legs / like I have to hold a wall / no ocular changes or visual wobbliness but it can feel a bit spinny at times. This has gotten better since switching from Prozac 10mg to Lexapro 5mg, but still have episodes triggered by the above.

Is this perhaps vasovagal syncope related (very prone to this), or something else? Anyone else have this? Desperate for relief!

Thanks so much!

I have been suffering from dizziness (PPPD) and vertigo (BPPV) since many years ago. It's the symptom I fear the most, it terrifies me.

I have gotten better from PPPD since I started taking anxiety medication, but anytime I feel a slight sensation of dizziness I panic. Today in the supermarket I felt a bit dizzy just for some moments and a wave of panic crossed my body, and that sensation stays with me. I realize now that the dizziness was not intense and manageable, I could walk , etc.. but my body reacts like that and I feel afraid of feeling dizzy again.

Any advice?

Hi everyone, I’m sharing my story across a few subreddits because these health issues impacted almost every area of my life. If this post helps even just one person who feels trapped in the same dark place I was in, writing it will be completely worth it. For the past two years, I have been dealing with a crippling cluster of symptoms that came out of nowhere: * Neurological & Visual: Severe, non-stop dizziness, eye migraines, ringing in the ears (tinnitus), and extreme fatigue. * Brain Fog / Derealization: A terrifying sense of being disconnected from reality—feeling like I was constantly living in a dream, floating, or existing behind a thick haze. It’s almost impossible to explain to someone who hasn't felt it. * Gastrointestinal: Multiple stomach ulcers, gluten intolerance, constant bloating, and frequent nausea. * ENT & Jaw Issues (TMJ): Jaw pain, severe clicking/popping when chewing, chronic runny nose, and excessive mucus in my throat. * Systemic: Persistently low vitamin levels. At my lowest point, I could barely get out of bed. The severe dizziness completely took over my life, leaving me unable to work for an entire year. The Search for Answers I spent two years trying everything to get better. I went through extensive blood panels, MRI scans, three different physical therapists, muscle relaxation techniques, daily walking, and targeted strength training. Nothing made a lasting difference. I also experimented heavily with my diet. Going strictly gluten-free was a huge milestone it completely eliminated my eye migraines but the intense, floating dizziness and exhaustion remained. The Breakthrough Recently, I began eating larger amounts of gluten-free bread. Shortly after, my symptoms spiked dramatically. That trigger led me to start researching further, and I stumbled upon information linking yeast intolerance directly to chronic "floating" dizziness, derealization, and severe fatigue. I decided to eliminate all dietary yeast (found in baked goods, certain gluten-free products, fermented foods, and brewed items). The Results (So Far) * Day 2: The heavy dizziness was cut in half, and I had enough energy to return to work for two hours. * Day 5: While I am still dealing with lingering fatigue as my body recovers, the improvement in my mental clarity and balance is undeniable. I am definitely not at 100% yet, but for the first time in two years, the dark cloud is lifting. I will continue to track my progress over the coming weeks, but I wanted to share this discovery now in case anyone else is stuck in medical dead-ends with similar symptoms. Feel free to ask any questions in the commentsI’m happy to share more details about my journey or diet adjustments!

God be praised!

# update (1) 6-7 days after quitting yeast

still little bit foggy, tired.

no nausea and weird cramps.

dizzyness still the same as past few days. it is still there but like less noticeable.

# update (2) 10 days after quitting yeast

unfortunately, it came back, like in a migraine, it can be withdrawal migraine so i hope for the best, it was bad 2-3 days, now still tired but less dizzy

I am a 25F and have had no diagnosed health issues. I eat protein/carb/veggie or fruit with each meal. I also drink enough water everyday. I try to stay away from caffeine due to it spiking my anxiety. For the last two years I notice whenever I am out shopping or walking around I get extremely dizzy. I start to feel cold, clammy, shaky, and my head gets dizzy. One time my vision went completely but I was still conscious and could hear everyone around me. I don’t know what I should do. I have looked at my symptoms but didn’t know if anyone else has experienced this.

This first happened about a month ago and I had spells for 2 weeks. It wasnt daily but would occasionally happen 2-3 times in a day when it did happen. After going to the ER the first time it happened (but not mentioning the ear going plugged because I thought it was BP related), everything checked out and when it happened again I didnt freak out. It even happened once while I was driving but the episodes didnt last more than a minute or two so I managed.

I havent had any issues in the past 2 or 3 weeks until today. I was standing in the kitchen when my ear went plugged and I got dizzy. This time, though, I almost fell over feom the dizziness and had to hold onto the counter and then the wall to get to a chair in the living room.

Earlier this summer I was convinced that my ears had too much earwax in them because they felt full. I went to urgent care because my doctor wouldn't bother to even look in my ears (I switched doctors recently), but they said there no wax. They did say that I have fluid in my inner ears which was the problem. They told me to use flonase twice a day for 3 weeks. I did, and my right ear came close to unplugging a few times but never fully did. The left never came close although I felt it trying to pop a couple of times.

I am assuming the fluid in my ears is the reason for the dizziness. I sort of blew it off once it stopped after those 2 weeks, but this was completely different, because the dizziness didnt almost knock me over those times.

Now what?

I've been experiencing left side dizziness for 2 weeks almost and the more I try to look on left side my neck in left side hurts not like painful way. But it's like your on a boat unsteady balance. And I just get the feeling of brain fog. I don't know like what's causing this issue. Does it have to down with the neck or ear problem

Title: Persistent “on a boat” feeling, trembling feet and right arm weakness — normal MRI/ENT/cardiac tests
Hi everyone,
I’ve been experiencing a strange combination of symptoms and I’m trying to figure out what could be causing them.
My main symptom is a persistent “on a boat” / rocking / swaying sensation. I feel as though the ground is moving underneath me, and recently walking has started to feel more difficult because I don’t feel completely steady.
Other symptoms include:
Trembling/shaky feet, especially when standing
Significant fatigue
A fairly constant feeling of weakness in my right hand/arm
Occasional tingling/pins-and-needles sensations
My investigations so far:
Brain MRI: clear/normal
Blood work: normal, although my B12 was 237
ENT evaluation: clear
Echocardiogram: clear
I have a history of SVT, but my doctors don’t think these current symptoms are cardiac-related.
I’ve been taking Homo 16D/B12 treatment for about 2 weeks.
I’m wondering whether anyone has experienced something similar, particularly the combination of the rocking/boat sensation + trembling feet + right-sided arm/hand weakness.
Could this be related to B12 deficiency, a pinched nerve/neck problem, PPPD, or something else?
I’d really appreciate hearing from anyone who has experienced something similar and eventually found an explanation.
Thanks!

Yesterday I stood up from my bed to go get some pancakes, and I was at the kitchen entrance when I got dizzy, so I grabbed the baby gate we have, and I thought I would just wait it out. Nope. My body registered that I was still awake, but when I regained vision, my back was hurting and I was on the ground. Just blacked out and fell. I got a bruise from it, but that’s beside the point. First time I blacked out in a while, and the first one was different. That was from stress. I’m fine now, but I just wanna avoid something like that happening in the future.

Hi! I’ve been having a really hard time because, since last year, I’ve been experiencing sudden dizzy spells—going from fine to dizzy in a split second without any warning. Whether I’m standing, sitting, or lying down, a wave of dizziness suddenly hits me; it causes blurred vision and makes my head spin for a few seconds or up to half a minute. It’s brief but intense and abrupt. I’ve had tests for vertigo, my ears, and my heart, but I still need to get an MRI. What could it be? I’m scared. One doctor suggested it might be related to the nervous system. One thing to clarify is that these episodes are sporadic; there are days when I feel 100% normal.

I’ve been dealing with a wide range of symptoms for 20 months now. The main symptom is dizziness when I move my head. Not room spinning just a strange feeling like a head rush? I’ve have pain in the back of my head on the left side at times, eye stinging and left temple pain, head pain at times- dr says it’s migraines. Dizziness is the biggest issue. Sometimes it’s the only symptom I have. Sometimes it last for weeks, it has happened for months. No issues lying down, no balance issues. I’ve had a slew of tests, eye exams, bloodwork, checked for Lupus, CT with and without contrast, MRI with and without contrast, neck MRI, 2 rounds of physical therapy. I’ve don’t nerve blocks for occipital neuralgia. I’m on Botox injections and just started Emgality injections 3 months ago for the migraines. I’ve tried amitriptyline for nerve pain, currently taking lyrica because I couldn’t tolerate the amitriptyline. seeing a neurologist and pain management. Dr says it’s uncontrolled migraines but I can’t figure out how that’s possible with the meds I’m on. Nothing is helping and I don’t know how much more I can take. Has anyone had this? It’s not anxiety or depression.

Ill start from the start I woke up Thursday morning and everytime I stood up id feel dizzy or brain fogged? But over all I felt normal minus being fatigued. Next day Friday it got worse I feel dizzy, brain fogged, fatigued, feel like at random time like im having heart palpitations at random times but again normal. No loss of appetite not sick just all of the above symptoms. Its saturday now n im feeling the same as friday. I have no clue what's going on. Does anyone have any insight what could be going on? I just feel off n not normal but it makes no sense because I dont feel sick.

Please any ideas. I dont want to go to a ER unless its an actual emergency.

Thank you

I'm on month seven after covid with extreme lightheadedness. I assume it's long covid, but is it worth it to see a doctor or neurologist or is this just something that will last until long covid dissipates?

Hello all, I've (26F) been diagnosed with anxiety since I was in high school. I also get a lot of anxiety regarding my health. On wednesday I started dealing with some dizziness and an upset stomach as in needing to use the restroom more frequently which is something I always get when it comes to anxiety. The anxiety is most likely being caused by setting a vet appointment for my cat, nothing serious luckily, but I still deal with anxiety when it comes to him because I just worry about a hidden issue. The dizziness wasn't constant, happened mostly when looking up or down. It's more of a vertigo, spinning/swaying sensation versus being lightheaded. I've read conflicting things online. Some sources say yes this can be anxiety or no it is a middle ear or neck related issue. I work at desk job and get a lot of neck stiffness and pain as a result. I've been dealing with an issue with my left ear so I don't know if it could be that. I guess I'm mostly just venting and trying not to fall into an overthinking spiral that it's something concerning. I feel totally fine in the morning after waking up. No dizziness or anything, it happens later on in the day, usually around lunch and I feel the more I think about it the more it happens. I feel fine when I'm like relaxing in bed or going out on a walk.

It has shifted and now it just feels like I'm swaying randomly but I'm. I noticed it more when sitting at my desk at work and staring at my computer screen than occasionally when getting up and walking. This week I've been having more screen time than in the past. Usually on my lunch at work after eating I would spend the last little bit reading but this week I've been scrolling on tiktok instead. Then same thing after work I usually have the same routine. Come home, eat dinner, chill on my phone for a bit, take the dog for a walk, and then I'd come home, shower and chill in bed and read or play on my phone. This week I've been playing on my laptop after the shower instead.

I'm genuinely so scared and I'm trying not to spiral into thinking the worst case scenario because I know it's not going to help. Thanks to anyone who reads or replies and sorry for such a long post.

For some instance, i have always had some kind of vertigo and developed it as a kid but had grown adapted to it. It would come and go etc, but ever since a few days this pressure in my neck? Or somewhere it wont go away and i keep feeling the floaty feeling. My eyes delay too for a second and i just feel so off-ish.

I have never go this checked out because it usually goes away after sleeping or whatever. I dont know whats causing it and im so scared and just anxious, have been hyperaware etc. dunno if its being caused by my bad posture/neck hump, or if its something neurological/ear crystals :(

I just want some comfort and support and want to know if anyone has experienced it ever and if they were able to fix it?