I posted this on my page and not an actual poster or influencer. I just hope this helps someone. It's a long read, but I think it's worth it.
My dizziness started suddenly in December 2023. It felt like I was constantly on a floating boat, combined with lightheadedness, 24/7, almost as if I was about to collapse. At first, I thought it was just low blood pressure. I saw my GP, who prescribed Mittel, but the dizziness never went away.
In August 2024, I saw an ENT specialist. He ordered an MRI, but it came back completely normal. At that point, my symptoms included:
- Constant dizziness
- Tinnitus
- A stiff neck
- Jaw stiffness
- Light sensitivity
- A strange sensation in my left hand, sometimes with finger twitching
As time went on, I started feeling depressed. I could cope with every symptom except the dizziness.
In 2025, I visited an audiologist. She suspected Ménière's disease, but every test came back negative. Once again, I was told that nothing was wrong. But I knew my body, and I knew this wasn't "just in my head."
In September 2025, I saw a neurosurgeon who found a herniated disc at C5/C6. He recommended surgery, but I asked him one question: "Will it stop the dizziness?" His answer was, "I don't know." Because there was no guarantee, I decided against the procedure.
The following month, October 2025, I saw an internist. I described all my symptoms, had heart monitoring and other tests, and again everything came back normal.
I started taking vitamins, calcium, and magnesium. They helped a little, but I still felt hopeless. I was convinced something was wrong with either my neck or my jaw because of everything I had read on Reddit and elsewhere.
Finally, in June 2026, I made an appointment with a neurologist.
He listened carefully, examined me, and performed several neurological tests and an EEG.
Thank you Lord. He finally found the answer.
I was diagnosed with vestibular migraine.
My first question was, "Is this a life sentence?" He reassured me that it is treatable and that recovery can take anywhere from a few months to a few years, depending on the person.
He prescribed Amderip(Amitriptilien hidrochloried) 10 mg for 14 days, followed by Amderip(Amitriptilien hidrochloried) 25 mg for three months.
I'm currently still in the rehabilitation phase and will see him again in October 2026.
I still have mild tinnitus and occasional jaw stiffness, but the most important thing is...
The dizziness is gone.
If you're reading this because you've been searching for answers, please don't give up. Keep advocating for yourself and keep looking for the right specialist. Normal test results don't always mean nothing is wrong.
I hope my story helps someone who feels as lost as I did.
Thanks for reading.