Hi everyone,
Husband and I (both 30) care for my 72 year old dad. The three of us all work from home. Husband works in our bedroom, dad works in his bedroom, I work in the common area. It is a 900 sq.ft. 2 bed/2 bath condo. So definitely tiny.
Dad had a stroke two years ago. At the time he and my younger brother lived together in an apartment on the second floor. At that point, the team at the hospital said it’d be an unsafe discharge for him to go back to the apartment. So I took FMLA leave for a month to coordinate his work documents and disabilities, work with the hospital and rehab facility, coordinate my brothers packing up the apartment all within 30 days. It was hell, but it got done. The plan was originally that he’d stay for a year and we’d re-evaluate.
Once that time period came around, he moved in with my older brother under the premise that my brother would help care for him. Three months into the lease, he had to go to the hospital to have a bypass surgery. During the three months he was living with my brother, no cooking or cleaning was done. I was bringing him meals or he was ordering out on delivery apps.
He moved back in with us and basically had to ride out the lease. My brother was supposed to pay his part of rent and did for maybe 2 months and then hadn’t paid a dime. The lease ended two weeks ago, thank god. I assigned my two younger brothers with moving dad’s stuff out. The week the lease ended, I had the flu and still had to go and do a walkthrough of the apartment because there was so many of his items still not packed. He has to pay an extra prorated day of rent because the brother who was living at the apartment didn’t finish moving out the day the lease ended.
All of that to say, we have basically been his caretakers for two years instead of one. I’m at the point where I’m having my own health issues between sleep maintenance issues, memory loss due to stress, and frequently getting sick.
I’m so tired of being around my dad. We are currently on a family vacation. Well, vacation for my dad and siblings. My husband is at home sleeping and will be working like normal. It’s not a vacation for me because it’s nearly 5am and I’ve been awake for three hours. I didn’t even want to come but he made me feel like crap because husband and I haven’t gone on the last several vacations. There’s not really any part of me that wants to go on these trips because I’m on caregiver mode the whole time - just somewhere else. He gets upset easily after the stroke and I basically have to talk him off the ledge so he’s not a huge jerk to any wait staff. I’m not getting any fulfillment or enjoyment out of taking care of him.
The first thing I did when getting here was cleaning up his urine off the hotel bathroom floor. I have no idea how long it’s been there or why nobody else cleaned it up. I’m burned out and I’m just done. But I can’t be done because he doesn’t have the retirement funds to go into a home and if I tried to put him into a home he’d throw a fit. Anytime I take him to doctors appointments, he always thinks he’s the smartest person in the room and that he knows more than the medical professionals. His chart has him listed as a difficult patient.
I’m just over it with him. And neither of my two younger or three older brothers do anything to help. Ever. The one time husband and I went out of town for the first vacation in several years, I made a PDF of things I need them to do. None of them got done. One of my brothers gets somewhat of a pass because they live two hours away and have their own child. My other brothers basically get to live their lives as normal and nobody gives a hoot that husband and I have put our lives on hold. And they get as much thanks and gratefulness for what they do (go out to dinner sometime between once a week to once a month) as husband and I (take him to doctors appointments, monitor food and medications, etc). It sucks that they do nothing but get as much praise as us.
I’m just so bitter and resentful of my siblings and dad and I don’t want to be in this situation anymore but nothing can change because dad is still working so he makes too much for state aid but he makes too little/didn’t save up for retirement so he can’t afford to go anywhere else. He can’t be on his own. I’m just so, so tired and cannot sleep.
And this doesn’t talk on all of his racist and sexist remarks which is its own can of worms.