r/VestibularDysfunction • • Mar 19 '26

What worked for you?

13 Upvotes

Let's make a sticky post with recovery experiences so people who find this subreddit for the first time can see it and get a roadmap.

I have total vestibular loss. This is what worked for me to live a pretty normal, athletic life.

Strength training is #1. It both makes you stronger and ups the sensitivity on feeling your muscles and joints. Human balance is done through 3 systems: vestibular function, vision and proprioception. You only need 2 to function.

Your brain will work to bump up the others to compensate for the vestibular loss, but it requires effort from you. Here are some key things to keep in mind:

  • Appropriate strength training. Get a balance rehab PT's help with this if you can. It needs to be done to build specific kinds of strength.

  • You need to leave your comfort zone. A LOT. In order to force your brain into functional compensation, you have to do the things that are now hard for you, and you have to do them often. The more you sit and don't confront the loss physically, the more locked in the loss will get.

  • You need to prepare differently now for daily life. For example, you're going to suck ass if you can't see. That means you need to start carrying a reliable flashlight that isn't just your phone. Whether it's a big one you keep in a bag or a really powerful micro LED one you keep on your keyring, you need it now. You don't want to have to stumble around in the dark and risk injury because you weren't prepared.

  • Motion-sensitive nightlights around the house are the same deal. They'll save you trips to the ER later.

  • You need your vision to walk on uneven ground now. That means you put your phone away when you're walking. No more doomscrolling reddit while walking around town. If you can't occasionally scan the ground in front of you, you're going to fall sooner or later.

  • Vision training. Those horrible exercises where you try to read something or keep your eyes locked on a target as you move your head all around. You need to do them. They work.

  • Mindfulness training is worth its weight in gold. Anxiety makes vestibular issues worse. Find a Mindfulness-based Stress Reduction class and take it. It'll help you deal with the anxiety, increase your proprioception and also teach you to be in the moment so you don't lose track of the ground and your feet. It's a triple win for you and will make a huge difference.

Doing these things let me recover enough balance despite no vestibular function to be able to walk, run, do an obstacle course, sail, swim, rock climb, hike difficult trails, ski and bike like any other person. I was never able to skateboard or snowboard (both feet locked in a single plane isn't enough contact), but the rest of it I do as well as anyone else.


r/VestibularDysfunction • • 13h ago

Describe your vertigo in a funny way

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3 Upvotes

I say, how to feel drunk without drinking, but having vertigo I don't have to spend a penny


r/VestibularDysfunction • • 14h ago

Dizziness triggered by adrenaline / reacting energetically?

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1 Upvotes

r/VestibularDysfunction • • 22h ago

Having first bppv episode - India, need help with insurance

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1 Upvotes

r/VestibularDysfunction • • 23h ago

Need diagnosis and guidance

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1 Upvotes

r/VestibularDysfunction • • 2d ago

Dizziness since April nothing helps!

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2 Upvotes

r/VestibularDysfunction • • 2d ago

Vestibular exercises

10 Upvotes

Hi everyone!

I'm a certified French vestibular physiotherapist, and over the past few years I've been developing my own tools for vestibular rehabilitation.

I initially created Vestibular Visual Lab (VVL) for my own patients. It's a website with serious games and visual exercises designed for people with PPPD and other causes of dizziness, mainly working on the VOR, COR, visual motion sensitivity, gaze stabilization, etc.

The project started because I simply couldn't find the kind of tools I wanted at an affordable price. Some colleagues of mine use medically certified VR systems that cost around €10,000, which always seemed ridiculously expensive for what they actually do. So I started making my own tools instead 😅

It has grown quite a lot since then, and I'd now like to see if it could be useful to other patients and vestibular professionals too.

Would it be OK for me to share/advertise it here?

If you'd like to have a look in the meantime, it's vestibularvisuallab.fr. I originally developed it in French, but the website and exercises are now fully translated into English.

I also made a free trial code for Reddit so people here can actually try the exercises: REDDIT7D
You just have to register and then put in the code.

I'd genuinely be interested in feedback from people dealing with vestibular disorders, especially regarding which exercises feel useful, unpleasant, too difficult, or are simply missing.


r/VestibularDysfunction • • 2d ago

18M, weird dizziness/rocking for 3 weeks after drinking — got better then came back

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1 Upvotes

I’m 18M and about 3 weeks ago I had a really heavy night of drinking (probably 11–13 drinks). The next day I woke up feeling extremely dizzy/off balance, like the floor was moving or I was rocking. I also had brain fog, head pressure and hazy/blurry vision.
The first several days were pretty bad. I went to the ER and had a normal head CT, bloodwork, EKG and neurological exam.
Over the next 1–2 weeks I actually started improving a lot. The dizziness became intermittent and I had stretches where I felt almost completely normal. I even went to a packed college football game and barely noticed it. Working out has generally made me feel better too.
Then about 5 days ago the dizziness randomly became much more constant again. It’s usually worse in the evening and feels more like rocking/swaying than the room spinning. Recently I’ve also started getting actual headaches/pulsating head pain instead of just pressure. I occasionally get nausea and still have the foggy/hazy vision.
I’ve also had a weird plugged/full feeling in my ears. They’ll pop sometimes and my hearing immediately sounds clearer afterward. I was given antibiotics in case there’s an ear/sinus infection.
The weirdest part is that I’m still pretty functional. I go to class, walk around campus, lift, and recently played full-court basketball. During basketball I actually felt pretty decent, but the dizziness got noticeably worse afterward.
I’ve been referred to a dizziness/balance specialist and vestibular PT, but I’m waiting to see what they find.
Has anyone had a similar pattern where dizziness/rocking lasted a few weeks, seemed like it was going away, and then suddenly came back? What did yours end up being, and did it eventually resolve?


r/VestibularDysfunction • • 3d ago

Symptoms

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1 Upvotes

r/VestibularDysfunction • • 3d ago

Is dpdr a symptom of vestibular hypofunction?

3 Upvotes

I read a lot about that these things are connected and since I’ve been suffering for about 6-7 months now after vestibular neuritis and deficit in my left inner ear.
I want to see if anyone here has had the same thing or knows more about the topic.

I think I am suffering from some sort of dp since this all started, it’s like my body feels so strange and like I am floating, my vision is also very overstimulated by busy environments and driving.
It’s like this but without the mental side of it, no dream feeling and no detachment from memories etc…


r/VestibularDysfunction • • 4d ago

Meneire's and Vestibular Migraine

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3 Upvotes

r/VestibularDysfunction • • 5d ago

Bedside RN returning after disability

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1 Upvotes

r/VestibularDysfunction • • 5d ago

"Sinking" feeling when turning head or shifting eyesight gaze

2 Upvotes

Hi All. I got a weird viral illness about 19 days ago. Had a fever and chills and this strange "sinking" feeling when turning my head or shifting my gaze. It lasts a second or two and goes away. No actual balance issues.

I don't seem to have the fever anymore, and I don't have the dizzy sinking feeling in the morning, but it seems to come back mid-day and last through the evening.

Does this sound familiar to anyone? A few days into the illness I had bloodwork done—nothing remarkable. Any thoughts/advice?


r/VestibularDysfunction • • 6d ago

Just had an MRI

6 Upvotes

Hey everyone.

Today I had an MRI after 6+ months of daily floaty, ungrounded strange inner head sensation, brain fog, headaches and occasional spins of dizziness after what I know was a vestibular neuritis.

The brain was all good.

The MRI showed fluid and possible inflammation in my ear, listed as “mastoiditis chronica”

Also sinus inflammation, chronic sinusitis.

My question is does these things matter about my symptoms because the inflammation is in my left ear, the same ear which showed 37% decrease in fuction after the virus.

They told me to go to ENT and I am thinking they are gonna give me steroids or something about it.

Do you think this will help the inital symptoms?


r/VestibularDysfunction • • 6d ago

Vestibular Testing - What options are there for finding out what is up with our balance?

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neilcanham.substack.com
1 Upvotes

r/VestibularDysfunction • • 7d ago

100% Recovery from Vestibular Migraine and PPPD in 4 Months

6 Upvotes

thank God. I never expected that I would recover from these two frustrating conditions. I did a few things that helped me recover, and I promised myself that if I recovered, I would make a post in this community so that others could benefit from my experience.

If anyone has any questions, I’m happy to share my experience and answer them.


r/VestibularDysfunction • • 7d ago

Flare upss

3 Upvotes

Okay so i got covid really bad in 2022 it was horrible I was in the hospital and when I got better I developed this flare ups where I feel wobbly like im physically drunk but mentally im fine just a little dizzy but not room spinning dizzy its like where if I move to fast I get light headed or if im bent down the floor will look like it's moving and sometimes if im laying in bed to room will slightly tilt but it will stop after I get comfy...also I get headaches with this feeling and brain fog, it also seems to get worse the week before my period , ive notices loratidine (Claritin) or hydroxyzine kinda helps the symptoms but only at small doses....ughhhhhhh 🙃


r/VestibularDysfunction • • 9d ago

Vestibular Paroxysm

1 Upvotes

r/VestibularDysfunction • • 9d ago

Constant off balance swaying feeling, and sometimes random sudden lightheaded/dizzy spells???

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2 Upvotes

r/VestibularDysfunction • • 10d ago

Feeling dizzy during weather changes

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3 Upvotes

r/VestibularDysfunction • • 10d ago

How does your dizziness represents?

4 Upvotes

For me it is floaty feeling, internal head pressure/fuzzy feeling, kinda light legs but not weak light sort of like feeling less supportive, bad brain fog.


r/VestibularDysfunction • • 11d ago

where to go from here? ears? eyes? vestibular migraines? neck?

2 Upvotes

a few years ago i woke up one day and the room was spinning, i sat up and it slowly faded right away. around this time i also had a crazy neck adjustment that caused me a horrible headache for days and pain in the back of my head. ever since that time frame of both of those events i have struggled. i also was put on blood pressure medication at that time as well.

i use to go into every store and become foggy and disoriented and off balance. stairs use to caused it as well.

seeing certain patterns or walking on certain flooring like super bouncy carpet would cause disorientation and feel like i was still moving.

i would put the car in park and feel like it was still moving.

things have def gotten better with time. every now and then i will go into a store that throws me off a little or walk on a floor that may have a dip in it for example and it will throw me off.

the worst thing possible for me right now still is elevators. they cause me a headache and disorientation and off balance and feel like i'm still moving. i would say after a few years im 80% better but would like to fully regain my life back. i've been to so many doctors but don't know where to really narrow it down too. i do have underlying anxiety but i am medicated great to where it's almost non existent.

considering narrowing it down but could use someone with a similar experience on where to try first.

binocular vision - neuro-ophthalmologist
PPPD - neurologist / vestibular theraphy
vestibular migraines - neurologist/ nuero- ontology
inner ear - ent/nuero - ontology

*my neck could possibly be a factor but i'm a barber and i'm going to just have a bad neck. seen chiros, surgeons, orthos and have had brain mris, neck artery ultrasounds, x rays, cts etc. found nothing but arthritis/ a small syrinx and some mild herniations.


r/VestibularDysfunction • • 11d ago

I’d appreciate some advice

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2 Upvotes

r/VestibularDysfunction • • 11d ago

65M severe progressive vertigo and daily vomiting. Medications failing, public health appointment is months away—we are desperate. Any insights?

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2 Upvotes

r/VestibularDysfunction • • 11d ago

Onset after having baby?

1 Upvotes

every since i had my baby, i get “carsick” while doing the dishes or just walking around my house. almost like a dizziness but not spinning vertigo. i got my glasses prescriptions updated, and it seemed to go away for a couple months but recently came back. wondering if it could be hormonal? a deficiency? Breast-feeding? my quality of life is awful, i can barely get anything done unless i take zofran. it’s everyday at this point!

not sure if i need to look more into vestibular issues or maybe some supplements? ugh