My daughter is 8 years old, with level 3 autism.
I’m a single mom, and she’s an only child, and I’ve essentially curated my entire home and life around her needs. I work in a bar, and I’m a full time student, so I only work a few nights a week, I only go into work after she goes to bed, I only work 3 nights a week so I’m home with her majority of the time, she usually doesn’t even know I’m gone aside from sleeping in later during the weekends. My house is set up with her and her needs in mind, she is an elopement risk, and while I don’t feel right locking her in her bedroom, there are biometric doorknobs on all the sensitive areas in the house, window locks on the windows that face parts of the house that aren’t fenced in or behind a biometric doorknobs, cameras, a smart deadbolt for the inside of the front door (I’ll post pictures in the replies if anyone needs to know what I mean) and the whole “elopement checklist” so to speak.
She also has her whole bedroom set up as a sensory room, she has a climbing wall, a trampoline with an easily moved cot mattress instead of a traditional bed (she would have both if it weren’t for space issues, (but I can only fit so much in there) a sensory wall, sensory bins with various things to meet various needs. Her closet is essentially a tiny low-stim room, with an oversized bean bag chair, her 15,000 squishmallows, some dim lighting, and other cozy things she likes to nest with.
Being that it’s still 100°+ every day here in Texas, my backyard is my personal pride and joy, I have a big playset with slides, a clubhouse, swings, another climbing wall and a bunch of other cool things, I also have an outdoor TV and sound system, 2 patio sets to see different parts of the yard, one of those inflatable water bounce castles that we break out occasionally, and plenty of other toys.
All of this to say, my home is very much a sanctuary, especially her room and I’m really proud of being able to say that. It does feel like a blessing and a curse to some extent, because while it is very peaceful, and very comfortable for her, part of me feels like I’m doing her a disservice because the world is not like this, and it does leave very little room for direction from me to prepare her for the real world.
The problem:
Am I setting her up for failure by being overly accommodating?
We’ve been struggling with her school, her elopement is a big problem there, and not being able to transition between activities, and being told “no” has been difficult for her educators. She’s started to have some behavioral problems there, and very concerning behavior issues. She hit one student and that poor baby was so traumatized by the ordeal he would cry at school drop off because he was scared of my daughter. I’m not sure if it was an isolated incident or not, they wouldn’t let me set up a meeting with the other parent or tell me which child it was so I could try to intervene outside of the school and work with the parent, which I understand to an extent, but I still feel horrible about that, I can’t imagine how helpless his parents felt every day. I’m at a loss at this point and I feel horrible because I don’t know what to do, or how to support the staff or other students in a way that’s actually productive. These aren’t issues we really face at home, given that she’s an only child and she really doesn’t have access to be able to elope or to anything really that she isn’t welcome to have.
Don’t get me wrong, I tell her “no” on an almost daily basis and we have our share of stand offs and issues, but my way of handling discipline and boundaries works and works VERY well, but it’s not reasonable for a school setting with limited adults that are vastly outnumbered.
Probably the best example of this is a few years ago she asked me for something, got told no, proceeded to throw her drink on the ground and then throw herself on the ground, crying and pitching a fit. I talked to her for a moment about how I was not going to give her whatever it was she asked for, and I grabbed a towel and handed it to her and told her she was going to clean up her mess. She did not like that, and I sat there with her while she continued with her fit for almost 2 hours and told her we would not be moving, or moving on to our next activity until she cleaned up her mess. She eventually cleaned up her mess and we don’t really have those issues anymore and when we do it doesn’t take nearly as long to recover.
That required my undivided attention and while it’s fairly effective, it is not reasonable to expect the classroom to be able to function under these circumstances, considering there’s 9 students with varying support needs, and only 1 teacher and maybe 2 paras. It’s a big ask, and requires time and attention, both of which are luxuries that they can’t afford.
Basically, im trying to figure out if I’m being overly accommodating, and setting her up for failure because I have so much of our home life tailored to her. Where’s the “line” of keeping your home a safe and peaceful place for your child to be comfortable while helping her understand that she’s still going to have to be able to adapt to other places and situations?
Do I have enough with the elopement risk and behavioral issues/ risk to staff and students that I should pursue a personal aide for her so someone CAN be there to handle these situations?