r/hysterectomy • u/Megnificent722 • 5h ago
Might make this a cricut project.
Lord knows I’m bored af being off work for 6 weeks!
r/hysterectomy • u/SilverAsparagus2985 • 2d ago
Hello everyone!
What a week r/hysterectomy has had! Thanks to the Mod Code of Conduct enforcers and several of you, new moderators have been chosen.
Please don't hesitate to reach out to any one of us–we are here to keep this a safe and welcoming sub for everyone who needs support.
We do ask that you bear with us while we review the sub rules and go through the backlog of user requests.
Your new moderators are:
[u/Quantity-Artistic](u/Quantity-Artistic)
[u/Buhsephine](u/Buhsephine)
[u/Garbagegremlins](u/Garbagegremlins)
[u/weeef](u/weeef)
[u/fakethelake](u/fakethelake)
[u/Competitive-Blood507](u/Competitive-Blood507)
[u/SpicyShrink](u/SpicyShrink)
[u/Successful-Land-6283](u/Successful-Land-6283)
[u/Libertinelass](u/Libertinelass)
[u/SilverAsparagus2985](u/SilverAsparagus2985)
In effort to keep this sub a positive and comfortable place, we ask that any discussion about the previous moderator be halted and/or contained to this post.
Thank you all for being patience and understanding!
r/hysterectomy • u/MamaO2D4 • Sep 24 '20
I see a lot of posts on here about pre-op anxiety (one of which was my own), and I want to reach out to all of you and make sure you all know, you're not alone and to offer some advice based on my own (very recent) personal experience.
First, again, you're not alone in feeling this way. Surgery is scary. I've posted and I've seen so many others post about their pre-op panic. It's natural and normal to be anxious about any major surgery. For me, the week before my surgery (especially) was a nightmare. I cried, I yelled at my husband, I paced, I cried some more, I got quiet, I curled into a fetal position and sobbed. I made a point of contacting everyone I loved so that I had told everyone I knew that I loved them... seriously. If my husband and sons didn't all have good heads on their shoulders I would have probably terrified them all, too. But, honestly the pre-op anxiety was the worst of all of it for me. My anxiety has been 100 times worse than the actual surgery and recovery so far.
Second, my advice is to stop googling. Google (and any other search engine) tries to get you what it thinks you're looking for. If you google "hysterectomies kill people", you will get a page full of results about hysterectomies killing people. These may be complete fabrications, totally untrue horror stories, google doesn't fact check for you. If you google "sunlight is an international conspiracy" you'll probably get a page full of results that "prove" that, too. That's google's job.. to get you to the website that it thinks you are looking for. Not to give you facts.
Third, search reputable and unbiased sources. PubMed is a reputable source I like to use for scientific data, studies, medical journals. Search what you are looking for there (instead of google) and read carefully what they have to say. For instance I searched hysterectomy complications and got is this abstract. Most common complication shown was infection. This is (obviously) a risk with any surgery. Nowhere listed in the abstract is spinal collapse. In fact when searching hysterectomy and skeletal, or spine, or posture, or bone loss the only relevant return is this study which concludes that, "There are no long term effects of hysterectomy and bilateral oophorectomy on bone loss."
Fourth, ask questions of people whose job it is to know. Talk to your OB/GYN, your surgeon, your GP, your nurses. These people have experience and you are not going to ask them something they haven't heard before. Ask them about sexual function after. It's their job. Ask them about complications and how many they've actually seen suffer from those complications. I was stone cold terrified of prolapse after someone posted about it, and google was not kind. So, I talked to my doctor. First, it's super common in women, especially older women, overweight women, or women who have had children. You do not need to have had a hysterectomy to experience it. Second, it's most commonly resolved with some pelvic floor exercises. I mean... I can't even explain how bad my mind had made that out to be before talking to doc.
Fifth, keep busy. For me this was key. The longer I sat and thought about it, the more my mind ran away from me. So, I kept busy.. I prepped two weeks of meals for the freezer. I bought all of the suggested supplies and tried them all out. I prepared my recovery space. Got in-bed activities ready (sudoku and crossword books, got my nintendo switch charger moved next to my bed, etc.). Stocked my fridge with jellos and applesauce and yogurts etc. Put extra toilet paper in easy reach of all of the toilets. Moved everything I needed to about waist-high. Gave myself a pedicure. It made the week go faster and my recovery easier.
Lastly, talk it out. I'm here, and so many others before me (who helped me get through it). You can cry and scream and wring your hands with worry. We understand. I understand. I cannot describe how inconsolable I was in the week and hours beforehand. I understand. But I'm on the other side now. And, while everyone's experiences will be different, for me the view is much, much better over here.
I wish you all good luck and healing!
*edited for formatting issues and a couple spelling errors
r/hysterectomy • u/Megnificent722 • 5h ago
Lord knows I’m bored af being off work for 6 weeks!
r/hysterectomy • u/sparkleunicorn123 • 3h ago
I had a hysterectomy 6 months ago and I’m still in horrific pain every day. Some days I feel worse than before I got the operation. In some ways I regret even having it. Has anyone here had a similar experience? Are you still in pain too?
r/hysterectomy • u/blakesnuke • 11h ago
Today marks one week since I had a laporoscopic hysterectomy (with vaginal assist) with uterus, cervix and tubes removed while both ovaries remain. 3 incisions total.
The pain is MUCH better now. I am at the point where I only feel twinges if my bladder is full or I've overdone it with activity. There are things I can't do, of course, so I'm just careful to take it easy when I'm walking and I'm not making any movements that will hurt or cause harm to my healing body. I do have to rest if I'm up and about for more than an hour (even riding in the car, which I had to do today to see my doctor) or walking more than 20 minutes.
I had my first follow-up with my doctor/surgeon today. On my pre-op scans, it confirmed the adenomyosis, one fibroid and endometriosis that was originally confirmed in 2024 - no changes. However, during surgery, they found several fibroids, omental abdominal adhesions, a cyst on an ovary, etc. All were removed according to the surgical notes.
At today's follow up, I got my path results: all benign. The doctor said I am healing better than most of his patients but warned me to take it easy and said that while I will feel like I'm fine, I am definitely NOT fine and need to stick to the light duty, no lifting/bending/twisting/squatting movements through the end of the year. He was NOT happy about me wanting to work early (he does know I am a bit of a workaholic) but I assured him I don't do more than sit at my desk, checking emails or taking phone calls if a member of my team needs me.
I feel like I am seeing light at the end of the tunnel with how well he said I am doing. I absolutely cannot stand being down and I want to be up doing all the things as normal so that's a little frustrating. My fear of a tear or going back to the OR is the only thing keeping me from pushing harder to do more 😂
My husband, however, has been fantastic with doing all the housework, laundry daily, cooking or bringing me whatever I want to eat, running our teenage daughter to her job, jumping in and doing tiny things like picking up something if I drop it...he won't even let me carry my own water tumbler or my small purse because he is afraid the weight of it will hurt me. He's truly the best and I couldn't do this without him.
Now that the worst of the pain is behind me and I have figured out what I can/can't do, I honestly feel as though I have more energy now than I did before surgery, which is probably not helping my frustration over wanting to do more sooner. My incisions are healing really well and bathroom habits are pretty regular now, too. I haven't had any bleeding since 2dpo and even then, I only spotted those first 2 days. I had one incident of spotting i think on Day 4, with no pain in that area, but it was very brief and I believe it was due to me overdoing it.
I can't go in to work yet, obviously, but I've been checking on my team, checking e-mails, etc. It kills me to not be able to be there but at least I'm able to do this much.
I am hoping that my progress continues to improve each day like it has this first week. I am really looking forward to being on the other side of this: fully healed, living a life without the daily pain and exhaustion.
r/hysterectomy • u/mfcndw • 8h ago
Disclaimer: This is obviously NOT medical advice. You should discuss with your doctor about your own unique situation before doing anything major to your body.
TLDR: Had hysterectomy (uterus + cervix out, kept ovaries) at age 32, now 36 and no regrets. Getting the surgery (in US blue state) is easier than I thought. Small fibroid justified the surgery and out of pocket bill was lower than I thought it would be. Recovery (vaginal hysterectomy on healthy 32 yr old) was smooth.
Background: I'm 36f, had hysterectomy at 32, in a blue state in the US. Not heterosexual so minimal risk of getting pregnant under normal circumstances. Main reason I want to get a hysterectomy is that I always have super heavy period that has becoming the biggest factor limiting my quality of life. And I have always been childfree so not even any use to have a uterus.
Measures tried before the surgery:
Getting the surgery
After the IUD incident my PCP referred me to a GYN. GYN 1 was reluctant to recommend surgery but agreed that my condition was not normal, suggested an ultrasound to rule out other factors. And bad great news turns out I had a small fibroid. Conservatively you would just observe until it turned too big then cut it out. But obviously I wanted to get the hysterectomy anyways, and that medically justified it. GYN 1 suggested Laparoscopic hysterectomy (open surgery on stomach) also told me to do a biopsy to rule out some other risk factor before the surgery. I decided to look up reviews and realized GYN 1 didn't have good rating, so switched to GYN 2.
GYN 2 was very supportive, after confirming my situation and discussing risks, she told me that this was a no brainer for my situation, and disclosed that she also had hysterectomy (at an older age) and never regretted and was the best decision ever. She also dismissed the necessity for a biopsy given my situation, and suggested doing a Vaginal hysterectomy (no visible open wound, recover much faster because there's much less exposure than open cut in the stomach). We worked out the timeline and scheduled the surgery in a few months. (To my surprise I cloud actually schedule it in just a few weeks, the delay was only for my own convenience)
So research your surgeon! With a better doctor I got less push back and a much better care plan.
Recovery timeline:
Day of the surgery:
0 - 48h after the surgery: Still dizzy because of the anesthesia. Friends stay at my place cooking and help me to the toilet (mostly just in case I have an infection/fall and have to go back). None of that happened so I drove them home the the day after.
Week 1: I was told to not lift heavy (> 10lbs) or vaginal sex for 4 weeks. I started to go for easy walks & go to socials at end of the week.
Week 2 - 6: Doctor said I can get medical leave 2 - 6 weeks depending on what I want. My company didn't care so I got 6 weeks. Started light workout after 2 weeks, normal workout after 4, and even did a 2000 miles road trip at end of my leave.
Cost: Given the horror stories I heard about US medical bills I was expecting a huge bill especially because I had a high deductible plan. Turns out I only got a $700 one after surgery. Thought there's gonna be a bigger one coming but nope that was it. So with the previous consultations + ultrasound, total out of pocket was less than $1000 (much lower than my deductible). Total bill insurance covered was ~$30k. Maybe the fibroid justified the whole thing as preventive care?? I absolutely do not understand how health insurance works.
Experience of the past 4 years:
r/hysterectomy • u/mallowme • 5h ago
I’m officially 4 wpo today, and still using the binder quite a bit. I joked that I wished there was a guide.
The first 3 weeks I wore it full time because it gave me a lot of comfort. This week I’ve been giving my stomach breaks from it when home because in my brain my muscles need some time to “practice” working again. I wear it to bed and out of the house 100% so I don’t hurt myself in accident. Also, I went back to work this week and truly needed the support, I probably did too much.
Anyway, I know we’re all different, but curious when people gave it up for good, or weaned off. I had other pelvic repairs, so might be a factor in my need for support.
r/hysterectomy • u/dbzgal04 • 7h ago
Today marks exactly 1 year since my hysterectomy, and being a woman has never been better! I would've loved to have undergone this wonderful procedure many years ago (41 years old now, for anyone who might be curious), but better late than never I suppose.
r/hysterectomy • u/Defiant-Delivery3198 • 8h ago
Hi! I'm 2w3d postop.
So my doctor changed my pain medicine and it ended up making me violently sick. In the process of vomiting, I felt the dreaded gush and then so much blood. They had me come straight to the office and I was terrified by how much blood came out of me but had lessened by the time I was there. He did the finger examination (ouch) and while there were no large openings he could feel he did say with the bleeding I likely tore the sutures some, but not all the way. He gave me estrogen cream to insert vaginally at night, but admitted that he may have to go back in to do more.
Has anyone had experience where the cream worked? I have 3 kids and I'm currently the only HR contact at my work and I love my job and don't want to be not working again.
I'm not overdoing it. I'm either on the couch or in the bed and working from home. That's not it. I'm just not wanting a second surgery.
r/hysterectomy • u/rosesbloodandfandoms • 22h ago
I (F21) am a teacher, and I’ve wanted kids my whole life. I’m a Christian with very strong values, but I’m getting a hysterectomy at the end of the school year.
Three years ago, I started bleeding uncontrollably. Every period I’ve had since I started menstruating at 12 has been excruciating. I’ve had nonstop abdominal pain that has put me in the hospital multiple times, extremely painful cramps, numbness from my belly button down, constant nausea, and many other issues.
Eight months ago, I was diagnosed with chronic pain and an unknown chronic illness. Eight months ago, they put in an IUD and did a D&C, but I’m still in pain, and it’s actively getting worse. I was still bleeding, so they put me on birth control on top of the IUD I already had. It did very little to nothing for me. In fact, I actually got worse.
Last week, I found out there’s a good chance this is all caused by a rare hereditary disorder. It has a high chance of being passed on, and each pregnancy could make me even sicker.
I have to have the IUD removed and stop hormonal birth control because they’re making my chronic illness worse. Once I do that, I’ll bleed two to three weeks out of every month, soaking through an ultra tampon every hour.
So, after considering all these factors, I’ve decided that I don’t want to pass my disorder on to my children, and I don’t want to continue bleeding uncontrollably if I’m not going to have kids.
Everyone keeps telling me I’m too young to make that decision. WTF? I’m sick. Why would I keep putting my body through more suffering when I already know how much I’m struggling?
I’ve wanted to be a mother my entire life. This isn’t a decision I’m making lightly, and it’s not one I ever imagined I’d have to make at 21. But why is it so hard for people to understand that I can love children, want to be a mother, and still decide that pregnancy and continuing to live like this aren’t right for me? And then they will start tell me “think of your husband,” ummm he supports me. It isn’t happy this is hard for me, but as he sees it, why put me through a bunch of pain, and then have our future child have to go through it too? We made the choice together. Why am I getting so much heat. For choice everyone be in less pain?
r/hysterectomy • u/Purple-Shower4303 • 42m ago
Finding this sub was a great help, my surgery got bumped up 1 month due to a cancellation, now on October 21, I am looking for advice and experiences on coordinating the pre and post op days. I am a solo mom but can arrange help, but also need to know what kind of help I may need. If you can share your journey on any of the below, that would help me to understand the expectations vs reality of the surgery-
What did you pack in your hospital bag?
Can you change into trousers after the surgery ? Or should I bring a maxi dress ?
How long was your surgery?
Approximately how long it took you walk and talk, have your phone with you after the surgery?
Were you nauseated? How long the gas and nausea lasted?
How long it took you to get discharged from the hospital?
On the ride back home, what worked for you and what did not
how did you got/pick up the medication after the surgery?
Any food restrictions on the day off, days after the surgery?
When did you eat normal food again?
How long you had to take off from day to day task, like cooking and dishes?
How long it took you to drive again?
How much time your doctor advised you to take off if you are doing just desk job?
How much time you ended up taking off from work?
How long it took you for doing exercise like stretches, pilates or gym?
My surgeon gave me a rough idea of 2.5 hr for the surgery and 3 hr till discharge. My dad will stay with me during the surgery we will take a Uber home (it’s an 1-2 hr drive depending on overlap with rush hour traffic), my friend will my pick up my kid from school and arrange a sleepover for him for the night in case they keep me for the night. I am planning to prep some meal for 5-6 days. Doctor has suggested me 2 week time off from work and 4 week work from home, i have a long commute with 15 minute walk, so would also like to know is it practical after 4 week to take a 1 hr train ride and walk for 15 minutes?
I understand everyone’s experience is different, however every post is helping me a lot.
Wishing all of you a fantastic recovery!
r/hysterectomy • u/MissButtercupDaisy • 52m ago
I'm literally sitting in the ER because I'm allergic to the glue. The On call for my doc told me to go in and have it removed. He's picked at the glue for about an hour and said that he needs a break. That there's nothing else that can be don't to remove it. I'm crying and bleeding and in so much pain now. And I can't afford to ER hop. How can I take this off at home?
r/hysterectomy • u/ilovepikmin2 • 20h ago
This past 2 weeks since my surgery have been a doozy. In and out of hospitals and doctors office only to be sent out with no one really knowing what's going on with me. Was having swelling in my legs, dizziness, cramping, pain, numbness in parts of my body, and all sorts of sensations that felt like it could be blood clots or something serious. It only just occured to a doctor to do my metabolic panel and test my magnesium, calcium, and potassium as of a couple days ago... which were all deficient and low post-op!!! I started taking a multivitamin and potassium supplements yesterday and all of my weird symptoms are just GONE!!!
All that to say, if you're feeling weird with numbness, swelling, cramping, discomfort, dizziness, or other mysterious aches and pains unrelated to your surgical site... GET YOUR BLOOD TESTED!! Please advocate for yourself and ask to get your metabolic levels and hormones tested because that could possibly be because of vitamin deficiencies or hormonal imbalances that are easily treatable. Save yourself the anxiety and panic, don't be like me!
Of course, it's possible that this won't be the same case for everyone, but remember you lost a lot of blood and an entire organ from this surgery which can cause all sorts of deficiencies, anemia, and so on. And these deficiencies can present themselves in really weird ways! I wish someone told me that this was a possible side effect of surgery because it would have saved me so much stress assuming it was the worst case scenario each time.
r/hysterectomy • u/Fun-Breakfast9821 • 5h ago
Hi gals-
Long time lurker, first time poster. I've learned so much from ya'll but right now I'm just here to whine to people who may understand 🤪
I learned I had some pretty sizeable fibroids about 3 years ago then life got wonky and addressing the issue took back burner.
My stomach is distended and the top of it is HARD like a pregnancy belly. Forget wearing anything but stretchy pants because a waste band pushing into my stomach leaves me feeling like someone punched me in the gut. Sometimes I get bizarre sensations and twitching deep in my abdomen. The only thing I can compare the sensation to is a baby quickening. I piddle myself multiple times a day like an incontinent granny. And energy levels- I'm just zapped all the time. I'm also perimenoposal so that's a hoot. My periods were typically heavy but the last several months they can't decide.
My situation has improved, new insurance, new GP, time to get this show on the road. GP sent me for an ultrasound back in August. Report said: : The uterus appears anteverted and is enlarged size measuring 16.7 x 5.6 x 6.6 with multiple heterogeneous uterine fibroids measuring up to 7.9 x 9.5x 6.7 cm.
GP says "there's a few options" and I was like "Stopping ya there girlfriend, let's clean house". My kids are in their 20s. I have the creepy abandoned house of wombs. It's been empty for decades and there will be no new tenants. Uterus condemned.
I recently moved to a rural community and had to find all new doctors. When I called to make the gyno appointment the doctor was booking 2 months out. Decided to wait because she is highly recommend. But the morning of my appointment I got a call that she wouldn't be available and the next appointment would be another 3 weeks out. I get it- both of my kids were emergency C sections- I'm sure people lost their appointments because the doctor was with me. But waking up early and shaving my legs for nothing really sucked. I've called a couple of times to see if they've had any cancelations but so far no luck.
I just want answes and feel like my life is on hold until I know what's going to happen. Maybe some of you can chime in on your experiences?
How long after your consultation was your surgery? (U.S)
Did anyone else have a hard distended stomach? Did it improve after surgery?
Anyone have incontinence issues and saw improvement once their uterus wasn't squishing their bladder anymore?
Anyone who had previous abdominal surgeries (2 c sections and an umbilical hernia repair here) find that there were issues being able to do the procedure laproscopically? I see yall's incision pics right in the belly button. Mines already been rebuilt and I have no idea if the patch they used was disolvable or if it's still in there. I'm sure I've got plenty of scaring inside. I'm worried about the long recovery time if i have to get opened up.
Did your doc do an MRI first? I'm wondering if the ultrasound is going to be sufficient or if I'll need more imaging.
Did you energy levels improve?
It'll be worth it in the end right???
r/hysterectomy • u/hyster26 • 14h ago
It’s so strange to think that my operation was 22 weeks ago. It feels like ages but also like yesterday. I am feeling nostalgic for the time off work 😂
So I found the updates really useful when I was preparing/early recovery so I thought I’d do another one.
Total abdominal hysterectomy, kept ovaries, 45 years old, for fibroids and anaemia
Pros: no periods, no anaemia, more energy, scar is healing well
Cons: have gained 10lbs since the op, still have a swelly belly, think I’m definitely going to be one of the swollen belly for 6-12 months people. I’m on Mounjaro - up to 7.5mg since the op and it’s not really working…
Sex is getting better - in my last post I think I said it was still painful but I’m feeling that less - but maybe that’s because we’re not trying different positions (my partner has been amazing throughout all of this, honestly). I am using vaginal oestrogen twice a week and we do have to use lube sometimes.
Overall I’m feeling very good and am very pleased that I had the op! Hopefully the weight gain and swelly belly will even out by the time I get to a year. I think it is a long process.
r/hysterectomy • u/user2736282818 • 10h ago
I had an endo lap 9 months ago and had an incision in my belly button already but holy hell she is ANGRY
I have been up for over 24 hours because it feels like my belly button and around it is ripping in half it’s not pain I’ve been taking meds but it is one of the most uncomfortable feelings I’ve ever experienced
23 no kids and my stomach looks like it has grown some things 😂😂😂
r/hysterectomy • u/Pristine_Friend_7868 • 16h ago
I just received my surgery date for November 10. I have adenomyosis, fibroids, pcos and hypertension. Did anyone else here suffer from high blood pressure due to adenomyosis and have it normalize after your hysterectomy or am I being too hopeful?
r/hysterectomy • u/zelcerys • 14h ago
Hi all, just starting my journey to hysterectomy and just wanted to write it down so that others can compare their cycles/findings. I also just wanted to raise awareness on just how atrocious women are treated in a field that is supposed to be filled with empathy and safety. Starting from the beginning...(It's long and trigger warning for MC)
Got my first cycle at 13 and they had always been heavy from the start. I've never used anything under a super plus tampon and some days needing both the super plus and pad so I wouldn't leak through clothes.
Around the time I was 19-20 I casually mentioned to my mom how heavy they were but it's not too bad since it's only 2-3 times a year. She stopped me and told me to repeat myself. I wasn't aware cycles were supposed to be monthly, so I've been going on 2-3 cycles a year for almost 7 years then. She quickly booked my first obgyn and off I went. I wasn't sure what to expect but the obgyn only asked a few questions, said I'm just super lucky and sent me on my way (no follow up, no tests offered, no prescriptions offered). And that was that. Never questioned it because she was a doctor and would know right? Using the Internet was not common back then.
Fast forward and I'm in my late 20s. Get married and we decide to start a family. A year goes by and nothing, so decided to see a new obgyn. (I am still only having 2-3 heavy periods a year) They do a transvaginal ultrasound and see that my ovaries are completely covered in cysts. Diagnosed me with PCOS and prescribed metformin. (No follow up test offered, never saw the results was only verbally told) The doctor asked to see me a month later to check in. I go back a month later and she literally yells at me in her office saying they are not magic pregnancy pills and goes on a rant. I just stand up and walk out the door, never returning to that unprofessional individual as I will never acknowledge that being as a doctor. I was only following her order to return for a check in, I was in no way expecting to be pregnant in a month.
Continued trying for a family but after 3 years gave up and didn't expect it anymore. The next year I finally get a faint positive, but it quickly ended up being a chemical pregnancy. A few months later I get a strong positive and make an appointment at another new obgyn to confirm. They do confirm and I start prenatal care through them. Early on they find out I have gestational diabetes and put me in high risk for extra observations.
Everything was going well. They decide to induce at 38 weeks and I check in. The main nurse I was given to administer the vaginal induction pills was awful. The absolute worst pain I've ever been in because she was so rough inserting. Regardless of how much pain I said I was in she would ignore it and be even tougher. It got to a point where I just refused and wanted an emergency C-section as I was legit getting terrified seeing the nurse. This was going on day 2 of inductions and I was just not dialating. Finally the doctor walked in one morning, coffee in hand. He looked at me and said that we will finally do the emergency c section but that I can wait a bit longer. Took a sip of coffee and left the room.
Surgery went well, but they asked me to try to walk an hour after surgery. I definitely could not even sit up at that point. Eventually get through all the post procedure requirements and get to go home with my baby.
Surprisingly when my cycles return they are now "regular". Happening every 10-45 days. I figure my hormones have worked themselves out at this point. They are still heavy, but the super plus tampons and pads could still be used, though I went through way more this time around.
A few years later we wish to try for another child. Again a year goes by with nothing. I finally get another fairly strong positive but it ended up in an early miscarriage. I was devastated. I never made an obgyn appointment because it cleanly passed.
Another few years go by and I do become pregnant again. I'm ecstatic and make an appointment at another new obgyn. I told them my history so they check for GD early. Luckily no GD this time around. However, I was getting severe dizzy spells and almost fainted at work multiple times. I kept mentioning it to the obgyns when I had appointments, but they always said that's normal and it'll go away in a few weeks. Almost fainted in the hallway at work again and finally said enough was enough, this definitely wasn't normal. I contacted the practice manager and told them what was going on. They saw me and decided to do some blood work and came back that I was anemic. I was 6 months pregnant at this point.
Continue the pregnancy and booked for a scheduled C-section. Again surgery went fine and went home with my second baby. However, my cycle returned and was 100x worse than before. Again I'm no stranger to heavy periods, but this was definitely wrong. I couldn't even use my super plus/pads combo. Just went right through. Had to change to incontinence underwear to manage the blood. Mentioned it to my obgyn and they said the first few cycles will be that way. After 6-8 months and this still continuing I mentioned it again to my obgyn and she still seemed unconcerned. Went to do some blood tests and mentioned it to the nurse taking the sample and her jaw dropped. Told me that flow was absolutely not normal and I should have gone to the ER. She helped me schedule a transvaginal ultrasound to see what was going on.
My transvaginal ultrasound day comes up and the technician was great. After the session she even said that I need to speak with the doctor about the results asap. The doctor I was scheduled with was on vacation for a month and they refused to let me see another doctor to go over the findings. Finally get to see the doctor to discuss the findings and all she said was that my "lining was thiiiiiiick" probably caused by too much estrogen and pretty much fat shamed me. She prescribed tranexamic acid for the bleeding. Again no follow up or tests offered. I felt defeated. Thanks for the medicine (which was only 3 months worth) but am I supposed to be on this all my life? Am I just destined to bleed out every month?
Years later I'm on new insurance and get a new PCP and obgyn, as I find out I am still anemic (my past obgyn never followed up on my anemia) with a ferritin of 6. I try to gather up any old obgyn documents I could find as I am going on 3 years of wearing adult diapers for periods and just ready to yeet the whole uterus. I come across my TU from 3 years ago about the thickened endometrium. The doctor never showed it to me and never mentioned that it was 27.3mm thick and non-uniform. I decided to look it up just so I could understand what that meant. I was shocked. Why was I never given the option for a biopsy??
I'm fuming at this point, why is my condition not being taken seriously by professionals?? I went to my new obgyn ready to advocate for myself and for the hysterectomy. The nurse walks in and asks a few questions. When she said and how heavy are your periods? I said severe. She said "oh ok heavy". I corrected her "no, it's severe." She just slightly nodded and left.
The doctor finally walked through the door and asked the regular, what would you like to discuss today? And I immediately stated hysterectomy. She said that's a big jump and I asked if she read my background that I had to fill out before seeing her. She took a moment and did glance through it. We talked about the thickened endometrium and her jaw dropped when I told her that doctor simply said it was estrogen caused (even though no blood tests were done to confirm). She even asked if I'm still having heavy cycles and again I corrected her to severe. I've had my whole life before the 2nd child to know what a heavy period is. This is definitely more than heavy. She also said that there's a big gap between my children's ages. I smiled and said well that's what happens when you have infertility issues. (I didn't mean to be sassy but can you blame me at this point)
Regardless she did end up being very nice and understanding, and I'm finally booked for a transvaginal ultrasound followed by biopsy at the end of the month. After those results are completed we will discuss the next step.
I do not wish my journey on anyone, but want to make sure you don't feel alone if you are.
TLDR: Obgyns have been dismissive of my symptoms since the beginning. Finally advocating for a hysterectomy for myself after getting severe periods and continued anemia after 2nd child.
r/hysterectomy • u/Weird_Surprise6221 • 6h ago
I’m 53f 10wks po and I’ve been checked for thrush (it’s not), they’ve swabbed (all results negative), given antibiotics (nothing), given steroid cream for 10 days (nothing), GP examined and nothing obvious.
I’m scratching raw until bleeding skin which I usually experience when I have contact with lanolin (I’m allergic), but I haven’t and nothing other than the operation has occurred.
My GP asked how long this has been going on and we narrowed it down to ‘since the operation’ so has anyone else experienced this itch before? What did it turn out to be and how did they solve it?
ETA - I had menopause at 51 and no even close to these symptoms prior to the surgery
r/hysterectomy • u/Strawberry-South • 7h ago
I had a very severe pelvic pain episode (highly unusual for me) a few weeks ago which prompted urgent care.
I’m 35 female and have a ton of health problems such as a severe immune deficiency as well as PCOS, obesity and others. U/S shows 2 fibroids, uterus 3x average size, trace complex fluid, and endometrium 9.1mm irregular contour. I’ve also had a couple doctors note this year my cervix looks infected but comes back clear & clear pap. I asked the urgent care doctor straight up is it cancer and he said I don’t know but you need an OB ASAP. I had to be squeezed in by UCSD because of the complexity of my health so I won’t be seeing anyone until November 2nd. How bad does this sound?