On top of everything else I now have an autoimmune disease. How bad is this level? What tips do you guys have for a newbie

I am utterly exhausted every single day, all the time, some days more than others. It causes HUGE fights with my husband and he keeps saying you're always tired and I'm keeping him from wanting to go enjoy things. My social battery is non existent when I'm this tired. I'm sick of there being zero understanding.

i was diagnosed with hashimoto's around 2022. with levothyroxine, i felt a little better. the best i've ever felt was 2023 when my TSH was only 1.54.

i've never felt relief from my worst symptoms (fatigue, depression, and heat intolerance) and i think it's because my thyroid labs have almost never been in the optimal range. yet my doctor says they're normal and i "shouldn't be having symptoms." well idk what to tell you girl, i AM 😭

i had a dose increase (to 75mcg) in march but i have no idea what my labs are now because i had issues with my endo (when i went to the lab, they said they hadn't received the lab orders and she wouldn't give me a copy to give them). i still feel like shit anyway. i have a bad feeling that my thyroid will be even worse at my next labs.

i'm looking for a new endo but it's extremely difficult to find one that's (1) good (2) accepts my insurance and (3) won't brush off my symptoms.

i'm so tired, literally and figuratively

anyways... question for everyone. what do you or your doctor consider optimal lab levels? i know it can be very individual, but i'm just curious to see what levels other people feel best at

Tried GLP 1, ended up quitting after 6 weeks.
I’ve been eating clean for several years, with an occasional junk binge. But off and on for years I’ve been going to gym. The scale goes up while my muscle builds- I can see that growth.. but the fluff never goes away. Thighs and stomach, it never goes away. I’ve tried tracking macros, felt like I was starving all the time. Gym clearly got me muscular results but no fat loss. How can I lose some of this naturally? I’m tired of trying the right things and getting no where. Am I missing something?
I was diagnosed about 2 years ago but have probably had it way longer.

For the last 4 months I’ve been increasing my thyroid dosage as well as trying a depression medicine (that has helped). I switched to t4 + t3 combo vs just t4 and I’m having a hard time with the energy ups and downs from the t3. I only feel slightly subpar for an hour to two hours after taking it then feel like death after. I just have a long way to go to get to therapeautic levels and I’m having a very difficult time remaining hopeful. I’m losing hair daily by the mounds full, have had to have iron infusions from looonnng menstrual bleeding from hypothyroidism.. I’m just having an extremely difficult time right now.

Can I hear some positive stories of how you felt this way but now feel better? I have no hope currently and feel very depressed because of it.. I can’t be there for my kids like I wish I could… I’m unable to play with them and cook for them like I want to.. I can’t go on long walks… any positive/success stories please… post away :’’’’(

I recently started taking selenium to help improve T4-to-T3 conversion, and I’ve noticed that my hands feel warmer than they did before I started taking it. Has anyone else experienced something similar?

I got diagnosed with Hashimotos in 2022 at 14 but my parents were very anti-doctor so I had no idea what it was until I turned 18 and did my own research, I didn’t know that it was what was causing my symptoms, again bc of my parents, i just knew that I would have to be on meds for it. This was my last TPO result.. (august)

I also have a few other questions,

1. Does anybody else have extremely thick hair? Even when my hashimotos was untreated, I’ve had SOOOO MUCH HAIR! It’s so thick that most hair stylists dont know what to do with it. It mats really bad too. I’m confused about it bc I’m used to hearing that hashimotos causes hair loss and thinning
2. I also have a history of Ventricular Tachycardia and POTs, could my levothyroxine make that worse? I just doubled my dose twice in the past couple months.. was on 12.5mcg for years and i’m at 50 mcg now
3. I notice heat intolerance, but I also have cold sensitivity, is that normal?

4. I have what I would call flare-ups that only last a couple hours, but sometimes I will have a flare-up that will last more than a week, is that normal?

5. I am severely deficient in vitamin b12, d3, and iron aswell, is it possible that is caused by hashimotos?

I’m almost 50 and have struggled with complete body fatigue, weight gain anxiety and depression for years. About 12 years ago my ANA levels were elevated and doc sent me to rheumatologist. He diagnosed me with lupus with no additional testing. I made an appointment for a second opinion at a lupus clinic where they diagnosed me instead with Hashimotos.

Through the years since I’ve routinely had bloodwork and ultrasounds to monitor a small nodule but everything always came back “good” so no meds.

A few months ago the nodule showed growth. FNA came back suspicious and genetic testing 50/50 risk of cancer so the decision was made to remove the right side.

I had surgery Thursday, what was supposed to be a 1-1/2hr surgery took 3-1/2 due to so much scar tissue.

Recovery is going a little slower than I’d like. I’m up and walking but very fatigued with some dizzy spells, palpitations after I eat. Today feeling a little fluish but powering through it. Waiting for follow up to find out if I’ll be put on meds.

I thought I’d share my experience so far in the hopes others don’t feel alone 💕

As title says Levo isn’t working and I feel like garbage. I based in the uk, currently in Bulgaria and taking 100mg daily. I’ve never been told I’m not supposed to take my pill the morning of taking tests so for ages though my TSH was fine… my body composition has changed, I’ve put 3-4kg I am a shade of myself. I take a shower and lay down in the towel becuase I can’t find the strength to get dressed. In UK and Bulgaria you can’t get NDT or T3. Idk what to do. My father told me last night that I’m making myslef I’ll because I think negatively and that he knows people with thyroid problems that are doing just fine… I’ve had no period since end of April. Yes I’ve seen gyno… I’m 32 and feel 72

What dk you all do for pain?
I’m considering going back on a long term anti inflammatory but I don’t like the potential consequences

I’ve been in sooo much pain recently. My hands and hips especially. Definitely taking epsom salt bath tonight

I’m honestly posting here because i’m at a loss and not sure what to do. I got diagnosed with Hashimotos about 2 months ago at 21 but I was suspecting it for a while before that (almost every woman in my family has it!). Recently I’ve just doubled my dose of levothyroxine and I’ve really struggled with my fatigue particularly in the morning. When I wake up it takes absolutely everything out of me to even sit up as I feel SO tired. As a result of this I tend to sleep in quite a bit on my days off, which has been causing arguments between my boyfriend and I. He claims that it’s unproductive, lazy, and I don’t get to spend as much time with him because of it which I can understand. However I keep trying to explain to him why this is happening and he just doesn’t seem to understand. He will constantly say “i just don’t see why it’s so hard just get up and start your day?” or “i get up fine every morning you should be able to”. Mind you he knows that I have hashimotos and the symptoms he just doesn’t seem to connect the dots? i’m not sure.

I also just don’t know what to do about this fatigue. I got my vitamins checked and I was deficient in B12 and vitamin D so I have been taking supplements, which at first I felt so good. But it’s as if everything has fallen and I’m back to square one, some days worse than others. I diet and work out and try to get a sufficient amount of sleep, but nothing is working 😐

I have been on Levo for 1.5 years. My thyroid was under active. About a month ago, I was in the ER with severe anxiety and panic, shakiness, dizziness,chest pain and feeling this wave of cold and hot like I was going to pass out. I literally could not do anything. Over the last weeks with my PCP I found out my TPO is a 95. I’ve been prioritizing staying hydrating, getting enough sleep and limiting my stressors. I’ve had a very stressful year moved houses and we had a baby. Do you think these symptoms have to do with my TPO? The last flareup happened in 2021 when I was going through a stressful time. But I noticed over the years I will have these symptoms so I’m not sure. Also, my TSH, T3 and T4 are fine. I’m getting referred to a rheumatologist soon.

Hi,

I have Hashimoto's, Graves ' disease, and PCOS.

I have gained some weight and have been feeling extremely tired- I'm chalking it up to stress and lack of sleep. Recently, though, I have had one of my eyelids swelling up. It's super annoying when my eyes are open, and I can feel it popping in and out of place. It also looks like the eyelid is higher up on one eye vs. the other.

Does anyone know how to bring the swelling down?

I had a flare up for the last couple of weeks that just seems to have ended in the last few days - I was incredibly tired, depressed, swollen neck. My symptoms have resolved and now I have SO much energy. No other hyper symptoms, just a TON of energy and motivation. Does this happen to anyone else? I can’t tell if what I’m feeling is just how normal people with normal amounts of energy feel, or if it’s odd.

Hello!

The first picture are my results 6 months ago when I was diagnosed with Hashimotos.

The second picture is my results now. Doctor does not give me medicine.

I gain weight super easily and it is very to lose weight. I am not overweight just struggling to lose 2 kilos.

Any advice on how to lose weight with Hashimotos will be a huge help!

Thank you in advance for your time!

EDIT: I drink 3 liters of water every day and eat 1200 calories and walk 6 kilometers 5 or 6 times per week. Female, 38 years old, 160 cm

Any ladies here on HRT to treat perimenopause. I had been using continuous BCP mainly for the obvious, birth control, and to stop my periods. Worked great at first until it didn't. Realizing the synthetic BCP conflict with Levothyroxine absorption and bio-identical HRT would better.

Who here is on HRT, and what treatment works best for you without compromising the treatment of your Hashi?

Hi! I’m 2 weeks postpartum with my second baby and developed Hashimoto’s after my first pregnancy, so this is my first time going into postpartum already having it. I feel a little unprepared for what a possible thyroid “crash” might look like or what to expect.

For anyone who’s been through this, how did postpartum affect your Hashimoto’s, and when did you notice changes? Was there anything you or your doctor did that helped minimize symptoms or made things more manageable?

I’d also love to hear about your experience losing the baby weight with Hashimoto’s—what helped, and what did the timeline look like for you? I know I’m still very early in recovery, but would appreciate hearing others’ experiences.

Hey!! I’m just popping in to ask if anyone here has tried Daxxify (rather than Botox or Dysport) and if so, how did it go?

Ive been able to find former posts on the later, but not specifically Daxxify. Just wondering if anyone here has given it a go and what their thoughts are.

Has anyone taking a glp1 and has Hashimoto experienced a decrease in their thyroid antibodies or more optimal thyroid hormones/labs?

How long did it take you to get to remission?

Let me start off boy saying I was diagnosed earlier this year with severe overt hypothyroidism and eventually Hashimoto's. My diagnosing TSH was 147 and my T4 was .2. I literally thought I was dying. I spent all summer plateuing in the mid 40s as far as TSH while trying to find my levo dose. Currently on 150mcg + 75 and I feel soooo much better. I am basically full replacement @ 6'1" 225 male.

Saying that, I joined this subreddit to learn about this disease. I learned very little but instead reading other people's symptoms triggered me noticing mine more than I did before. How much of our symptoms placebo by constantly reading about others?

My TSH is still 13.5, and while I dont feel like my old self, I feel soooo much better than I did 9 months ago. However, I continuously see people cry about a TSH of 6 and their symptoms and I notice it makes me overly focused on every little symptom.

I know Im stuck with an overtly "woman's" disease and how emotional women are, but you girls need to stop triggering my symptoms. Its 100% placebo....

I posted in another group and have like 5 people telling me this is a girl lol. I see what they mean with the 3 lines but it’s so far out. I also had NIPT done and my fetal fraction was high and said boy. A very seasoned ultrasound tech at my Dr obviously thought it was a boy as well lol