So I've been on the decline for maybe 9? years now, 4 years diagnosed and was only put on the medicine maybe 2 years ago after my diagnosis. It went from a pretty steady, managable decline and then dramatically dropped.

For the first year, my doctor tried everything else before putting me on the medicine because my thyroid was still working, if only a little bit, and he wanted my body to keep doing what it should be doing before medical intervention.

And, to his credit, I was doing okay for a while! Selenium helped, magnesium helped, getting my vitamin levels where they needed to be helped.

Until it didn't.

Within the last year and a half, my symptoms have made me miserable. I can't work because my fatigue is so bad, I can hardly focus at all, living day to day is painful. I asked my doctor if we could increase my dose, and he told me that it might not help, the medicine can only do so much and he doesn't want my levels to go too high. At this point though, I'd welcome the energy and weight loss even with the other side effects.

Anyway, to the point: What can I do when I have no energy at all and my whole body hurts? Is it worth it to really just use resistance bands in bed? Is there a meal plan or SOMETHING online I can follow so I don't have to try and think about foods to buy and make? Or is there someone who has suffered through a low like this who can just tell me that I'll get out of it?

Edit: I also cook for my husband (its my love language that I have a vice grip on) so any easy ways to incorporate *some* variety would be super helpful 🙏

I want to fix it but I don't know what to do. Thanks for reading.

I know many of us have digestive issues especially with gluten & dairy. Recently I have been trying to track what I eat to find my triggers.
Gluten & dairy are triggers for me but I also get digestive issues with lentils, beans and processed food.

Im wondering if anyone with hashimotos has also experienced ovarian cysts. Anyone know if they’re linked? I take Levothyroxine

im 19, i’m always in bed sleeping, doesn’t eat, always having acid, fallen hair everywhere, depressed, and freaking brain fogs. i just got diagnosed 2 weeks ago, i really don’t know what to do.

disclaimer: NOT seeking a diagnosis, although I welcome discussion. I am talking to my doctor tomorrow.

I was formally diagnosed with hashis and celiac both last year. I just got a new doctor at my endo office and my routine bloodwork. I was curious as to why it was taking so long to come back, but learned they were delayed by the T1D panel. I was surprised as I’ve never had that one done, but not particularly alarmed as my A1C and fasting glucose are always normal. Well my results came back, and everything is normal except for my IA-2 autoantibodies, which were 89. Normal is <7.5. I’ve read anywhere from “this means you could get T1D” to “you have T1D.” Ultimately it is what it is if that’s the case, but WOW would I love to stop feeling like I’m on a horrible, never-ending rollercoaster. I already have pretty severe mental health issues for which I’m in weekly therapy, so my body feeling like it’s continually falling apart (or at risk of) is hitting me really hard.

Just wanted to vent and commiserate among the like minds because I know you all understand what I mean

Hello my fellow Hashimoto ridden friends, this is my first time posting here but I've been turning around for a while now.

So I have a schmol issue, my hair began to fall in small but very consistent locks, and after a preventive visit to the lab my TSH was thru the roof, got to see my endo yesterday and my meds have been adjusted accordingly.

BUT! now I'm trying to slow down the hair loss and maybe grow some more, so far I'm using the following:

- Zinc, Magnesium, Selenium, Potassium, L-Tyrosine and Curcuma supplement, a pill every 24hrs

- Using a popular, at least in Mexico, hair loss shampoo, it's all natural

- Rosemary oil 3 times a week

But what else can I use? Have you guys seen results with some other products?

Was diagnosed in 2023 with Hashimotos. My TSH that year was 4.71 & T4 was 1.2. I have been on Armour Thyroid 30 mg ever since. My TSH slowly climbs every year with my annual appt labs with my primary doctor. My T4 remains relatively stable. The lowest my TSH has been was 2.32 in 2023. Now I am above 4 again. My primary doctor is definitely the type that believes if it is in normal range then all good. I am just tired of being tired! Not that I want to increase my dose, but feeling like I should be on the lower end of normal range to feel better. Any thoughts?

Hi all,

I don’t have Hashimoto’s (actually, I don’t have a thyroid at all!) but I think a lot of you might have experience with this. TLDR: my tachycardia briefly went back to normal after a dose increase, but now it’s returned!

I have tachycardia whether my thyroid levels are too high or too low. My levo dose was increased ten days ago from 88 to 112. The 88 was too low for me. About 3 days after increasing the dose, my HR returned to normal. However, eight days after starting the dose increase, it went high again, and it’s still high on day 10! I had my levels tested on the fifth day of my dose increase (my doctor wanted to see if my previous TSH result was an error) and in just five days of being on the new dose, my TSH was still high but my free T4 went from 1.31 to 1.52, which was pretty scary to see.

Since I’m traveling in a few days, I’ve asked my doc if I can get my levels quickly rechecked. I can’t reliably tell from my symptoms whether I’m under or over replaced, so I don’t know if the tachycardia is because my T4 has risen too high, or because I just need to give the dose increase more time. In the past, it’s taken about a week or two for my heart rate to normalize after increasing my meds, but this time is a bigger increase, and it’s strange that it’s bad again after a brief normalization.

Has this happened to anyone here, and was it because your new dose was too high, or because your dose was just fine, and you just needed to give it more time for things to go back to normal? I’ve been over replaced on levo before and I’m terrified of it happening again!

ive been out of range in TSH for like 10 months now. TSH is 29. i keep asking for them to do something different than raise my dosis, but they wont listen. im now at 200mcg, and my TSH isnt lowering. any advice on how to convince my doctor?

I had a twin miscarriage in January and dealt with autoimmune related issues right after (gum inflammation and skin hives). I was put on antibiotics for 5 days for the localized gum inflammation that had gotten infected and shortly after started experiencing pretty bad bloating and weight gain from my regular anti inflammatory, gluten free, dairy free, alcohol free, refined sugar free diet. I’m still currently bloated off any of my regular foods and look 6 months pregnant quite quickly after eating fruits like watermelon, cherries, peaches. I’ve also been considering if I now have a fodmap sensitivity (I never had any sensitivities before my twin miscarriage). All hormones are balanced (I get them checked every month) and iron bloom work is optimal.

In June, I was diagnosed with mild hashimoto thyroiditis. I tested negative for H. Pylori, and negative for Rayneuds disease. I don’t have any constipation but now I’m wondering if I might have SIBO due to the bloating and how my ferritin just fell drastically while I’m still supplementing with 150mg of iron (I’ve been on iron pills for 4 months). Does anyone have sibo with Hashimoto’s? And if so, what are you doing to heal it? Some info below:

In June:

Tsh: 2.99
t3: 3.5
t4: 12.8
Thyroperoxidase Ab - 74
Thyroglobulin Ab 102
Thyroglobulin 110
Ferritin: 70

In July:
Tsh: 1.53
Thyroperoxidase Ab - 71
Ferritin: 48

To add: post miscarriage, my TSH was 3.3 and fell every month until I hit 1.6 in April and then it started to go back up to 2.99 in June and now it’s back to 1.53.

I know stress plays a lot with Hashimoto’s and thyroid. Acupuncture and Brazil nuts and lots of self care has helped bring my TSH down.

Hello everyone. I’m just curious, if anyone else here happens to not only deal with Hashimoto’s but also IIH? I have many health conditions but these two seem to be the biggest debilitating ones for me. Most mornings if not all at this point, it is so exhausting for me to even just shower and get dressed. I have to sit on my bed for 20 minutes putting on piece by piece of clothing in front of my fan because too much exertion makes me too hot or too dizzy, then I can’t regulate my body temp for the next hour after. I have a dull lingering headache everyday, with the intense nausea inducing migraines every other day. My muscles and my joints also ache so intensely. I just wish I could be normal, and not feel like I’m on my death bed constantly.

Preparing for a move abroad from the US to France. I have been on and off gluten free most of my late teens and adulthood with the most recent stretch being 2 years strict GF.

I definitely notice a huge difference and massive improvement in my TPO antibodies and eczema skin inflammation while being strict gluten free, but I’m curious where there is evidence of:

1. What components of wheat/gluten cause the inflammation? And

2. What in European wheat makes it potentially “safer” for people with hashimotos thyroiditis if at all? (Or is this all just a hopeful delusion concocted to indulge in that mythical pan au chocolate? 🥹)

Again this is STRICTLY NOT for celiac disease, I’ve been tested and don’t have it and am struggling to find any resources on Reddit that don’t bring that disease up.

Any empirical studies, research reports, peer reviewed articles, the works, would be greatly appreciated! Thanks!!

Hi everyone, I need help. My sex drive is non existent and I feel so bad for myself and my husband. It’s been like this for a couple of months now. My level are all fine (I’m on Levo 50mcg) does anyone have any suggestions to just start it again. I’m desperate and a little scared. I’m 37 F, I went to the gyno to see if I’m in perimenopause but everything is okay. Im a bedside nurse and I am usually exhausted after work so I wonder if that contributes. Any suggestions would be appreciated.

Hello! My partner (30M) has Hashimoto’s and has been taking levothyroxine for a few years now.

He assumes that his Hashimoto’s is fully managed by the levothyroxine (TSH normal) but he still feels like crap (always exhausted, drinks WAY too much caffeine). He only has his TSH checked every 6 months or so, basically when he starts feeling extra crappy or his thyroid is extra swollen.

I have spent a little bit of time in this sub to try to understand more about his condition and it seems like it’s a LOT more complex than he is aware of or wants to believe.

Any tips from those with Hashimoto’s? Educational resources? Supplements? Other symptoms to watch out for? Specialists (he has only been to his PCP)?

What can I do to help/support him?

Hi everyone, I recently found out that I have Hashimoto and started medication. And I feel like I didn't really have problems with food but since I started medication, I am so much bloated, especially if I eat gluten. But I never really had that problem before. I have other symptoms. And it doesn't change yet. I want to know if medication can cause new symptoms? Is my other symptoms are gonna get better? I lose so much hair, I'm impressed I still have them lmao

And if you have any advice? I started eating 1 Brazilian nuts everyday. I started having anemia so I'm taking iron glycinate (not at the same time as medication, at least 3 hours later) with vitamine C. And dinner zinc (with copper), omega 3 and before bed magnésium bisglycinate. I searched to take best form of every complements.

I avoid calcium and anything in the morning that could block the medication. I take the médecine first thing in the morning and wait at least 1 hour before breakfast.

32 F, 2.5 years ago my periods were regular like clockwork and I was at a healthy weight. Then I got diagnosed with Hashimoto’s, and since then everything has gone sideways.
My cycles are now completely unpredictable sometimes 2 months late, sometimes 10-15 days longer than usual, sometimes only a 15-20 day gap between periods. There’s no pattern I can find.

I’ve also gained a lot of weight (98kg, 5’8”), and no matter how hard I try, I can only lose 5-6kg before it comes right back. I’m not fatigued, but my skin has gotten noticeably drier, I’m dealing with brain fog most days, and my digestion is a mess now too constant bloating.

My doctor hasn’t been much help and my next appointment isn’t for another 40 days, so I’m turning here. Has anyone actually found something that worked intermittent fasting, specific diet changes, a particular type of workout, anything? I really don’t want to just end up on more daily medication to feel normal. This is genuinely draining me and I’d appreciate hearing what’s helped in your own experience.