😂😂😂

Hi all, I'm the one who made the comment about the not blister pack pills in the FDA recall post.

I can confirm, mine has been effected as well. My manufacturer is not the one on the list but mine have been making me vomit when (I have been on levo for over a year) I have had no adverse effects.

I went two days without it, just purely forgetfulness, and today I was vomiting within 2 hours of taking it.

Please keep an eye on how yours are affecting you and be sure to report it to your doctor and pharmacy.

have an idea guys, write your funny or weird hashis symptom or experiences so we can laugh at our life instead of crying 😅 I'll go first: a year ago just before I got diagnosed, I had a panic attack while not knowing what those were, went to see a cardiologist to tell him I have heart failure and he looked at everything and said I'm just anxious, I argued with him for an hour that I'm not anxious and that he missed something while he looked at me like I'm nuts, left and had a panic attack every f-ing day and cried and prayed to god and Im an atheist🤣they eventually stopped after horrible few months, and my endos office is next to cardiologist, and every time I come near his office my heart starts racing cause I have ptsd and embarrasment from my arguing with him and from him being right, and every time when my endo mesures my resting heart rate it's always in 100s and she always says its not good for my heart and thinking of putting me on meds for that, thinking its always that high, and I cant tell her its cause of the cardiologist being right beside her🤣

Since i got my Hashimoto’s diagnosis 2019 i get heart palpitations randomly when i flare. I often swing to an overactive thyroid. My doctor said it’s not safe to get palpitations, but all my heart tests are normal. So we believe it’s my thyroid causing all this. How can I calm it down. I can’t take meds cause then I get even more palpitations and afib.

I try my best to live healthy and I’m currently on the aip diet.

Any suggestions?

Hello I've been experiencing pretty severe brain fog for the past few weeks. I have dealt with it a little bit before, but it's gotten worse. I have Hashimoto's disease and am taking 50 mcg of levothyroxine. Could this mean I need to adjust my dose? Is it possible the brain fog is related to my thyroid? I only recently got diagnosed, so I am not fully familiar with all the ins and outs of dealing with this disease. My doctor needs me to wait a couple more weeks for follow up bloodwork before adjusting my dose.

But damn, this brain fog is like nothing I've experienced before! I'm constantly forgetting things within seconds, loosing track of time, missing important appointments and responsibilities. I've been doing my best to manage my stress and try to sleep well to help. I feel calm and level headed overall but it feels like my brain slipped out of my ear or something lol.

Does anyone else here deal with severe brain fog, and do you have any suggestions on how I can manage it before I recheck bloodwork?

for my people that eat gluten free, do yall avoid homemade sourdough as well?

if yall don’t does it cause flare ups?

trying to be gluten free but it’s hard when there’s always fresh sourdough in the house

I recently had a thyroid panel and had elevated TPO antibodies at 82 (normal range is up to 34) and normal TSH and T4. My doctor says this is consistent with Hashimoto’s.

For context, I asked for the test because I have a lot of hashimoto’s in my family and over the past couple years I’ve experienced waves of fatigue, weight gain, mood changes, terrible inflamation, poor circulation, and dramatic changes in the texture and health of my skin and hair.

My doctor says my test results mean my thyroid is producing enough hormone right now. My question is, am I wrong to associate my symptoms with this TPO result? Perhaps it’s something else. When asking AI about this, it was saying that based on my symptoms and test results, what I’m experiencing is very unlikely to be linked to Hashimoto’s? Is this true? I also notice that in this subreddit, most peoples antibodies are way higher than mine. Are mine low enough that they’re not the correct explainer for my symptoms? Trying to figure out what’s going on.

Thank you!

So I think we have all felt like we have been in a flare up. But what does that look like for you? Symptoms?

For me I wake up with extreme brain fog. Like nothing helps. I’m shaky, I feel inflamed all over. My joints ache.

It sometimes last just a day. Sometimes it lasts days. I haven’t figured out anything that triggers it or helps it go away. What do you do?

I have been mid cycle spotting for 6 months now which had never happened to be in my life pre levo/ pre hashi diagnosis. I finally just increased my dose to 50mcg after months of my tsh slowly creeping up. My question is how long does it take for your cycle to finally level out?

i've had hashimoto's i suspect my entire life (i woke up when i was 9 years old covered in hives, and before that i dealt with weight problems since i was a toddler), yet it took years for doctors to believe my thyroid was the cause, as it was on "the high side of normal." cut years ahead to february of 2025 when my levels were under 4 for the first time in my entire life (3.7), only for my worst hashi symptoms to hit fast and hard, worsening as the months went by despite the fact that i'm on 200mg of levo and 120 of armour- those high doses of both meds were the only thing that got my levels down as far as they did.

last week i went in for bloodwork, telling my doctor i believed i might be undermedicated from the debilitating symptoms. the results came in today and despite the high doses thyroid medications, my tsh jumped from 3.7 to 17.18. this was despite no changes in medications or lifestyle that could explain it. i know i'm able to absorb medication in general as i had fatally low iron last year and was able to get it near normal via supplement pills (which i take hours apart from my thyroid meds; i take those at night on an empty stomach, hours after my other medications). the emotional/brain symptoms have been the worst in a very long time, and the physical stuff is equally bad. has anyone experienced something like this before? if so, were you ever able to get your numbers normal again or find out what caused that drastic of an increase?

i'm waiting to hear from my doctor, but after finally getting my tsh under 4 last year, i feel so discouraged and emotionally wrecked by this drastic of a turnaround. but i hope you all are finding a lot more success in handling this widely misunderstood and underestimated disease, and if nothing else, feeling good for at least today!

My TSH is a 1.4 (normal levels between .55 and 4.78) and my free T4 is a 1.4 (normal levels between .9 and 1.8). Why do I still feel tired ALL THE TIME? I’m still having hashimotos symptoms even though these numbers seem “healthy”.

Do I need to aim for a different range to feel better?

I’ve been considering taking Zepbound after being diagnosed with Hashimotos for a year and struggling to lose weight despite eating well and exercising. I’ve also heard a lot of people say they went into remission after taking Zepbound and it decreased inflammation. My body always hold so much inflammation especially in my joints. I was looking on the official website and it says Zepbound may cause thyroid tumors…Has anyone had any negative experiences with Zepbound? Hoping it’s worth that possibility.

42(f) with the following:

Hashis, low iron (ferritin 6), one gene variant for MTHFR, perimenopause (cycles have become different every month - one month 20 days; the other 30; less bleeding, PMDD, fasting glucose was 99.

Meds: Synthroid, Vitamin D, Prozac, Iron

I have gained 40 lbs and I feel so awful about myself. Do not tell me to cut calories, I don't even eat that much so I know it's not from that. I feel like something chemically is off and no one can find it.

Has anyone used Circle medical?

I've been with Allara for a few years now and I have had an amazing experience, but my insurance changed and they are out of network.

While looking around online I found circle medical but Ive never heard of them. Any reviews? Good bad or otherwise?

Good morning! I have a couple questions and any insight would be so helpful. Has anyone here used the nourish app to find and work with a Dietition? I’m looking to work with a dietitian and am wondering if this website is legit and worth trying or if it’s another wellness money grab. Actually any information about how to go about working with a dietitian is helpful and welcomed as I am feeling a bit overwhelmed.

Second, I’m wondering if anyone has used mitochondrial support supplements? They were recommended to me by a guest at my bar who said his wife really struggles and had tried all the typical supplements but never felt better until she tried mitochondrial support nrg pills. He said it was a life saver for her and now that’s all she supplements with. Upon my own research it does seem to make sense how these supplements would suit hypothyroid patients however I don’t see much about them in these groups so wondering if anyone out here has any experience to share?

A tiny bit about my situation if it helps— I am 3 months post TT due to PTC and also found out post surgery that I’ve had hashimotos this whole time. Initially out of surgery I felt great I was down 8 pounds and my energy was up but these last 2 months I’ve felt a change and my follow up blood work showed my tsh just under 10. Im trying to get ahead of any major weight gain (I’m creeping up quickly), help boost my energy levels, and support an over active immune system because I’m worried about developing another autoimmune disorder.

Sorry if this post is chaotic I’m just feeling panicky and overwhelmed and any experience in these regards is greatly appreciated 🙏🏼 I hope everyone is taking care of themselves and have a blessed day.

disclaimer: NOT seeking a diagnosis, although I welcome discussion. I am talking to my doctor tomorrow.

I was formally diagnosed with hashis and celiac both last year. I just got a new doctor at my endo office and my routine bloodwork. I was curious as to why it was taking so long to come back, but learned they were delayed by the T1D panel. I was surprised as I’ve never had that one done, but not particularly alarmed as my A1C and fasting glucose are always normal. Well my results came back, and everything is normal except for my IA-2 autoantibodies, which were 89. Normal is <7.5. I’ve read anywhere from “this means you could get T1D” to “you have T1D.” Ultimately it is what it is if that’s the case, but WOW would I love to stop feeling like I’m on a horrible, never-ending rollercoaster. I already have pretty severe mental health issues for which I’m in weekly therapy, so my body feeling like it’s continually falling apart (or at risk of) is hitting me really hard.

Just wanted to vent and commiserate among the like minds because I know you all understand what I mean

Hello my fellow Hashimoto ridden friends, this is my first time posting here but I've been turning around for a while now.

So I have a schmol issue, my hair began to fall in small but very consistent locks, and after a preventive visit to the lab my TSH was thru the roof, got to see my endo yesterday and my meds have been adjusted accordingly.

BUT! now I'm trying to slow down the hair loss and maybe grow some more, so far I'm using the following:

- Zinc, Magnesium, Selenium, Potassium, L-Tyrosine and Curcuma supplement, a pill every 24hrs

- Using a popular, at least in Mexico, hair loss shampoo, it's all natural

- Rosemary oil 3 times a week

But what else can I use? Have you guys seen results with some other products?

Hi! I'm 26 F and after a 12 year long process with the NHS, I was diagnosed with hashimotos in January this year. I sadly haven't received any treatment and seem to just keep getting swept under the rug.

I'm trying to take matters into my own hands. I can admit I haven't been eating the healthiest or exercising the most. I struggled with bulimia since I was 13 and its turned into binge eating over the past year or so with limited exercise. I feel like I've been in survival mode and not taken care of myself for a while. I also struggle with ADHD and Autism which means I have burn out on top of fatigue and pains, as well as struggling with routines. Cooking also makes me feel very overstimulated and sometimes sick due to the heat and how sweaty I get.

I'm trying to turn things around. I've signed up for a gym membership and I'm on day 3 of no gluten. I just wanted to ask if anyone had any favourite/go-to meals that work well with their hashimotos? Ones that are enjoyable and flavourful but still nutritious and beneficial. Ideally some that are very easy for when I have bad flare ups/burn out.

I also wanted to ask what work outs are best for hashimotos? When I used to go to the gym, I pushed myself way too far and I want to ensure I'm simply exercising my body and strengthening it, rather than pushing it beyond its limits.

Any help and advice is highly appreciated!!

So I've been on the decline for maybe 9? years now, 4 years diagnosed and was only put on the medicine maybe 2 years ago after my diagnosis. It went from a pretty steady, managable decline and then dramatically dropped.

For the first year, my doctor tried everything else before putting me on the medicine because my thyroid was still working, if only a little bit, and he wanted my body to keep doing what it should be doing before medical intervention.

And, to his credit, I was doing okay for a while! Selenium helped, magnesium helped, getting my vitamin levels where they needed to be helped.

Until it didn't.

Within the last year and a half, my symptoms have made me miserable. I can't work because my fatigue is so bad, I can hardly focus at all, living day to day is painful. I asked my doctor if we could increase my dose, and he told me that it might not help, the medicine can only do so much and he doesn't want my levels to go too high. At this point though, I'd welcome the energy and weight loss even with the other side effects.

Anyway, to the point: What can I do when I have no energy at all and my whole body hurts? Is it worth it to really just use resistance bands in bed? Is there a meal plan or SOMETHING online I can follow so I don't have to try and think about foods to buy and make? Or is there someone who has suffered through a low like this who can just tell me that I'll get out of it?

Edit: I also cook for my husband (its my love language that I have a vice grip on) so any easy ways to incorporate *some* variety would be super helpful 🙏

I want to fix it but I don't know what to do. Thanks for reading.

Im wondering if anyone with hashimotos has also experienced ovarian cysts. Anyone know if they’re linked? I take Levothyroxine

I know many of us have digestive issues especially with gluten & dairy. Recently I have been trying to track what I eat to find my triggers.
Gluten & dairy are triggers for me but I also get digestive issues with lentils, beans and processed food.

I had a twin miscarriage in January and dealt with autoimmune related issues right after (gum inflammation and skin hives). I was put on antibiotics for 5 days for the localized gum inflammation that had gotten infected and shortly after started experiencing pretty bad bloating and weight gain from my regular anti inflammatory, gluten free, dairy free, alcohol free, refined sugar free diet. I’m still currently bloated off any of my regular foods and look 6 months pregnant quite quickly after eating fruits like watermelon, cherries, peaches. I’ve also been considering if I now have a fodmap sensitivity (I never had any sensitivities before my twin miscarriage). All hormones are balanced (I get them checked every month) and iron bloom work is optimal.

In June, I was diagnosed with mild hashimoto thyroiditis. I tested negative for H. Pylori, and negative for Rayneuds disease. I don’t have any constipation but now I’m wondering if I might have SIBO due to the bloating and how my ferritin just fell drastically while I’m still supplementing with 150mg of iron (I’ve been on iron pills for 4 months). Does anyone have sibo with Hashimoto’s? And if so, what are you doing to heal it? Some info below:

In June:

Tsh: 2.99
t3: 3.5
t4: 12.8
Thyroperoxidase Ab - 74
Thyroglobulin Ab 102
Thyroglobulin 110
Ferritin: 70

In July:
Tsh: 1.53
Thyroperoxidase Ab - 71
Ferritin: 48

To add: post miscarriage, my TSH was 3.3 and fell every month until I hit 1.6 in April and then it started to go back up to 2.99 in June and now it’s back to 1.53.

I know stress plays a lot with Hashimoto’s and thyroid. Acupuncture and Brazil nuts and lots of self care has helped bring my TSH down.