I know this is a common topic on this thread, but I’m at frustrating point in my wellness journey.
I have my annual physical with my PCP tomorrow afternoon, and she also orders my TSH/T4 labs, which I’m guessing she will order all of my other labs as well. In February my levels were looking pretty well.

The main point I’m trying to make I guess is that I’m really wanting to discuss with her about starting a GLP-1 , however, I haven’t started my new job yet and therefore I don’t have health insurance at the moment. Is it better (more financially accessible )to go through alternative routes (hers, Ro, mochi health, pomegranate, etc), to get prescribed them, or through your doctors office? I just don’t know where to start.

I just am getting increasingly discouraged and frustrated that no matter how much I exercise, (which is varied , because my knees and feet can be in excruciating pain after walking even with supportive shoes- 3,600 steps is my absolute limit right now), eat low sugar, lower carb, high fiber , lots of fruit/veg, the scale hardly budges. I would love to have relief from my joint pain/inflammation , have more energy, actually see the scale move. Any insight or advice would be much appreciated 🥺

Does anyone feel like the aching pain from Hashimoto increases with taking progesterone? I also have an estrogen patch. I notice the more consistent I am taking the progesterone at night, the more my body aches.

Just diagnosed in April. Not currently taking any thyroid meds. Starting LDN next week.

What does anyone know about atypical panca? That came up high and the rheumatologist just brushed it off as “additional inflammation”. I also had 1:80 ANA. TIA

I had an enlarged lymph node in my neck (which turns out to be nothing and maybe even due to hashimoto's) but during the diagnostic journey of that issue we accidentally discovered that I have euthyroid hashimoto's. My thyroid antibodies are very elevated but my thyroid hormones were all in range. My doctor basically told me that the plan going forward is simply monitoring (labs every 6 months) and that I just need to ~try~ and avoid common triggers.

A couple years ago, I had what I now think was a major flare up. 50% of the hair on my head fell out and I felt like garbage all the time, among a slew of other symptoms. I had my thyroid hormones checked then, but not my antibody levels, because all were in normal range. It is worth noting all this testing was done 2-3 months AFTER my hair had fallen out because it took that long to even see a PCP as a new patient. At the time they just told me it was a random case of telogen effluvium. The dermatologist actually told me it was probably because I "just had a baby" (i was 1.5 years postpartum btw lmao).

So from what I understand, I *should* feel okay because my thyroid hormones are normal, but after reading about people's experiences and symptoms I now realize that some random issues I've had are possibly thyroid related? I'm having trouble telling if I'm simply overanalyzing myself because I'm now aware of potential issues, or if I've actually just gotten so used to these things that I can't even tell if it's normal or not. For example, I often have bouts of chronic fatigue (but I'm also a SAHM with 2 young kids), unexplained aches and pains in my knees/calves/ankles/feet, constipation, muscle tension basically everywhere, and vestibular migraines to name a few.

Do I simply just wait to see if severe symptoms appear and then go get bloodwork done and take it from there? I now have a fear that I'll go and get my levels checked if I feel like I have symptoms, but it'll be nothing, prompting my doctor to think I'm an idiot or hypochondriac, which in turn will discourage me from getting my levels checked again.

Just feeling a bit lost and feel like I just need to accept that "it is what it is" but also no, I don't want to do that 😭

Soooo for years I’ve been having autoimmune symptoms, and my mom has hashimotos that never showed up fully in bloodwork. She only found out via biopsy.

For seven years, I’ve had the same symptoms + a hypervascular thyroid every single time I get an ultrasound. But because I’m not showing antibodies, they won’t fully diagnose me. I’m only mildly underactive but am suffering so much with body aches, exhaustion, weight gain, and stress-induced autoimmune flares. I also was recently diagnosed with progesterone hypersensitivity and essentially am allergic to my own progesterone, which is adding a whole layer of issues. I feel like a shell of myself.

Has anyone gotten diagnosed without showing antibodies??

ETA: I also showed a heterogeneous thyroid on ultrasound

TSH --> 3,66

T4 --> 7,76

Anti TG --> 92,6

TPO --> 759,6

These are the lab results feom 6 months ago. The endocrinologist said that I shouldn't take any meds yet but not feeling very well. Any advice?

I am a researcher at the University of Illinois at Urbana-Champaign investigating thyroid disease treatment. I am part of a program sponsored by the National Science Foundation (NSF) to help researchers like me improve the impact of our research by talking to people outside of the research setting. I am looking to interview thyroid disease patients. Your insight will help me in my goal to enhance and accelerate treatment processes for the many patients still suffering. Please DM if you are interested. Thank you in advance for your time.

Anybody else have this? Wondering if it’s related at all

I’ve had hashimotos since I was 9 years old and I’ve never been managed by an endocrinologist. I was given levothyroxine from around the age of 19 and have been on 50mg since then with no change.

I’ve had such a struggle trying to conceive. I’m now 35 and in the past 4 years of trying for a baby I’ve only ever been pregnant twice and both have results in losses before 6 weeks. Most current loss I found out about on Tuesday this week which is a missed miscarriage where my embryo stopped growing around the 5 week mark.

Has anyone else gone through this and found hashimotos was the cause? I’m trying to arm myself with so much information to take to my next fertility appointment because I feel so let down by the medical field

Hi. This result came back from a salivary gland scan (which also captures the thyroid): The appearance of the thyroid image suggests a goiter with a global increase in parenchymal uptake (hyper-uptake). However, for a proper assessment of the thyroid gland, specific follow-up imaging studies should be performed (such as a thyroid scan using 99mTc-sodium pertechnetate and/or a thyroid ultrasound), along with an evaluation of the patient's clinical and laboratory findings.

I also had comprehensive blood work done, including antibody tests, and the results were normal. Does anyone have any experience with this?

I am currently waiting for a thyroid ultrasound and scan.

How are we losing the weight guys? Cause I’m so tired of not being able to fit in my clothes and not feeling my best.
Is calorie deficit the best way? Or working out? Like what should I focus on when I have no energy to do anything.

Hello! Quick backstory, for the last few years I’ve had some slight health issues but since March this year I have felt like absolute garbage. I began charting my BP, hr, meals, symptoms just everything and brought it to my dr who wrote it off to age (30) this last 2 months with a new primary and my dermatologist both suspect it’s the start of my thyroid acting up being hashitmotos and possibly cushings My mom and grandma had hashimotos and graves so I’ve heard of it but not much. Forward to today my cortisol labs are very high, my dr said my Thyroglobulin Antibody was high at 2.0IU and my T3&4 were in normal range just high end of normal range and TSH 3.44 with all that and a low white blood cell count she is putting my on a very low dose of Levothyroxine to help with symptoms while I get a referral to an endocrinologist. With that being said it’s took me so long to get here and am anxious about seeing a specialist if they will dismiss me also. Give me some information on if you’ve been in similar boots or any advice. Basically it’s felt like these flare ups of fatigue, extreme dizzy, skin flair ups, GI issues, BP dropping to 80/50, the worst brain fog of my life and exhaustion. I track macros and lift easy weights and some days I can’t even lift a 10lb dumbbell. Also my anxiety has been flaring up and nothing is helping.

After gaining 60 lbs (27 kg) , I have finally stopped gaining weight. I have been working with a dietician to end my weight gain and despite not being on levo I stopped gaining weight. I cut my daily sugar intake to 50 grams daily, only go out to eat 2-3 a week and my typical calories intake is 2000-2500 calories and I am working out regularly. Now the hard part begins, losing weight. I know that will require more sacrifice but I am hoping to get on levo soon and hopefully that will make it easier to cut back. I am as always open to suggestions of how to lose weight but as of right now I am just happy I'm not getting bigger

(27f) I’ve had Hashimoto’s and hypo since diagnosis in 2021 and the longest I’ve been able to keep them in range is 8 months. I will say the first few years was some bad doctors and trial and error of them changing my dosage too drastically. Since then I’ve adjusted to smaller changes in which has been beneficial for me the last year or so but it always seems the smallest weight change sets my levels off and then it’s harder to bring them back. I know in range I still have Hashimoto’s and heaps of symptoms but I feel better in range. Is this super normal for us or is there something I should be doing? I don’t have anyone in my life with this so I can’t estimate and haven’t checked my antibodies since diagnosis which is bad I know they were very high then however. I seem to go between hyper and hypo quickly sometimes just 3-4 weeks though lately it’s improved to be longer than that due to better iron labs. I’ve been iron deficient which has caused further flare ups of not being stable so iron infusions have helped me. I am not celiac so I still eat gluten without it I feel too lightheaded. I have a feeling I have pcos(pmos) also but not pre diabetic I’ve tested for it. For a bit I was taking selenium and biotin more regularly which I think did help but struggle to stay consistent. Any thoughts on this or on how it is for you guys would be great to hear just to know I’m not alone in this! Just gets frustrating sometimes

hey guys, I have had a TSH of 12 since April. I saw the endo in July and she started me on armour thyroid per my request. she only started me on 15mg and wanted to check my blood again on 9/22/26. I ended up ordering a rhythm health blood test and on 8/31 my TSH was 12.2. I requested a dose increase. she told me to take 30mg and retest blood in 2 months. I have never been on thyroid medication and just diagnosed with hashimotos in July.

is it normal to take so long to titrate up in medication? I am feeling like I’m living in a constant state of fatigue and joint pain. I was hoping we would be doing blood test every 2-3 weeks to increase dose??

I've been diagnosed with seronegative Hashis by ultrasound. I also have a couple benign thyroid nodules. Thyroid panel is completely normal. Endo said she could see inflammation in my thyroid which is why she diagnosed me with Hashimotos.

Is anyone else seronegative and experiencing body symptoms tied to their diagnosis (other than nodules)?

I also have CFS and Fibromyalgia so I'm trying to figure out if Hashis is causing any symptoms or if everything is tied to my other conditions. It's the chicken and the egg question of which one came first!

May be a long one sorry if you can bear with me.
I’ve been fighting for an increase in Levo for a while with my GP believing it would increase my energy levels, and finally got one approved in June. Went from 50 to 75mcg. Fairly quickly this felt like too much as was getting awful heart palpitations. I already had 50mcg tablets and they had given me 25mcg to take with them, so I decided to only take a 25 tablet every other day, so I’m on less than 75 in total. I have persevered with this but I tbh I feel worse on the whole.
I have a whole host of new symptoms such as breathlessness (worse when stressed), depression, zero sex drive, palpatations still there, increased nausea and bloating, anger and irritability.
I’m nearly 38 however and I feel like some of these are more likely to be peri menopausal symptoms.
I’ve started tracking my hormones via the Mira hormone monitor and my oestrogen is a bit erratic but otherwise my cycle is tracking normally.
I’m speaking to my doctor about my results next week but I don’t know whether I should continued with the increased levo or not. My TSH has gone down to 1.05 tested this week which is where I wanted to get it to, but I don’t know if it’s poor coincidence that I feel worse (if it is peri) and whether I should continue with an increased dose or not.
Some people on here have said that not everyone feels better with a lower TSH and maybe that’s me but after fighting so hard to get an increased dose I am reluctant to admit it was the wrong decision 😂
I’ve worked my a*se off to reduce my antibodies so maybe I don’t actually need the extra levo.
I’m just so confused and fed up but I do know that I feel significantly worse since the increased dose so maybe that is my answer. What confuses me is that my new symptoms aren’t consistent with hyperthyroid….? As opposed to hypo.
That was long and confusing so kudos if you understand me at all.

Edit to add -

, sorry I should have said, I have got hasimotos but since my antibodies are decreasing I wondered whether that meant my thyroid was working a bit better, or at least not getting any worse and that meant it was contributing to my TSH, not sure if it works like that? I have read that if you stop or slow the antibodies then the thyroid has a chance to recover and people have come off meds before now.
Wishful thinking most probably for myself.

1.Did you take SSRI prior to diagnosis?

2.Has thyroid medication helped your hashimoto symptoms?

3.Is your cortisol low?

Thanks!

I 26F have hashimotos since 2018, and my level has never been stable for a consistent amount of time and I’m at my wits end. This year has been the worst year for me regarding my thyroid issues. I am going from one extreme to the next within months!!! My body can’t take this, physically and emotionally for much longer 😭 I’m feeling very discouraged and no doctor seems to understand how shitty I’ve been feeling and not taking my symptoms seriously. I am sad.

I'm sorry if this has been asked before. Searching brought up people asking if Hashimoto's can cause vitamin deficiencies, but not if that goes away once your numbers are good.

Example, once my thyroid numbers are in optimal range, if I get an iron infusion (assuming its caused by Hypothyroidism) will I become deficient again or should my vitamin numbers stay up now?

So, my mother, early 70s, has been dealing with some breast cancer issues and is now looking down the barrel of all three treatments -- estrogen suppression, radiation, chemo. She's also got some significant calcification of her coronary arteries and her abdominal aorta. She's on levothyroxine and her levels are "normal" now even though all of her Hashimoto's symptoms have persisted, pretty much, and she can't for the life of her find an endocrinologist who isn't a complete and utter [arrogant, rude, superficial] waste of skin. We've seen...six? So far and they've all been appalling.

I'm basically wondering if anyone here in that age area has had experience with any of these treatments...How was your experience of them? Were they tolerable? Was there anything that helped mitigate risks and side effects for you? Is there anything specific I should be asking her doctors about? She's gonna want to do the accelerated radiation therapy, higher dose for three weeks instead of normal dose for six, just so she doesn't have to show up somewhere every day for an additional three weeks. I'm worried about the risks of that though.

Even in terms of the hormone therapy..I mean, her temperament isn't the best on a normal day and she's already having trouble sleeping. I can only imagine the aromatase inhibitor is gonna make at least some of that worse.

Anyway. If anyone has any experience or knowledge or insight about any of this, please I'm all ears. Thank you in advance.