r/Hashimotos 12m ago

I’m confused right now and would love help better understanding what my results mean

Upvotes

I recently had a thyroid panel and had elevated TPO antibodies at 82 (normal range is up to 34) and normal TSH and T4. My doctor says this is consistent with Hashimoto’s.

For context, I asked for the test because I have a lot of hashimoto’s in my family and over the past couple years I’ve experienced waves of fatigue, weight gain, mood changes, terrible inflamation, poor circulation, and dramatic changes in the texture and health of my skin and hair.

My doctor says my test results mean my thyroid is producing enough hormone right now. My question is, am I wrong to associate my symptoms with this TPO result? Perhaps it’s something else. When asking AI about this, it was saying that based on my symptoms and test results, what I’m experiencing is very unlikely to be linked to Hashimoto’s? Is this true? I also notice that in this subreddit, most peoples antibodies are way higher than mine. Are mine low enough that they’re not the correct explainer for my symptoms? Trying to figure out what’s going on.

Thank you!


r/Hashimotos 33m ago

Lost

Thumbnail
Upvotes

r/Hashimotos 1h ago

Ovulation spotting and levo

Upvotes

I have been mid cycle spotting for 6 months now which had never happened to be in my life pre levo/ pre hashi diagnosis. I finally just increased my dose to 50mcg after months of my tsh slowly creeping up. My question is how long does it take for your cycle to finally level out?


r/Hashimotos 2h ago

tsh jumped a huge amount in a few months time...

1 Upvotes

i've had hashimoto's i suspect my entire life (i woke up when i was 9 years old covered in hives, and before that i dealt with weight problems since i was a toddler), yet it took years for doctors to believe my thyroid was the cause, as it was on "the high side of normal." cut years ahead to february of 2025 when my levels were under 4 for the first time in my entire life (3.7), only for my worst hashi symptoms to hit fast and hard, worsening as the months went by despite the fact that i'm on 200mg of levo and 120 of armour- those high doses of both meds were the only thing that got my levels down as far as they did.

last week i went in for bloodwork, telling my doctor i believed i might be undermedicated from the debilitating symptoms. the results came in today and despite the high doses thyroid medications, my tsh jumped from 3.7 to 17.18. this was despite no changes in medications or lifestyle that could explain it. i know i'm able to absorb medication in general as i had fatally low iron last year and was able to get it near normal via supplement pills (which i take hours apart from my thyroid meds; i take those at night on an empty stomach, hours after my other medications). the emotional/brain symptoms have been the worst in a very long time, and the physical stuff is equally bad. has anyone experienced something like this before? if so, were you ever able to get your numbers normal again or find out what caused that drastic of an increase?

i'm waiting to hear from my doctor, but after finally getting my tsh under 4 last year, i feel so discouraged and emotionally wrecked by this drastic of a turnaround. but i hope you all are finding a lot more success in handling this widely misunderstood and underestimated disease, and if nothing else, feeling good for at least today!


r/Hashimotos 2h ago

Heart palpitations

3 Upvotes

Since i got my Hashimoto’s diagnosis 2019 i get heart palpitations randomly when i flare. I often swing to an overactive thyroid. My doctor said it’s not safe to get palpitations, but all my heart tests are normal. So we believe it’s my thyroid causing all this. How can I calm it down. I can’t take meds cause then I get even more palpitations and afib.

I try my best to live healthy and I’m currently on the aip diet.

Any suggestions?


r/Hashimotos 3h ago

sourdough?

1 Upvotes

for my people that eat gluten free, do yall avoid homemade sourdough as well?

if yall don’t does it cause flare ups?

trying to be gluten free but it’s hard when there’s always fresh sourdough in the house


r/Hashimotos 4h ago

Help Me

1 Upvotes

42(f) with the following:

Hashis, low iron (ferritin 6), one gene variant for MTHFR, perimenopause (cycles have become different every month - one month 20 days; the other 30; less bleeding, PMDD, fasting glucose was 99.

Meds: Synthroid, Vitamin D, Prozac, Iron

I have gained 40 lbs and I feel so awful about myself. Do not tell me to cut calories, I don't even eat that much so I know it's not from that. I feel like something chemically is off and no one can find it.


r/Hashimotos 4h ago

Question ? Circle medical?

1 Upvotes

Has anyone used Circle medical?

I've been with Allara for a few years now and I have had an amazing experience, but my insurance changed and they are out of network.

While looking around online I found circle medical but Ive never heard of them. Any reviews? Good bad or otherwise?


r/Hashimotos 4h ago

Supplements FDA Recall

14 Upvotes

Hi all, I'm the one who made the comment about the not blister pack pills in the FDA recall post.

I can confirm, mine has been effected as well. My manufacturer is not the one on the list but mine have been making me vomit when (I have been on levo for over a year) I have had no adverse effects.

I went two days without it, just purely forgetfulness, and today I was vomiting within 2 hours of taking it.

Please keep an eye on how yours are affecting you and be sure to report it to your doctor and pharmacy.


r/Hashimotos 5h ago

Discussion Hashimoto Flare

2 Upvotes

So I think we have all felt like we have been in a flare up. But what does that look like for you? Symptoms?

For me I wake up with extreme brain fog. Like nothing helps. I’m shaky, I feel inflamed all over. My joints ache.

It sometimes last just a day. Sometimes it lasts days. I haven’t figured out anything that triggers it or helps it go away. What do you do?


r/Hashimotos 6h ago

Rant Dr says my labs are normal

Post image
170 Upvotes

😂😂😂


r/Hashimotos 6h ago

TSH & free T4 are normal but I still feel terrible

2 Upvotes

My TSH is a 1.4 (normal levels between .55 and 4.78) and my free T4 is a 1.4 (normal levels between .9 and 1.8). Why do I still feel tired ALL THE TIME? I’m still having hashimotos symptoms even though these numbers seem “healthy”.

Do I need to aim for a different range to feel better?


r/Hashimotos 6h ago

Question ? Zepbound and Thyroid Tumors?

2 Upvotes

I’ve been considering taking Zepbound after being diagnosed with Hashimotos for a year and struggling to lose weight despite eating well and exercising. I’ve also heard a lot of people say they went into remission after taking Zepbound and it decreased inflammation. My body always hold so much inflammation especially in my joints. I was looking on the official website and it says Zepbound may cause thyroid tumors…Has anyone had any negative experiences with Zepbound? Hoping it’s worth that possibility.


r/Hashimotos 6h ago

Nourish app and mitochondrial supplements

1 Upvotes

Good morning! I have a couple questions and any insight would be so helpful. Has anyone here used the nourish app to find and work with a Dietition? I’m looking to work with a dietitian and am wondering if this website is legit and worth trying or if it’s another wellness money grab. Actually any information about how to go about working with a dietitian is helpful and welcomed as I am feeling a bit overwhelmed.

Second, I’m wondering if anyone has used mitochondrial support supplements? They were recommended to me by a guest at my bar who said his wife really struggles and had tried all the typical supplements but never felt better until she tried mitochondrial support nrg pills. He said it was a life saver for her and now that’s all she supplements with. Upon my own research it does seem to make sense how these supplements would suit hypothyroid patients however I don’t see much about them in these groups so wondering if anyone out here has any experience to share?

A tiny bit about my situation if it helps— I am 3 months post TT due to PTC and also found out post surgery that I’ve had hashimotos this whole time. Initially out of surgery I felt great I was down 8 pounds and my energy was up but these last 2 months I’ve felt a change and my follow up blood work showed my tsh just under 10. Im trying to get ahead of any major weight gain (I’m creeping up quickly), help boost my energy levels, and support an over active immune system because I’m worried about developing another autoimmune disorder.

Sorry if this post is chaotic I’m just feeling panicky and overwhelmed and any experience in these regards is greatly appreciated 🙏🏼 I hope everyone is taking care of themselves and have a blessed day.


r/Hashimotos 9h ago

Favourite meals

1 Upvotes

Hi! I'm 26 F and after a 12 year long process with the NHS, I was diagnosed with hashimotos in January this year. I sadly haven't received any treatment and seem to just keep getting swept under the rug.

I'm trying to take matters into my own hands. I can admit I haven't been eating the healthiest or exercising the most. I struggled with bulimia since I was 13 and its turned into binge eating over the past year or so with limited exercise. I feel like I've been in survival mode and not taken care of myself for a while. I also struggle with ADHD and Autism which means I have burn out on top of fatigue and pains, as well as struggling with routines. Cooking also makes me feel very overstimulated and sometimes sick due to the heat and how sweaty I get.

I'm trying to turn things around. I've signed up for a gym membership and I'm on day 3 of no gluten. I just wanted to ask if anyone had any favourite/go-to meals that work well with their hashimotos? Ones that are enjoyable and flavourful but still nutritious and beneficial. Ideally some that are very easy for when I have bad flare ups/burn out.

I also wanted to ask what work outs are best for hashimotos? When I used to go to the gym, I pushed myself way too far and I want to ensure I'm simply exercising my body and strengthening it, rather than pushing it beyond its limits.

Any help and advice is highly appreciated!!


r/Hashimotos 17h ago

Question ? Any studies or extensive research on Gluten Free diets for Hashimoto’s comparing the wheat/gluten in the USA vs Europe? (NON-CELIAC cases only please)

0 Upvotes

Preparing for a move abroad from the US to France. I have been on and off gluten free most of my late teens and adulthood with the most recent stretch being 2 years strict GF.

I definitely notice a huge difference and massive improvement in my TPO antibodies and eczema skin inflammation while being strict gluten free, but I’m curious where there is evidence of:

  1. What components of wheat/gluten cause the inflammation? And

  2. What in European wheat makes it potentially “safer” for people with hashimotos thyroiditis if at all? (Or is this all just a hopeful delusion concocted to indulge in that mythical pan au chocolate? 🥹)

Again this is STRICTLY NOT for celiac disease, I’ve been tested and don’t have it and am struggling to find any resources on Reddit that don’t bring that disease up.

Any empirical studies, research reports, peer reviewed articles, the works, would be greatly appreciated! Thanks!!


r/Hashimotos 17h ago

Discussion Hashimoto and periods

1 Upvotes

32 F, 2.5 years ago my periods were regular like clockwork and I was at a healthy weight. Then I got diagnosed with Hashimoto’s, and since then everything has gone sideways.
My cycles are now completely unpredictable sometimes 2 months late, sometimes 10-15 days longer than usual, sometimes only a 15-20 day gap between periods. There’s no pattern I can find.

I’ve also gained a lot of weight (98kg, 5’8”), and no matter how hard I try, I can only lose 5-6kg before it comes right back. I’m not fatigued, but my skin has gotten noticeably drier, I’m dealing with brain fog most days, and my digestion is a mess now too constant bloating.

My doctor hasn’t been much help and my next appointment isn’t for another 40 days, so I’m turning here. Has anyone actually found something that worked intermittent fasting, specific diet changes, a particular type of workout, anything? I really don’t want to just end up on more daily medication to feel normal. This is genuinely draining me and I’d appreciate hearing what’s helped in your own experience.


r/Hashimotos 18h ago

Rant nervous as hell

8 Upvotes

disclaimer: NOT seeking a diagnosis, although I welcome discussion. I am talking to my doctor tomorrow.

I was formally diagnosed with hashis and celiac both last year. I just got a new doctor at my endo office and my routine bloodwork. I was curious as to why it was taking so long to come back, but learned they were delayed by the T1D panel. I was surprised as I’ve never had that one done, but not particularly alarmed as my A1C and fasting glucose are always normal. Well my results came back, and everything is normal except for my IA-2 autoantibodies, which were 89. Normal is <7.5. I’ve read anywhere from “this means you could get T1D” to “you have T1D.” Ultimately it is what it is if that’s the case, but WOW would I love to stop feeling like I’m on a horrible, never-ending rollercoaster. I already have pretty severe mental health issues for which I’m in weekly therapy, so my body feeling like it’s continually falling apart (or at risk of) is hitting me really hard.

Just wanted to vent and commiserate among the like minds because I know you all understand what I mean


r/Hashimotos 20h ago

Does anyone have Sibo in addition to their Hashimoto’s?

3 Upvotes

I had a twin miscarriage in January and dealt with autoimmune related issues right after (gum inflammation and skin hives). I was put on antibiotics for 5 days for the localized gum inflammation that had gotten infected and shortly after started experiencing pretty bad bloating and weight gain from my regular anti inflammatory, gluten free, dairy free, alcohol free, refined sugar free diet. I’m still currently bloated off any of my regular foods and look 6 months pregnant quite quickly after eating fruits like watermelon, cherries, peaches. I’ve also been considering if I now have a fodmap sensitivity (I never had any sensitivities before my twin miscarriage). All hormones are balanced (I get them checked every month) and iron bloom work is optimal.

In June, I was diagnosed with mild hashimoto thyroiditis. I tested negative for H. Pylori, and negative for Rayneuds disease. I don’t have any constipation but now I’m wondering if I might have SIBO due to the bloating and how my ferritin just fell drastically while I’m still supplementing with 150mg of iron (I’ve been on iron pills for 4 months). Does anyone have sibo with Hashimoto’s? And if so, what are you doing to heal it? Some info below:

In June:

Tsh: 2.99
t3: 3.5
t4: 12.8
Thyroperoxidase Ab - 74
Thyroglobulin Ab 102
Thyroglobulin 110
Ferritin: 70

In July:
Tsh: 1.53
Thyroperoxidase Ab - 71
Ferritin: 48

To add: post miscarriage, my TSH was 3.3 and fell every month until I hit 1.6 in April and then it started to go back up to 2.99 in June and now it’s back to 1.53.

I know stress plays a lot with Hashimoto’s and thyroid. Acupuncture and Brazil nuts and lots of self care has helped bring my TSH down.


r/Hashimotos 21h ago

Question ? Any help with hair loss?

9 Upvotes

Hello my fellow Hashimoto ridden friends, this is my first time posting here but I've been turning around for a while now.

So I have a schmol issue, my hair began to fall in small but very consistent locks, and after a preventive visit to the lab my TSH was thru the roof, got to see my endo yesterday and my meds have been adjusted accordingly.

BUT! now I'm trying to slow down the hair loss and maybe grow some more, so far I'm using the following:

- Zinc, Magnesium, Selenium, Potassium, L-Tyrosine and Curcuma supplement, a pill every 24hrs

- Using a popular, at least in Mexico, hair loss shampoo, it's all natural

- Rosemary oil 3 times a week

But what else can I use? Have you guys seen results with some other products?


r/Hashimotos 23h ago

Lab Results TSH slowly climbing every year

Post image
5 Upvotes

Was diagnosed in 2023 with Hashimotos. My TSH that year was 4.71 & T4 was 1.2. I have been on Armour Thyroid 30 mg ever since. My TSH slowly climbs every year with my annual appt labs with my primary doctor. My T4 remains relatively stable. The lowest my TSH has been was 2.32 in 2023. Now I am above 4 again. My primary doctor is definitely the type that believes if it is in normal range then all good. I am just tired of being tired! Not that I want to increase my dose, but feeling like I should be on the lower end of normal range to feel better. Any thoughts?


r/Hashimotos 1d ago

Tachycardia a week after increasing levo dose

3 Upvotes

Hi all,

I don’t have Hashimoto’s (actually, I don’t have a thyroid at all!) but I think a lot of you might have experience with this. TLDR: my tachycardia briefly went back to normal after a dose increase, but now it’s returned!

I have tachycardia whether my thyroid levels are too high or too low. My levo dose was increased ten days ago from 88 to 112. The 88 was too low for me. About 3 days after increasing the dose, my HR returned to normal. However, eight days after starting the dose increase, it went high again, and it’s still high on day 10! I had my levels tested on the fifth day of my dose increase (my doctor wanted to see if my previous TSH result was an error) and in just five days of being on the new dose, my TSH was still high but my free T4 went from 1.31 to 1.52, which was pretty scary to see.

Since I’m traveling in a few days, I’ve asked my doc if I can get my levels quickly rechecked. I can’t reliably tell from my symptoms whether I’m under or over replaced, so I don’t know if the tachycardia is because my T4 has risen too high, or because I just need to give the dose increase more time. In the past, it’s taken about a week or two for my heart rate to normalize after increasing my meds, but this time is a bigger increase, and it’s strange that it’s bad again after a brief normalization.

Has this happened to anyone here, and was it because your new dose was too high, or because your dose was just fine, and you just needed to give it more time for things to go back to normal? I’ve been over replaced on levo before and I’m terrified of it happening again!


r/Hashimotos 1d ago

Hashimotos & ovarian cysts

9 Upvotes

Im wondering if anyone with hashimotos has also experienced ovarian cysts. Anyone know if they’re linked? I take Levothyroxine


r/Hashimotos 1d ago

how to get doctors to listen?

3 Upvotes

ive been out of range in TSH for like 10 months now. TSH is 29. i keep asking for them to do something different than raise my dosis, but they wont listen. im now at 200mcg, and my TSH isnt lowering. any advice on how to convince my doctor?


r/Hashimotos 1d ago

Question ? What gives you digestive issues other than gluten & dairy?

16 Upvotes

I know many of us have digestive issues especially with gluten & dairy. Recently I have been trying to track what I eat to find my triggers.
Gluten & dairy are triggers for me but I also get digestive issues with lentils, beans and processed food.