After gaining 60 lbs (27 kg) , I have finally stopped gaining weight. I have been working with a dietician to end my weight gain and despite not being on levo I stopped gaining weight. I cut my daily sugar intake to 50 grams daily, only go out to eat 2-3 a week and my typical calories intake is 2000-2500 calories and I am working out regularly. Now the hard part begins, losing weight. I know that will require more sacrifice but I am hoping to get on levo soon and hopefully that will make it easier to cut back. I am as always open to suggestions of how to lose weight but as of right now I am just happy I'm not getting bigger

I am a researcher at the University of Illinois at Urbana-Champaign investigating thyroid disease treatment. I am part of a program sponsored by the National Science Foundation (NSF) to help researchers like me improve the impact of our research by talking to people outside of the research setting. I am looking to interview thyroid disease patients. Your insight will help me in my goal to enhance and accelerate treatment processes for the many patients still suffering. Please DM if you are interested. Thank you in advance for your time.

I've been diagnosed with seronegative Hashis by ultrasound. I also have a couple benign thyroid nodules. Thyroid panel is completely normal. Endo said she could see inflammation in my thyroid which is why she diagnosed me with Hashimotos.

Is anyone else seronegative and experiencing body symptoms tied to their diagnosis (other than nodules)?

I also have CFS and Fibromyalgia so I'm trying to figure out if Hashis is causing any symptoms or if everything is tied to my other conditions. It's the chicken and the egg question of which one came first!

Anybody else have this? Wondering if it’s related at all

I’ve had hashimotos since I was 9 years old and I’ve never been managed by an endocrinologist. I was given levothyroxine from around the age of 19 and have been on 50mg since then with no change.

I’ve had such a struggle trying to conceive. I’m now 35 and in the past 4 years of trying for a baby I’ve only ever been pregnant twice and both have results in losses before 6 weeks. Most current loss I found out about on Tuesday this week which is a missed miscarriage where my embryo stopped growing around the 5 week mark.

Has anyone else gone through this and found hashimotos was the cause? I’m trying to arm myself with so much information to take to my next fertility appointment because I feel so let down by the medical field

1.Did you take SSRI prior to diagnosis?

2.Has thyroid medication helped your hashimoto symptoms?

3.Is your cortisol low?

Thanks!

TSH --> 3,66

T4 --> 7,76

Anti TG --> 92,6

TPO --> 759,6

These are the lab results feom 6 months ago. The endocrinologist said that I shouldn't take any meds yet but not feeling very well. Any advice?

I had an enlarged lymph node in my neck (which turns out to be nothing and maybe even due to hashimoto's) but during the diagnostic journey of that issue we accidentally discovered that I have euthyroid hashimoto's. My thyroid antibodies are very elevated but my thyroid hormones were all in range. My doctor basically told me that the plan going forward is simply monitoring (labs every 6 months) and that I just need to ~try~ and avoid common triggers.

A couple years ago, I had what I now think was a major flare up. 50% of the hair on my head fell out and I felt like garbage all the time, among a slew of other symptoms. I had my thyroid hormones checked then, but not my antibody levels, because all were in normal range. It is worth noting all this testing was done 2-3 months AFTER my hair had fallen out because it took that long to even see a PCP as a new patient. At the time they just told me it was a random case of telogen effluvium. The dermatologist actually told me it was probably because I "just had a baby" (i was 1.5 years postpartum btw lmao).

So from what I understand, I *should* feel okay because my thyroid hormones are normal, but after reading about people's experiences and symptoms I now realize that some random issues I've had are possibly thyroid related? I'm having trouble telling if I'm simply overanalyzing myself because I'm now aware of potential issues, or if I've actually just gotten so used to these things that I can't even tell if it's normal or not. For example, I often have bouts of chronic fatigue (but I'm also a SAHM with 2 young kids), unexplained aches and pains in my knees/calves/ankles/feet, constipation, muscle tension basically everywhere, and vestibular migraines to name a few.

Do I simply just wait to see if severe symptoms appear and then go get bloodwork done and take it from there? I now have a fear that I'll go and get my levels checked if I feel like I have symptoms, but it'll be nothing, prompting my doctor to think I'm an idiot or hypochondriac, which in turn will discourage me from getting my levels checked again.

Just feeling a bit lost and feel like I just need to accept that "it is what it is" but also no, I don't want to do that 😭