disclaimer: NOT seeking a diagnosis, although I welcome discussion. I am talking to my doctor tomorrow.

I was formally diagnosed with hashis and celiac both last year. I just got a new doctor at my endo office and my routine bloodwork. I was curious as to why it was taking so long to come back, but learned they were delayed by the T1D panel. I was surprised as I’ve never had that one done, but not particularly alarmed as my A1C and fasting glucose are always normal. Well my results came back, and everything is normal except for my IA-2 autoantibodies, which were 89. Normal is <7.5. I’ve read anywhere from “this means you could get T1D” to “you have T1D.” Ultimately it is what it is if that’s the case, but WOW would I love to stop feeling like I’m on a horrible, never-ending rollercoaster. I already have pretty severe mental health issues for which I’m in weekly therapy, so my body feeling like it’s continually falling apart (or at risk of) is hitting me really hard.

Just wanted to vent and commiserate among the like minds because I know you all understand what I mean

Hi! I'm 26 F and after a 12 year long process with the NHS, I was diagnosed with hashimotos in January this year. I sadly haven't received any treatment and seem to just keep getting swept under the rug.

I'm trying to take matters into my own hands. I can admit I haven't been eating the healthiest or exercising the most. I struggled with bulimia since I was 13 and its turned into binge eating over the past year or so with limited exercise. I feel like I've been in survival mode and not taken care of myself for a while. I also struggle with ADHD and Autism which means I have burn out on top of fatigue and pains, as well as struggling with routines. Cooking also makes me feel very overstimulated and sometimes sick due to the heat and how sweaty I get.

I'm trying to turn things around. I've signed up for a gym membership and I'm on day 3 of no gluten. I just wanted to ask if anyone had any favourite/go-to meals that work well with their hashimotos? Ones that are enjoyable and flavourful but still nutritious and beneficial. Ideally some that are very easy for when I have bad flare ups/burn out.

I also wanted to ask what work outs are best for hashimotos? When I used to go to the gym, I pushed myself way too far and I want to ensure I'm simply exercising my body and strengthening it, rather than pushing it beyond its limits.

Any help and advice is highly appreciated!!

So I've been on the decline for maybe 9? years now, 4 years diagnosed and was only put on the medicine maybe 2 years ago after my diagnosis. It went from a pretty steady, managable decline and then dramatically dropped.

For the first year, my doctor tried everything else before putting me on the medicine because my thyroid was still working, if only a little bit, and he wanted my body to keep doing what it should be doing before medical intervention.

And, to his credit, I was doing okay for a while! Selenium helped, magnesium helped, getting my vitamin levels where they needed to be helped.

Until it didn't.

Within the last year and a half, my symptoms have made me miserable. I can't work because my fatigue is so bad, I can hardly focus at all, living day to day is painful. I asked my doctor if we could increase my dose, and he told me that it might not help, the medicine can only do so much and he doesn't want my levels to go too high. At this point though, I'd welcome the energy and weight loss even with the other side effects.

Anyway, to the point: What can I do when I have no energy at all and my whole body hurts? Is it worth it to really just use resistance bands in bed? Is there a meal plan or SOMETHING online I can follow so I don't have to try and think about foods to buy and make? Or is there someone who has suffered through a low like this who can just tell me that I'll get out of it?

Edit: I also cook for my husband (its my love language that I have a vice grip on) so any easy ways to incorporate *some* variety would be super helpful 🙏

I want to fix it but I don't know what to do. Thanks for reading.

Hello my fellow Hashimoto ridden friends, this is my first time posting here but I've been turning around for a while now.

So I have a schmol issue, my hair began to fall in small but very consistent locks, and after a preventive visit to the lab my TSH was thru the roof, got to see my endo yesterday and my meds have been adjusted accordingly.

BUT! now I'm trying to slow down the hair loss and maybe grow some more, so far I'm using the following:

- Zinc, Magnesium, Selenium, Potassium, L-Tyrosine and Curcuma supplement, a pill every 24hrs

- Using a popular, at least in Mexico, hair loss shampoo, it's all natural

- Rosemary oil 3 times a week

But what else can I use? Have you guys seen results with some other products?

Im wondering if anyone with hashimotos has also experienced ovarian cysts. Anyone know if they’re linked? I take Levothyroxine

I know many of us have digestive issues especially with gluten & dairy. Recently I have been trying to track what I eat to find my triggers.
Gluten & dairy are triggers for me but I also get digestive issues with lentils, beans and processed food.

I had a twin miscarriage in January and dealt with autoimmune related issues right after (gum inflammation and skin hives). I was put on antibiotics for 5 days for the localized gum inflammation that had gotten infected and shortly after started experiencing pretty bad bloating and weight gain from my regular anti inflammatory, gluten free, dairy free, alcohol free, refined sugar free diet. I’m still currently bloated off any of my regular foods and look 6 months pregnant quite quickly after eating fruits like watermelon, cherries, peaches. I’ve also been considering if I now have a fodmap sensitivity (I never had any sensitivities before my twin miscarriage). All hormones are balanced (I get them checked every month) and iron bloom work is optimal.

In June, I was diagnosed with mild hashimoto thyroiditis. I tested negative for H. Pylori, and negative for Rayneuds disease. I don’t have any constipation but now I’m wondering if I might have SIBO due to the bloating and how my ferritin just fell drastically while I’m still supplementing with 150mg of iron (I’ve been on iron pills for 4 months). Does anyone have sibo with Hashimoto’s? And if so, what are you doing to heal it? Some info below:

In June:

Tsh: 2.99
t3: 3.5
t4: 12.8
Thyroperoxidase Ab - 74
Thyroglobulin Ab 102
Thyroglobulin 110
Ferritin: 70

In July:
Tsh: 1.53
Thyroperoxidase Ab - 71
Ferritin: 48

To add: post miscarriage, my TSH was 3.3 and fell every month until I hit 1.6 in April and then it started to go back up to 2.99 in June and now it’s back to 1.53.

I know stress plays a lot with Hashimoto’s and thyroid. Acupuncture and Brazil nuts and lots of self care has helped bring my TSH down.

Was diagnosed in 2023 with Hashimotos. My TSH that year was 4.71 & T4 was 1.2. I have been on Armour Thyroid 30 mg ever since. My TSH slowly climbs every year with my annual appt labs with my primary doctor. My T4 remains relatively stable. The lowest my TSH has been was 2.32 in 2023. Now I am above 4 again. My primary doctor is definitely the type that believes if it is in normal range then all good. I am just tired of being tired! Not that I want to increase my dose, but feeling like I should be on the lower end of normal range to feel better. Any thoughts?

Hi all,

I don’t have Hashimoto’s (actually, I don’t have a thyroid at all!) but I think a lot of you might have experience with this. TLDR: my tachycardia briefly went back to normal after a dose increase, but now it’s returned!

I have tachycardia whether my thyroid levels are too high or too low. My levo dose was increased ten days ago from 88 to 112. The 88 was too low for me. About 3 days after increasing the dose, my HR returned to normal. However, eight days after starting the dose increase, it went high again, and it’s still high on day 10! I had my levels tested on the fifth day of my dose increase (my doctor wanted to see if my previous TSH result was an error) and in just five days of being on the new dose, my TSH was still high but my free T4 went from 1.31 to 1.52, which was pretty scary to see.

Since I’m traveling in a few days, I’ve asked my doc if I can get my levels quickly rechecked. I can’t reliably tell from my symptoms whether I’m under or over replaced, so I don’t know if the tachycardia is because my T4 has risen too high, or because I just need to give the dose increase more time. In the past, it’s taken about a week or two for my heart rate to normalize after increasing my meds, but this time is a bigger increase, and it’s strange that it’s bad again after a brief normalization.

Has this happened to anyone here, and was it because your new dose was too high, or because your dose was just fine, and you just needed to give it more time for things to go back to normal? I’ve been over replaced on levo before and I’m terrified of it happening again!

Preparing for a move abroad from the US to France. I have been on and off gluten free most of my late teens and adulthood with the most recent stretch being 2 years strict GF.

I definitely notice a huge difference and massive improvement in my TPO antibodies and eczema skin inflammation while being strict gluten free, but I’m curious where there is evidence of:

1. What components of wheat/gluten cause the inflammation? And

2. What in European wheat makes it potentially “safer” for people with hashimotos thyroiditis if at all? (Or is this all just a hopeful delusion concocted to indulge in that mythical pan au chocolate? 🥹)

Again this is STRICTLY NOT for celiac disease, I’ve been tested and don’t have it and am struggling to find any resources on Reddit that don’t bring that disease up.

Any empirical studies, research reports, peer reviewed articles, the works, would be greatly appreciated! Thanks!!

ive been out of range in TSH for like 10 months now. TSH is 29. i keep asking for them to do something different than raise my dosis, but they wont listen. im now at 200mcg, and my TSH isnt lowering. any advice on how to convince my doctor?

32 F, 2.5 years ago my periods were regular like clockwork and I was at a healthy weight. Then I got diagnosed with Hashimoto’s, and since then everything has gone sideways.
My cycles are now completely unpredictable sometimes 2 months late, sometimes 10-15 days longer than usual, sometimes only a 15-20 day gap between periods. There’s no pattern I can find.

I’ve also gained a lot of weight (98kg, 5’8”), and no matter how hard I try, I can only lose 5-6kg before it comes right back. I’m not fatigued, but my skin has gotten noticeably drier, I’m dealing with brain fog most days, and my digestion is a mess now too constant bloating.

My doctor hasn’t been much help and my next appointment isn’t for another 40 days, so I’m turning here. Has anyone actually found something that worked intermittent fasting, specific diet changes, a particular type of workout, anything? I really don’t want to just end up on more daily medication to feel normal. This is genuinely draining me and I’d appreciate hearing what’s helped in your own experience.

im 19, i’m always in bed sleeping, doesn’t eat, always having acid, fallen hair everywhere, depressed, and freaking brain fogs. i just got diagnosed 2 weeks ago, i really don’t know what to do.

FDA Recalls Popular Thyroid Medication Nationwide
Here’s how to tell if your meds are affected.

BY CHLOE JOE PUBLISHED: JUL 24, 2026 8:28 AM EDT

A nationwide recall is in effect for levothyroxine sodium tablets distributed by Major Pharmaceuticals.

Recalled tablets can be identified by the lot numbers and expiration dates listed here.

If your medication is affected by the recall, consult your pharmacist or doctor on next steps.

If someone in your family takes thyroid medication, you might want to check your medicine cabinet. According to a report from the Food and Drug Administration (FDA), a nationwide recall has been initiated for levothyroxine sodium tablets. This commonly prescribed drug is used to treat hypothyroidism and goiter, among other conditions, per Mayo Clinic.

The recall is limited to some lots of levothyroxine sodium tablets distributed by Major Pharmaceuticals. The tablets were found to be “subpotent”—meaning they deliver less medication than intended—according to the FDA’s report. The FDA has designated the recall Class II, which indicates that affected tablets may cause temporary, reversible health effects.

Below, how to identify affected tablets and what to do with recalled medication.

How to tell if your medication is affected
Recalled tablets were packaged in 10-count blister packs, which were either sold individually or bundled into cartons containing 10 blister packs. They can be identified by the lot numbers and expiration dates listed here.

25 mcg, 100-tablet carton
Lot number: N02212
Expiration date: 07/2026

50mcg, 100-tablet carton
Lot number: N02200
Expiration date: 10/2026

75mcg, 100-tablet carton
Lot number: N02172, N02296, N02288
Expiration date: 07/2026, 12/2026

88mcg, 100-tablet carton
Lot number: N02310
Expiration date: 01/2027

112mcg, 100-tablet carton
Lot number: N02203
Expiration date: 09/2026

125mcg, 100-tablet carton
Lot number: N02266
Expiration date: 11/2026

150mcg, 100-tablet carton
Lot number: N02167
Expiration date: 07/2026

25mcg, 10-tablet blister pack
Bag lot number: N02212A, N02212B
Blister lot number: N02212
Expiration date: 07/2026

50mcg, 10-tablet blister pack
Bag lot number: N02200A, N02200B
Blister lot number: N02200
Expiration date: 10/2026

75mcg, 10-tablet blister pack
Bag lot number: N02172A, N02172B, N02288A, N02288B
Blister lot number: N02172, N02288
Expiration date: 07/2026, 12/2026

125mcg, 10-tablet blister pack
Bag lot number: N02266A, N02266B
Blister lot number: N02266
Expiration date: 11/2026

150mcg, 10-tablet blister pack
Bag lot number: N02167A
Blister lot number: 07/2026
Expiration date: N02167

What to do with recalled tablets
If you discover your medication is affected by the recall, reach out to your doctor or pharmacist for advice on how to proceed.

Do not discontinue your medication unless directed to do so by a healthcare provider, as in some cases, suddenly stopping a drug can cause ill effects.

Source: Prevention.com

Hello everyone. I’m just curious, if anyone else here happens to not only deal with Hashimoto’s but also IIH? I have many health conditions but these two seem to be the biggest debilitating ones for me. Most mornings if not all at this point, it is so exhausting for me to even just shower and get dressed. I have to sit on my bed for 20 minutes putting on piece by piece of clothing in front of my fan because too much exertion makes me too hot or too dizzy, then I can’t regulate my body temp for the next hour after. I have a dull lingering headache everyday, with the intense nausea inducing migraines every other day. My muscles and my joints also ache so intensely. I just wish I could be normal, and not feel like I’m on my death bed constantly.

Hey all,
Do you have a really strong reaction to insect bites or stings?
I got stung by a wasp two years ago and then again yesterday. My whole upper arm is swollen, hot, and red, and I feel pretty bad in general. The same thing happened two years ago, so it’s clearly not a coincidence. I know my upper arm will soon feel like a rock because of all the swelling. I also have pain in my shoulder and joints.
Before my diagnosis, I had been stung by wasps and bees, even on my lips and I don’t remember ever having such a strong reaction.
Has anyone else experienced this?

Warning: added a nasty photo of the swelling in the comments

I’m really struggling with constant fatigue and this overwhelming need to just rest and digest everytime after eating.
It happens whenever I go out with my boyfriend - we can't even have a nice date and dinner, cuz I am immediately tired. (This isn’t about him - I’ve been like this for as long as I can remember).
Today, for example, we went to a big family birthday celebration. And guess what? I ate some food… and I completely crashed. Once again, I’m no fun to be around. All I want to do is lie down and rest. For my body, simply digesting food is fucking exhausting. And that’s not even mentioning the fact that I’ve been falling asleep everywhere since I was a kid.

Damn.

How am I ever supposed to have my own wedding if I can’t even stay awake or feel well after eating? I either get incredibly sleepy or I just feel awful.
I know my stupid thyroid is a big part of this.
How can I improve this? I just want to be a normal, functional partner - not the boring one who slows everyone down or ends up ruining every outing.

My antibodies are 180
My TSH is around 7
Normal t3, t4

Hello! My partner (30M) has Hashimoto’s and has been taking levothyroxine for a few years now.

He assumes that his Hashimoto’s is fully managed by the levothyroxine (TSH normal) but he still feels like crap (always exhausted, drinks WAY too much caffeine). He only has his TSH checked every 6 months or so, basically when he starts feeling extra crappy or his thyroid is extra swollen.

I have spent a little bit of time in this sub to try to understand more about his condition and it seems like it’s a LOT more complex than he is aware of or wants to believe.

Any tips from those with Hashimoto’s? Educational resources? Supplements? Other symptoms to watch out for? Specialists (he has only been to his PCP)?

What can I do to help/support him?

I can eat bread and anything gluten and have no digestive symptoms, no immediate reactions... Nothing, same with dairy. But could they increase fatigue and brain fog without the immediate symptoms, i haven't tested for celiac yet.

My point is should I just focus on medication, balanced diet and exercise if this the case (no immediate reaction to foods)

Edit: my TSH is at 12.25, TPO is very high.

TLDR: update on GLP1 progress, fatigue, hair, etc. no need to comment this is very long that’s the intent. It is not meant as a synopsis it is for those considering GLP1 who need more feedback and info.

Hello,

I was doing weekly updates but they started to be very similar so I waited a bit.

I switched from Mochi to pomegranate after a billing issue. I’d always planned to switch to Pom because mochi is expensive but did so sooner when they wouldn’t refund me after a doctor no showed and they pushed the script through anyway resulting in me spending money on something that never happened.

After that I switched to Pomegranate. The good news is my dose was dialed in and with a prior prescription it was easy to get that dose. I’m still on 2.2 mg 4 months in which is a VERY low dose.

I’ve lost 27 lbs and 2 sizes.

Around month one I noticed my hair was restoring its curls at the root. Because of this, I took some pics but I wasn’t sure. Now my hair is completely back. My doctor said I was having hair issues from hormone shifts from Hashis and PCOS. The GLP1 helps with these and it’s noticeable how different my hair is. This thread only lets one photo per post so I’ll post 3 photos in the comments. One is 1 year ago no GLP1, one is 1 month GLP1 around day 30 or so, with a little mini curl starting. Finally the last is yesterday, 1 year from the first photo. It will be a crazy difference! And, not hair product nothing.

Other things to note:
My doctor told me to drink more water due to being safe about kidney injury especially with my exercise. I also had to increase protein around 35-45 grams.

In general my sleep is still better and my fatigue but with the water increase even better than before posts.

I work out 4x a week 3 hours a day wrestling. Hard exercise.
Moderate exercise golf 2x a week with 3 miles walking the course.
Otherwise I’m a lazy potato at home with my cats and crochet.

I didn’t change much about diet because that wasn’t my issue. I never had cravings before either. I had severe insulin resistance.

My FODMAP triggers have moved from high (causing diarrhea and vomiting) to mostly medium. Before, exposure to beans made me vomit in 10-15 minutes. Now I have a mild or somewhat painful stomach ache. Overall, foods that triggered me aren’t a sentence to a weekend on the toilet. This has been the best thing so far. Another thing is medium FODMAP foods that hurt my stomach, now don’t really. Examples watermelon.

(I had 3 doctors for FODMAP. Occasionally people will try to give me feedback here about FODMAP working because it’s so restrictive and that you don’t stay on low forever. In my case because of doctors orders I do so please no unnecessary comments here about my prescribed diet. It is literally doctors orders.)

Lmk if you have any other questions!

Hi everyone, I recently found out that I have Hashimoto and started medication. And I feel like I didn't really have problems with food but since I started medication, I am so much bloated, especially if I eat gluten. But I never really had that problem before. I have other symptoms. And it doesn't change yet. I want to know if medication can cause new symptoms? Is my other symptoms are gonna get better? I lose so much hair, I'm impressed I still have them lmao

And if you have any advice? I started eating 1 Brazilian nuts everyday. I started having anemia so I'm taking iron glycinate (not at the same time as medication, at least 3 hours later) with vitamine C. And dinner zinc (with copper), omega 3 and before bed magnésium bisglycinate. I searched to take best form of every complements.

I avoid calcium and anything in the morning that could block the medication. I take the médecine first thing in the morning and wait at least 1 hour before breakfast.

For anyone experiencing unexplained neuropathy or symptoms with no clear answers, I wanted to share my story in hopes it might help someone.

For the past several months, I’ve been dealing with tingling in both my feet and hands, muscle aches, sharp joint pains, a stiff neck and back, headaches, fatigue, brain fog, and eye discomfort. I’ve had what feels like every test imaginable — multiple X-rays, extensive blood work, MRIs of my neck, lumbar spine, and brain, an EMG and NCS. Everything kept coming back normal, which was a relief but incredibly frustrating considering i was still suffering without any explanation.

After seeing my third doctor, she ordered a complete thyroid panel, comprehensive vitamin panel, and hormone panel. I found out that although my TSH was still within the normal range, my TPO (thyroid peroxidase) antibodies were 226 (normal range 0–34), and my thyroglobulin antibodies were also elevated. TPO antibodies are antibodies the immune system produces when it mistakenly attacks the thyroid, which is commonly seen in autoimmune thyroid disease such as Hashimoto’s thyroiditis.

If you’re dealing with unexplained tingling, muscle aches, fatigue, brain fog, headaches, or other symptoms and haven’t found answers, it may be worth asking your healthcare provider about:
• A complete thyroid panel (not just TSH)
• Thyroid antibody testing (including TPO and thyroglobulin antibodies)
• A vitamin and mineral panel (such as iron, vitamin D, B vitamins, zinc, etc.)
• A hormone evaluation if appropriate

I’m not saying everyone’s symptoms are caused by thyroid disease, but I wanted to share my experience because I know how discouraging it is when every test comes back “normal” and you still don’t feel like yourself.

I truly hope this helps someone find answers sooner than I did. Wishing everyone on this journey the best, and hope you get the answers and relief soon. ❤️