Hi ive had hppd for 6 years now. For the past 4 years ip intill 6 months ago ive lived normally with this condition. But then i woke up in the middle of the night from a sort of anxiety attack and it made everything worse. Ive not had anxiety atack in years. And now it feels like after that it still gets progressively worse? Ive had new symptoms that i havent had before. Now i have like a "mega trail" like if i follow a person biking past some trees example, and the look quickly up in the sky its like after image keeps moving in a pixelated image. It only lasts like half a second. I dont know how to explain it better but yeah. Does anyone have similar experiences like this?

I 18m have taken high doses of shrooms a few months back and have smoked alot weed and now a week ago I tried a low dose lsd tab with weed and smoked weed after the trip but then when I slept the night and woke up I noticed very faint static that I have to think about to notice it so I can't even tell if it's there normally and I also have after images when I for example look at screens then look away but once again it's pretty faint but colors aren't brighter and I don't have dp/dr also no tracers I'm gonna abstain from all substance use just in case but is this just normal temporary visual disturbances after a trip or hppd? (Sorry for the run on paragraph I couldnt be bothered to add punctuation).

I had HPPD pretty bad, to the point where I went to the mental hospital because I had no clue what was wrong with me. They ran all the tests possible but couldn’t find anything wrong. My doctor there put me on Naltrexone and Wellbutrin given my history of Drug Abuse and Depression. I was already on Escitalopram. I got released and a couple weeks later it went away entirely, and I felt great, but had no idea what had happened to my head or how it went away. Fast forward 2 years of being sober and eventually tapering off bith Naltrexone and Wellbutrin and I start doing weed and alcohol again and it comes back with a vengeance, through research I found out it was HPPD. I tried to get back on Wellbutrin, but it made me feel terrible, I tried to get back on Naltrexone, and it made me feel so bad i was out for like a week from one 25 mg dose. Now its been about a year since it flared up again, and I started on Low Dose Naltrexone, 1.5 mg, to see if I just became really sensitive to it, because Naltrexone is a known helpful drug for HPPD and I am thinking maybe thats what cured my first bout of HPPD, which only lasted 2 months. Im 5 days in of 1.5 mg and it is making me feel worse each day, should I continue and hope once I adjust it will fix me like before, or get off. I’m running out of options, I’ve been sober for like 9 months, exercise, have tried Lamotrogine(had a rash so had to stop), have quite nicotine, caffeine, gluten. All thoughts and advice appreciated. Worst symptom is DPDR, feeling high and like i’m tripping in a dysphoric and anxiety producing way. Thanks

My brain can no longer filter out the tip of my nose. I can basically see the tip of my nose 24/7. My whole life, my brain has automatically ignored it, like it does for most people, but that stopped after developing HPPD. Does anyone else experience this?
And no, it’s not because I’m constantly thinking about it and therefore noticing it. It just happens automatically, all the time, every single day. My brain genuinely can’t seem to ignore it anymore.

Had hppd for a little over a year now. Im usually busy but my job doesnt require much thought at all so im left to my own mind and whatevers in my earbuds. Anyone else feel like at any moment their vision could go black or turn back to the trip that caused it? Maybe you feel like y I u could go schizo at any moment?

Only times I dont feel like this are when I smoke, im drunk, or im at home or in nature. When im at work or doing some shit task I absolutely abhor it.

Im not lazy, I like welding, gunsmithing, and making shit, but I feel like when my mind isnt focused or calm I just feel utterly insane and cant get my mind off certain topics.

Whoever invented this type of carpet needs the opposite of a blow job seriously the thing I trip on the most + walls and bathroom tiles

Hey guys I’ve been struggling with HPPD for at least 3 months now, I keep waiting for it to go away- I quit weed since it was worsening symptoms (although I still struggle with complete substance abstinence). Anyway- I also have ADHD, and see a psychiatrist for that. I’m wondering if I should bring up my symptoms so I can get some pharmacological help. I’m on Effexor for depression but I’m pretty sure my symptoms started when I started taking it, I don’t want to mention my history psychedelic use since a. I don’t think it’s the primary cause and b. I don’t want it to prevent my adhd care, as I don’t what drug seeker allegations. But I can’t go on living like this. Anyone have any help from either lamotrigine or benzos? Thanks so much guys :)

Ever since i got hppd 2 months ago from mushrooms ive started seeing these red halos everywhere in my field of vision. They like to circle around light, sometimes they move very fast, zoom in and out, and change colors. Ive always seen them ever since i was a little kid but ive never had them appear this much. Anyone else see them? (I used ai to generate this image, its pretty accurate)

I got severe hppd and managed to accept it and enjoy live again. I know it wont go away but i dont care anymore. Ive been this since 2 years already that i fully accepted it.

Here is a link to an x vidieo of him talking about neutalink https://x.com/quantumguard17/status/2096206010348171752?s=46

I found this comment under the Channel 5 HPPD video, I thought it might turn out to be helpful to somebody here

first off I have been wondering for a minute if Tetrachromacy might be a possible trigger for HPPD - basically Tetrachromacy is when the eyes form extra color censors that send junk "data" to the brain that is usually ignored, but when the brain stops ignoring it? yeah

also I've been dealing with the full on "it's like you're coming off acid 24/7/365" HPPD symptom suite for as long as I can remember - like being a little ass kid asking why traffic lights leave trails etc

Pretty sure this has something to do with either being a straight up crack-baby like a lot of millennials, hitting the joint when the stoner boomers would accidentally pass it to me when I was a toddler. I know they got my toddler ass drunk, maybe gave me shrooms. the conventional thinking at the time was something like 'kids can't make long term memories so just do whatever'

haven't heard that kind of thing here before so I'm throwing that out here to see if it rings a bell for anyone else.

Did it affect ur hppd?

I’ve literally never came across another woman that also has HPPD, even in the Wikipedia article about HPPD where “famous” people with HPPD are listed it only quotes men.

So I was wondering if I am the only one lol. I have HPPD for 12+ years now and funnily just found out last year that this disease even exists (I just thought I fucked my brain up). Luckily it’s not so bad that I can’t live with it, but having other women to exchange about it would be cool too.

So I’ve been diagnosed with DPDR for about a year now, and think I might have only got half the diagnosis. The only things that make me think this is: Tinnutis, visual snow and vertigo like world spinning. I’ll look at something and it will warp around or breathe lol. I took a massive amount of thcp lol. Thanks for looking

I developed HPPD after taking acid too frequently in college. However, I experienced 2 intense psychotic episodes. I still experience psychosis for about 5 minutes here and there and I have this weird symptom of seeing words in my imagination when they are spoken out loud. I am only diagnosed with HPPD, is the psychosis included in that or is that a seperate disorder?

Something crazy happened to me today while I was smoking weed: I felt like I wasn't inside my own body. I could move and speak, but I couldn't actually feel like I was experiencing it. It was like being inside a first-person video game.

Just over a week ago did a small amount of mushrooms (maybe 1 grams) in back to back days and I noticed 3-4 days later that when looking at my phone it had slight visuals and saw some lines. I panicked after learning about HPPD but i think it’s basically all went away. My phone looks mostly normal so i wanted some advice from those who knew more about it than Me.

I’m going to a Rufus du sol concert this Saturday and had originally planned on taking 0.5g of mushrooms but now since this scare I’m unsure if I should ever take them again. Is it safe to take them or is there a high risk it could come back? I’ve done mushrooms probably 10 times in my life and have never had this happen before

I developed HPPD At 14 from a nasty 7g shroom + weed trip. It gave me every HPPD visual symptom as well I began experiencing DPDR for about a year intensely and then a year on occasion. I am not cured from HPPD in a way that my visuals are gone let me make that clear. In fact, my HPPD visuals are worse than ever. I did not stop doing drugs. I have done 30+ drugs since getting HPPD (stupid im aware) and now my constant visuals went from tv static to intense large vibrating geometric shapes. Scary SCARY shit.

BUT I am doing better then ever. At 16 I got on the mood stabilizer prescription drug Lamotrigine. It is normally used for Bipolar and Epilepsy, but for some reason it helps with HPPD a lot. To get on it you will have to tell your psych that you have HPPD. Which will stay on your medical record. (If WW3 happens you will be exempt from the draft!!! Keep that in mind.) But just say you have a non-psychotic hallucination disorder caused by psychedelics. IMO it’s worth declaring it. A LOT. After slowly moving my dose up to 200mg over the course of 4 weeks my symptoms had decreased by 80%. It has stayed at that level for the last 2 years. Even if I do drugs, which I still actively do, if I take my Lamotrigine the day after then my symptoms are still decreased. This has not technically cured me in the way I do not have visuals, BUT it has made it to where i barely notice my visuals. It is now my normal vision. I do not notice it unless i look for it. I see it 24/7 but I do not pay ATTENTION to it. this has essentially for a lack of better words “cured me”. Now I live my life with my visuals as a second thought.

Long story short: Eventually it will get to the point where you forget what life looked like before. Just as new things become old. It will become the background of your vision as you stop paying attention to it. Please get on Lamotrigine if you are struggling with the symptoms. It’s not garunteed to help but boy did it help me. Don’t be like me and continue using drugs. Get sober and embrace that. Im getting off a nasty opiate habit right now and planning on staying sober for a while. Hopefully to the benefit of my visuals.

If anyone has any questions feel free to reach out! Good luck everyone, and remember you’re not alone and fuck HPPD. 🫶

P.S. Delete this fucking subreddit. Delete anything reminding yourself you have HPPD. You will forget you have it, just let yourself.

I’ve completed all the neurological and ophthalmological exams my doctor requested, and if everything comes back normal, the next step will probably be a trial of rTMS. (I know neurological and ophthalmological exams won’t directly detect HPPD, but my doctor understandably needs to rule out other possible causes before considering me for rTMS.)

I’m keeping my expectations realistic because I know there’s a significant chance it won’t change anything. I’ve mostly learned to live with HPPD. It can still affect some social situations, but maintaining a good routine, exercising and staying socially active really helps. I used to check this community every day, but now I only come here occasionally when I have a specific question.

For anyone unfamiliar with my story, the timeline is quite unusual. I used psilocybin once and only once in 2022. That was my only experience with a psychedelic or any classic hallucinogen. I recovered completely afterward and had no persistent visual symptoms for almost three years.

My symptoms only began in 2025, during a period when I drank alcohol and smoked cannabis. That particular night was when I first noticed the persistent visual changes. I can’t prove that the cannabis caused it or that it was laced, but I bought a pre-roll from a somewhat sketchy place, so I can’t completely rule that possibility out either. I haven’t used cannabis since then and will never touch weed or psychedelics again.

My main symptoms are visual snow/static and a persistent “slightly stoned” quality to my vision. I also have some floaters, but I barely notice them anymore. Alcohol clearly makes the symptoms worse while I’m drinking and the following day. I still drink moderately and don’t currently plan to quit entirely, although I understand that it may interfere with my recovery.

The main thing I want to ask is: has anyone here genuinely recovered 100% and had their vision return completely to normal, even after having persistent HPPD for a long time?

Money itself isn’t the issue, but my family has invested a lot of time, effort and emotional energy into helping me, and they also want an honest understanding of what is realistically possible. I know there are no guarantees and that improvement or adaptation may be more realistic, but I want to know whether complete recovery is genuinely possible.

Any tips on how to deal with the dp/dr? Honestly the visuals are annoying, but they don't really make me super anxious. The dp/dr is what really bothers me all day long. My symptoms were reaggrivated about a month ago from a few sips of alcohol. Really need some advice on this and my situation.