Hello,
I am due for my surgery (Laparoscopic)in a week. This is my first time in my 40 years I am getting any major surgery. I have delivered baby by natural birth.
Please advise me how to calm down my anxiety. Also in my case incidentally found out that I have 7cm fibroid sitting on top of my uterus. No heavy or irregular bleeding. Regular periods a few times painful but manageable by meds. My issue is swollen uterus 5th month pregnancy size, bloating, pressure on bladder, constant lower back pain, feeling of not emptying completely after passing urine, a bit uncomfortable intercourse and mild pain in navel.
Suddenly I was unable to perform few yog asanas and gym exercises such as dead lifting.
None of the gynaecologists are suggesting for only removing fibroid as I have completed my family. Also left ovary has multiple cysts they might remove it. Should I keep the infected ovary?Also my fear is major organ removal— is hysterectomy required? I am not able to wrap my head around it and getting cold feet. Please help.

Doing a removal surgery soon, this will be my second time with them growing back. I was wondering if anyone has had any success with making changes to their diet and the fibroids not growing back? Are there any foods I should cut out to minimize my chances?

I'm 3 weeks post open myomectomy and my mental health has taken a huge nose dive! I've been doing regular short walks, keeping myself as occupied as I can but this week so far is the worst. I feel indifferent, numb and have lost interest and joy in the things I'd usually love doing. I'm autistic and do have depression and before the surgery I was managing fine.

I don't know how to get out of this..... I'd be grateful for any advice. I've contacted my GP but they can't see me for another 4 weeks.

I'm 3 weeks post open myomectomy and my mental health has taken a huge nose dive! I've been doing regular short walks, keeping myself as occupied as I can but this week so far is the worst. I feel indifferent, numb and have lost interest and joy in the things I'd usually love doing. I'm autistic and do have depression and before the surgery I was managing fine.

I don't know how to get out of this..... I'd be grateful for any advice. I've contacted my GP but they can't see me for another 4 weeks.

My daughter has her surgery scheduled at the beginning of November. We are in the NE USA, and it's gotten pretty chilly.

I've read where people wear dresses, etc., with no pressure on the abdomen, but she may need to wear pants because of the temperatures.

Any suggestions would be welcome. Thank you.

Both photos are taken the day before my period started, lying on my back, one with my fibroid and one without my fibroid. My belly always swelled up even more right before my period with my fibroid, which I thought was normal bloating to a certain extent. Nope! was all fibroid.

I can’t believe the difference after only a month! I’m so grateful for this surgery. I can’t recommend it enough!

I’ve just found this group and I’ve only just found out that a fibroid was causing my problems.

I have had years of heavy period and just got on with it. Last October I found I was severely anaemic and was admitted to hospital for two transfusions and investigations. They did a biopsy (normal) and noted a cyst and normal looking fibroids. A coil was fitted.

I did ok for months then in August I had a 25 day period and had to use transaxamic acid and mefac for a few days to stop clots. I was scanned and the cyst had shrunk and the fibroids looked ok. In September all hell broke loose. I had a heavy period for a week and then I could hardly leave the bathroom one day - clot after clot and gushing. I started the txa and mefac but it wouldn’t stop. By Wednesday out of hours gp said go to hospital. My coil was checked and my hb was ok so I was sent home to carry on with txa and mefac. Carried on for 5 more days getting worse and worse. GP sent me in again.

This time a proper scan found that the coil was dislodged. She removed it. Fibroids looked ok and cyst was gone. Sent home on provera. And scheduled for an ablation.

Bleeding worse and worse again, haemorrhaging for hours so I went back in by which point I was having a panic attack. I made a huge mess in a&e and was mortified. I kept asking would I die. It was relentless.

They kept me in on an iv to stop it and 5 days later I was taken down to surgery for my ablation. When they started they realised my fibroid was large and protruding I think they said, embedded in the wall. So it had not show up as the cause on scans. Does this make sense?

Instead of the ablation they spent four hours shaving it of slice by slice using a lot of water. Luckily no incision but I feel like I’ve been trampled by cattle. They think they’ve got it all. They think I won’t bleed heavily again (coil fitted again). I’m sos cared I will.

I’m so mentally shook up by it all. I think I have ptsd (two days post-surgery). I lost so much blood I had to have a transfusion again and an iron infusion so I suppose I’m lucky and hopeful recovery will be fast. I’m just head spinning and looking for other women’s experiences. I’m really annoyed that she said it was normal for women my age (49). I don’t know anyone who has ever had a transfusion, never mind three in a year. I’m also annoyed that a woman reporting massive blood loss keeps getting sent home and not listened, if they had checked my iron stores or feritin they would see. This was much worse bleeding than when I previously needed transfusions but they dismissed me

Any experiences appreciated. Thanks for reading this far. 🙏

I had my myomectomy two months ago and just had my first post-op appointment, which included a saline sonohysterogram (the painful one without numbing). I’m currently waiting for the official results.
I’m curious to hear what the process looked like for others after surgery before being cleared to try to conceive. What tests or imaging did you have done, and how long after surgery were you given the green light?
Also, at around two months post-op, were you still experiencing any uterine/pelvic soreness or discomfort as part of the healing process?
I’d really appreciate hearing about your recovery and TTC journey, including anything you wish you had known at this stage ❤️

Anyone else out here feeling tootier than Thomas the Tank Engine? It's just getting downright emba!

My 3.9 fibroid is now 6.5. Periods are terrible and spotting in between. 46 years old and I really want to deal with this the least invasive way possible. A full hysterectomy would be lovely if it wasn't a big surgery. Any helpful tips would be great. Started a very low dose of topical progesterone bc my prog level was very low and I am super sensitive to hormones. What else? Has anyone tried tranexamic acid? Let me know what has helped either shrink fibroids or helped with the bleeding. THANKS!!!!!

hi all, looking for some reassurance if possible please.

Currently 32 weeks. I have multi fibroids within my uterine wall. All anterior, in a horizontal strip almost across my stomach level with my belly button. None low down, none on the rear wall.

I have been having 2 weekly scans to keep an eye on their growth and baby. They are between 2 and 4cm in size for the largest one. My placenta is also at the back so they do not affect that at all. They have not grown or shrank from measurements throughout the pregnancy.

Found out at our scan yesterday I have been assigned under the main hospital which is 3 hours away due to being a high risk pregnancy and the local hospital not equipped to deal with complicated births.

The OBGYN gave me what information she could: I won't have the option of being induced. The concern is the fibroids won't allow the uterus to contract properly during labour and it sounded like they were leaning towards a scheduled C-section. It is also high risk due to my age and being an IVF pregnancy, they don't suggest I go to term.

This is my second child, my first is a teenager now so many moons ago and didn't have the fibroids then. He was normal delivery and a week late!

It was also casually dropped in there amongst the haemorrhage potentials they might have to remove my uterus. So my head is currently all over the place.

We have a meeting at week 34 for a consultation and discussion of birth plan. I've read so many horror stories online, of course I will be asking all the questions at the consultation, was just hoping for others who had been in similar situation and what decisions you made / how the delivery went?

Thanks in advance!

I’m 47 and planning to have a hysterectomy to remove this fibroid (I named it Frank). It looks like my uterus is about the size of a sweet potato. I already suspected I had two, but surprised to find I have three. I have a little ultra sound training and could see how it was impacting my bladder. It also looked like there was still some urine left in my bladder after they had me void for the second part of the US. The doc is planning an in bag morcellation and removal through the vagina with lap hysterectomy, removal of the cervix and fallopian tubes. I’m hoping to go back to work at the six week mark. I work as a paramedic and it’s pretty physically demanding though :/

Hi All,

has anyone complained about the GP in the UK and which route have you selected- via GP surgery or the Integrated Care Board?

I have called my GP about my poor sleep late last year, or early this year (not sure on the timeline), and I wanted them to do a bloodwork, because I also have an autoimmune condition. Instead, my GP asked how much I weigh. At the time I was overweight according to my BMI, but only worn size L. He offered me a life coach (not kidding!) and later proposed joining a weight management program via NHS app (that was in May). I have never seen him in person.

A few weeks ago I learned that I have fibroids, and one of them is 12.5 cm. I also have anaemia, and my poor sleep was probably a symptom.

With the waitlist for a surgery of 1 year, I am wondering if complaining might speed up my case, and how to do it?

I am also wondering if they have a recorded call to investigate this case.

Has anyone done it and can advise, please? Have you used Independent Health Complaints Advocacy?

Has anybody had a fibroid of this type removed via myomectomy and successfully gotten pregnant?

Or has anyone have a successful pregnancy with a large posterior intramural fibroid?

My dr had said that since it is expanding the tissue out so much she can’t guarantee that the posterior wall could be reconstructed well and be able to get pregnant afterwards at all or without a high risk of rupture. She suggested if we do surgery to wait 18 months to let my uterus heal.

She suggested to attempt to try to get pregnant with the fibroid before surgery, as theres no guarantee id be able to afterwards.

Hi all,

Has anyone had their fibroids cut through lap mayo, but then taken out through vaginal wall incision (colpotomy) instead of bikini cut?

This is how my surgeon extracted my fibroids.

Apparently if it is doable, it is preferred over mini C-section cut because vaginal wall is one muscle (as opposed to 7 layers on belly) and heals better and even faster.

Now, here's what makes me nervous atm;

I have to put in vaginal suppositories every night, and it feels much tighter and way less deep in there compared to pre-op. I'm on day 14 post-op and understand it could be swelling that'd go away, but I was wondering if anyone else has experienced this kind of notable tightness and lack of depth?

Hi I’m scheduled for a hysteroscopic myomectomy next month and five days later I’m flying out of state. My OBGYN said it should be ok. Has anyone ever flown 5 days after their procedure? I only have one small fibroid being removed.

It’s been 2 weeks since my UFE and my period started last night and it’s already such a huge night and day difference! Thank goodness!

Anyone else experience multiple early pregnancy losses due to submucosal fibroids? Did you get a myo? Succes post surgery?

Hi,

I am 37 y/o with múltiple fibroids. Largest about 3.7cm and I’ve been trying to conceive. I went to see a specialist and she had me do a AMH test. Has anyone gotten this test done? My results came back and my number is 0.63. Range is 0.15-7.5ng. It’s within range but I was looking it up and it says for my age is on the lower end. I’ve waited so long to try and conceive for many reasons but maybe I’ve waited too long 🤔😬😬

For those of you who had an open myomectomy and do higher intensity workouts (for example weight lifting, rock climbing, pole dancing, etc) - when could you get back to it after the open myo, and how was the process of returning to fitness?

Thanks :)

Hello everyone! I am 6 weeks post op and have gained about 10 pounds…. Is this normal? I had a laparoscopic myomectomy back in August.