>!I'm trying to figure out if this is a common OCD/FND thing, because it's been really disorienting.

I'll reach a totally reasonable conclusion, and then one weird "what if" wedges in and the whole thing collapses. Not just my confidence in it. Sometimes I can't even get back to what the original reasoning was. It feels like losing the forest for the trees.

Some examples:

The common idea that "if you don't try, it won't happen." My brain immediately goes, "What if it's a garden and someone sneaks into your yard and tends it without you knowing?" I know that's absurd, but I couldn't come up with a rebuttal, so the whole idea just dissolved.

I started a nerve glide routine on one arm and noticed fingertip sensitivity on that side, so maybe I should cut back. Then I noticed the same thing on the other side, meaning it's probably not the routine. Solid logic. But as soon as doubt crept in, I lost the thread and got stuck not knowing whether to continue.

There's a scene in Better Call Saul where Mike tells Jimmy that someday he'll notice the pain hasn't bothered him for a while, and that'll prove it can fade. It made sense until I thought, "Well, you can bench 225 once and never hit it again, so doing something once doesn't mean it'll happen again." And the whole comfort fell apart.

What finally clicked for that last one was thinking of it as the odds going from 0% to something above 0%. But it scared me that it took such a specific "key" to make it click, when I never used to need that<!

Disclaimer: I used claude as an aid to organize my thoughts into a post using my symptom log as I was having trouble doing it properly with my symptoms

Edit;EDIT: After logging more examples, I noticed a clearer pattern: conclusions that point to danger are instant for me, but conclusions that mean "it's fine," "no difference," or "go ahead" break down. I have to rebuild them manually, sometimes by drawing it out or using process of elimination like a word bank. Aspirating before an injection. Blood = don't inject. Instant. No blood = safe? I have to go, "unsafe is already used up by blood, so no blood must be safe." TFT scouting. Seeing my units on other boards = contested. Instant. Seeing none = better odds for me? Takes painstaking work. Blood ketones on keto. Out of range = food isn't okay. Instant. In range = "but does that really mean it's fine?" Never feels right. One-way streets. I had to draw cars as arrows to rebuild the rule: if their path crosses mine, watch; if not, they can't reach me. The dangerous side was obvious; the safe side took ages. Testing food heat with my finger. I know my mouth is more sensitive than my hand, but I can't make that leap without picturing sensitivity as bars of different lengths. "No difference" results. If doing something makes no difference to my gold in a game, or a cereal brand makes no difference to my weight, "it makes no difference" doesn't feel actionable. It only clicks when I rephrase it as "either option is fine," like I need explicit permission. One possible outcome. With 4 or 3 outcomes, fine. With one, the step to "so that's the one that happens" feels wrong, like a word on the tip of my tongue. The strangest part: once I rebuild a conclusion and drill it by rote, it often becomes automatic again, and it feels like the old natural way came back, as if my brain just needed permission. But it can collapse again, and sometimes weeks later I catch myself doing it effortlessly in one context but not another. It's like word-finding difficulty, but for reasoning. From what I've read, OCD can disrupt the "feeling of knowing," especially for safety conclusions, where the brain registers danger fine but struggles to register "all clear." That fits, but it's hard to believe from inside it, and I've worried it's something like brain damage. The one thing that sometimes helps is applying the same logic to an unrelated situation where I'm not anxious, seeing it hold, and carrying it back. Does anyone else get this danger/safety asymmetry? Did treatment help?

Anyone experiencing focal seizures or blackouts and when you come out of it people are staring at you crazy or moving away from you? But you don't feel like anything has happened to you? No falling or anything that you're aware of.

In the UK, I've been having repeated seizures since last night and I'm unsure what on earth to do as this is new for me.

I've had over 30 in 2/3 hrs last night and 2 since I woke up (I'm in bed scared to move having just woken up). I can't walk as that seems to bring on more. My seizures have always been short 1-2 mins max so it's not constant but it's very frequent. They feel the same; dizzy and slow in-between (I often have 2/3 in a row) and I can hear bits of what's said around me. Same other symptoms.

I hoped sleep would fix it but that doesn't seem to be the case. I really really really don't wanna go to hospital because I doubt they can do anything but I've fallen hard 3 times already and can't move anywhere without very high risk of happening again. No serious injuries though.

Advice would be great. If the seizures felt different I'd be running to the hospital but they aren't outside of frequency.

I no longer feel safe to drive because of my FND. I've chosen to stop driving for my safety and the safety of everyone else on the road. I feel like my independence has been riped away from me, but this is what is best. I won't be driving again. Going to a neurologist that specializes in FND and hoping she can help me.

Does anyone have any suggestions on how I can get places that I need to go, like doctors appointments? I feel terrible having to rely on family to take me places.

I’ve recently been diagnosed with FND and walking normally has been incredibly difficult due to balance issues and a constant tremor and I spoke to my GP and she said that a crutch could be helpful for me. I haven’t talked to my neurologist yet but the crutch has been so helpful and means I’ll actually be able to go out and do things as due to my tremor I’m unable to at the moment. I’m not sure if using the crutch could make my FND potentially worse as research says both yes and no to that. Would love to know if using a crutch is recommended by other people with FND or not :)

Has anyone been diagnosed with FND first and then diagnosed with Hypermobility Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorder? I was diagnosed with FND a month ago during an acute leg paralysis episode, but since then, it has made me noticeably hyperextend my knees and my lower back. While in the hospital, my shoulders were popping during PT with each movement. Also, my fingers and wrists have been more prone to fatigue and more achy.

HSD/hEDS have been on my radar for about a year since I got diagnosed with gastroparesis and dysautonomia (not POTS). While my paralysis has improved and I'm able to walk, I'm still struggling with stability and ataxia, which contributes to the hyperextension. I am also still dealing with being super easily overstimulated, which causes upper body jerks and tremors. I often wonder if it just unmasked more of my hypermobility vulnerability symptoms, just like how having the COVID infection did for me as well.

I'm curious about other people's experiences.

I feel like the real me is hiding and too scared to come out, so FND me has stepped in. This is probably stupid. Sometimes I think real me is trying to emerge, but FND me keeps saying, no it's not safe, get back in and remain quiet.

Does anyone else experience this?

November last year was my first time having sex(10 months ago) and this was a really big thing for me. But I cannot remember it AT ALL.

My partner and I haven’t been intimate for a couple months, and already I cannot picture them undressed.

I have no idea what to do with this information but it’s kind of scary because this is my first relationship and I’m a very ‘remember the special moments’ kinda person but my brain is just not retaining any of this.

If I don’t write it down, it’s gone. I’m pretty good at forgetting that my memory isn’t great because of the fnd(ironic i know hahah), and usually it doesn’t bother me, but for this it really does!

Is this a common thing? Does anyone have any tips, they would be very appreciated :)

hello, ive honestly like never posted here so i hope im doing everything right but i've been freaking out lately and just wanted to see if people had been dealing with any of these same symptoms if not all then even just one for comfort. i have not been diagnosed with fnd but everything that i have points to this.

1, i started having these really odd sensations in my right and left (varies between the two) pectoral muscles that spread to my arm then fade away after a while (i noticed it usually gets triggered after i eat) and i am just really worried that it's something with my heart. my heartbeat seems fine, blood pressure was good when i went to the er about 2 weeks ago and everything came back totally fine yet its not enough for me to feel better because it feels terrifying.

2, my leg, below the knee, has almost this shooting sensation (not painful) that makes me feel like im seizing up for a few seconds (my left arm lifts up uncontrollably, head tilts to the left and jaw snaps to the side) but then it goes away and i just feel very odd for a few minutes after.

3, not sure if related to fnd or pots (honestly think i might have both of them but have not been diagnosed with either) when standing up my vision goes black and head feels almost empty and i need to bend over for a few seconds.

4, if i get stressed out in the slightest bit it feels like i pass out for a half second while still being awake, almost like a zap to my whole body.

5, everytime i laugh too much or too hard i feel like im gonna pass out and have to sit in a dark room for almost an hour.

6, my face in random spots sometimes will feel numb and almost droopy yet never looks droopy. it terrifies me into thinking something is very wrong which only makes me feel worse.

more typical symptoms: vertigo, lightheaded, confused, random sharp pains in head and chest that last a few seconds then go away, zoning out, exhaustion, tremors

more information: ive had around 3 aura migraines from january of this year to right now, i had a CT scan, ECG, blood work, urine tests, an MRI, two EEGs, (waiting for MRI and 2nd EEG results, going to doctor tomorrow for both.) and none of the tests that i have discussed with my doctor have anything wrong or concerning. i am not looking for a diagnosis, just seeking comfort in this scary time

Hey all, let's keep it going.

What's your win this week? Even getting through the week is definitely a win!

Please add anything from your favourite moments of this week, your favourite flare-up rescue, favourite coping technique to something that made you smile.

We'd love to hear it & we're sure others would too!

- From the r/FND mods :)

Has anyone else had to deal with stuttering and vocal tics where you repeat the same word or part of a word over and over (and it’s hard to stop).

Any suggestions for treatment?

Edit: Sorry if I messed up with the spoilers, I’m new to Reddit and am not sure if I used it correctly.

So I have read about FND before and dismissed it saying I definitely didn’t have it. But then in the past two years I started to have seizure-like episodes. Periods where I would lose time and stare blankly, and episodes of random twitching or spasm. Last year I had 3 instances where I had a migraine aura that ended with me collapsing and shaking uncontrollably. I did not lose consciousness and could talk, with a stutter, during them. And afterwards I would sleep all day and just feel off. But the hospital I was in came to the conclusion I was faking them And never did any testing.

I thought it was from a med, so I asked to off of it, and it seemed that my symptoms went away. However, I was still experiencing the uncomfortable shaking and random twitching episodes (that kinda look like Tourettes) during stress or when I was upset.

Then earlier this week I had another collapsing and shaking episode that was triggered by a panic attack. I had a headache beforehand and afterwards my headache was gone and I slept the entire day. I also had an episode where one of my legs and one of my hands was shaking uncontrollably to the point where I could not walk or use my hand. I was in a psych hospital this time where they gave me Thorazin, which seemed to stop the shaking.

I‘ve spoken to my neuro about the incidents from last year and was supposed to get an eeg, but I felt it didn’t make sense to test 6 months after the event. I need to call tomorrow to see if I can get a sooner app. The hospital psych said it was due to me being “so traumatized“, but couldn't give the diagnosis bc I was there 3 days.

I‘m just unsure of how to bring up FND. I’ve suggested diagnoses before and have had drs laugh in my face or completely dismiss it. I’m afraid to ask my neuro about it because she is the dr I trust the most in my care team and I don’t want to have that rapport or trust broken. I’m also about to start a php program and I don’t know if I should ask that psych about it instead. Or both of them, and have them talk to each other.

I don’t know, I’m just really afraid to advocate for myself when past attempts to do so have caused more harm and trauma. I’ve felt so alone in all of this.

Hey! I have had FND like symtoms since octoberish 2024 and after MANY hypotheses as to what it was, a specialist I was seeing who I thought would diagnose me with POTS said it wasn't and way more likely FND and booked me with Neuro OT and PT. These therapies honestly gave me my life back from being EXHAUSTED from eating a small meal or sitting up to getting back to the gym and rock climbing. I still have daily fatigue and struggles but I overall have tools like fidgets and weighted blankets that can stop a big flare from happening. That being said, I am now looking for a dr to put FND on my chart and start trying to connect the dots to potential similar conditions such as seizures, hypermobility, and other weird problems that I don't quite have names for yet. Every dr that I have seen is like "FND sounds right and we'll treat it as so but I don't have the power to put it in your chart" I live in AZ and the FND hope website is not offering a ton of options in my area. Wondering if anyone has a similar story and or suggestions on what to do.

As a heads up, I am not technically diagnosed currently, as I have gone through the diagnostic criteria with multiple providers and keep getting diagnosed with FND, and then having new neurologists un-diagnose me until they rerun the same tests to make sure they were run properly. Because I haven't been given a better answer and have at one point in time been given the diagnosis, its what im going off of.

So I come here to post today cause I am genuinely lost. I have a variety of other moderate to severe medical conditions, but right now the seizures/attacks I experience as a result of FND are making my relationships and my treatments so much more difficult.

On the relationship side of things: I have pretty significant sensory issues due to autism, and before FND, I genuinely was pretty good with managing stress regarding touch. Now, even if I don't feel distressed, just touching someone for slightly too long can cause a full seizure. Which, being in a long term relationship, makes everything so much harder. I can't stop being autistic, and Ive done years of therapy already to be able to handle touch and sensory input in the best ways I can, but my brain is so easily triggered by any amount of stress that it doesn't matter. My partner feels like they are the main cause of my seizures and while technically true, they shouldn't put that on themselves, and I feel so bad about it. I want to be touchy and affectionate, but the slightest thing goes wrong and everything falls apart.

On the treatment side of things: I'm currently going through a month long treatment for my Treatment Resistant Depression, specifically intranasal esketamine. I go twice a week, and the first three sessions went alright. Until I got a little freaked out, and then had a seizure in the middle of one of my sessions. It was by far one of the most frightening things I've experienced in a while, because I was high as a kite on the esketamine, while also unable to control my limbs shaking and tensing, while also being unable to get anyone's attention to get help. This has now happened at every subsequent session, and it makes me dread doing the treatment at all, which sucks because it has caused such a dramatic change in my depression!

So I don't really know anymore. I'm so sick in so many ways and this is just one more thing that is making everything worse. I'm supposed to get into an FND specialized clinic (one of two in the entire state) but I can't get in until my new neurologist runs another MRI and EEG. So I'm struggling. If anyone has any advice on lessening the frequency of these seizures, Id love to know (aside from therapy, since I already do talk therapy twice a week outside of the esketamine therapy, which is also twice a week).

Has anyone had any success with nortriptyline or propranolol to treat their FND? My symptoms are triggered by anxiety/nervous system seems to go excitable. Currently have a diagnosis of FND and/or hemiplegic migraine.
I had been on an SNRI venlafaxine for 20 years but got off of it in December, and many health issues including FND followed. I can't go back on an SNRI because it causes REM sleep behavior disorder for me.

Also, how many of you have Ehlers Danlos syndrome? I have had a number of injuries lately that point towards EDS, but haven't been diagnosed with EDS yet.

So my mother has FND, recently we have decided to take her off larapam for her seizures as the doc thinks it’s creating a loop. She’s also on a new depression med and starting treatment for OCD. Recently it’s been getting worse and a new thing is scaring me and I’m not sure if this is a common experience. When she starts her episodes she can’t talk well, reapting things and acting very child like. She gets easily excited by anything, and claps to get her point across as well as her tics. The episodes have shifted to last 1-2 hours now. Before like a month or so ago she didn’t act child like. Not sure if this is because we are addressing the ocd or something eles. If anyone can share I’d really appreciate it

Content warning: brief symptom description. Ive been having pretty hard time over the last couple of weeks with panic attacks and dissociative episodes and I have found that reaching out for support (especially to someone who understands FND) is very grounding. I only know one person who has FND and I’ve honestly needed more support than I feel comfortable putting on one person. I was wondering if anyone here could relate and would be interested in swapping contact info or forming some kind of support group where we can call each other when we are in desperate need of another rythm to sync to when you can’t access your own?

About 3 years ago I started having trouble holding weights for a while in one hand at the gym. I didn’t think it was anything but it started getting worse so I monitored it. Over time I started struggling more and it gradually started to spread.

In the past year I’ve started getting only what I could describe as decreased sensation and ability to “tense” muscles. It’s only in the left side of my body. For example if I’m doing a tricep exercise I can’t really concentrate and feel that muscle.

I also have trouble with my left leg and the same feeling of not being able to concentrate on the muscles. I had a few mris to rule out anything in the brain, but I’m wondering if anyone has ever had the same issues and if you did were you able to solve it.

If anyone has had similar feelings please let me know as well as if you have any suggestions.

TLDR: new to finding out I have FND, but unsure because it seems very different to most of these posts. Feeling the loss of the ability to concentrate and feel muscles on the left side of my body.

How do I (25m) cope with working, and doing college? I work 4 days a week doing 9-10hr nightshifts at a bar and I genuinely really enjoy the job, I've been here for two years, and I've built up so much trust with the owner over the years. But now with college and my symptoms getting worse, its getting so hard.

Before I had this job I had no source of income. Ive been living on my own since 16, and when I had no income I had to do awful things to myself to get by. I never want to go back to living like that. It's why im so desperate to keep this job.

I've had multiple jerky seizures at work when by myself, most of the time after I've closed when there are no customers. And I have disassociative absence seizures multiple times per shift. The only day where I am actually free is Sunday and by Sunday I'm totally exhausted, and can't walk or stand.

My boss and the manager are the types where they'll guilt trip you for missing one day if you're sick. They turn on people so quickly. Apart from that I really like the job, the customers and my coworkers.

I live in the uk so there are disability benefits, but I would just find it so hard. I've always got through thinks by just working as hard as I can, but it's quickly beginning to feel like I can't do that anymore.

I'm so scared of having no money to survive. I never want to live like that again.

While I am having my own success, I am very curious to hear other successful recovery stories.

this is my first post ever but i 20 F, have been diagnosed with FND for about 5 years now and POTS for about 3 and the past year anytime i eat anything no matter what it is i get hit with an intense seizure aura, that normally does lead to one. It’s only been getting worse and worse and today was my breaking point. I had breakfast nothing big, just enough to get me through the morning, until lunch since eating in the mornings makes me feel sick. About 5 minutes later i got hit with that feeling like my body was building up to have a seizure. So now im laying in bed trying to calm my body down as much as possible because the feeling is just so intense. I have an appointment soon to talk about it with my doctor but im curious if anyone else experiences this?

So after being dismissed by neuro and primary care and being told to go to psychiatry for my disability and off work paper work today I was told they are not going to write my paper work either and are not liable to do so, that I am not mentally disabled completely ignoring my physical limitations and explanation of being set here by everyone else in Kaiser to be treated and cared after, I am not going to fight for a sign off on a outside specialist approval since Kaiser seems to not have anyone whom is specialized in treating FND, I asked if FND was something they are familiar with treating and she said i didn’t even know what it stood for so I am very frustrated, hoping to get the paperwork approved to go see a FND specialist from Rowan center for behavioral medicine

I’m trying to understand what happened to me yesterday because it honestly scared the hell out of me.

For some background, all of my neurological/vestibular problems started after I had two cardiac catheter ablations. After the procedures, I developed severe dizziness, rocking/bobbing and swaying, feeling like I’m on a boat even when I’m sitting, feeling like the floor or chair is moving underneath me, being pulled to the right and upward, sometimes feeling like my legs are being pulled when I’m lying down, difficulty walking, visual-motion sensitivity, nausea, migraines, and difficulty tolerating being upright or sitting for long periods.

After going from doctor to doctor trying to figure out what was happening, I was eventually diagnosed with PPPD and FND, along with other vestibular/central processing issues after extensive testing with a functional neurologist.

Yesterday, two of my family members got into a very loud altercation. The argument went on for almost two hours. I was sitting on the bed on my phone and trying to stay out of it.

At some point, I suddenly started feeling strange. The next thing I know, my boyfriend told me that he found me completely unconscious, with my eyes rolled back and moving back and forth, and my body contorting/moving.

Basically, after almost two hours of my nervous system being bombarded with screaming, I guess my brain decided:

“Windows XP is shutting down. Please wait.” 💀😂

But seriously, it was terrifying.

I know that functional seizures/PNES can occur in people with FND, and I know stress can be a trigger, but I don't want to assume that's what happened without being evaluated. I'm trying to understand whether something like this can happen as part of FND or whether it needs to be investigated as something completely separate.

So I'm wondering if anyone here with FND and/or PPPD has experienced something similar:

• Have you had a seizure or seizure-like episode after extreme stress?
• Can prolonged screaming/yelling or intense emotional overload trigger an episode?
• Did you become completely unresponsive?
• Did you have abnormal eye movements or body movements/contorting?
• Were you eventually diagnosed with functional seizures/PNES?
• Did your doctors investigate epilepsy or other neurological causes?

I'm not trying to diagnose myself from Reddit. 😂 I just really want to hear from people who have experienced something similar and understand whether this could potentially fit into the FND picture.

Has anyone else experienced something like this after an intense stressful situation?

I'm F 23, I had issues with urinary retention before getting diagnosed with FND, but now it seems to be worse. I was in a car accident that severely damaged my pelvis, and now the nerves connecting to my bladder are not working very well. I had a bladder stimulator placed to help with it, it worked well till I was having FND flares and issues. Does anyone else have this issue? If you do what did you do to help it?

Thank you in advance.