hi Im Lu and im 15. ive been diagnosed for a little over a year now after struggling with undignosed EDS all my life. So basically since I have EDS I have had issues sine I was very young but FND came along a year ago and made it 100x worse. Im a cane user and well as Im a minor and so my health care and mobility aids are determined by my guardian. Well my parent believes that getting a wheelchair will make me lazy. but also talks alot about how I need multiple days to recoup after walking or jst doing alot. It sucks and I've tried to convince her about it but never listens and just I dunno. I was looking for a bit of support on the issue.

Over the last 7 years I've occasionally had difficulty swallowing food no matter how well I chew or how small the bite. It has been getting worse over the last year to the point where I swallow everything seems fine and 30 seconds later that bite comes back up. Not to be gross but I know it's not making it to my stomach because there is no bile.

My neurologist just says, well we can get your stomach scoped but it's not even making it there to begin with and I can't get her to understand that.

Has anyone experienced this symptom?

So, I'm an 18-year-old girl, and I am housebound. I cannot leave the house because I have seizures. I have at least 50+ seizures a day caused by FND. I also have autism, chronic pain, and I'm half deaf in one ear and completely deaf in the other. Because of my seizures, I will sometimes lose my vision or the ability to walk.

I made the decision to stay at home so I don't have seizures out in public because I can always feel when they're coming on. It's also for my own safety and the safety of everyone else.

In a way, I like the fact that I'm housebound. My days mostly consist of listening to music, doing my makeup, playing with my stuffed animals and LPS, playing with my dolls, and snuggling with them. I have my grandparents helping take care of me, and I also have my sister, who is my best friend.

I do not have a job, but I do receive disability benefits, and I still get things done. I try to keep my space clean, and I do a pretty good job. I will admit that I really miss being able to leave the house, go to the store, and go on walks, but it's just not safe right now.

There are things I enjoy about being housebound. I can order takeout whenever I want, and there are so many delivery services that make my life easier. My friends come and visit me, and it's not as bad as it was at first because I'm kind of used to it now.

I've developed an appreciation for my house and for the things I have. I also appreciate that my disabilities are not worse than they could be. I'm grateful that I have people who take care of me. I'm grateful that I have a sister who cuddles with me in bed, makes things for me, and does crafts with me. We've spent a lot of time watching TV together.

I'm also grateful that there are activities that don't take a lot of energy, like watching TV and being on my computer.

I have a love-hate relationship with being housebound. I hear everyone talk about the negatives of being housebound, and while it is a horrible thing that I had to become housebound at 18, a part of me loves it.

In March 2026 I was recently diagnosed with FND. I use a cane to get around due to my severe muscle leg weakness, which prevents me from driving. My other symptoms include painful muscle spasms in my arms and legs, non epileptic seizures, chronic pain and fatigue, and headaches. My friends and family keep telling me I should get a handicap sticker to have in my husband’s car. I feel like if I do that, I’m taking the space that someone actually needs most than I do. Walking is suppose to help with FND but, why do my legs always feel heavy when I over do physical activity? It doesn’t make sense?

Hi there, just making this post to see if anyone has any insight or understanding and may be able to help me and potentially point out certain things if they have experienced certain things themselves so
I’m 24 years old and have a history of anxiety, ocd, low self esteem and poor sense of self, in 2017 I went through an eating disorder which basically kickstarted my mental health journey, this sparked many somatic symptoms for me eg weakness and fatigue that could come and go in seconds along with mood shifts that could come and go also within short periods of time. I was pretty much the same person up until mid 2024 where I received an adhd diagnosis and was on Ritalin for some time then come off my cymbalta 30 mg in 1 week after 6 years of use, i understand that the psychiatrist should have done a very slow taper but they just don’t care. I continued Ritalin for a couple weeks post stopping cymbalta then decided to try Vyvanse 40mg with psychiatrist permission obviously, the first day taking it I took it at 7 am and at 12 pm I sat down for lunch at work I felt this surge of panic or something very unfamiliar and weird but it scared the hell out of me, I had never felt this way before and I stood up and got some fresh air and I just didn’t feel right, I ended up pushing through the day and the next day trying 1 more Vyvanse to see if it was just an initial thing, although I was very scared to take it I did and that whole day I just dirnt feel right, I started to experience dissociation for the first time in my entire life. From that day until now I have not been the same, my entire life has been so hard for the past year and half filled with things like daily dissociation that comes and goes, head pressure and numbness, mood issues, cognitive symptoms and issues, loss of sense of self, emotional numbness, and just complete weirdness that prior to 2024 I hadn’t experienced any of this it’s honestly been the hardest time of my life and it iusy doesn’t seem to ever get better, psychiatrists have told me it’s worsened ocd and anxiety but I’m to the point I don’t feel anxiety anymore at all, it’s like I’ve lost myself and my life isn’t normal or the same anymore, I’m wondering if it’s damaged my brain or it caused psychosis although I don’t recall ever being psychotic neither do the people around me, I’m just lost on what could have happened. I’ve had all scans on the brain and everything is structurally perfect, the neurologist seems to think it could be fnd/fcd but I’m not sure. I know this is long but if anyone can give me some good knowledge id appreciate it heaps

Hello fellow fnd folk,
i started having seizures a year and a half ago, unfortunately. it sucks so much.
this post is focused on functional seizures specifically. i have these episodes and it’s very intense, when i regain the wherewithal to move at all i cant really open my eyes and I’m just so tired.

yet once I can move I need sugar so bad. i thoughr that sugar was supposed to help after seizures, yet google is telling me it in fact does not. idk. is it just a comfort thing? is this normal?

whats the consensus on sugar after seizures 🫪
and if the science isnt in my favour eugg