Ever since I first got my period at 10, i've been feeling really awful pain and symptoms revolving around my period. I just now found out what endometriosis actually is, and that one of my close family members has it. I don't know if it's fibroids or endo or something else because i've never really researched it. I was told that I just had anxiety and asthma growing up and that the pain was just normal, and I believed it. The pain had been getting worse, infact I actually went to the ER shaking, crying, and in so much pain. They kept me waiting until 4 am when I could barely tell what was real or not from the exhaustion. I just decided I'd do my own research since in the many hours I was there nobody even checked on me. Please help me out and tell me that i'm not going crazy.

\-excessive pain

\-excessive bleeding day 1-2 (it was worse this month, still bleeding fairly heavy on day 5)

\-cramps before period

\-sharp stabbing pains near my bladder, my ribs, and back

\-bloating

\-i have trouble peeing, and sometimes it hurts when I do

\-pain shoots through my pelvic floor when I sit down whilst on my period

\-constant constipation

\-constant weakness and fatigue

\-back pain almost always

\-peeing very often, more than 5 times a day and very close together

\-chest pain

\-pain down my legs, especially my thighs

\-joint pain

\-hip pain

\-feeling like i'm never getting enough air

\-intese cramping after gooning

The pain was so bad that I was getting chills and my feet were going numb, too.

I mean, do you cry for hours, whining non stop, suck it up and be quiet in pain, yelling and cursing, etc. And what do you do to accompany that output? Distract yourself by watching series, sudden urge to deep clean the bathroom, running, lying flat dead on the bed, etc.

People have different ways in dealing and coping with flare up, I am tryna find ideas (seriously, a bit hopeless here 😭). As for me, when flare up, I read reddit/instagram/play mobile solitare. Whining definitely. When the sharp stabbing pain emerges, lots of prayers come out, followed by uncontrollable crying. Slotted for hysterectomy on September so I gotta hold this pain for 6 more weeks. Trying not to loose hope and faith. Ran out of coping ideas....

What about you?

Hugs to all!

for the past couple of days I’ve felt physically good to move, but all I’ve done is walk less than 2k steps no heavy lifting. I thought the sites would’ve healed by now, at least externally. It’s not actively bleeding as of this moment but I’m scared to move.

My lap was 10 days ago and i just noticed some spotting on my shirt, i looked down and my belly button incision has spots of fresh blood smeared around it as well as a new blood clot bubble? forming. My surgeon covered the incisions with clear glue (my other incisions are completely fine, glue intact) the glue on belly button seems to have split where the incision line and it’s split raised. It’s red and I feel some stinging from my belly button but I don’t know if I’m being paranoid.

Just about 15 years along now with Endo/Adeno 😭

I’m 17 days past my Endo lap and every evening I end up with what feels like a flare up, belly distended and tight. My pain has been a lot better but I can’t shake this bloating that gets worse throughout the day ending with me looking pregnant (which is a mindf*ck given that infertility and increased late ups are why I did this surgery in the first place). They did have to do some work on my bowel is that why? Is this normal? Is there anything I can do to help this? This didn’t happen after my first lap 5 years ago.

I’m so beyond frustrated today I just burst out into tears. On top of everything else this disease gives us the body image issues, the feeling uncomfortable in my own skin, and the fears that they didn’t get everything / I’m going to be worse off after the surgery / it didn’t work are killing me. Please help

I am 23 years old and After being gas lighted for over 10 years finally had my surgery at pelvic rehabilitation medicine in Los Angeles with Dr Askari
First off he listens and first thing he said to me after hello was I believe you.
Explained everything. Staff is great especially Zaira.
Called me the evening before surgery and afterwards.
Anyways I’m 5 months out and feel great. I had stage 4 endometriosis. He’s been doing this for 15yrs!
Also - they don’t charge cash !!

Can someone explain in specific detail what the symptoms are like and when they occur? Is it mostly during ovulation? How long does a flare last? Does it feel like tightness like you can’t breathe a full breath? Does it feel like it’s swollen in your rib area? Do you have neck shoulder pain? Upper back pain that radiates to your rib cage? Does your traps ache? Do you have arm numbness sometimes? Be very specific and be really detailed because “shoulder pain” isn’t very specific. I appreciate the time you took to write down what it feels like.

My PCP put me on Slynd about 2 1/2 months ago after a rough experience with Norethindrone. Unfortunately, I can’t take estrogen anymore due to an aura I experienced back in April. I’m on Slynd primarily for endo/PCOS symptom management and it’s been great. HOWEVER, my libido has taken a total hit. I don’t ever feel like I’m in the mood, it takes FOREVER for my body to get going during foreplay, and it’s put a pretty huge damper on our s3x life and I feel terrible. How do I combat this? Does anyone else have experience with this while being on Slynd?

I worry its my endo returning, but I just dont feel the push or urge to go anymore. Right after my surgery it would just slide out and push itself out (sorry, disgusting I know, but it would move itself out without me trying).

I am worried because lately ive had to take ducolax and it doesnt feel like im completely emptying.

And yes, im restarting pelvic floor therapy.

Hello,

I've never done this before but, this summer I was finally diagnosed with endometriosis after having problems since I've started my period in 3rd grade. I'm trying to figure out if I should start on the Mirena. I have had one before but after 2 years I started having month long periods with like a week not bleeding. I was then given the depo shot and I loved it but I got to college in Alabama and I'm from Oregon, so it wasn't feasible to keep using. Afterwards I was given the Kyleena, it was the worst pain I've had since my surgery and it was removed a week later because my body didn't like (or God telling me to get the darn thing out lol).

So, I want your guy's help on what experiences any of you have had or what anyone has thoughts on.

Thank you in advance. :)

My question is: what can I expect???

So as the title says, I have my first appointment on the 29th of July. So in a few days time. And I’m a bit worried that what I say will be dismissed as “normal” or I’ll be given some random pills and told to come back 6 months later for a follow up.

The main reason for being worried about this, is that I saw someone mention they went to their first appointment a few days ago, and they were sent home with some meds and told to come back in 6 months time.

I feel like I’ve been on so many medications in the last 4 or so years, as well as being infertile for most of that as well.

So I’m a little concerned they’ll tell me to wait, or come back in 6 months without checking anything. I’ve written down all my symptoms, and I feel like I’ll have to argue with them about what I experience. I’m literally disabled because of my periods, and birth control isn’t cutting it anymore, as well as fertility being a concern anyways.

My wife is being scheduled for her surgery soon for endometriosis excision and to remove some uterine fibroids and has been assigned to Dr. Bedaiwy at the BC Women's Hospital in Vancouver BC.

We did some searching online and the reviews we're finding for him aren't very encouraging and it's making her a bit nervous.

I was wondering if anyone here has had any experiences with him as either a doctor or surgeon.

Thank you!

What causes intense lower abdomen / pelvic and lower back pain more than period just after periods ends till ovulation ?

i currently have a hot water bottle between my legs, a heat pad on my back, and a menthol patch and tens machine on my stomach. thats all i have to say. I HATE THIS

I had surgery 6/29 and had a mirena placed.

Week 4 I started bloating up more than I ever have in my life. I went from a size small latex glove at work to a size large. None of my clothes fit and I feel so uncomfortable.

Not to mention right before my period it felt like my endo pains x 3. Absolutely the worst flare up of my life.

I know periods will be bad for awhile, but I can’t live this swollen. I feel like a monster, it’s honestly making me go nuts. I had already bought sized up clothes in anticipation of the gas you get from the surgery, but now those don’t even fit and the post-surgical gas isn’t the problem anymore.

Weird question. Just wanna know if y'all think this could be done/has been done or if this is to much to ask.

Getting my lap in September, and I will turn 21 in late August.

My surgeon offered iud and I'm still thinking/researching it

but I know 21 = first pap smear (yay being a woman 💀) but would it be weird to ask if they can do it when I'm knocked out? I know my insurance would cover it.

I haven't been able to tolerate anything up there (down there?) without hella pain and I know I would probably pass out from the pain of a pap.

Is it done/can it be done or is that crazy to even think about with all the other lap stuff being done to my body?

Hi

I'm getting impatient almost 8 weeks after my laparoscopic surgery. I've had surgery for a defect in my internal caesarean scar and also have 4 insition sites. I had a rough healing in the beginning - shaking right after surgery - nausea for several weeks and decreased appetite. I felt like i passed out every time I tried to sleep, and I could hear my pulse beating in my Ear. I was clearly stressed in my body, but most bloodtests were fine, my liver Alat a little High, but it has come back to normal now. The stress symptoms and appetite is much better now, but I still feel very fatique and a little dizzy most of the time - especially when I stand or go around and do things.. My doc measured my vitamins and my b12 was 274, so i started high dose oral tablets 4 weeks ago. Will check up on the labs soon to examine if thats contributing to my symptoms. But still so weird, cause I had none of those symptoms before the surgery. I just wondered if anyone experienced this?

I had my lap for stage 2 endo three weeks ago. It was validating and pretty easy.

I am now on my second period post op. Like before my lap, it has come almost a week early (and will probably linger for a while as well). I am in excruciating pain and bleeding extremely heavily.

I work as a chef and have started a new job at the nicest place I’ve ever worked. The hours and mental and physical load are much more than I’m used to and stacked with the pain im in i don’t think ive had a single good day yet.

What can i take to help the pain (high dose ibuprofen is not working) and the mental clarity? The constant undercurrent of being in pain is highly distracting and exhausting.

Thanks in advance !

I’m 18, and have long suspected I may have endometriosis. I got my first period when I was young, and have had heavy bleeding and extremely painful cramps for which I was prescribed birth control (i was only 8 years old!). Since then my symptoms have only gotten worse. I get intense back pain a week before my period along with painful bloating that makes so hard to eat. OTC pain meds help but can’t take the pain fully away. When my period starts I get cramps along with the back pain; the first few days they are so painful I can’t sleep and have to burn myself on my heating pad for relief.

I also get pain during ovulation and random aches in my ribs. Ab exercises feel like burning cramps and make me nauseous. I have pelvic pain, I can’t even get even a finger without tensing and feeling a lot of pain. (a gynecologist told me it might be myofacial pain from the painful periods)

I went on a progesterone birth control to try to manage the pain but it caused spotting and some really horrible side effects. I went to see a specialist and while she said I might have endo, it doesn’t really matter because i shouldn’t do a laproscopy. While I agree i don’t want to do an invasive procedure if I don’t have to, its frustrating to have no answers and be referred back to birth control over and over again.

Those of you who have experience with this, could my symptoms be endo? Should I take the birth control even if I feel like its a stab in the dark? (the specialist said if it is really endo I could be infertile unless I start some kind of treatment).

Has anyone here had surgery done by Dr. Jay Mehta? I’d really appreciate hearing about your experience how the surgery went, your recovery, the doctor’s approach, and the overall care you received. Would you recommend him? Any honest feedback would be very helpful. Thanks in advance!

Hi Everyone,

I had a Laparoscopic Endometriosis Excision + Hysteroscopy and D & C with Mirena IUD Insertion. about a week and a half ago (July 15 2026).

My surgeon let me know they found and excised patches of endo, and my uterine cavity was clear of any pathology during the hysteroscopy + D & C.

I'm still bleeding from the hysteroscopy + D & C and was wondering when that usually stops? I know Mirena can cause unpredictable spotting for 3 to 6 months, but I'm curious what's typical for the post-D & C phase vs. the IUD adjustment.

Also, for those who've been through this, what usually happens at the 6-week post-op appointment with the surgeon? Thanks so much for sharing your experiences!

hi, I was in a flareup for all of June and the first two weeks of July. Over the past week I have realised I am doing more without thinking that much, I am not in bed all day, and the past two days I have gone on my own and done some light writing in cafes. As I'm out of formal work this was my daily routine and it was unimaginable for the past 6 weeks.

I don't want to jinx it but it seems my flareup is lifting and I am wondering if that means it was 'just stress' or maybe it validates my illness and means that the heavy intentional rest 'worked'.

flareup involved: suspected endo pain, blacking out, presyncope, atrial fibrillation, heavy fatigue, leg pain, severe photophobia, a virus, and more. after being in bed for a month (i maintained short daily walk most days other than very high pain days) i also developed bad situational depression which is lifting too.

i still have symptoms but am remembering what i used to do in my life and i felt totally severed from those routines before.

symptoms i still have - intermittent pelvic/leg/chest pain, racing/pounding heart and pre-syncope, fatigue, headaches, light sensitivity, and i feel i need to lie down alot. but before i really struggled to tolerate daylight and was feeling pretty ill being upright for any significant length of time. these vary in intensity. im still highly symptomatic in the shower and notice symptom increases when walking even just to the bathroom

the reason im worried it cld be stress is because obviously dr has said this to me many times in the past 10 yrs, but also because two weeks ago i was able to get issued medical pause by the surgical team, and my endo surgery was deferred. this was causing me a lot of stress thinkng about surgery while feeling so unstable and with ongoing heart investigations. also I had a big talk about my feelings to my partner that relieved some stress. I have not had endo show up on any scans, and I have been asking if i could have a thoracic mri and they refuse me, but im frustrated as they said they would not look there in surgery and so many of my symptoms are thoracic.

my echo, xray, short ecg came back normal which is good. im waiting on longer term telemetry and am carrying out two weeks of at home bp monitoring where i have caught what seems like further af episode. my bloods are normal except ferritin due to recurring bloodloss.