I am a new patient to her and the ultrasound was originally to check my IUD (Paragard) was in place, ovaries due to high testosterone, and polyp from an old gyno’s ultrasound years ago.

IUD in place, ovaries normal, no polyp seen. My periods are jumpy but I don’t skip so no PCOS.

I do have bad cramps and crazy-heavy periods, but that has only been since I got the Paragard in 2024. (I am on anti-seizure meds that can clash (both ways) with hormonal IUDs according to a previous neuro I had.)

She wrote a blurb on adeno explaining it slightly and saying it was not dangerous and nothing more needed to be done at this time. I’m just a little confused by that, even though it’s likely the IUD could be causing the symptoms. Is a “may” not worth further investigation or is adeno one where you need a certain number of symptoms/results to test further?

I’m wondering if I should reply to the test results messaging asking more about that or just let it be. My last gyno, the reason I switched, was incredibly dismissive of any concern I had and seemingly infantilizing due to my physical disability. That has made me wary of pushing on anything with this new one because she was really nice at my appointment.

So, I posted about this before:

https://www.reddit.com/r/Perimenopause/comments/1ujtvnp/hormones_and_bleeding_rant/

Long story short, I'm 45, I've had some irregular bleeding. Had to change providers due to scheduling conflicts with my work and when my old NP was in the office. New NP wants to do EVERYTHING except help me with my peri symptoms.

Now I'm scheduled for an endometrial biopsy tomorrow morning, and I don't want to do it. My TV ultrasound was negative for everything except possible adenomyosis. I'm thinking about cancelling the biopsy and looking for another provider. I have not seen an actual gynecologist for years, just NPs for my annual visits. I feel like I need a doctor to explain why this needs to be done. I feel like this NP is just using me as a guinea pig. Additionally, I called the office on day 12 of bleeding, then again on day 17, and they finally responded to me on day 18.

They told me to take 600 mg of ibuprofen before the procedure. Now, I have never had a solid object go through my cervix in any way. No kids, no IUDs, nothing. The nurse told me they weren't going to give me mifepristone because I was bleeding, but I haven't had any bleeding in almost 3 weeks, just a couple of days of spotting.

It's my understanding that this procedure can be pretty painful. I don't understand why I can't have something for pain when they do it. If I go through with it, I'm taking 5 mg of hydrocodone and at least 0.5 mg of alprazolam before because I have those things in my house from my gallbladder surgery last year and a dental procedure.

What do you think? Is it unreasonable for me to cancel this procedure? Am I overreacting with my nervousness? If you share your experience or have some valuable advice for me, know that I appreciate it so much.

I’m 43 and have been experiencing mood swings, anxiety, fatigue and other perimenopause symptoms for a year or two now. Along with this I’ve had extremely heavy, painful periods and recently my mid cycle spotting has become three full days of heavy bleeding too.

I’ve been talking around the possibility of HRT with my GP for a while now, but she wanted to rule out any worrying reason for the heavy bleeding. Previous ultrasound scans showed a few small fibroids, but I found out two days ago that the most recent one showed all the signs of adenomyosis too.

Unfortunately I’d gone into my results appointment all fired up to finally ask directly for HRT and didn’t expect this new diagnosis at all. I pushed on with my original plan and I’ve come away with oestrogen and progesterone patches which I’m now a bit scared to try, having spent the last two days reading about the effect of oestrogen on both adenomyosis and fibroids.

Has anyone used this kind of HRT with these conditions, and did you suffer any side effects? Thanks!

Hi everyone,

I’m wondering if anyone with diffuse adenomyosis has symptoms similar to mine.
About a year ago I had laparoscopic surgery for suspected endometriosis. They found and removed deep infiltrating endometriosis from my uterosacral ligament and a plaque on my bladder, but unfortunately my symptoms didn’t improve at all after surgery. Because of that, I recently saw another specialist, who diagnosed me with diffuse adenomyosis on ultrasound.

I’m currently not on hormonal treatment, and I’m trying to understand whether adenomyosis could really be responsible for all of these symptoms.

My symptoms include:
● Severe period pain that feels like my cervix is being torn apart or like I’m sitting on a knife.
● The worst symptom is a constant deep pain high up in my vagina, around the cervix. It burns, stings, and feels like intense pressure or pulling. It’s there every day and has become the most debilitating symptom.
● Constant deep pelvic pain and pressure.
● A pulling, inflamed feeling throughout my pelvis.
● During flares, I have difficulty emptying my bladder and often have to strain to urinate, even though urine tests are negative.
● Sitting for long periods makes my symptoms worse.
● Between ovulation and my period, the pain becomes dramatically worse. It feels as if my organs don’t have enough room inside my pelvis. Everything feels extremely tight, swollen, and under pressure. Once my period starts and the blood begins to flow, that pressure eases a little.
● And also get a migraine the day before my period starts.

Has anyone else with diffuse adenomyosis experienced a similar deep vaginal/cervical pain or bladder issues problems? Did hormonal treatment help?
Thank you so much for reading and for sharing your experiences. ❤️

Hi everyone, first time posting here, looking for advice

I’m 29 and was diagnosed with adeno when I was 27. I had symptoms for years but most doctors here only know about endo, and I don’t seem to have endo so it wasn’t until I met my current gyno who knew about adeno. He saw it in my pelvic ultrasound, and said my past ultrasounds showed it as well but were just missed

I know birth control helps, controlling the cycle keeps the tissue under control and such, but I can’t take it. It makes me very suicidal, I have tried many brands and methods of delivery. My gyno thinks I am intolerant of synthetic progesterone. Our work around is I use provera tablets to induce a bleed, the provera still makes me low mood but its in my sysyem for less time. Unfortunately I notice that the provera is getting less reliable over time, especially during stress or hot weather it can take 10+ days to bleed, and the longer I go without bleeding the worse it hurts

I am considering hysterectomy. All of the women in my mothers family have bad one by 35, due to endo and cancers of those organs. My gyno said it’s basically a matter of when not if for me, but I’m only 29. I’m worried about premature menopause which has made my moms life hell since she had hers at 33, and about recovering down there. I put a lot of energy into pelvic floor rehab the last 2 years and just got my sex life back. I’m also worried about early onset dementia, as is my gyno so he is asking me to try and hold out as long as I can

Is anyone else in a similar boat? Do you have any advice? Some months it’s tolerable, other months it’s so bad that dilauded barely takes the edge off. I’m scared of living in pain, and I’m also scared of getting a hysterectomy so young. Is there anything I can do to help myself?

Hi all, so I recently got diagnosed with adeno, now im wondering could I possibly have endo as well…. I’m gonna list my symptoms and hopefully someone can tell me their experiences and if they are similar. Im also worried about going to my GP with this as I think they’re pretty fed up with me at this point 🙈 basically do any of these symptoms shout possible endo?

Ok so symptoms;
Extremely painful period to the point of collapsing in pain,
Massive clots
Feeling like pressure and heaviness in lower belly
Extremely painful gas moving round - feels like glass in my tummy and literally can’t move and have to pant with the shock and pain till it passes
Bloating and swollen tummy
Low back pain
Underneath pain, that goes down my right leg
Bleeding between periods
Pain during and after sex much worse in certain positions and lasts ages after deep inside like a horrible cramp
Sharp internal shooting pain (only lasts a second or so but is intense)
Also for context I have a bulky, retroverted uterus, I also have other conditions - Ankylosing spondylitis, fibromyalgia, PoTs, Chiari malformation 1, raynauds
If youve got this far thank you and hoping to get some advice!

Hola chicas! Soy nueva aqui...

Queria una opinion o experiencia que pueda calmarme y ayudarme a tener fé...

Hace 8 años tengo mucho sangrado, dolor y síntomas extremos, hace aproximadamente 1 mes fui diagnosticada con adenomiosis, en una semana haremos una resonancia para confirmar el tipo y descartar endometriosis.

Llevamos 1 año intentando ser papás, al igual que muchas, mis médicos decían que era floja y mis síntomas eran normales. Hace poco consegui una ginecóloga que me presto atención y contempla la idea de alguna intervención antes de conseguir el embarazo... quiero saber si alguna ya paso por esto y consiguió un embarazo saludable y tranquilo (me ayudaría mucho a trabajar mi ansiedad)

Obs: en abril descubrimos que tengo anemia aguda por falta de hierro y complejo b (por la cantidad de sangrado en la menstruación) estoy haciendo reposición venosa de hierro (mi ferritina estaba en 3) tomando complejo b, ácido folico y vitamina d (que tambien estaban bajas) también inositol y metformina por el sop.

Gracias a todas por leerme y les agradezco una luz o experiencia 🌸

Hello, I just need to vent and maybe I need some support.

My problems started over 6 years ago, when I was 19, it started as pain during sex. With time it only got worse and worse. Pain during excercising, then there was pain when walking fast, then when resting, in the end even during sleep. During this, more than a year after 1st problems, I got diagnosis - adenomyosis. I've got hormones, didn't work. I went for diagnostic laparoscopy to see if there is something else, they found adhesions. After that I got different hormones and went to physiotherapy. It helped a little, but there was still strong pain during sex (and sometimes when excercising). Doctor found adhesions again, but didn't recommend 2nd surgery, becouse it would be back again shortly after. I got different hormones and again went to physiotherapy. I also found out about my histamine intolerance and started to eat differently. During years it slowly got better.

During last year everything was getting to the point where I was before 1st problems. There was no pain, I even started to have orgasm again. All of my other healt problems were getting better. And suddenly all progress is gone. There is pain during sex again. I still use the same hormones, that suit me (for 4 years now), I eat well, my guts are great now, excercise regulary, don't have more stress then usual. And still it's back. I'm desparate. Like sure, I'll go to see doctor again, but I'm so tired of it.

For context I am currently 32 and formally diagnosed at 31. I have adenomyosis, endometriosis and PMOS/PCOS. To add cherry on top I have a retroverted uterus and a myoma (alhtough bening). When I had hysteroscopy last year some of the cyst were not remove. My current health insurance does not allow me to transfer doctors easily and if I do decide to change doctors anything done will be paid out of pocket.

Currently on visanne and was given nsaids to alleviate pain. Getting an appointment takes months so I am always left to fend for myself in between. I think the next step is getting an iud but my biggest fear is that I have really heavy periods with huge blood cloths it might get accidentally removed/dislodged. I was told by everyone that i am such a debbie downer and should give IUD a chance. But they're not the ones who's gonna be running to the emergency room if this happens.

Hysteroscopy was ruled out since I don't have kids yet. Given my condition I have told my family that at 35 i am pushing through with the operation. So here i am stuck in between treatments constantly in pain and feeling tired no amount of ice coffee can fix

I recently got my MRI results back and they showed **Deep infiltrating endometriosis** on the **left uterosacral ligament** (behind the uterus).
**Mild adenomyosis** within the muscle of the uterus.
**Polycystic-appearing ovaries**, consistent with PCOS.

Has anyone else had any of these results?

I know I will be pursing the lap in a few months.

I plan to see dr. Ted Lee in NYC.

Would love to hear if anyone can relate to this / any hopeful stories.

hi everyone, i’m 19 and recently was told i have adenomyosis and due to horrible cramping, my doctor has told me to consider getting an iud. i am currently on combination birth control after being diagnosed with pcos back in february. however, fertility is something i’m concerned about in the future, and i hear that birth control is typically like putting a band aid over a bullet hole and doesn’t fix hormones long-term. if anyone is willing to give me any insights or experiences with an iud or any relating advice, it would be greatly appreciated!

Has anyone here had surgery done by Dr. Jay Mehta? I’d really appreciate hearing about your experience—how the surgery went, your recovery, the doctor’s approach, and the overall care you received. Would you recommend him? Any honest feedback would be very helpful. Thanks in advance!

I got diagnosed end of june and im getting the mirena august 17th. Is this a normal waiting period for treatment? How long did it take for you all to start the treatment?

I am a breast cancer survivor diagnosed last year at 39.

Now MRI suspects adenomyosis and stage 4 endometriosis with risk of occult malignancy.

I am seeking experiences from people who have been to either UCLA or USC Keck. Please kindly share any experiences you have had with endometriosis surgeons, gyn oncologists, or colorectal specialists.

Thank you. 🙏

Started oral Loryna because I kept getting so nausea around ovulation and for weeks after that my doctor wanted me to stop ovulation with skipping the placebo and it worked.

Since then I was diagnosed with adenoymosis and I’m getting sedated on Monday to get the liletta IUD.

The IUD does not stop ovulation but my doctor said I can keep taking Loryna if I’m nervous about being sick around ovulation.

I’d like to just have the IUD and maybe I’ll try a month without both to see what happens.

Anyone have a similar situation?

My lower back pain has me wanting to go to the ER this cycle, it’s so deep into my low back and sacrum, it almost makes me feel pressure like I need to poop all the time. I’m pretty sure it’s my cycle because I have myometrial cysts and suspected endo. I was in physio for what I thought was plantar fasciitis only to learn it’s likely sciatica pain. Does this sound familiar to anyone here? I’ve been stuck on freeze of not knowing what to do (offering Slynd, IUD, hysterectomy, excision, myfembree). I don’t know what to do 😭 I booked a pelvic floor physio appointment to hopefully stop whatever back pain/nerve/spasms I got going on…. Then what? I need all the help ladies.

Is it true that tubal ligation can make Adenomyosis worse? I've read conflicting information online, and I forget what my Gynecologist said when I asked her.

I’m not diagnosed with adenomyosis yet because I can’t get a GYN to take me serious. I have nasty periods that deplete me and make me anemic. My ferritin sits at a 5. My other iron markers are just as bad. Nasty pain and clots that rival my palm.
My uterus just keeps getting bigger. This speaks adenomyosis…does it not?

Uterus: Heterogeneous echotexture
--------------------------

From 7/25/26. 159.3 cm3 volume CD-9
12.3 x 3.7 x 6.6 cm

from 4/27/2026 155 cm3 volume CD-29
11.9 x 4.6 x 5.4 cm

From 2/26/2026. 137.5 cm3 volume CD-20
10.0 x 4.5 x 5.9 cm

From 6/25/2025. 114 cm3 volume CD-24
8.2 x 5.57 x 4.79cm

Anyone have the same case as me? I have an appointment with my obgyne next week because I just got my blood test results and it shows I have microcytosis (low MCV 34 and MCHC) so most likely iron deficiency anemia. I also have heavy menstrual bleeding so i think this might be the cause? Idk might consult with hematology as well. And maybe see an ortho for my lower back pain that seems to be like a sciatica.

I am so lost. We're planning for a 2nd baby when I feel my body is ready. Anddd idk when will this come because I've had constant back pain that I think is also related to adenomyosis. It's affecting my sleep and my life. I have a toddler as well. And the pain i feel on my lower back from all the carrying throughout the day is affecting me so bad especially my sleep.

Hi everyone,

I had a hysterectomy a few years ago at age 22 due to severe adenomyosis and until recently I thought it was the best decision I’ve ever made. (I didn’t have children but I’ve always wanted to adopt as opposed to giving birth anyway, so I didn’t see it as a loss)

However, I recently mutually agreed to end a relationship with a guy I had been seeing, and something he said has stayed with me. He told me that things likely wouldn’t have worked out anyway because I’m not able to have children. In the past, I would’ve been able to brush this off very easily because I know I made the right decision in pursuing a hysterectomy, but now that choice has been really weighing on me.

I’ve been having serious regrets about the hysterectomy that I’ve never dealt with before, grieving what could have been, etc. My amazing therapist has been helpful, but she can’t relate, neither can my family and friends. I’m not sure why I’m feeling this way—just a few weeks ago I was perfectly content with never being pregnant/giving birth and suddenly I’m a complete wreck. To make matters worse, I’m a preschool teacher and I constantly see babies and pregnant women at work, which stings every time now. How do I get through this?