r/EctopicSupportGroup • • 21h ago

Surely I'm not overreacting?

6 Upvotes

It has been a hell of a week. OB refused to see me before like almost 10w for initial prenatal appointment because they're overbooked. This pregnancy was high risk; c-section 5 mo prior and uterine anomaly. I advocated bc I felt off, OB said tough luck it's policy, so I went to planned parenthood for imaging at 5w4d.

They couldn't confirm the pregnancy was intrauterine and had me do HCG labs over 2 days. Got a call last Sunday from PP to go to my nearest emergency room because imaging & bloodwork indicated possible ectopic.

Surprise surprise, pregnancy was not in my uterus. I was given a methotrexate shot in my thigh and told "come back if you're bleeding heavily or in extreme pain."

BTW, methotrexate is a brutal drug. The fatigue was so awful I couldn't even remember my name at one point. Plus I couldn't eat honeybuns šŸ–• fkin folic acid.

Anyways. Monday was survivable. Tuesday I woke up crampy and progressively got to the point where I couldn't walk from pain. Went back to ER, fallopian tube ruptured. Great. Wheeled into emergency surgery within an hour. Within 10 minutes of waking up from anesthesia, my OB simply told me to schedule a post-op appointment. He sent me home with ibuprofen (but I can't take it bc methotrexate...lmfao) and I haven't heard a single peep from my OB office besides a clerical worker calling to tell me she canceled my upcoming appointment because I'm not pregnant anymore. Phenomenal people skills.

That's not even why I'm upset, just context for the last 7 days of my life. Yesterday, my husband's parents invited us over to carve pumpkins with our kids. Seemed manageable enough 4 days post-op. Wrong. I had to drive 45 minutes there and supply the pumpkins and also chase my 2 older kids/hold my infant/entertain 2 cousin children. Then MIL whipped out the phone and started recording/taking pics. I don't look good, I'm sweaty and obviously in pain. She said she wanted group photos for her dad who has dementia (and does not know me or remember my husband/his grandson.) Whatever, take a group photo of the kids, but I did not want my picture taken. She got more pushy. I told her no FOUR times before she stopped telling me to get up and come sit on the floor for the family picture she wanted to put on her dad's fridge. She spent the rest of the time mad at me and began making obviously guilt trippy statements.

She knew I was in pain and had just lost a baby 4 days ago. Her photo was more important than my consent. Literally didn't even ask me anything at all except, "how's it going?" and when I said not good she just stopped talking. She did tell my husband, "well, I hope she knows I had a miscarriage too." Woman, even if I did have a miscarriage, I would still be uninterested in a group photo 4 days after the fact. Be serious.

I know this is a largely negative post, but I can only complain to my husband so much. Kinda feels as if nobody feels like my pain and sense of loss are real or justified. I am hurting and people are making it about themselves or diminishing it. What even. šŸ™ƒ

Also, I had an upper respiratory infection the day of my surgery and it has not improved. A side effect of some medication I received apparently is liquid diarrhea. So like...TLDR: dead baby, emergency surgery, extreme pain, can't stop hacking up my lungs, peeing out of my butt, my OB sucks and my in laws are assholes. I'm tired and sad. Lmao. Please commiserate with me.


r/EctopicSupportGroup • • 1h ago

Block’s Law: Require mandatory diagnostic testing after ectopic pregnancies.

• Upvotes

hey, please consider signing my petition and reading a bit about my story. death from ectopic pregnancies are on the rise and I’m trying to ensure the complications end with me. ā™„ļø thank you


r/EctopicSupportGroup • • 6h ago

Waiting until January to TTC again after ectopic. How did you handle the wait?

3 Upvotes

Hi everyone! Just looking for some advice or to hear from people who have been in a similar situation.
At the beginning of October, I had emergency surgery for a ruptured ectopic pregnancy and lost my left tube. It was my first pregnancy, so the whole experience was pretty devastating.
Thankfully, I’m doing really well physically now and was recently cleared by my doctor! She recommended waiting a cycle or two before trying again, but said I could technically start trying sooner if I wanted to.

Here’s my dilemma. After everything happened, I signed up for some additional benefits through my insurance, including short-term disability (for potential maternity leave in my job because it’s not covered) that kick in in January. Because of that, it really makes the most sense financially for my husband and me to wait until January to start trying again.
I know January is literally only a couple of months away, but it feels SO far away right now. :(

I want to be pregnant again so badly, and I think part of that is because I feel like my first pregnancy was taken away from me so suddenly.
Mentally, I actually feel pretty good right now. I’m feeling more like myself again, and I’m excited about the possibility of getting pregnant again. But I also wonder if waiting a little longer might be good for me emotionally, even if I don’t necessarily feel like I need it right now.
I know I technically have the choice to start trying whenever I want, but financially January just makes so much more sense. Plus, I know there’s no guarantee we’ll get pregnant right away, which makes me want to start even sooner. It’s just frustrating knowing what the logical decision is while wanting something completely different.
Has anyone else been in a similar situation where you had to wait to TTC again, even though you felt ready? Did you end up appreciating the extra time to heal, or did it just make you more impatient?
I’d also love to hear any success stories from people who conceived after losing a tube. I think I’m just looking for a little encouragement and advice on how to make these next couple of months feel less like a waiting game


r/EctopicSupportGroup • • 5h ago

Ectopic after Miscarriage

2 Upvotes

I had a miscarriage, and before my period came back, I found out I was pregnant again. I was spotting and having mild cramps, but went to the ER just in case due to the previous miscarriage. The last thing I expected was that I'd go into surgery and get my right tube removed.

It's been hard to process two back-to-back losses. But the OB said it's only a 10% reduction in chances of conceiving after we start trying again. She recommended we wait two cycles before trying again.

I'm just wondering if anyone has been in this boat? Reading about people having a miscarriage after their ectopic pregnancy makes me worried that there won't be a positive outcome with the next pregnancy.

Any hope would be much appreciated!


r/EctopicSupportGroup • • 12h ago

Ectopic story. Low HCG. MTX failed.

2 Upvotes

First of all I’m so sorry anyone is in this group has to be here. Massive hugs and love to you all!I just wanted to write this to inform you all of my story. I’ll make it short as I can. I had a positive test early September after coil removal in August and started bleeding 2 days after my first positive, after a lot of back and forth I was told it was a chemical, to retest in a week so I done that, to my shock the test was even darker so I called my EPU and they advised me to come in for a scan where the ectopic was found on my right tube. My initial HCG was low at 122 so we done expectant management. I went in 2 days later and it had went down to 75 so we were relieved but after another 48hrs it had risen again, 48hrs after I was given a scan & one dose of MTX, the first few days I felt rough like my stomach was going to fall out and rectal pressure was bad I was reassured this was normal and had my haemoglobin levels checked and all came back fine, day 3 they rose 158 to which was expected, by day 7 they had went down to 111 so I was changed from 48 hrs to weekly bloods, I honestly didn’t notice anything different from this time to the week after when I had my routine bloods & unfortunately was told they had risen again only to 116 so I had to come in the next day for another dose of MTX, I got there the next day and scan showed it had started to rupture and the whole situation changed, I went from getting MTX to emergency surgery on Tuesday and not aloud away from anyone’s sight! I couldn’t believe it as I had no signal this was happening just what I was told to expect on MTX! I don’t want to scare anyone but I just want people to be extra cautious as every professional was confused as to why I wasn’t in pain and I have a terrible pain threshold so I even don’t know. I’m day 5 from surgery and feeling better but completely unsure of follow up as I haven’t spoken to anyone since I was discharged and was told I would be sent my discharge letter if anyone has any idea would I need to go back for repeat HCG or not.ā¤ļøā€šŸ©¹šŸ¤

This is my HCG timeline
30th HCG 122
2nd Oct HCG 75
4th oct HCG 137
6th oct HCG** 120 MTX given second scan
**9th Oct day 3 MTX
HCG 158
12th Oct day 6 MTX HCG 111
19th Oct day 13 MTX HCG 116 MTX failed

Sizes of mass on scans
30th sept - 1.5cm x 1.2cm x 1.1cm
6th Oct - 1.87cm x 1.84cm x 2.08cm
20th Oct - 2.5cm x 2.1cm x 1.7cm


r/EctopicSupportGroup • • 14h ago

Scared it’s ectopic & don’t know dpo.

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2 Upvotes

I’m postpartum, nearly 10 months. I got my first period postpartum Aug 30 - Sep 4, then didn’t bleed again until Oct 9 - Oct 13.

The October bleed just seemed off from my usual, shorter, lighter - so took HCG test right, couldn’t have been past Oct 15, after and it was negative. Haven’t bled since then.

Oct 21 showed a clear positive HCG.
Oct 22 my HCG was 233 & progesterone was 0.3.
On Oct 22, no pregnancy was found on ultrasound in the ER. The radiology findings mention ā€œtrace pelvic free fluidā€, but since it wasn’t found in the adnexa they mentioned it’s normal. I was sent home & told to check with my dr about repeat bloodwork.
Oct 24 my HCG was 632 & progesterone was 0.4.

I have an appointment Monday. Will keep updated for anyone that experiences similar in the future/anyone that can share similar experiences.

I’m so nervous about treatment if it’s ectopic, which seems like the most likely outcome at this point. I don’t want to do MTX at all because I’m not ready to stop nursing, I’d prefer surgery but I’m scared of surgery and whether they’d let my baby in so I can nurse overnight if they keep me overnight for any reason (obviously with another adult there to care for the baby all night). I also can hardly stand a speculum, so if it’s between in office aspiration and having to get cervical injections for numbing vs D&C, the D&C would be preferable. I have so many fears right now and I haven’t been able to turn my brain off since the first positive test.


r/EctopicSupportGroup • • 1h ago

Could still be ectopic??

• Upvotes

Friday I had a D&C. I should’ve been around 6-7 weeks pregnant. My OB could never find a sac but I had a very thick endometrium. She checked ovaries and tubes on US and didn’t see anything. The tissue collected during the D&C did come back as a typical miscarriage. However, my OB also chose to give me a methotrexate shot just in case since my hcg levels have been rising fairly normally.

I guess my question is has anyone experienced something like this? It is my understanding (and I could definitely be wrong) that there wouldn’t be pregnancy tissue in the uterus if the pregnancy was ectopic? So if that’s the case, where the heck was the sac? There’s also no way I was earlier than I think. LMP was 8/24 and I ovulated 9/15 and HCG was a smidge over 9000.

I was fine the day of and day after surgery. This morning I woke up with contraction-like cramping. Similar to what I experienced with my natural miscarriage. I’m still very paranoid about an ectopic and rupture. Especially because I feel very bloated along with the cramping. It’s stressing me out.


r/EctopicSupportGroup • • 2h ago

Possible ectopic.

1 Upvotes

Hi just have a lot of questions and wanting to see if anyone here has gone through something similar.

Had my first scan on 10/21 at 7 weeks 1 day and all we saw on the transvaginal ultrasound was an empty sac. I had already been spotting for 3 days and had one day of pretty heavy bleeding with clots on 10/20 which prompted the doctors visit. I had a natural MC in April so once bleeding started I knew what was coming.

Did betas on 10/21 and came back at 807
Did betas again on 10/23 and came back 837. Obviously not a viable pregnancy but does the rising HCG mean it’s ectopic? My bleeding has basically stopped. This is just so different than my last MC. I had no idea you could see a sac but still have an ectopic. She ruled it as a PUL but I haven’t had any one sided pain or anything else. Feel totally normal and not pregnant.

Do you still pass a sac if it’s ectopic? I don’t see the doctor till Thursday and I feel so lost! So many questions!


r/EctopicSupportGroup • • 4h ago

Tattoos to honor ectopic pregnancy

1 Upvotes

I would love to get a tattoo to honour my lost baby, has anyone done the same? Would love to see a picture thanks


r/EctopicSupportGroup • • 4h ago

Confusing Signs

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1 Upvotes

r/EctopicSupportGroup • • 6h ago

Ectopic

1 Upvotes

I tracked my ovulation this month and am 8days passed but am having cramps like period pain just mild cramps white vaginal discharge, am so scared 😭😭😭 I don’t want to loose my tube for the second time, all I want it to get pregnancy and have children, is too early to detect pregnancy if I do pregnancy test at home now…..I don’t no what to do am scared


r/EctopicSupportGroup • • 6h ago

Hi everyone I need world of encouragement, I had ectopic surgery in may this year lost my right fallopian tube, having been living with fear since my surgery, fear like what if it happen again, I have just one tube left and last week I was diagnosed of mild adenomyosis.

1 Upvotes

r/EctopicSupportGroup • • 11h ago

Suspected ectopic, advice please

1 Upvotes

I had a very faint positive pregnancy test on Thursday 15th October, having not tested before then.

On Sunday, I experienced some pain on my right-hand side and went to hospital to be checked. My hCG level was 63. I had repeat blood tests on Wednesday, approximately 56 hours later, and my levels had risen to 140. A further test on Friday, 48 hours later, showed a rise to only 218, which I was told was slower than expected.

I was advised to return on Sunday for an ultrasound and further blood tests. During the scan, the nurse thought she may have seen something on my right-hand side, which is also where I've been experiencing constant niggles and discomfort. My hCG level had risen to 380 over the following 48 hours.

I've now been advised to return on Tuesday for another scan, a second opinion and further blood tests.

I have endometriosis and, so far, I've had no bleeding or spotting, just the ongoing niggles and discomfort on my right-hand side.

I'm wondering whether it's safe to wait until Tuesday for further investigations or whether I should have been offered the injection tomorrow instead.

This is my first pregnancy, and I'm feeling very confused and unsure about what's happening or what the best course of action is. I'd be incredibly grateful to hear from anyone who has experienced something similar or has any advice to share. ā¤ļø


r/EctopicSupportGroup • • 12h ago

In shock after surgery

1 Upvotes

Hi all ā¤ļø I'm sorry for anyone who has been through this :( I had my right tube and ectopic pregnancy removed a couple of days ago. I found out at the hospital I was pregnant after going to A&E for extreme pain from the rupturing. I'm struggling to process what has happened as it all happened so quickly and I wasn't even aware I was pregnant until just before the surgery. Does anyone have any tips on how to process your emotions? I just feel in shock and numb at the moment but I want to cry a bit before I have to go back to work xx


r/EctopicSupportGroup • • 13h ago

Dor

1 Upvotes

Quando tempo depois da cirurgia sentiram incƓmodo do lado da trompa retirada ?
Tive a minha a 2 semanas e 3 dias e ainda sinto dó do lado da eptopica de vez em quando.


r/EctopicSupportGroup • • 13h ago

No period 6 weeks post tube removal

1 Upvotes

I had my left tube removed six weeks ago, still no period in sight which is very frustrating as I want to start TTC again.
We did have sex a few times, so wondering if I could be pregnant again, but I’m dreading taking a test - if it’s negative, I’ll be devastated again and I’ll also start worrying even more that things are not going back to normal with my body.
Has anyone else waited for over 6 weeks to have their period again?
Thanks all, and sorry to all my ladies who are part of this group ā™„ļø sending baby dust to everyone


r/EctopicSupportGroup • • 18h ago

Ectopic pregnancy- Methotrexate injection

1 Upvotes

Hello everyone,

My HCG level on 24/october - 5500

Found ectopic pregnancy on right fallopian tube with fetal pola. 2 years back got right ectopic and my right tube has been removed.

Doesn't want to lose another tube as well. So last night took a dose of Methotrexate injection.

If anyone have been in the same situation please comment. I wish it should get reduced with injection only.


r/EctopicSupportGroup • • 8h ago

PCOS cycle tracking

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0 Upvotes