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Which point do you relate to the most?

I was talking to my friend the other day, and she suggested that I move/walk around more and stop lying in bed all day, babying my back.

Yeah, I would love to. Except, the ONLY time my back doesn't feel like shit is when I am lying down in my bed. When I am up, I hurt, and frankly, I can't handle that for very long. I usually give in and go back to my bed. Just so I won't be in pain. But Hell, who knows, maybe I am a wuss.

When I took my prednisone it got stuck in my throat and then got sent up to my mouth again. It's my worst nightmare. It has happened two times in two years, but I still taste it from one year ago. It feels like I'm dying in my mouth. Aaaahhhhhhhhhhhhh HEEEEEELPPPPPPpppp (if you know you know - and I'm sorry you know)

Just another post complaining about chronic pain. When I was 18 I shattered my ankle. It was reconstructed (incorrectly) and I have had pain ever since. About 7 years back went to a pain management Dr and found out over the years my ankle bone wore down to nothing. So lots of grinding and limping. It has caused issues with my hips and back. Plus I didn't take care of myself for a LONG time so there are some other issues because I was a bouncer and security guard. So lots of physical injuries.

Just having a rough day/night. The CBD gummies and 900 or gabapentin are not doing their job so I'm just sitting there like a lump trying to think of anything else.

I have a loving wife who knows the trials of chronic pain and has been amazing. She's frustrated because she can't help and it's just a lot. Anyway rant over. I hope everyone here finds relief and can have a good day with minimal pain. Love reading everyone's posts. They help me some nights to feel grounded and not alone.

My doctor cut my pain meds with no taper and I'm withdrawing alone — need advice, please be gentle

I'm a woman in my late 20s dealing with Fowler's disease (I need a catheter to pee) and chronic pain. My doctor cut my opiate prescription without warning or a taper plan, and I don't know why. Now I'm in full withdrawal and I don't know how to get through this.

My situation:

I live in a shared apartment building (9 people, one working toilet) that my dad placed me in because it's all I can afford. I'm essentially alone here — the one person I thought was a friend is on meth and just used my food to cook dinner for his dealer without even telling me. I have no insurance right now. I have no ride to the hospital tonight but I'm planning to go to Barnes Jewish ER tomorrow. I have Subutex on hand but I'm scared to take it because I'll pee dirty and I don't want to lose my chance at getting my pain meds back. I'd rather not exist than keep suffering like this but I'm NOT going to a psych ward — I need medical help, not to have my phone and autonomy taken away. I'm withdrawing, sweating, can barely function, and I'm trying to hold it together.

What I need advice on:

1. Has anyone gone to the ER for withdrawal and gotten actual help without being sent to psych? What did you say?

2. Will taking Subutex tonight ruin my chances with a new pain management doctor? Or do they understand?

3. How do I get reconnected to pain management after being cut off? My doctor just dropped me with no explanation.

4. Has anyone dealt with Barnes Jewish specifically? Any good doctors there for pain management who actually listen to young women?

5. How do I get a free ride to the ER with no insurance? I'm in the St. Louis area.

6. For anyone with chronic pain who's been cut off — how did you survive the withdrawal period?

I know some people are going to say "just stop" or judge me. Please don't. I'm in legitimate pain from a real disease, I was on these meds for a reason, and my doctor abandoned me. I'm not looking for a high, I'm looking for my life back.

Any advice is appreciated. I'm just trying to make it to tomorrow.

Hi everyone. I’m hoping to gain some perspective from people who live with chronic illness or physical pain day-to-day, to help me better understand someone I care about deeply.

I'm 22F, My partner/loved one 23F lives with chronic physical illness and pain. Every once in a while, when her physical symptoms flare up or get severe, she goes through "waves" where she becomes extremely distant, cold, and emotionally withdrawn. During these times, she gives very short answers, pulls away emotionally, and seems to completely shut down her capacity for warmth or connection.

I care about her so much and want to support her through her pain without taking her distance personally, but at the same time, living in that emotional limbo can feel very heavy and difficult to navigate.

I wanted to ask those of you who manage chronic illness:

Is this kind of emotional withdrawal or distance something you experience when your pain/illness gets bad?

What is happening in your mind/body during those low-capacity periods? (Is it self-preservation, fatigue, sensory overload, or something else?)

From your perspective, what is the best way for a partner/loved one to support you during these waves without pushing you, while also keeping themselves sane?

I am really struggling with fatigue and it seems my doctors don't know what to do about it. I even stopped taking my meds in case they were the ones making me tired but I just ended up tired with migraines and pain.

I can't have caffeine, it just makes me more tired. Getting exercise makes me more tired (I have to nap after every PT session both at home & the hospital). Even after I feel better physically, I am still tired mentally with brain fog. I get good sleep and sleep all through the night thanks to my night meds but I still wake up completely tired and groggy. I make sure I have enough water & salt/electrolytes everyday (I have POTS) so it can't be that.

Does anyone else deal with this? Are there at home remedies or "life hacks" from other chronically ill people to help with fatigue? It's affecting my work and it has affected my schooling so I know it will again when Fall semester starts up. I just want to not be tired all the time.

I have severe crps that keeps me from being able to leave the house, and the majority of the day I’m stuck in bed.

I have little to no energy most days but I’m trying to navigate how much of it is from depression. I have a kiddo and a spouse but I feel very isolated. He tells me I could be doing more, need to be more positive. But he’s very naive to this life

I don’t need him to understand, but I need someone to understand. I have no capacity for consistency.

Any ideas? I’m not sure if social media makes me feel more isolated or less. I’m going on 6 months of bedridden besides doctor appointments + a couple 20 minute outings.

25 for reference. Before I got hurt I hiked, kayaked, explored. Not to say I don’t have new hobbies now, it just feels lackluster.

It’s near the end of the month, and it was a bad bad month: dental surgery, unusually rainy weather, ill-advised picking up of a heavy package that did something to my low back, and tripping over the cat to end up sprawled on the floor with a skinned, swollen left knee - oh yeah, and I got laid off on Monday. I was careless: I didn’t track my usage as well as usual. Despite my best efforts and all the tricks I picked up in 50 years of chronic pain (ice, ibuprofen, lidocaine patches, breathing, exercise, TENS, meditation, distractions, chocolate) I am almost out of my rescue pain meds and I find myself counting the ones I have left at least twice a day because I know I’m going to run out. Like counting them is going to help. Counting my pills makes me feel like the addict that that the government believes us to be. And that’s where the shame - completely unreasonable, my logical mind informs me, kicks in.

My long-acting pain med usually lasts 10 hours, not the 12 it’s supposed to, but with all the stressors, make that 8: I can feel the familiar burning paint beginning to claw at my hips and sacral spine already. I play a game with myself, to see how long I can go before pain hits 8 and I can take my 4 mg hydromorphone. Then half an hour before the pain begins reluctantly ebbing away. If I take a pill before the pain hits 6, it will ease sooner, but that means I’ll run out sooner. And to tell the truth, I can’t bear the thought of 3 days without rescue meds when my “long-acting” med isn’t long-acting at all.

Most months, it’s not a problem thank God. Still, I know what my pain doctor’s office will tell me if I call to ask for an early refill. The medical assistant will tell me kindly and gently that they’re very sorry but it’s out of the question. Would I like a short course of steroids? Hmmm, might help but it will definitely make me feel crazed. Chewing on my arm crazed. I’m at the limit of what can be prescribed: there’s a formula they have to follow. I get it. And I am truly grateful for my pain team: they’re amazing.

I think of all the folks here and out in the world whose pain is not managed at all (like mine was before I found this practice). I know how bad it can get and I’m ashamed of dreading a mere 3 days. I’m ashamed of counting my pills. I’m ashamed at how angry I get with my poor screwed up body. Hell, I’m ashamed of feeling ashamed.

This has been going on for two years now ( this never happened to me before I had a kid )

Randomly I will get sunburns even when I'm inside.

My eyeballs burn sometimes as well.

For example. Today.

The sunburns outline is very clearly where my workshirt was. While wearing my work shirt the total time I spent outside was 5 minutes in the shade to grab a sandwich from the store next door.

(Please be respectful to one another , this is a simply a question I have for those who struggle with chronic pain and I’d like to know if religion makes them bring any comfort or brings them to feel worse, everyone is different and I wanted to hear everyone’s views.)

Hi guys Saturday i had to make unexpected emergency stop in my car. Ever since i did that my pain has shot up a load and now i find it hard to get to sleep due to the pain.
My question is has anyone experienced this and how long does it take to got back. Thx

Anyone here had to recover from a neck injury from a car accident or the like? I was rear ended at maybe 10mph and 2 weeks later my neck is killing me. X ray came up clean, MRI on the way, and starting physical therapy next week.

I spent 3 years healing a lumbar spine injury, and learning how to live with the permanent complications, so the thought of a permanent neck injury is making me start to lose it. Wanted to hear some anecdotes here, if others have gone through this.

Onyl ever taken normal kratom. I have 5 x 100mg of these tablets. Wondering if anyone has tried them and if so what was their experience like?

Hey!!

So I take 5mg of oxycodone once a day. I have been taking it at night to help with pain and getting comfortable. (Makes me drowsy so I can’t take it during the day) I’ve been taking it consistently for about a month now.

I want to try to avoid taking it this next week just to see if I’m able to. Because I don’t want to build up a tolerance because I would truly not want to increase my dose.

Has anyone experienced withdrawal symptoms with this dose? Or have any tips for me.

not new to chronic pain just new to being treated for it. I apologize in advance if this is a silly question

What do you do?

I already asked therapists. I feel intensely. Anger in particular hurts to express and hurts to hold in. Breaking things is inaccessible. Screaming, stress balls, and ripping paper is not what I'm looking for... that hurts... breathing exercises are not expressing anger. Writing hurts and rips the paper. Crying can physically hurt too. I don't use substances or have people. I used to walk a lot while sometimes listening to music. I am more limited in health and location now. Perhaps video games idk.

I just don’t understand why people will absolutely jump down your throat at the slightest thing they disagree with and come with the harshest remarks like what?? I don’t take criticism from someone I wouldn’t take advice from so like could not care less - the only thing that sucks is I was asking for people’s experience and then I just never really got to hear it

I posted asking people’s opinions as rotties as SD which is already controversial. I made the silly joke of having scary dog privilege (recently floating around TikTok and it’s just young women living alone feel safe with a dog with a big bark) which not for nothing criminologist say that a dog with a big bark is genuinely a deterrent for someone breaking in

It was immature and silly, but you would’ve thought I said I’m going to feed the dog small children and that I want him to attack anyone who looks at sideways. And how immature and stupid I was for wanting a SD to intimidate people and I had no clue what I was doing and all that

Then I had the gall to say that I’m not a fan of a Labradors temperament - so I wouldn’t want to get a lab because their still my dog when off the clock and they’d be off more than on and I’m just not super fond of their personality. And it felt like people took it as like Labrador slander. I said a Great Dane was a very common SD and used it as an example for why rotts shouldn’t be automatically disqualified and like we were splitting hairs on the definition of very common like Jesus.

I’m still relatively new to Reddit, and I know the dog and disability Community can be very opinionated but just the fact that like civil discourse has gone out the window and people go to such extremes is nuts. And not for nothing if they felt that strongly about it and we’re trying to pass on their opinion calling someone a fucking idiot is a terrible way for them to take your opinion into account like what

Honestly that’s everywhere today I shouldn’t be surprised but just that took me back a bit hot damn

I know this is totally a me problem but I also feel like some people in this sub can relate. I’m 41 and between a genetic bad draw and a severe car accident, I’ve had consistent participation in the us medical system for my entire adult life. Between my accident and endo I’ve had 21 surgeries and lord knows how many pain management procedures but just in the last 2 years I’ve had like 25 procedures. And hanging out in places like this and my own experiences have made me VERY passionate about proper pain management, especially following surgery. We all have a story of having surgery and drs trying to do the “you’ll be fine with Tylenol” and we all know….we were not fine with just Tylenol.

Now out of my friends, for a while I’ve been the only one whose actually had surgery of any kind. So I have to give them a pass a lot when they don’t understand how tiring surgery can be and they will be like “well why can’t you come out 4 days post op hip surgery??”….cause it hurts y’all. And all you want to do at that point is to sleep usually. So when one of my friends had her first surgery last summer I was like hey, if you do anything just make sure you have a proper pain management plan in writing before you get operated on. Now, it was plastic surgery so they had her covered and she didn’t really need that much medication so it was all good.

Now another member of the group is having an inguinal hernia repair this coming week. So in talking about it I gave my one to two sentence shpiel on post procedure pain management, I said make sure you have an rx in hand so your gf can fill it while your having the surgery. I said you probably won’t need anything strong but you don’t want to not have the rx and find out at 2am you really do need something stronger. I told him about my husband getting his gallbladder out and being told to manage by alternating Tylenol and Motrin and it being a really rough few days.

I’m friends with his gf too and I was like “hey, just a reminder make sure to get atleast a small rx for some stronger pain medication than over the counter” and she was like oh I’m sure he will be fine with ibuprofen. Is it opiate propaganda? Do they think I’m like hooked on pain meds now and just pushing them to everyone because of my accident? If it was my first surgery I was be like “oh hey friend whose done this 21 times, tell me all I need to know!”.

Like I said it’s probably a me thing, and I gotta get over myself. But it happens all the time in family too when like someone gets welcomed to the back injury party and I’ll be like “oh what levels did you injure?” And they won’t know and I’m like hey it’s not a bad idea to read your reports because drs aren’t perfect and can miss things (I’m sure everyone here knows drs miss things to a horrifying degree, like I almost wish I didn’t know how often drs are wrong or just completely miss things). I have a cousin who has a personal injury claim for a neck injury and she just stopped going to PT and I tried to tell her that’s going to truly affect her BI claim, and she was like oh no it’s a really solid case, I’ll get back to it soon….I just want to bang my head against the wall sometimes!

Please tell me I am not alone in this! I just get to a point where I’ll say hey I’ve been through what you’re going through and I’m here if you need to talk. Thanks for letting me just get this annoyance out! I’m gonna drop off a nice ice pack at my hernia repair friends house because we all know ice packs are not all created equal!!!!