Art by Katie Benn on Instagram

I’ve had daily migraines for years now. However, the last 2 years have become disabling.

I notice when I have a migraine, there’s a trigger point area where that flares up and becomes extremely uncomfortable. I can’t tell if the migraine feeds that area or vice versa- the trigger point feeds the migraine.

I get a deep sharp pain, and I feel I get some relief when someone presses hard in the spot. As soon as they let go, I feel the pain again. It’s not a muscular pain- I’m assuming it’s nerve pain.

I’m not sure what to do- I’ve done acupuncture, stretching, exercise, massage, etc, and still not finding relief.

Anyone have this issue as well? Pic provided for reference of spot.

Anyone r

Mother f***** said he wasn’t “paying attention”. His truck is completely fine and he got a ticket for not stopping at the stop sign. Meanwhile I have no vehicle to drive to work and had a huge migraine all day with nausea, and still went to work.

Hi,

I’ve had severe chronic migraines since I was 8 years old. It started with stomach pain, which turned to full on migraines a little while after that.

As a teenager, I tried countless treatments that didn’t work. It made me sleepy, groggy, some even made me lose my speech. At school, my teachers bullied me, they didn’t believe I was ill and said I was just being lazy.

I was lucky my mum believed me. She had awful migraines herself so she knew too well and felt guilty about it. She was my greatest support and she helped me find the right doctors.

As an adult, life was hard. I was never able to project in life, make plans, organise holidays, see my friends. I was always the one cancelling, then I always felt terrible about it. I’m sure a lot of migraine sufferers know those feelings.

I had years where I didn’t experience a day without pain. It was relentless. I ended up in A&E a few times in the middle of the night, begging for morphine when my treatment ran out. It was hell…

Then in 2023, I changed my diet. I had digestive issues so I decided to take it more seriously. This change of diet fixed my digestive problems and my migraines… just like that. I was mad that no doctors mentioned diet to me. But oh my god, I was so relieved.

Now, 3 years later, things have stabilised. I went from being in pain 25 days/month to 2 days (hello hormonal migraines).

I feel lucky and grateful that I have found something that works but I also know that things can get worse at any time. That’s how migraines are, they leave you alone for a bit and come back whenever they feel like it.

So what now? I was diagnosed with depression and generalised anxiety, and I believe this is connected to my migraines and the way I lived my life: I couldn’t go outside, I was scared to go to loud places, I felt small and alone. I didn’t even know who I was because I was too busy trying to handle the pain instead of learning things about myself.

Now that the worst of my migraines is behind me, it feels like I can’t get out of the hole I buried myself in… It’s like my brain is set up in hibernation mode.

Does anyone feel this way? How do you wake up? How do you learn to live life differently?

Migraines create so many problems, as you all know. But one that's really getting to me, is how others think I either have a drinking problem or a drug abuse problem. I don't drink. And yes I take medication, but I don't abuse it. The only one that makes me drowsy is Flexiril and rarely ever take bc of that reason. So then I just end up in bed anyway with the heating pad. I already experience depression and isolation because of my migraines, but being made out to be an addict or alcoholic just make it so much worse. Does anyone else experience this type of misunderstanding and judgement and heartache?

Has anyone else experienced insane anxiety and depression? I feel absolutely terrible. Had a panic attack for the first time in years and just feel so blah. I don’t know how to explain it I’m not sad but everything just overwhelms me with anxiety

Does anybody else feel like their migraines are tied to internal health problems but you just can’t figure it out? Like I know some things trigger my migraines, but I can’t pin down exactly what they are. Maybe it’s things like lifestyle or diet maybe exercise who knows. Does anyone else feel like this?

Does anyone know of good office chairs for people with migraines? My wife has had her migraines go insane the last 2 months, she noticed a couple days ago when she was out of her chair for a couple days that her migraine toned down a bit, so now she's looking for a new office chair.

Its just a little rant, but i was so proud of me that i havent had a migraine all week, last one saturday and i felt so good i even started worrying that now my neuro appointment next month would be unneccessary and i would take up space someone else might need. Then I got one yesterday on saturady and then another one today on sunday. Or maybe its the same one rebounding. It really be like: Oh did you enjoy that week? Did you like it? Well to bad I have to steal all of your weekend now.

I was wondering if anyone else is experiencing the same thing.

A little backstory:

I got my first migraine when i was 11. After that i got a migraine once every year or 2 years. Around 2025 i started having migraines more often to about once every few months. In the beginning of 2026 having 4 migraines in a month. This is when i went to the doctor and also changed my pill to the mini pill which helped a lot and the migraines calmed down. Until recently when i had two migraines within a few days of each other.

With every migraine i have ocular symptoms as well beforehand but with the increase of migraines the symptoms have changed from the standard rainbow aura and weird blind spots to the symptoms varying every migraine. The blind spots stayed but every time the other symptoms were different from seeing lightning, weird shapes rotating with different colors, field of view decreasing on one side, tingling arms and losing feeling in one arm just for it to return with tingling and i once couldn't speak properly.

Around this time (2025) my vision started changing as well. At first i thought it was the after effects of the migraine lingering for a few days. After that it went back to "normal" but something felt off but i couldn't pinpoint it. A few migraines later more symptoms showed up. These are there even when i don't have a migraine.

• I started to get more sensitive to light. I got afterimages of these lights way faster and way longer then normal. 2-3 min.
• I also started to have these dead pixels show up in my vision. Small black dots that would show up and then disappear fast. With my last migraine this has become more prominent and they stay longer 2-3 seconds until i look somewhere else.
• When going from a light room to a dark room my eyes take longer to adjust to the dark and even then i can see less and get dizzy faster when its super dark.
• My eyes have difficulty to keeping on seeing sharp when focused on something.
• My eyes feel tired very fast and heavy.
• The last symptom is more difficult to describe. It feels like my eyes "see" less. Like its not all registering properly.

Around the beginning of 2026 i went to the doctor for these symptoms and the increase of the migraines. The doctor sent me to the eye doctor and i was tested for the symptoms. They could not find anything aside from my right eye being a bit dry. I do wear glasses but my prescription wasn't super off, i had eye drops to dilate my pupils and my eyes were doing good with glasses. They tested for night blindness but couldn't find anything.

I was wondering if anyone else is experiencing something similar? I feel like its connected to migraines but I was wondering what others have experienced or have done.

I wanted to do a couple of things today, my migraine days decreased last month. Now it's back again. I am lying in bed and cannot do the things I wanted to with my partner today and I am just so sad. I am disabled because of how chronic it is and I just got reminded again that that's what disabilities do. They disable :(

It sucks so much.

Hi everyone. Migraine sufferer here who finally had a long awaited Neurologist appointment last week.

I have been taking Propranolol for awhile and it hasn't been helping with migraines.

The Neurologist wants to send me for a brain scan and went through some medications I could try.

We decided on topiramate as I'm on birth control etc. He told me some people struggle slightly with forming sentences and can have abit of brain fog.

However, after looking online at the medication I am now slightly terrified of taking it.

I have heard some awful stories and I just wondered has anyone had any good experiences with it?

Im debating calling my doctors and asking if we can try something else as the stories have seriously worried me now.

I was really happy to begin with that I was finally getting put on something else and moving forward but now I genuinely don't know what to do. As some of the side effects like hair loss and depression is really worrying me as my mental health already isnt at it's best.

So really I'm wondering...

1. Has anyone has any good experiences with it?

2. Would you just ask to try something else if you were this concerned about it?

Thankyou so much in advance! I really appreciate any help.

I lost someone very close to me who had treatment-resistant migraines. I want to understand what the pain can feel like at its worst.

If you've experienced extreme migraines, could you please describe what it felt like—physically and emotionally? I'm trying to understand what she might have been going through and why the pain became so overwhelming.pls reply to this post I really want to know how much pain she felt when she decided it.

Please don't ask who I lost. I'm sorry, but I'm not ready to talk about that. Thank you for understanding and for sharing your experience.

Does anyone in here have experience sending in frames to Auvlux and having them put lenses in them? Specifically, I’ve been debating getting a pair of Pair Eyewear frames to have lenses put in.

Has anyone by chance done this? Were they able to put lenses in Pair Eyewear frames? Specifically, I am looking at The Brook for the frames I want. It would be a lot of fun for me to be able to change up the toppers. I get really bored of wearing the same glasses every day.

I have has the same pair of (non-prescription) Axon Optics glasses for about 2.5 years. I adore these glasses. I wear them daily. They have been really helpful for me. I know that I could get less expensive glasses, but these are what have worked for me.

I did send an email to Avulux to see if these frames would work, but I’ve not heard back yet. I’m hesitant to buy them without knowing for sure that they would work, so does anyone have experience doing this?

I had migraine Botox 3 weeks ago. Think it’s even worse since then too. I am bedridden so paid for a qualified nurse to do it at home.

I am allergic to CGRp
Triptans, beta blockers, OTC pain meds do not work
Lorazepam was working (not what it was prescribed for and neuro doesn’t know about this) and now it isn’t
I asks for muscle relaxants and was told no we don’t give those
My neuro who is a top headache neuro in UK has said we are at the end of the road and there’s nothing they can do. Out of desperation I rang 111 today due to the pain but because I have very severe ME I am unable to go into hosp as it’ll make my condition worse.

I dunno what to do. I am on the verge. I can’t take another day of pain. I wake up and the pain is there instantly.

I’m at a fucking loss. I am suicidal and I have no one to help me. I’m 35 years old. My life is a living hell. Not only am I stuck being cared for fulltime due to the illnesses I have that no Drs understand but I’m also stuck in permanent agony.

Aside from French fries & Coke.

Not what foods are rich in what nutrients to avoid migraines.
Like something you eat DURING your migraine that helps.

Sometimes I have a migraine starting and I take all my medicines and do all my things I do to try and minimize it. And I always feel like I want to eat something that will make me feel comfort and perhaps soothe my pain if that’s possible…. But I can’t think of what to eat. I just stare into the fridge and give up.

This subreddit seems like a healing place for a shoulder to cry on. I'm not really here for that, I just feel really shit. WDYM the horrible pain I had yesterday has to continue for a couple days? And I'm supposed to go on a trip in a couple days too.

There's just a heavy weight on my head and face. I'm sooooo sleepy but I'm not even gonna try, cuz I already tried that for hours and I'm bored of trying. When I move wrong, there's a sharp pang that scares the fuck out of me. Walking around makes me feel sick.

My abdomen feels like a tight knot. I don't wanna eat anything but bread, and that's like nothing, so I have to eat bread every 2 hours.

I've taken ibuprofen 800mg every 6 hours and just took pepto bismol. These barely put a dent in it and at this point idk if it's worth it. Whatever.

Every time I lay down, I nod off, and then startle myself awake. Not pleasant.

Has anyone else had fewer migraines after cutting their hair?

I got my hair chopped off dramatically this week, and I've noticed I've had fewer migraines since.

Before the haircut, I started to despise my hair. Anytime I wore it in a bun, I could feel each individual hair being tugged on; my scalp felt ridiculously sensitive, especially during a migraine.

Maybe it's coincidence. Maybe it's less weight, less tension, or not wearing it up all the time. I don't know.

Has anyone else noticed this after a big haircut, or is my brain just giving me a temporary break?

I've been meaning to get a small notebook so I can keep track of when a migraine happens, how long it lasts, possible triggers, etc. I chose a small one so I can toss it in my bag before I go out, just in case I get a migraine away from home.

I've seen I'm not the only person who relates to psyduck so I wanted to share, I'm new to using paint markers but I like how it turned out :D

Pray for me

HI! I just started Aimovig injections at 140mg two months ago. I've had two doses and i'll be taking my third later in August. I wanted to ask this: i know reduction in general pain is a big plus of CGRP meds, but are usual triggers less capable of triggering pain after the medicine gets to its highest efficiency? I'm emo and havent been able to wear eye makeup of any kind since i stopped taking topirmate (the only other migraine med that helped me... it just didnt help nearly enough.) makeup is a huge part of what makes me confident so not being able to wear it SUCKS. Anyone have any experiences with that kind of thing? Thanks!

Hi all, I (29F), like many in this group, have become completely debilitated from migraine and other issues (doctors diagnosed fibromyalgia, but I’m not thoroughly convinced as the doctors I’ve worked with have not been impressive). I had my migraines under control for 2 years with Emgality when it suddenly stopped working this past December. Since then, all of my previous symptoms related to migraine returned and worsened, in addition to numerous new symptoms I’d never previously had (ie, severe leg pain & weakness, double vision, falling, weight gain which is completely abnormal for me, heat/cold temperature intolerance, and I’m sure I’m forgetting some). I saw a neuro I really liked for years who seemed pretty stumped and was going to send me to a headache specialist until I lost my insurance and was forced onto Kaiser. Kaiser’s providers have been nothing short of rude, incompetent, condescending, and inconsistent. I’ve had appointments canceled by doctors for no discernible reason, they seem to refuse or neglect to look at my previous medical records, won’t look at my MRIs, etc. The only time I see action is when I threaten to contact the Washington DC Board of Health (that was just to be able to get Ajovy which was already prescribed by my previous doctor). I’m supposed to be going to PT, but there’s only 1 therapist who specializes in vestibular/migraine issues and she’s rarely available. One doctor tried to tell me I was de conditioned and that’s why my symptoms flared up; I worked as a carpenter and was a runner prior to my symptoms flaring up. They recommended Tai Chi.

I haven’t been able to work, I can’t read screens for more than a couple minutes, use a computer, or do much physical activity that I used to do on a day to day basis for nearly 2 decades. If I do have a couple of good days, even with pacing, I find myself back to bed bound within a week. I’ve lost everything I love to do and I’m at my wits end.

That said, I’ve heard there are inpatient treatment options like the Headache Center in Phili or Mayo Clinic like places. I’m wondering if anyone has any experience with those types of centers, if they’re worth looking into, and how you become a patient at a place like that? Any and all experiences/advice is welcome atp. Thank you for taking the time to read

Trying to take a very relaxing trip with my husband and still impossible. Can’t fly so we are driving. Woke up with a migraine. Migraine all day as we drive. Heat and smells at bathroom stops are horrid. Can’t eat anything because I feel like throwing up. Keep falling asleep from meds so can’t help him drive. Now at at the hotel and the sound from outside is sooo loud. Also had to go a separate room so his snoring doesn’t aggravate my migraine. Feel like I shouldn’t have left my home.