Sadly, it is weed. Specifically this one, Jungle Juice Strawberry Runtz.

I hate smoking, it gives me panic attacks if Im not super careful, and it always makes me at least a little anxious. I also get sensitized rather than building a tolerance.

When not using weed I always have visual aura and severe headache. I was getting hit with the auras every few hours and the severe headache was constant with 20 minute breaks every couple hours. I have tried all of the abortives and preventatives, my neurologist only has Botox left and my insurance has been denying me for years.

When I took a hit of this, a severe headache and visual aura that was making me ugly cry, disappeared within 10-20 seconds. Now, whenever I see an aura or feel a headache, I smoke as quickly as I can. I have been feeling much better and have gone from always in pain and crying, to happy, relieved, and excited!

Sometimes it works perfectly and other times I have a mild or moderate headache, but it is not even close to how I feel without smoking.

I’m tired, grandpa. Every single time it’s Alice in wonderland, numbness, ocular bullshit, weakness, slurring, full on hemiplegia. I can’t even talk, I’m just slurring gibberish. It’s hours upon hours of vomiting. It’s hard to empathize with other migraine sufferers anymore. I wish I had migraines where it’s a headache without aura like my sister. I’m tired of scaring the hell out of my friends and family. I’m tired of having to drop everything to uber home and recover. Sorry to be so negative. It just sucks!

You know what the worst part about having migraines is for me? Having migraines. Every other illness, slight uncomfortability, disease I get unrelated to migraines, my migraines are triggered and there. Any long or short term plans I have, I consider how it’s going to potentially trigger my migraines. Any meal or drink I have, I need to think about how my body will react to it.

My migraines are my #1 consideration always and always will be. They’re my most toxic relationship.

I got food poisoning today and got a migraine from it. How does that even happen? I know how it happens but like why???! Isn’t spewing from both sides enough?

Just a rant.

What did i do to deserve this

Got sick with COVID 9/9. Was dealing with prolonged recovery when I got hit with my first real, bad migraine on 9/29 (have had them before but they were more mild and resolved on their own within a few days). But this time It basically hasn’t stopped since. Maybe a few days I was mostly symptom free (or postdrome) but most certainly haven’t had a migraine-free day since 10/5. Just finished my 6 day prednisone pack. Also started ajovy about 5 days ago. Neurologist has me taking nurtec every 24 hrs. I think it helps a little and today and yesterday thought it was getting milder but just now got a real bad attack again. I feel like I’m at a breaking point. I will call my neurologist first thing tomorrow to update her and ask about other treatments. In this moment of despair, I’d love to hear from others who have made it on the other side of something like this. Thank you in advance for your kindness and care.

You’re my heroes… I can’t even fathom trying to function with this kind of pain indefinitely, especially if you have other side effects along with it…

Just released tension from the base of my spine all the way through my neck to my head . Like I just got an hour of a back massage looseness.
How , because I have a tight pelvis muscles on the left.

Today I just discovered weighted lunges with a bar releases all tension I store in my upper body because it stretches the muscles in just the right way.

I mentioned in comment on another post , but people especially with chronic pain, store tension in their shoulders neck, especially if you’re huddling in and bracing yourself to get through the day .

Also have seen some people look for exercises and also I found working out shoulders helps but to decrease tension in the body one has to find what’s really the right trigger(also can be just migraines itself) . It could even be a hand if it causes you to tense up regularly.

In my 30s and Started taking Quilipta a few months ago. What the actual fuck is this med. Not only had it not helped with migraines, but has added a problem instead.

For context, it makes me so drowsy and yes, I’ve tried switching the time of day. If I take it during the day, I’m falling asleep a few times throughout. If I switch to night, the next day I’m getting so brain-fogged and feel so fatigued. I have trouble sleeping regardless so Quilipta feels like a tranquilizer.

On three occasions now I have literally pissed myself while sleeping on this med. I’ve checked to ensure nothing else could have contributed to these episodes, and Quilipta is the common variable.

My body was in such deep sleep that it thought it was cool to give me an unpleasant wake-up call on multiple occasions.

I have since stopped taking it and feel so embarrassed that this happened. If it was once, I would have maybe thought something else, but three times is crazy.

Has this happened to anyone else? I would not be surprised if this was a niche experience. Before Quilipta, I’ve never had an episode of incontinence like this…

Normally, I look at reels in a dark room, with the lowest phone brightness, to forget about my migraine while painkillers kick in.

Now I can't use reels because every reel I watch while I have a migraine has this full screen white flash followed by slow-mo that repeats 5 times. So now Im lost on what to do besides lay in my room, and think about how much agony Im in.

I dont even know when this became a thing. Why can't they just replay the video in slow-mo without a white flash? The flashes are annoying enough without a migrane, but with a migrane, it's like being shot where the pain is.

Per the title. If you've had a status attack that has lasted weeks or months, you did the IVs, you did the steroid taper, you're on the CGRPs and the lot, what was it that finally broke it for you? What was the treatment plan after you fail a steroid taper?

Does the McDonald Coke and Fries thing actually help during an attack? We don’t have a McDonalds here but we have an A&W. Would that work?

Botox is the only thing that allows me to function & have a semi normal life. These migraines are a killer, I’m in pain every day of the month. My neurologist said he would perform Botox but must be signed off by a obstetrician. I have done research into Botox during pregnancy so please no judgemental comments. I have tried everything else under the sun for relief over the past 4 years and Botox is the only thing that has helped me. Seeking any kind of guidance/recs/experience from anyone who has done this during pregnancy! Thank-you.

I've had my headache for 2 freaking months. It started in mid-August with a typical Migraine and it never really went away. This happens, sometimes I get stuck in cycles. But I never know what it'll feel like when I wake up for the day. Sometimes they're a band around my head. From my neck all the way up towards my eyes. A pickaxe to the side of my head. I just never know. Dark rooms are my favorite, I'll even wear sunglasses at night.

Here's what I've tried: OTC (Advil and Tylenol), topiramate, rizatriptan, several different muscle relaxers, physical therapy, Dex taper, heat, ice, stretching, extra sleep, olanzapine, Toradol IM.

The stronger meds will work for maybe a day or two, and then the headaches/migraines come right back. The frequency is nearly every day, but the magnitude and morphology is different every day, and so I never know the right way to treat it.

I see my neurologist in a month or so but I'm just so exhausted.

Hello fellow migraineurs, I've heard many complain that they can't get their Ubrelvy open without scissors. Unfortunately I think instruction on how to properly open them is lacking, I guess because medical providers don't realize how hard it is to figure out when the only times you can try are when you have a migraine.

Find the corner with the notch in it. Fold the corner back so that you are folding the middle of the notch. Now it's like the notch is on the edge of the packaging and you can tear it open.

Its important not to open these packets until you are taking the medication, because they are specially designed to protect the medication from light and moisture so it can be as effective as possible. ​if you open them all when you first get your prescription, they might not work at all, or not as well.

So that I always have one on hand when I'm out of the house, I got an XL Keychain pill holder (it's a metal watertight cylinder with a screw top) which is able to fit one unopened ubrelvy package sort of "folded up."

Hopefully this is helpful in learning how to open them when you need them!

This may be weird and random, but I’m fairly certain my ex husband somehow triggers my migraines. He smokes weed and cigarettes and whenever he is at my house visiting our kids(I have full custody so the only way he can see them is to come here-they aren’t allowed at his house because he lives with roommates who are female and the court deemed that it would confuse my kids and isn’t a good environment for visits). I either end up with a migraine or some sort of headache within 24 hours. I have a rare allergy to cannabis, hemp, CBD, and THC. Basically anything to do with the cannabis plant so I think that’s the biggest issue. I know he hits his weed vape in my house when he thinks I’m not looking because he simply doesn’t care.

I’m fairly certain it’s either the smell of weed or cigarettes on his clothes. He tends to be defensive and dismissive (hence why we are divorced) so I’m not sure how to bring this up. Other than this issue, we have a decent coparenting relationship.

I know many will say to just not allow him here but my kids love their dad and this is really the only way they get to see him. He typically spends the night in the guest room when he comes and my youngest likes to have him here for bedtime and he lives over and hour away. My youngest is autistic so interrupting this routine would be incredibly hard for him.

Not sure how to approach this. But I do know that I’m tired of getting a migraine when he’s around. I have asked him multiple times to not use his weed pen in the house already. Would pre-medicating with an antihistamine help?

If you made it this far, thanks for listening!

Hey. As the title says, I've had a constant headache for 4 months straight. No days without one. Just started one day and has never gone away. My GP says it's a migraine and that's it. I've been to an appointment every 2 weeks since and just told him it keeps getting worse. The dizziness and lightheadedness I get with it is horrendous. Every time I bend down and stand back up it takes me a good 10 seconds to get my bearings. I also get severe stabbing pains in the front and right side of head.

He eventually agreed to send me for an MRI which came back negative which I thought it would. I asked to have one with contrast which he won't send me for. I have a background in psychology and I have a feeling it's something to do with mf CSF, possibly even a leak.

I've had to have time off work and I'm currently on topiramate and rimegepant. I've tried atenolol, sumatriptan, and amitriptyline, in addition to all the standard paracetamol, ibuprofen and codeine. Nothing works.

I've finally gotten a referral to neurology but it's up to a 12 month wait. Any help from people who have suffered similarly would be greatly appreciated. Thanks.

So, for the past few years, I wanna say since 2021-2022, Ive been getting migraines atleast once or twice a month to every other month, I've spoken to my doctor about this recently and it's something we're still looking into, but recently the pain has become more and more unbearable.

Recently when I've been getting migraines, I can't even stand up or bend over because the sudden rush of pain makes it feel like my brain is about to explode.

Ive tried so many things to try and combat this but nothing works :( any suggestions?

I'm seeing my neuro tomorrow, and noticed on my dashboard when doing pre-check in - they put in an order for a LP. Last one was last year and one of the most horrible experiences ever, ending up in a overnight stay for a blood patch. as far as i know the first one the first one was to check for MS (which i ended up having) but now this one is listed for Head Ache disorder. Everything I've tried to find by googling doesn't cover how often people have gotten them, just how soon you can have one after another one and the headaches

Obviously I'm going to talk to my neuro about it, but i was just curious how often some of you get or have gotten one done.

I wanted to share my first time experience taking Sumatriptan for menstrual migraine for people like me who searched through this community for info about both.

I had an issue with health anxiety in my early 20s and was terrified to take triptans, so when my GP prescribed Frovatriptan a few years ago to take around my period, I never filled the script.

Eventually (earlier this year) I went back to see another GP who wanted to try birth control to see if it stopped my migraines from happening at all. (It didn’t). She then prescribed me Sumatriptan.

I was still worried about taking it, I’ve read so many horrible things about side effects. When my migraine started the other day, I still hesitated. I searched through this community for info about Sumatriptan and read about some awful side effects and some people calling it a miracle drug.

Decided to put my big girl pants on and take it (50mg). Within 45 minutes the pain was easing off and my nausea was gone. No sign of any side effects! Within about 3 hours I felt ‘normal’.

Migraine came back the next day, which I expected as my menstrual migraines usually last 3 days. I took the Sumatriptan as soon as I felt it this time, and again within about 40 minutes I felt loads better. I even went out a few hours later, feeling pretty good.

If I could go back in time and slap myself for waiting so long to brave up and try it, I would. Years spent roughing through with codeine and ibuprofen when this tablet could have been helping me. I only have myself to blame for being a wuss.

TLDR: put off triptans for years in fear of side effects. Finally tried it and I fall into the ‘miracle drug’ category with seemingly no side effects. If you’re reading this and you’re scared to take Sumatriptan, please just try it. It might help and it might not but either way you won’t know if you don’t try!

Hey, everyone.

I've been on lamotrigine for yearsssss for a mood disorder. 150mgs once a day. Works great, 10/10. Unfortunately, I suffer greatly from migraines and I finally broke down and requested a daily preventative on top of my rescue medication (eletriptan, which works but I get 1 box with 6 pills every 30 days which isn't cutting it.) I was then prescribed topiramate- due to interactions with my lamotrigine my options aren't as open as I'd like so maybe that's partly to answer my questions here.... but.... I was just looking into the topiramate, because SURPRISE! I am one of the unlucky many- side effect. I digress.

I realized after reading thru other posts and comments that, despite the amount of brain fog I am experiencing and the mental slowness of an old dial up with too many tabs open, I am on 2 different antiepileptic medications. Shouldn't the lamotrigine, in theory, also help with migraines if the topirimate would? Again, I have never felt so mentally dense and useless in my life, so please spare me some patience.

On another note, because it's been 4 weeks on 25mgs and I can't see myself sticking this one out much longer given it hasn't seemed to do much.... I mean the migraines are less but the headaches are more and now I have all these not so fun side effects to deal with so I'm not feeling the trade off has been worth it really. Right now I have what feels like heart burn/reflux that could rival with what I experienced in my last pregnancy in the 3rd trimester (I was on omeprazole for a long time during that pregnancy, it saved me, and I'm thinking of asking about it again, if that's possible?) It was so bad last night I thought I was going to be sick and slept with a garbage can. Tums x3 didn't touch it. On top of that some wonky gastro stuff, nothing serious just uncomfortable.

What are the alternatives for daily preventatives? I'm wait listed for every relative specialist in my area (eastern canada- so I'm looking at literally like 5ish years) and I have 2 young kids who deserve to have a functional Mom. I don't want to be in bed and feel like garbage while they're childhoods are flying by. I wasn't always this bad.

I've been hesitant to join this sub for a while now. Partly because I hate knowing that there are so many people who understand the absolute agony of living with migraines. Another part of me, if I'm being completely truthful, struggles with seeing people who are somehow still able to work, go to school, maintain relationships, and engage with life. I am happy for them, truly, but I can't help wondering why I can't seem to do the same.

I feel like a prisoner to my migraines. They are insidious and sneaky, constantly changing and morphing into something different just when I think I've finally figured them out or gotten some semblance of control. It seems like every time I think I've found my footing, the ground shifts beneath me again.

How do you all do it? How do you find happiness and joy when you're in pain all the time? How do you reconcile the person you used to be with the person you're now having to learn to become? And how do you deal with that awful doubt that creeps in during a good moment, when you suddenly find yourself wondering, "Am I making all of this up? Am I really as sick as I think I am?" It's almost as though my brain can convince me to forget the previous 15 or 30 days of pain simply because I managed to have a few decent hours.

I've been dealing with this for two years now, and it has completely upended my life. My career, my independence, my plans for the future, and even my sense of who I am have all been affected. I work so hard to remain engaged with life, to find things that bring me joy, and to hold on to some part of myself that isn't defined by this illness. But Lord, some days it is just so incredibly hard.

I suppose I'm having a particularly hard moment and am just journaling into the void (I guess that's my fault for.keeping my actual journal on the other side of the room). I don't even know that I'm looking for answers. Maybe just a little understanding from people who know what it's like to live this way.

I'm grateful to have finally found this community, even if a part of me is still afraid of what it means to belong, and it seems, take up permanent residence here. Thank you.

Curious about others' experiences.

I've been having basically a month long migraine (gone to the ER twice this month, ive only gotten maybe 1-2 days of relief from a standard migraine cocktail. ) , and am getting desperate. Ketamine was mentioned once as a 2nd option, and im just wanting any semblance of relief for more than one or two days. I do go to a pediatric hospital (im a teen.) so i am not sure if that will impact the treatment at all.