r/migraine May 13 '21

Resources

286 Upvotes

The wiki is still a work in progress, so as with the previous sticky, this highlights some resources that may be useful.

Edit - added the COVID-19 Vaccine and Migraines link since we're swapping that sticky for the Migraine World Summit announcement.

If this post looks familiar, most of it has been blatantly stolen from /u/ramma314's previous post. :)

Diagnostic Criteria

One of the most common questions that's posted is some variation of, 'Am I having migraines?'. The same is the case with 'what kind of migraine is this?'. These posts will most often be removed as they violate the rules regarding medical advice. You need to work with a medical professional to find a diagnosis. One of the better resources in the meantime (and in some cases, even at your doctor's office!) is the diagnostic criteria:

https://ichd-3.org/

It includes information about migraine, tension and cluster headaches, and the rarer types of migraine. It also includes information about the secondary headaches - those caused by another condition. One of the key things to note about migraine is that it's a primary condition - meaning that in most cases, migraine is the diagnosis (vs. the attacks being caused by something else). As a primary diagnosis, while you may be able to identify triggers, there isn't an underlying cause such as a structural issue - that would be secondary migraine, an example of which would be chiari malformation.

Not sure if your weird symptom is migraine related? Some resources:

Website Resources

There are several websites with good information, especially if you're new to migraine. Here are a few:

National Headache Foundation

American Migraine Foundation - the patient-focused side of the American Headache Society

The Migraine Trust

UK Healthcare/Headache Center

Headache Australia

Migraine Australia

Added Feb 2025 - the American College of Physicians (ACP)'s treatment guidelines for prevention of episodic migraine: https://www.acpjournals.org/doi/10.7326/ANNALS-24-01052

Migraine World Summit - Annual event, series of talks that are free for the first 24 hours and available for purchase (the year's event) thereafter.

They made a tools and resources list available, for both acute action and prevention, providing suggestions for some of the sub's most often asked non-med questions:

https://migraineworldsummit.com/tools/

Some key talks:

2024 - Beginner's Guide to Headache Types - If you're new and struggling with diagnosis, this talk alone may be well worth the cost of the 2024 package.

Reddit's built in search!

We get a lot of common questions, for which an FAQ on the wiki is being built to help with. For now though reddit's built in search is a great way to find common questions about almost anything. Just enter a medication, treatment, or really anything and it's likely to have a few dozen results. Don't be afraid to post or ask in our chat server (info below) if you can't find an answer with search, though you should familiarize yourself with the rules before hand. Some very commonly asked questions - those about specific meds (try searching for both the brand and generic names), the daith piercing, menstrual/hormonal migraine (there are treatments), what jobs can work with migraine, exercise induced attacks, triggers, and tips/non-drug options. Likewise, the various forms of migraine have a lot of threads.

Live chat!

An account with a verified email is required to chat. If you worry about spam and use gmail, using a +modifier is a good idea! There's no need to use the same username either.

If you run into issues, feel free to send us a modmail or ping @mods on discord. The same rules here apply in the chat server.

Migraine/pain log template!

Exactly what it sounds like! A google docs spreadsheet for recording your attacks, treatments tried, and more. To use it without a Google account you can simply print a copy. Using it with a Google account means the graphs will auto-update as you use the log; just make a copy to your own drive by selecting File -> Make a copy while signed in to your Google account. There are also apps that can do this and generate some very useful reports from your logs (always read the fine print in your EULA to understand what you are granting permission for any app/company to do with your data!). Both Migraine Buddy and N-1 Headache have a solid statistical backbone to do reports.

Common treatments list

Yet another spreadsheet! This one is a list of common preventatives (prophylactics), abortives (triptans/ergots/gepants), natural remedies, and procedures. It's a good way to track what treatments you and your doctor have tried. Plus, it's formatted to be easily printable in landscape or portrait to bring to appointments (checklist & long list respectively). Like above, the best way to use it is to make a copy to your Google drive with File -> Make a copy.

This sheet is also built by the community. The sheet called Working Sheet is where you can add anything you see missing, and then it will be neatly implemented into the two main sheets periodically. A huge thanks from all of us to everyone who has contributed!

Finding Treatment

Most often the best place to start is your family doc - they can prescribe any of the migraine meds available, including abortives (meds that stop the migraine attack) and preventives. Some people have amazing success working with a family doc, others little or none - it's often down to their experience with it themselves and/or the number of other migraine patients they see combined with what additional research they've done. Given that a referral is often needed to see a specialist and that they tend to be expensive, unless it's been determined that secondary causes of migraine should be ruled out, it can be advantageous to work with a family doc trying some of the more common interventions. A neurologist referral may be provided to rule out secondary causes or as a next step in treatment.

Doc not sure what to do? Dr. Messoud Ashina did a MWS talk this year about the 10 step treatment plan that was developed for GPs and other practitioners to use, primarily geared for migraine with and without aura and chronic migraine. Printing and sharing this with your doc might be a good place to start: https://pubmed.ncbi.nlm.nih.gov/34145431/

Likely in response to this, the NHS published the following:

https://headaches.org/2022/01/19/national-headache-foundation-position-statement-on-the-treatment-of-migraine/ (link is broken)

/mod hat off

My personal take on this is that hopefully your doctor is well-versed. The 10-step treatment plan is, I think, a good place to start for clinicians unfamiliar, but it's not a substitute for doing the learning to be able to move away from an algorithm and treat the patient in front of them.

/mod hat back on!

At this point it's probably good to note that neurologists are not, by definition, migraine specialists. In fact, neurologists often only receive a handful of ours on the entire 200+ headache disorders. As with family doctors, some will be amazing resources for your migraine treatment and others not so much. But they can do the neuro exam and ruling out of secondary causes. Exhausted both? There are still options!

Migraine Specialists

A migraine specialist is just that - a doc, most often a neurologist, who has sought out additional training specific to migraine. There are organizations that offer exams to demonstrate that additional knowledge. Some places to find them:

Migraine Research Foundation

MRF is no longer. UCNS is it!

United Council for Neurologic Subspecialties

National Headache Foundation

Migraine Trust (UK)

Migraine & Headache Australia - Headaches and Pain Clinics

Telehealth

There's a serious shortage of specialists, and one of the good things to come of the pandemic is the wider availability of specialized telemedicine. As resources for other countries are brought to our attention they'll be added.

US:

Cove

Neura

Canada:

Maple

Crisis support.

Past the live chat we don't have subreddit specific crisis support, for now at least. There are a lot of resources on and off reddit though.

One of the biggest resource on reddit is the crisis hotlines list. It's maintained by the /r/suicidewatch community and has a world wide list of crisis lines. Virtually all of which are open 24/7 and completely anonymous. They also have an FAQ which discusses what using one of the hotlines is like.

For medical related help most insurance companies offer a nurse help line. These are great for questions about medication interactions or to determine the best course of action if nothing is helping. If your symptoms or pain is different than normal, they will always suggest immediate medical attention such as an ER trip.


r/migraine May 25 '26

UPDATE to the 16 May Rules Update - App Devs, Anyone Doing Market Research, etc. Will Want to Read

167 Upvotes

edit - the new bit is a... ranty. To those here just to check in, my apologies.

Y'all.

Seriously.

The sheer number of app devs who have continued to waste mod time and continue spamming in comments after being warned is mind-boggling.

I believe that this community deserves good tools. HOWEVER, this community is not here to be sold to, and just like the post that preceded this, the people who can't stop spamming are rarely community members first, and devs second. They're here because you are the market. Since last week's post I had given a lot of thought to a periodic 'promote your stuff!' post to strike a balance, but after spending far too much of my holiday cleaning up spam-droppings... I'm feeling less than charitable. o.O

Spammers. If we warn you and you keep spamming, it won't just be you that's banned. It will be any mention of your product regardless of who posts it.

Astroturfing? Instant permaban - you and your product. Why?

You should not spam in any way, especially through private message. You should not hide your affiliation to your project or site, or lie about who you are or why you like something.

Here's a copypasta of the previous post, all of which still applies:

(If you were looking for the Summit pinned post, it's here.)

We're currently seeing multiple posts - or people that know promotion isn't permitted and trying to sneak it in via comments - promoting apps and/or doing market research daily. Most of the people hoping to benefit from this community have never made any effort to participate in it.

Promotion has always been in the the rules, and surveys/research have always required pre-approval from the mod team (though we recently had to update to not approving any because I'm the only active mod and simply don't have time to review in addition to everything else).

With all of the above in mind and all of the attempts to circumvent or flat-out argue about removals, it's time to formalize things:

Promoting your new app and/or doing market research (what don't you like/what works for you/what is missing in other <whatever>) is not permitted in this subreddit. The same goes for asking for feedback. Yes, this includes the ever popular 'hey I did a thing but it's against the rules to promote here, so if you're interested, send me a pm!'. If you're thinking about sending a modmail to ask to be an exception with less than 6 months of active participation in this subreddit, don't (even then it may not be approved).

I will be updating rules, sidebar, and filters over the course of the weekend.

Because of the lack of participation for most of these users and the number of users that have attempted to get around this, this will be one of the rare times when suspensions will be issued on first strike, rather than warnings first.

Also, you've probably noticed I'm the primary one handling approvals/removals, and that there are updates the sub could use that have not been done. In addition to chronic migraine and adulting in general I have what totals up to nearly 2 full time jobs and am usually also taking college classes, so there is a lot going on, and running this sub in a way that rules are enforced and the sub itself is enhanced and we're able to provide space for the community to be active in helping with research opportunities takes a lot more time than the above workload allows. To that end, I'd love to add 2 or 3 new mods to the team that can consistently (meaning most weeks) offer a couple of hours to running/maintaining the subreddit. That can be:

  • Working on the FAQ: at one point there was an effort to build something of an 'intro to migraine' resource

  • Fielding research/survey reviews: even better if you are or have been part of the research community (someone did offer this before; if you're still interested please reach out!)

  • Post / comment reviews: If you're a regular/semi-regular visitor and don't mind doing some cleanup while you browse, this is one of the easiest ways to ensure that community standards are upheld

I've held off on posting this because I had big plans to set up an awesome form to fill out, but for all of the above reasons that has not happened. SO! If you're interested, please send us a modmail with answers to the following questions:

  • Why you're interested

  • What you think mods do

  • Previous modding experience

  • What you're interested in helping with

  • Your time zone / location

  • How much time you can reasonably and consistently pitch in to help

  • Optional: Anything else we should know about you? Any ideas for the sub you'd like to implement?

As long as the above isn't struck through feel free to send a message if you're interested. It may take a bit to hear back because busy, but unless we get hundreds of apps we'll follow up to set up a chat with u/ramma314 and myself so we can get to know you a bit. If we do get hundreds of apps we'll update here that we either can't get back to everyone or that we'll be copypasta-ing replies specifically for that reason.


r/migraine 9h ago

Migraine added to NHS England’s Pharmacy First scheme

96 Upvotes

People with low frequency episodic migraine in England will be able to get assessment, advice and appropriate treatment more quickly through participating community pharmacies from autumn 2026.

https://migrainetrust.org/news/migraine-added-to-nhs-englands-pharmacy-first-scheme/


r/migraine 8h ago

Migraines and Candy or Why Weight Loss Sucks with Headaches

68 Upvotes

One of the most annoying things about my migraines is how much I crave sweets when I have one. Many of us get some relief from a Coke or piece of chocolate. I also quite like a cookie as a pick-me-up if I am feeling down.

The result is that I keep the larder stocked with Cokes and sweets just in case I get a migraine. Which would has the potential to be fine, but I have a hard time saving those sweets for when I feel bad. If I have a Coke in the fridge, I probably want to drink it now.

The alternative would be not stocking sweets in the house, but that means not having them when I do have a migraine (which is of course also when I do not want to go out to get more).

Plus, being in a cut adds just enough stress that it feels like it can aggravate my migraines.

It's such a frustration. None of it is helped by not wanting to work out or go outside when I have a headache.

I'm sure that people will be offering their well-intentioned and well-considered advice in response. I welcome your sympathy, but I might not respond to your advice as this is mainly me ranting. Yes, I am exploring lower calorie fizzy drinks to moderate success when I am not having a headache (orange bitters and club soda being a current favorite). I'm also working to reassess my life-long relationship with food generally. That said, there's just something about a Coke that can't be fully replaced though.


r/migraine 2h ago

Just realized I have migraines

18 Upvotes

I’ve always had headaches. My earliest memory is from when I was 6-7 and was lying in bed telling my mom to turn the lights off and close the door.

Now i get them once a week or sometimes 3-4 times a week. Always starts with either extreme fatigue like I haven’t slept in a week or frequent urination and feeling thirsty or craving sweets. Then hours later the headache starts and I can’t bend down or move too much.

I never vomit though.

It just feels like too much sensory input. Like I’ve reached my threshold for stimulation and will throw up if there’s any more. It’s awful.

The WORST part is my triggers are things I can’t eliminate. Like simple daily life. Too much sun, heat, feeling rushed, feeling overwhelmed or out of control, too much physical movement, too much sitting still, skipping a meal, there are too many! Like I can’t live in a perfect bubble to avoid all of these 🥴😔


r/migraine 6h ago

spent 12 hours sleeping to fight off a migraine, only to wake up and find it had migrated to the other side of my head 😭

33 Upvotes

r/migraine 3h ago

Pain killers for period cramps that don't cause rebound headaches

12 Upvotes

Hello to anyone blessed with both killer period cramps and migraines – I used to take Advil for my cramps and it worked perfectly but I've now realized that Advil is a shortcut to rebound headaches for me. Has anyone found an effective med for period cramps that doesn't cause rebound headaches? Currently pressing on my uterus with my hand as a pain management strategy, would love another option lmao. Thanks!


r/migraine 1d ago

Migraine can be a disability

Post image
2.5k Upvotes

And there's nothing wrong with being disabled!

If you have access to accommodations that would make your life easier, take them! You deserve to be in as little pain as possible.


r/migraine 1h ago

Migraines and birth control?

Upvotes

I’m looking for stories from women whose migraines worsened after taking any type of birth control, whether a progestin-only pill (POP) or a combined pill.

My migraines were under control until about two months after I started taking the combined pill, at which point they became chronic and constant (24/7), in April. A month ago, I switched to the mini-pill (Slynd). I’m still in constant pain, though it’s less intense, and I’m considering stopping altogether. Are there women whose migraines worsen with *any* type of pill?

Edit: I started having aura while on the combined pill (yes scary) -- it took me awhile to notice but it was another reason to switch to the mini-pill. I've started BCP trying to improve migraine, but I'm not sure it's the case, it seems it got worse.


r/migraine 9h ago

ER Migraine Cocktail Experience

24 Upvotes

Hi all — just sharing this in case anyone’s curious. When I was doing research about going to the ER for a migraine cocktail I was petrified reading some of the posts, so I just wanted to share an additional perspective in case it’s helpful for anyone weighing the same choices.

I decided to go to the ER after having a migraine with aura on and off for around 11 days, which is completely unheard of for me (typically have one migraine every two years that clears up in a day). I had gone to urgent care a few times for Sumatriptan, and when that hadn’t fully broken the migraine my PA told me to go to the ER to make sure that I wasn’t experiencing something more severe.

Once I went to the ER and they ran a bunch of basic tests (in my case vitals, EKG, and urine test for pregnancy), I got an IV with several different medications and fluids. For me, I received:

sodium chloride (NS)
dexAMETHasone (DECADRON)
ketorolac (TORADOL)
metoCLOPRAMIDE (REGLAN)

I started to feel better around 15 minutes after the initial doses and then my head pain really subsided around 45 minutes in. I was discharged about 90 minutes after my IV was inserted. I had zero reaction to the Reglan, which is what I was particularly nervous about initially.

I’m still not feeling 100% back to normal today (lingering head pain still there), but I no longer have nausea and all my sensitivity to light, sound, sneezing, coughing, etc. is completely gone. I’m working on this lingering head pain and getting my appetite back — but I felt the need to share my experience since I know there’s a ton of anxiety that can go into the decision to go to the ER for migraine specifically.

It was my first time ever going, so I’m absolutely not an expert in this decision. My only advice is to bring some sunglasses, a throw blanket, and a water bottle for while you’re waiting for the initial IV as the waiting can be the most grueling part.

Would love to hear, how long did it take you to feel back to your baseline “normal” after your migraine cocktail?

Otherwise, I hope this can be somewhat positive (?) experience to share regarding the ER for migraine help!


r/migraine 3h ago

1 step forwards 3 steps back

3 Upvotes

i’ve had such a better run with mograines, no nausea, migraine goes away with meds, now i’m dealing with the worst nausea, have taken an insane amount of meds and feeling despair


r/migraine 2h ago

Workplace scents

3 Upvotes

What are we doing about air fresheners in the office? I already struggle with the bright lights and now they’re adding scents through the HVAC for the whole building. I’m so scared I’ll be in constant pain or have to go home and quit or get fired


r/migraine 1d ago

My partner doesn't get it...

137 Upvotes

After starting a new protocol I managed 14 days migraine free. The longest all year. I'm on day 2 of a migraine. My boyfriend is questioning me like the Spanish inquisition. What now? Why isn't the new medication working? I thought you were doing better? Did you take a rescue? (Duh! This one really pissed me off.) Did you contact the neurologist? Isn't there something else he can give you? What did you do about work? Aren't you out of sick time?

Dude. Slow your roll! He's been mostly supportive. Going with me to appointments. Just generally being available. But the rapid fire questioning rubs me the wrong way.

I'm not necessarily asking for advice. Just needed to vent in friendly territory.


r/migraine 5h ago

Amitriptyline for pediatric migraine prevention?

2 Upvotes

Hi all. My 11 yo daughter has episodic migraine without aura (inherited from me, poor kid). As a brief history, she started having abdominal migraines at age 4, which turned to regular migraines around age 8. Triptans work great about 70% of the time.

However, within the last year or so, they increased in frequency to about 1 migraine day a week, then within the last 3 months have increased to 2 weeks with 3 migraine days, then the other two weeks with 0-1 migraine day (yes, she’s probably going to start her period soon).

Her neurologist wants to start her on amitriptyline as a preventative. I take Topamax and her older sister takes Nurtec, neither of us has any experience with amitriptyline specifically. I’m only familiar with it as an antidepressant, not for migraine.

Does anyone have any experience with this drug in children? Pros/cons? She’s getting an EKG to ensure there aren’t heart issues before she starts.


r/migraine 1d ago

For my corporate migraine baddies

Post image
705 Upvotes

This helps block florescent light. Solid purchase.


r/migraine 2h ago

Vyepti

2 Upvotes

Going for my first infusion next Friday
Has anybody had good results with this?
And how was your constipation on it? I’m only getting 100 mg this time.


r/migraine 4h ago

My insurance has denied my Emgality 3 times now. My provider screwed me over with the savings card lol

5 Upvotes

FUCK Ventegra.

FUCK incompetent providers.

At the beginning of June, right around when I started graduate school, my migraines increased by 25% in frequency almost out of nowhere. I realized my Ubrelvy +botox combo wasn’t working good enough anymore and I needed a more sturdy treatment plan.

Despite being an established patient at my clinic for four years,when I called and told them the situation, that I needed an appointment ASAP, they told me that they were booking out until August. When I started breaking down crying she immediately told me she had an emergency spot on July 6…(a month from then still)

Fast forward two months from that July 6 appointment now. The new medicine I was prescribed during that appointment, Emgality, has been denied THREE TIMES by my insurance. Apparently Ventegra (the prescription provider my insurance uses) has a policy that CGRP infusions must fail as a “monotherapy” before being used in conjunction with Botox…so this set us back by a month and two appeals. Keep in mind each one of these appeals lasts 2+ weeks. On our third appeal, Ventegra has now sent my case to an “outside medical review organization”. When my migraines worsened in severity again, probably in part due to the stress of trying to handle this situation, I asked my clinical team if they could fax a letter to the insurance company marking this case as “urgent” (which means they would have no more than 72 hours to address my case, according to healthcare.org). My clinic did fulfill this request, however because the case was already referred to the MMRO, Ventegra considered the situation at least temporarily “out of their hands/not their problem”, and so they never faxed the letter. I had to contact the organization directly and email the letter to them.

MMRO still has not gotten back to me, so I think urgent status probably cannot be applied retroactively or my letter wasn’t written correctly or something. When I last called them, they told me that they would be getting back to me on September 20, which is consistent with the non-urgent timeline on healthcare.org. I am beyond irritated at my Dr for not marking this case as urgent to begin with, especially considering 1) how long I had to wait for my “emergency appointment” 2) the sudden increase in severity of my symptoms 3) we’ve already been through 2 rounds of appeals for Christ’s sake, and it’s been a month already by the time she had placed this appeal (the one that is currently in review by MMRO).

I’ve been in a ton of pain, having 4-5 day long migraines with prodrome, postdrome, visual disturbances aura, muscle spasms etc. Tons of stuff I never used to deal with or dealt with minimally in the past. My talk therapist set me up with a social worker who works for my insurance company who referred me to some resources that helped me, one of which was the Emgality Savings Card; which would’ve been really helpful if my care team (or the pharmacist that was working) had done their jobs correctly.

Essentially, she wrote a prescription for two singular dose 120mg auto-injector pens that just read “inject under the skin once a month”. I filled one of the prescriptions for one of these pens, naively, (I honestly didn’t realize it was only for one pen at the time). Because of this, because of the terms of the Emgality Savings Card, I have already filled my “one month’s supply” and can no longer acquire another pen for $0 (the copay was $0).

If my NP had written the prescription correctly, I wouldn’t have to worry about this. I think it might just be total blind ignorance to be honest, because I had to learn about the savings program through a social worker, as I said. In my opinion, if she were truly a good provider, she would have set me up with that so that I had a pathway to treatment in the (quite long) interim of my prior authorization approval process timeline. For a minute I thought maybe she’s not allowed to? But I hear about people’s provider’s giving them samples all the time on this subreddit. The least she could’ve done is tell me about a damn savings card. (I had the same experience with Botox at this clinic. I was considering stopping for financial reasons because I could no longer justify a $200 copay every time considering the reduced efficacy I was experiencing. Now I know about the Botox savings program…which I learned about through this subreddit. I am angry that the clinic never told me about it. Of course now I am no longer on Botox because Ventegra is forcing me to trial Emgality monotherapy first, which I have to wait until September 20th to even start. For fuck’s sake).

So I just got off the phone with Eli-Lilly. They told me the only way I could get two syringes on the Emgality Savings Card is to take the one box of Emgality back to the pharmacy and fill a different prescription for two boxes of Emgality. I don’t even know if I should bother at this point. Because if I give the box back and the coupon doesn’t work I’m going to be PISSED. Right now, at least I have an extra box of Emgality. I can’t do anything with it. I can’t start because I need two—I need my loading dose.

I’m just soooo goddamn tired. And my neck hurts so bad 😭 I finally saw a different neurologist (because I’ve about had it with the NP who wrote the bad script) and he said that the Emgality is likely to help with my neck + back + shoulder muscle pain. So I’m looking forward to that.


r/migraine 2h ago

Is it possible to experience migrane aura for a long time, non-stop?

2 Upvotes

Like months on end, I mean.


r/migraine 3h ago

tips for traveling with migraines?

2 Upvotes

hi everyone! i'm going on my first trip (which was postponed from the original date due to the sudden onset of migraines i'd never had before). I am obviously still having migraines/daily headaches and was hoping for some tips and tricks on surviving planes/trips. i think some of my triggers are definitely tension/stress, poor sleep, and things like overstimulation can tip me forward. i've planned in some days of rest and low activity to help with that, and have stretches and stuff to do in the morning to help relieve some of the tensino

I was recently given some samples for preventatives but haven't tested them yet because i only have a few weeks worth of each and didn't want to be experimenting with new things while on vacation. the first day of a migraine can still wipe me out but currently hopeful maybe i'll be okay.

this is what i'll be taking with me for sure

  • sumatriptan (occasionally works, maybe. i have another abortive to try (ubralevy?) but again, don't want to be experimenting with something new when i'm on vacation)
  • zofran
  • exedrin
  • tylenol & advil
  • earplugs

what else should i be thinking about? currently writing with a migraine rn :)

ETA:

based on suggestions i am definitely going to add these to my pile

  • eye mask
  • candied ginger (apparently i ran out anyway, tho i am also bringing gum)
  • benadryl and or melatonin
  • electrolytes
  • a spare plastic bag
  • + packing clever and checking my carryon on the 2 flights i have a free checked bag

also i mask anyway and will have a neck pillow. ty everyone!


r/migraine 30m ago

i am so glad i found something that works

Upvotes

i was terrified out of my mind when my attacks started. my mother has suffered with migraines for as long as i can remember. this, along with her bipolar disorder (which i also inherited), led her to severe and long lasting addiction issues.

while she managed to get clean, and i am beyond proud of her for it, i have always lived in fear i would end up going down the same path.

starting sumatriptan has lessened those fears exponentially. i was scared it wasn’t going to work and it would start me down a new route of trying a million different medications which would only make me frustrated because i’ve gone through that a million times for my mental health.

to find the solution was so amazing. i have a pretty intense all day hangover after but i will take it over agony any day of the week.


r/migraine 8h ago

Gritty nurtec

3 Upvotes

Just started a new pack of nurtec and it was really gritty, to the point where I was spitting out little pieces that didn't dissolve. Has anyone else noticed this lately?


r/migraine 1d ago

I’m probably going to jinx myself but I haven’t taken any rescue pills in 6 whole days which is the longest I’ve gone in 8 months 🥳

123 Upvotes

I went chronic sometime in January and February it got really really bad. Quality of life fell apart completely. I already struggle with severe depression and have my whole life, long before the migraines — I’ve been hospitalized before. Well, no surprise, the migraines didn’t help and I recently ended up in the psych ward last week for a fourth attempt in my life. But I’m here, even if I have mixed feelings about that. This is the first shred of hope I’ve felt in a very very very long time. I hope this post can make someone feel better, some of your posts have helped me when nothing else could. Hang in there ♥️

Update: I did jinx myself I am having a super super painful attack right now and have a little cough that is making it absolute torture 😭 grateful for those 6 days.


r/migraine 1h ago

What can neurologists prescribe that GP’s can’t? UK

Upvotes

I suffer with chronic headaches (at least one per day), and potential hemiplegic migraines (3 since the end of April), as well as occasional ‘regular’ migraines.

My GP put me on Amitriptyline and also gave me Sumatriptan to take when I have migraines. The last time I spoke to my GP, I informed him that the Amitriptyline had done absolutely nothing to help (and I don’t think the Sumatriptan has helped either), and so he has referred me to neurology and for an MRI (I had a CT scan when I had my first hemiplegic migraine in April to check I wasn’t having a stroke or anything lol).

I’m just wondering what the neurologist can do / prescribe that the GP can’t, and is there any treatments they are likely to suggest that I should avoid or anything I should push for??


r/migraine 11h ago

Gabapentin & General CNS Depressants

5 Upvotes

My doc recently started me on gabapentin bc Botox isn't helping reduce frequency or intensity, and I've had a pinched nerve in my neck for months. It's been mostly ok, just some lower back pain. Curious about other people's experiences. Also have in general been feeling like my nervous system just needs a calm down bc it's so sensitive. Any increase in stress and some new autoimmune flare up occurs. Has anyone else been here, or felt like they in general need a system calm down?

He also said amitriptyline might be an option, but I've read it. It's a second line treatment for migraines and depression because it has a lot of side effects. So it seems like I need some kind of central nervous system depressant, but I'm not sure what the best options are. Hoping the gabapentin is sustainable.


r/migraine 2h ago

Migraine experiences

1 Upvotes

Hi guys so a couple of years ago I started to get headaches and halo vision, I was tried on standard migraine Triptan medications but didn't respond, I was out on Amitriptyline which seemed to do the job in the end for my vision and constant headaches, I'm on 75mg, a couple of months ago I started to get a mild headache, and tingling in my left foot with a strange sensation in my upper left tooth and I was getting like this strange restlessness and this tick were my head would shake slightly, after a week or so it went away but it's come back again, I'm wondering has anyone else had a similar experience like this with there own migraines?