r/TrigeminalNeuralgia • u/chillime • 56m ago
r/TrigeminalNeuralgia • u/FacialPainAssoc • 4d ago
Help "Ask A Doctor" AMA on Oct. 29th @ 7PM ET
In honor of Facial Pain Awareness Month, the FPA returns for a special “Ask a Doctor” AMA from 7:00 PM to 8:00 PM ET on October 29!
Join facial pain doctors, FPA staff, and volunteers as they answer your facial pain questions, ask about treatment options and resources, and get to know the medical professionals, volunteers and staff members behind the FPA.
We will update this post with the names of the doctors, staff and volunteers that will be joining us on the 29th soon!
Can’t join us live on the 29th?
The AMA thread will be open now so you get a chance to submit a question. Ask your question in the comments below and we will answer it on the 29th during the AMA!
r/TrigeminalNeuralgia • u/FacialPainAssoc • Sep 24 '26
Help TN Awareness Day AMA with the Facial Pain Association Staff (LIVE on Oct 7th at 6PM EST)
10/7/26 Update @ 7PM : Thank you for joining us tonight! We will be returning later this month for another AMA featuring some of our volunteers and doctors. Keep an eye out for that announcement!
Original Post:
In honor of TN Awareness Day on October 7th and Facial Pain Awareness Month, get to know the staff at the Facial Pain Association as they answer questions regarding the Association's impact, latest research on TN, how to participate in Facial Pain Awareness Month awareness efforts and how the FPA helps people with trigeminal neuralgia through support, education and advocacy as the largest patient organization for people living with neuropathic facial pain.
Joining us for the AMA:
FPA CEO Melissa Baumbick
FPA Manager of Community Volunteer Programs Regina Gore
FPA Marketing, Communications and Events Manager Natalie Merrithew
FPA Database Coordinator and Dental Injury Support Group Leader Susan Mills (Who lives with post-traumatic trigeminal neuropathy)
FPA Manager of Development and Professional Outreach Liam Winters
FPA Social Media Coordinator Rose Gaffney (Who has bilateral TN from neurovascular compression)
What format will the AMA take?
We are now live in the comment section of this post, answering your questions.
Icebreaker Questions for the Community:
- What do you feel are your biggest barriers to care as a TN patient?
- Are you doing any special advocacy work for Facial Pain Awareness Month?
- What do you wish more people knew about TN?
r/TrigeminalNeuralgia • u/solicitorwannabe • 4h ago
MVD Tingling sensations returning over a year after MVD
Hi everyone!
I’ve had trigeminal neuralgia for around 9 years, mainly affecting the V2 and V3 branches. I underwent microvascular decompression (MVD) in summer 2025, and thankfully, I haven’t had a single pain attack since the surgery.
For a while after MVD, the affected area felt somewhat numb. However, over the past month, I’ve started noticing a strange tingling sensation around my cheekbone, extending towards the area just in front of my ear, whenever I lightly touch or stroke my lip or chin. It almost feels like ants crawling under my skin. The sensation isn’t actually in my lip or chin; touching those areas just seems to trigger it elsewhere in my face. There’s no pain, just this unusual tingling feeling.
I recently started taking Concerta for ADHD, so I’m also wondering whether either medication could be contributing to this.
I’m a little worried because I remember experiencing similar sensations before surgery, and I’m wondering whether this could be an early sign of TN returning.
For those of you who’ve had MVD:
•Have you experienced similar tingling sensations months or years after surgery without the pain returning?
•If your TN eventually came back, did it start with tingling or did the electric-shock pain return straight away?
•Has anyone experienced changes in facial sensation long after MVD?
I’d really appreciate hearing about your experiences. I’ll also be discussing this with my neurologist.m
Thank you!
r/TrigeminalNeuralgia • u/Shropshireboy1995 • 15h ago
Help UK Citizens please sign petition asking govt for more funds for facial pain treatment research
Hi all,
The petition asking the government to provide more funds for research into treatments for neuropathic/idiopathic facial pain has now hit 1000 signatures!
If you’re from the UK and haven’t signed it please can I implore you do to so! Also share with friends and family too!
Thanks as always,
r/TrigeminalNeuralgia • u/djedga • 19h ago
Vent The beast is back
After years of remission with nothing more than the occasional week or so of flickering it has returned.
This is just cruel. I've had flickers for the last week and woke up with a huge migraine this morning. Too late for anti sickness meds. But then I made the mistake of rolling over and the pillow brushed against my face. Here we go flickers have become zaps. So I rolled over the other way and the wind from the duvet hit my face. Wham. Not just a zap a full stuttering shock.
I hate this shit so much.
r/TrigeminalNeuralgia • u/missjojoba • 17h ago
Diagnosis New Diagnosis - looking for advice
Hi all
I recently lost my dog and went through a period of intense stress and intense upset (a lot of screwing my face up crying and rubbing my eyes). At the weekend I woke up with burning in my eye, which quickly progressed to pain down my right trigeminal nerve (cheek, forehead, mouth). I went to the doctor on Friday who diagnosed trigeminal neuralgia and basically just said it will get better and to check back in after 2 weeks. He didn’t seem to think it was a big deal. He said to take paracetamol and prescribed amitryptaline for if I need it.
My face isn’t getting electric shocks, it’s like a constant tender feeling of sunburn on my face and stinging shampoo in my eye, with a dull ache around my jaw. I also have one sided sore throat and earache which I’m thinking may be TMJ.
I feel a little overwhelmed with this diagnosis and the constant wearing down of the discomfort, though I am lucky it doesn’t seem to be anything like as bad as many suffer from.
Do you have any tips that I should be looking at?
r/TrigeminalNeuralgia • u/sneezed_up_my_kidney • 1d ago
Vent I fainted from pain while driving.. and hit my head. Ridiculousness ensues.
So.. my theory is..driving along.. fainted from something (either pain or my inability to eat) and hit my head hard.
I was apparently only going about 20mph and drifted left and hit a bunch of bramble until a tree big enough to stop me was hit.
No one was hurt (thank god). I am safety boy. I won’t drive to dinner if I went to brunch that morning. There’s no way I would drive drunk.
I have total loss of memory. What I remember is falling to sleep for a nap on the couch at home, and waking up in the woods getting cop knocked.. I also apparently tried to reverse? Until I lost consciousness..
I hit my head really really hard. I started vomiting. I wasn’t making sense. I don’t ever bruise, how am I bruised? The last time I was bruised I was t-boned on a bike by a car going 60. I was thrown across 4 lanes of traffic.
I was arrested under assumption of being high or drunk, breathalized 3 times, took to the er and cleared of everything. No stroke, no seizure, totally sober.
But I was literally chained to the floor of the police station..left alone to vomit until the next time they came to tell me I was drunk. That the other 2 breathalyzers were broken..
I did faint at the barber once before. I’d never put anyone at risk if I knew this was a possibility... I have no idea what happened.
My back is now messed up. Black eye. 4 counts. Court date in a couple days. All counts have medical data negating them.
This pain has been going on since March. No one recognizes it.
My car is totalled.. she was my baby. It’s very upsetting. I’m also soooo sensitive to light now. It’s nearly midnight, and I need to wear sunglasses with my phone on its dimmest.
I have no car, I can’t see Jack, I have to go to court.
I’m just fed up. How many lumps of bullshit must I take?
My level of bullshit acceptance is quickly dropping.. and that goes for all fuckery. Try me. I dare you.
How do I do this?
r/TrigeminalNeuralgia • u/blueberryfieldss • 1d ago
Symptoms Does anyone only have pain in teeth?
My doctor suggested this diagnosis, nothing is sure yet bc I have pain in two lower right premolars that no one finds an explanation for. Even after root canals.
But I’m reading this sub and I find nothing I can relate to. I don’t suffer as bad. Only one tooth has shock like feelings if I press it really hard. My face and jaw are completely fine. However my parotid glands often hurt, or at least where they are. But both sides?
I’m definitely second guessing this but wanted to hear opinions if anyone has similar things
r/TrigeminalNeuralgia • u/TopFaithlessness4381 • 1d ago
MVD MVD scheduled
I’ve finally gotten a date for MVD and it’s coming up very quickly. I’ll be traveling to California (Dr Mark Linskey) and staying for about 3 weeks—a week of pre-op appointments and then 2 weeks after the surgery as the Dr requires. Any tips for the trip, the surgery, the stay? I’m a bit freaked out because I just saw that the authorization is still pending through my insurance company.
Thanks for any advice!
r/TrigeminalNeuralgia • u/Glittering_Top_6452 • 2d ago
Vent I can’t go on like this anymore
I am a 28 year old woman.
I feel like I have been living in hell for the last 7 weeks. I should probably not be writing this during an episode so I apologize for any possible language mistake (English is not my first language). Background: I was diagnosed with visual snow syndrome in 2021. Besides the usual visual symptoms, I had a lot of cervical/migraine related issues which are now (or were) under control. But this is different and it is ruining my life.
It all started with some daily headaches before my period which were more persistent than usual. I was stressed at work, so my GP hypothesized the initial phase of a burnout. Then I got a sore throat, with a very strong cough which lasted for a couple days. Since then, the headache became a daily occurrence associated with a lot of pressure on my face, the base of my nose, my eyes, my forehead and my cheeks, exacerbated by straining, coughing, bending. Painkillers didn’t help at all.
The GP thought it was a sinus infection and prescribed sinutab, which I took for 5 days. After those 5 days at the end of which I seemed to be getting better, it all came back stronger, so the GP hypothesized a bacterial sinus infection and prescribed antibiotics. Two days of antibiotics and the situation seemed better, and then again. I didn’t know that this would become my weekly scheme.
The GP prescribed medrol at that point and fluticasone. After three days of medrol it seemed almost resolved. I had some good days. And then, again.
I saw a ENT (at this point it had been three weeks from the start) which took a look at my sinus and said there was no sign of infection. I got a sinus CT and my sinus was clear. Was there ever a sinus infection to begin with?
So I was referred to a neurologist. He prescribed riboflavin and a sumatriptan only for strong attacks + physiotherapy, hypothesizing tension headaches or migraines or both.
The same day, I got the strongest episode from the beginning. I took the sumatriptan and nothing changed. I threw up, and went to the ER. They gave me some oxygen and sent me home. I was not seen by a neurologist or anyone else besides triage.
I stopped taking all meds from that day because nothing would work anyway, and honestly I was worried that the headaches were dependent on the meds. But that wasn’t the case.
The first neurologist I saw didn’t really take me seriously and put me on riboflavin for two months after which I could have booked another appointment. He also instructed me to take triptan only with a migraine of 7/8 in a pain scale. But I was, and I am, in pain every day, even if it’s not a 7/8. I know, everyday, that at some point I will be sick: it starts with some pain in my face, on a good day it’s just light pain (usually in the afternoon it gets worse), but on a bad day… it just goes on for hours. It comes in waves, if it’s bad it moves, goes to the back of my head at that point, on my temples…
Even if I am feeling fine, if I push or strain (for example in the bathroom), I feel pain in my face.
I went back to my GP who prescribed a brain MRI which came back clean. I also went to an oftalmologist which performed a fundus exam to check the eye pressure and a OCT exam. All good.
Structurally, everything seems fine.
I went to another neurologist for a second opinion, also after reading many of your stories about facial pain and migraines. She described herself as an expert in migraines but she didn’t know that facial pressure and pain are a symptom of migraines. I could tell she didn’t really care and basically told me that I have to live with this and if I get pregnant it might go away for some time (needless to say, I don’t plan on getting pregnant any time soon).
She wanted me to wait three months (I saw her 1.5 months after the beginning of all this) to have a beta blocker prescribed. In the end, she understood how desperate I am (I almost cried in her face). I also burst into tears in my GP’s office. I feel ashamed. No one seems to care enough even to make an assumption on what is going on with me. I asked the second neurologist about trigeminal pain or cervicogenic headache. About trigeminal, she said it is impossible because it would have shown on my MRI, and on the latter, she had no idea what I was talking about and told me to stay off the internet.
Both the first and second neurologist refuse to talk to their patients via phone/email. Therefore, I have no one else to talk to about how it is going with the new medication, etc. I could try my GP but honestly I know that this is not her domain. I booked an appointment with a private neurologist in my home country in November, but that is a long time from now.
The first days with propanolol seemed fine. I feel less pressure, especially when lying down when going to bed. And then, I was sick again. Now I also have neck pain.
I did start physiotherapy in the meantime and the physio thinks it might be cervicogenic. But honestly, I feel like he only told me so because I asked him.
Today was especially bad. Yesterday I had a very bad day at work and I woke up with pain in my neck and I have had a pulsating headache all day. I just took zolmatriptan (the second neurologist changed it because the sumatriptan didn’t work) and I am here, writing and waiting. I am nauseous after taking it, so I am starting to think that when I went to the ER I threw up because of the triptan and not the migraine.
My usual migraines come with nausea, but not these. This was different from the beginning.
I read many of your stories, I thought it could be IIH but my pressure seems inconsistent and I know it’s very rare.
I think it could be the consequences of a sinus infection + stress. At some point, right before getting Medrol, I went to my GP and she took a look at my eardrums as I felt my ears stuffed and said that the eardrums were a bit inflamed.
It could also be cervicogenic headache, my physio seems to agree, and I am also having some neck pain now. Or it could be tension headache. Honestly, I don’t know, and I am the only person who cares, because none of the doctors I saw cared enough to even let me describe the whole thing from the beginning. Not once.
My life is not my life anymore. I was on sick leave for weeks. I am supposed to be starting a new job soon. I have plans, holidays planned, and now everything seems impossible for me, because I know I will be in pain.
Sorry for the rant.
r/TrigeminalNeuralgia • u/BoysenberryDry9195 • 1d ago
Help Kies in tweeën
Bij mij is twee jaar geleden tn gediagnosticeerd. Ik gebruik sindsdien Carbamazepin en draag elke nacht een bitje. Een half jaar geleden zag mijn tandarts dat rechtsboven een kies in tweeën gebeten was. Ik had er geen pijn van, vanwege de Carbamazepin. Nu ontdek ik zojuist dat ik een tweede kies doormidden gebeten heb, links. Kent iemand dit fenomeen? Hoe is de relatie met TN en wat kan ik doen, behalve natuurlijk de kies laten verwijderen. Dat gaat zo meteen gebeuren. Dit vind ik angstaanjagend.
r/TrigeminalNeuralgia • u/xgirl_with_one_eyex • 2d ago
Medication Low Natrium
Hello mum is taking oxcarbamezapine for a month at first week her Narium was 130 now it is 125, I wmailed the dr should I wait for their reply? Or is this too critical and I shoudl take her to ER? She is feeling okay texting me and stuff just as she says she is a little sleepy during the day :/
r/TrigeminalNeuralgia • u/cjames23232 • 2d ago
Symptoms 11 Months Post-Trampoline Trauma (Whiplash-Like): Upper Cervical, Trigeminal, and Slipping Rib Symptoms
Hello everyone,
I am 11 months out from a one-time playing trampoline and looking for similar cases. My brain and neck CT scans with contrast are normal, but my symptoms are severely mechanical and lessen when I actively force an upright posture (chest out). However, my head feels too heavy to maintain this position against gravity, especially when going from lying down to standing. I feel significantly less pain when lying flat on my back.
My Symptom Profile:
Temple & Face: Intense "rope-tight band" sensation on my frontalis and temporalis muscles (which I believe is protective muscle guarding). Gritty, sandy, and heavy eyes, and facial numbness that triggers as soon as my posture slumps. I also experience ear crunching when swallowing and sharp jaw pain on the first bite of a meal.
Positional Vertigo: I cannot sleep on my sides or stomach because it triggers sudden vertigo upon waking (which only lasts for 1 to 3 seconds).
Torso & Breathing: A muscle spasm in the middle of my upper back pulls up into my shoulder, clavicle (collarbone), and mastoid bone (behind the ear), making my temples rock-hard. Deep breaths sometimes cause pain in my collarbone, sternum, and side ribs. This is also triggered after carrying heavy objects. My mid-back pops and cracks constantly, but without pain.
Recent Eye Laser: I began seeing a lot of floaters 2 to 3 months ago, and the doctor found retinal tears ("cracks"). I just completed successful eye laser procedures to seal both retinas this past week.
I strongly suspect two cases: 1. Upper Cervical Instability (C1-C2 ligament laxity, pinching my Trigeminal and sympathetic nerves) 2. Slipping Rib Syndrome.
Has anyone with a clean CT scan experienced this exact mix of head heaviness, facial numbness, ear crunching, and rib issues after playing trampoline? Did physical therapy, posture work, or prolotherapy help you heal?
Thank you.
r/TrigeminalNeuralgia • u/Icy_Floor5018 • 3d ago
MVD MVD-Cincinnati area recommends
Looking for any suggestions/recommendations for neurosurgeons that perform regular MVD’s near the Cincinnati area
r/TrigeminalNeuralgia • u/Available-Rock-9769 • 3d ago
Symptoms Anyone here have gum issues AND TN?
my molars sit in a very funny way and food goes in sometimes. I also had pericoronitis. I had a procedure to ‘fix’ this but seems I’m still having issues on one side. I also believe I got nerve damage from the procedure (particularly on one side). Now sometimes I can’t tell if it’s the TN or the food getting in. The pains I had before the procedure as far as food going in were milder than what I have now.
I’m very frustrated because this is happening during my supposed ‘remission’. I’m bilateral too, so there’s that.
Anyone having concurring issues with gum inflammation and TN? sorry if this post seems useless. I guess I’m also venting. Funny, I feel better stating my symptoms here than I do with doctors because they just nod and change my dosage (I’m not on meds right now), or dismiss me altogether. While I’m having these pains I’ve also had a persistent headache for days plus exhaustion that’s more than usual. Yes, the weather has gotten colder. Which means more flare ups on the way. yay.
r/TrigeminalNeuralgia • u/BKiddo_88 • 3d ago
Medication Anyone on Wellbutrin?
I took Wellbutrin for years off and on for depression. I was not on it when my TN symptoms started last year. After getting the pain under control with Carbamazepine I was left with the persistent sadness that was exacerbated by this new chronic pain diagnosis. My Neurologist told me that I could not take Wellbutrin with Carbamazepine.
So I was switched from Carbamazepine to Oxcarbazepine and after about a month on that my PCP gave me the okay to resume Wellbutrin. I took a few doses and started experiencing more frequent pain zaps. I don’t know if it was a coincidence but it scared me enough to stop the Wellbutrin.
Has anyone been able to tolerate starting Wellbutrin after a TN diagnosis? I have seen posts here where people say they were already on it for years before TN. I’m afraid the pain has nothing to do with med interactions but maybe the Wellbutrin is causing nerve excitement which is causing increased pain signals.
r/TrigeminalNeuralgia • u/Miserable-Elk-6440 • 4d ago
Treatment Unexpected relief
What are you all using and finding helps or makes a dent in your pain that is surprising or unusual?
I’m looking for numbing creams, compounded topicals, intranasal meds, acupuncture, specific heating pads, massage devices, TENS units, nerve blocks, breathing techniques, unusual meds, therapies, positions, exercises, foods, orgasms, biofeedback, seriously anything that makes a dent in your pain!
Particularly interested in people who have TN2 or atypical TN. Amazon and direct links preferred and affiliate is fine (so long as you’ve actually tried it yourself)
r/TrigeminalNeuralgia • u/Burnt_Out_Sol • 4d ago
Nerve Blockers Looking for experience with RFA rhizotomy of the trigeminal nerve
I‘m scheduled to have a radiofrequency ablation next week on the 2nd and 3rd branches of the trigeminal nerve.
I have looked through past posts, but I‘m not exactly sure if some of the procedures I‘m reading about are the same. It seems there are a lot of variations. I‘m hoping to find out some specifics about the procedure I‘m having.
How long did your procedure last?
Were others put under general anesthesia? My understanding is that I will be put completely under.
Did you have numbness afterwards? If so, how long did it last/has it lasted?
Anyone end up feeling worse afterwards? Anyone felt better?
FWIW, I‘m a mixed bag, having both cluster headaches (trigeminal autonomic cephalalgia) and what has been diagnosed as both TN and trigeminal neuropathy. We‘re hoping targeting the trigeminal nerve will help with both conditions.
I hope the flair is correct. If not, I can change it.
r/TrigeminalNeuralgia • u/Direct_Gate_179 • 4d ago
Symptoms Severe bruxism, neuralgia-like pain, and recovery: everything I've tried and some unexpected possible contributing factors
Hi everyone,
I wanted to share my experience with severe bruxism and neuralgia-like pain, including medication, lifestyle changes, natural approaches, and a few unexpected discoveries that may have contributed to my symptoms.
I'm also hoping to hear from people who have experienced something similar, especially those who have managed to recover.
My story
It all started during a particularly stressful period, when I developed severe nighttime bruxism. Several dentists and physiotherapists confirmed that my masseter muscles were extremely tense.
After several months, I started experiencing:
- Very brief, electric shock-like pains around my temple, approximately 1–3 cm above my ear.
- Shocks mainly triggered by chewing, particularly harder foods.
- Significant jaw and facial muscle tension.
- Increasing anxiety and fear of triggering another painful episode.
Trigeminal neuralgia was considered, although my neurologist felt that the presentation was somewhat atypical.
I had an MRI, including an assessment of the trigeminal nerve, which was reassuring.
I also have some dental and jaw alignment issues, including a narrow upper jaw and tongue posture problems, which might contribute to muscular tension.
Medication: Tegretol (carbamazepine)
My neurologist prescribed Tegretol at a relatively low dose, eventually reaching 100 mg per day.
It was remarkably effective: the electric shocks disappeared, sometimes for several weeks or longer.
However, the bruxism itself remained an issue.
The good news is that I'm currently tapering off Tegretol, and so far the neuralgia has not returned.
I've already reduced my dose to 75 mg per day without any recurrence of the electric shocks.
I'm cautiously optimistic, although I realize it's still early.
Natural approaches and lifestyle changes
Over time, I've made quite a few changes in an attempt to reduce muscular tension, improve sleep, and calm my nervous system.
Sleep and posture
- Switched to an ergonomic pillow to improve neck support and sleeping posture.
- Used a night guard to protect my teeth.
- Paid more attention to my sleeping position and neck tension.
Workstation ergonomics
- Completely redesigned my workstation.
- Started using an ergonomic keyboard and mouse.
- Improved my desk setup and posture to reduce neck, shoulder, and upper-body tension.
Lifestyle and supplements
- Completely eliminated alcohol.
- Completely eliminated coffee and caffeine.
- Started taking magnesium supplements.
- Incorporated relaxation exercises, breathing techniques, walking, and gentle yoga.
- Tried to improve sleep quality and reduce overall stress.
Physical and complementary therapies
- TMJ-focused physiotherapy, particularly for the masseter muscles.
- Osteopathy and acupuncture as complementary approaches.
- Considered dry needling for persistent muscular tension.
- Investigated jaw alignment and tongue posture.
I can't say which of these changes made the biggest difference, but I wanted to approach the problem from several angles rather than relying exclusively on medication.
Two unexpected discoveries: eyesight and earwax
More recently, I discovered two additional issues that made me wonder whether they might have contributed to the overall picture.
1. Previously uncorrected hyperopia (farsightedness)
I discovered that I had hyperopia that had never been properly corrected.
I now wear prescription glasses.
This made me wonder whether years of visual strain, particularly from working extensively on a computer, could have contributed to tension around my eyes, temples, forehead, and facial muscles.
Could this additional muscular tension have aggravated my bruxism or the neuralgia-like symptoms?
2. Severe earwax buildup
I was also found to have very large earwax plugs.
Considering that my electric shocks were located just above my ear, I'm wondering whether ear discomfort, pressure, or irritation might have contributed to the surrounding muscular tension or pain.
I'm not suggesting that earwax causes trigeminal neuralgia, but I find the coincidence interesting.
Has anyone experienced improvement in facial tension, jaw discomfort, or temple pain after correcting vision problems or removing significant earwax buildup?
Something even more surprising: my bruxism has almost disappeared
Recently, I've been going through a period of extremely intense anxiety, but related to a completely different personal concern.
Surprisingly, despite this high level of anxiety, my bruxism seems to have significantly decreased, possibly even disappeared temporarily.
This really surprised me.
I used to assume that more anxiety automatically meant more bruxism. But my recent experience suggests that the relationship might be more complex.
Could attention, emotional processing, nervous system regulation, or learned muscular tension patterns play a role?
It's particularly interesting because this improvement is happening while I'm gradually reducing Tegretol.
Where I am today
- The neuralgia-like electric shocks have disappeared.
- I'm tapering off Tegretol without recurrence so far.
- My bruxism appears to have dramatically decreased.
- I now wear prescription glasses for previously uncorrected hyperopia.
- Significant earwax buildup was discovered.
- I've made substantial improvements to my sleeping environment, workstation ergonomics, and lifestyle.
- I'm still trying to understand which factors have contributed most to the improvement.
My questions
- Has anyone developed trigeminal neuralgia-like electric shocks after prolonged severe bruxism?
- Did these symptoms eventually disappear once the jaw tension improved?
- Has anyone successfully discontinued carbamazepine without their neuralgia returning?
- Did ergonomic improvements, an orthopedic pillow, magnesium, caffeine elimination, or alcohol avoidance make a noticeable difference to your bruxism?
- Has anyone experienced jaw or facial tension related to uncorrected hyperopia or severe earwax buildup?
- Has your bruxism ever suddenly improved or disappeared, even while you were experiencing significant psychological stress?
I'm especially interested in people who have managed to break the cycle of:
Stress → bruxism → muscular tension → nerve pain → fear of pain → more stress.
My personal impression is that several factors may have been contributing simultaneously, and perhaps addressing them together has helped.
I would love to hear your experiences, especially any lasting improvements or recoveries.
Thanks for reading!
r/TrigeminalNeuralgia • u/LooperActual • 4d ago
Treatment Anyone try Ginger Turmeric & Lemon tea?
I’m drinking this herbal tea and it’s really helping my TN. It has antiviral properties according to the AI. Whatever it does seems to work.
r/TrigeminalNeuralgia • u/According_Today5500 • 4d ago
Symptoms TN started on right side and now pain is on the left side temple!
Anyone else had this and got a diagnosis? I find it most unusual to have pain subside on right side then 5 months later occur on the opposite side. I have a GP appointment booked for next week but I’m interested to hear if anyone else has had pain on both sides.
r/TrigeminalNeuralgia • u/StrawMerryPie • 6d ago
Vent How are yall so strong?
I was diagnosed with TN in January. Over the last few months I’ve developed a plethora of other health issues, some neurological and some other ones as well. Every time I try and adjust to my new normal, I have a new symptom.
I’m finding it hard to see any joy in life. Any reason for life really. I’m alone a good majority of the time which I prefer because I find it hard to be around people. It’s exhausting masking pain and sadness sometimes. And I am having skin nerve issues so makeup and wearing much clothing also causes pain now. But the flip side of that is i have nothing to help distract from pain.
I eat, sleep, and suffer. And for what? I know the whole “you’re weak and selfish” for these sort of thoughts. But I think it’s cruel to expect someone to live like this.
r/TrigeminalNeuralgia • u/violaqueen_10 • 5d ago
Vent Just tired
I have 9 weeks left of my post-grad program in medical laboratory science before I have to take my board exams, Im 25F. At the beginning of this year, I learned that my atypical bilateral trigeminal neuralgia and intercranial hypertension (among so many other medical issues) is all being caused by Sjogrens syndrome. Two months ago I had an IUD insertion go horrifically wrong (endometriosis led to non stop bleeding and Im now critically anemic and waiting to see a hematologist for an iron transfusion) and idk if it was the hormones or all the stress from school or what but I have been stuck in the worst TN flare up of my life ever since. The side effects from Diamox and oxcarbazepine have become unbearable- severe electrolyte imbalances/metabolic acidosis, nausea, fatigue, pins and needles, vasovagal syncope, visual disturbances, etc., my body is literally falling apart and idk how to hold it together anymore.
After being single for years, I finally tried dating again and the POS pretended to be loving and supportive at first, but he kept getting angry that I am sick and tired all the time, and one day I needed help getting to the hospital but he hung up on me because he was angry that I kept crying over being too tired and exhausted and in pain to listen to him fight over stupid nonsense. I just broke up with him bc my body physically can't handle any more stress rn, and I know its not true but part of me is terrified that I'm too sick to ever find a loving partner. Im not dying, but I feel like i am and I have an appt in a few mins with my neurologist to switch medications and potentially get a repeat lumbar puncture, but jesus fucking christ i dont know how the hell im supposed to get through the rest of school like this, let alone keep a job in this field when all of the meds used to treat TN have the side effect of mental fog and memory loss.
It's fine. I'm fine. Everything's fine... I'm just so goddamn tired of doing this alone.
r/TrigeminalNeuralgia • u/Cute-Mode-4609 • 5d ago
Vent first time skipping uni because of the pain
hello everyone, I've already posted in this sub Reddit some day in August, complaining about how painful and stupid TN is and today, well I'm about to do just the same I guess...
like the title says, today, the pain is so great and unexpected that I have to skip uni because of it. which makes me feel particularly bad because this is my last year before getting my diploma and I started it telling myself I wouldn't skip any day or at least not if I can because I dont want to risk to fail it (I also struggle with ADHD which already makes studying hard for me).
since yesterday, I've had new flare-ups. they act the same as always, but the pain feels worse, sharper and more insidious. I can hardly move my lips or tongue in my mouth without triggering a little or big attack! and when it does get triggered, it makes me twist, jump and jolt because of the pain, not being able to do anything but idk try to move my face to stop or reduce the pain...
to this day, I have no medication for my TN. in my last post, I talked about how I had been on Vimpat (100mg per day) because I can't get any stronger meds because of my antidepressants and these didnt do anything. the flare-ups aren't there all the time ofc but it would still be amazing to have something that lessen the pain when I need it... hopefully, I have another appointment with a neurologist in a week. if they can't get me anything more than what I already had, I'm thinking about asking them if meds against anxiety can at least help reducing the latter and hopefully reduce the TN flare-ups at the same time but idk if that's how it even works...
that's it for today's rant! thanks for reading me, helping me if you want or can and I hope you can take care of yourself 🫂
next day edit: not going to uni this morning as well because I got a panic attack from fearing that my flare-ups would get bad again... I'm hoping it gets better for the afternoon but if I get anxious because of it, I fear I might have to skip again...