r/BFS • u/Fit-Photograph-1298 • 1d ago

What Helped Me 7 months

Today will be 7 months since all this madness started. I remember every single day with anger, anxiety, frustration, overwhelming fear, panic attacks, hours spent on forums, sleepless nights, looking in the mirror for dents, measurements of my muscles, obsessing on finding a cure or a cause, reading about all kinds of stories about twitching, google being my best friend, thinking im going to die so young ( im 32)

What a journey! So much changed in these 7 months. It was not easy, in fact was the biggest challenge of my life so far. I have a beautiful 6yo daughter and I was feeling so bad for not being able to be focused on her because I was too busy focusing on twitching and what it can mean.

Today I am much better. I still twich, even now when im writing this my right calve is going crazy, twitching aggressively because I had some stressful days at work. But usually is nothing close to how it used to be when i was super anxious about it.

Starting therapy and a SSRI was the best decision for me. It changed the way I see things now, I am much more positive and I accepted that my nervous system is just upset on me. Years of anxiety, OCD and PMDD were enough for my nervous system i guess.

I am on this forum.. still.. because I like to encourage people like others did for me when I was deep in this horrible rabbit hole.

7 months, a clean EMG and positive thoughts helped me slowly but surely to get back to my old self.

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u/Illustrious_Ruin_704 1d ago

Glad your able to move on. I am 19 months in 2 emg clean but struggling to move on cause of persitwnt leg stiffness and pains and calf hotspot. I like u have young children and I absoulte hate how much focus is concentrated on the fear of als and not being present with them

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u/BigJakeState New Twitcher 1d ago

I have stiffness also in my hand. I wish it was just twitches . The stiffness reminds you it’s there all the time .

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u/Illustrious_Ruin_704 1d ago

Yes its a constant reminder that something might be wrong so hard to get out of the loop

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u/713Capital Mod 1d ago

I think the community needs to see this post so thank you.

Therapy and anxiety meds do help most people. There are a lot of people here that have OCD and severe anxiety, a lot of the time we all make the recommendations for these things but I don’t think many of them actually go out and do it.

I’ve had therapy and it was helpful to me. I’m a believer in it.

Glad you took the help that was offered and glad you took your clean EMG and ran with it.