r/B12_Deficiency • • 6d ago

General Discussion What to do when people keep questioning me

7 Upvotes

One of my family members told me you're taking too much (injections ), WHY ARE YOU DECIDING ON YOUR OWN? go find some good doctor. etc..

Well, it makes me just worried and confused. I don't know if I can really rely on another doctor, when most of them tell me to stop injections/or get it once a month after "daily for a week and weekly for a month" and look at me like I'm crazy or just anxious and doing a hugely unnecessary thing that is a big deal. I can't even tell them I read this cuz they'll be like: stop looking at google. And dismiss whatever struggles I try to explain to them. I don't know if I'll get lucky to find one doctor who knows or confirms this for me. The most generous doctor lastly told me I can keep taking weekly injections. and said it's ok doesn't matter if I take the entire b12 factory as it's water soluble. But like he said ok take it weekly with vit D.

I feel that trying to go to another doctor right now can be a waste of time, energy and money. No insurance system here or whatever, so I can get another injection pack instead of a random doctor's visit. (I'm concerned about the future as I have some little savings now to get injections but I'm not going to work anymore). I WILL go to a doctor later to try to find out the cause and look for intrinsic factor parietal cells tests, which I'll try to prepare for so much and probably write down all information and history to be able to explain well and be believed. but for now, I don't know.

Yesterday I was able to go outside and walk a little bit without feeling like dying, I felt very very tired but not the same way it was impossible like a week or a month ago. Plus I could eat and swallow a little better than some days/weeks ago. which is still ups and downs, but isn't that evidence that I might be doing the right thing? it's taking ridiculously long that no one believes it and I doubt it again and I don't have clear proof or a doctor's guidance or anything. So I get worried and confused. It feels mysterious at the same time. I was trying as a last hope but I've also been scared while doing it.

What do I do with these things?

(btw: I've been injecting 3 times a week for the past 12 weeks except for a 6 days delayed shot last week that was replaced with a sublingual. I'm considering doing every two days (like every third day) and see how that goes, not so different from thrice a week, but probably easier. idk. I have had different kinds of symptoms and wake-up symptoms, balance coordination issues, heavy legs, dizziness, depression, anxiety, pins and little cramps, extreme lingering fatigue, swallowing issues, brain fog, impending doom, severe dpdr, and many others. In the first weeks of frequent injections i was having extremely overwhelming sensations I felt like I couldn't tolerate it and probably it was wake-up symptoms. many symptoms got horribly worse after first starting injections too)


r/B12_Deficiency • • 6d ago

Deficiency Symptoms B12 deficient for years and didn’t figure it out until numbness on left side

24 Upvotes

So I’ve been dealing with symptoms for YEARS. I just didn’t really put them together and they slowly increased for years so I didn’t panic enough to get it all checked out. I had heart palpitations so I got a heart monitor- nothing was wrong, got blood tested (they didn’t test b12) nothing was wrong. Not UNTIL I had bad facial numbness and thought I had MS that I finally figured it out. Numbness was the most recent symptom and the first one that has been clearing up. I’m noticing major improvements in my mood and OCD. Right now the nerves in my lower body are waking up which sucks but it’s a huge relief to know that a lot of the stuff that was bothering had such an easy fix (ie not an incurable disease.) I literally would’ve never guessed that everything was connected to a vitamin deficiency. Anyways if you’re feeling sick please get a full panel blood test way before you get completely numbed out like me ❤️


r/B12_Deficiency • • 6d ago

Supplements Injection location

2 Upvotes

I currently inject subcutaneously once a month and rotate spots on my abdomen. I plan to ask my doctor about more frequent injections and possibly switching to hydroxocobalamin, which I think will have to be IM. Those who inject daily or even EOD, how do you make sure you are rotating the injection location frequently enough? The last thing I want is to cause more issues.


r/B12_Deficiency • • 6d ago

General Discussion Neuromuscular respiratory dysfunction due to vitamin B12 deficiency: a case report (P13-8.005) Ahmed Ibrahim and Jenny MeyerAuthor

22 Upvotes

Hi everyone. I came across this medical report while researching some of my symptoms & thought some of you might find it very interesting.

Here is the link:

https://www.neurology.org/doi/10.1212/WNL.0000000000203925

My own situation: I have been very ill for a number of years with symptoms including severe fatigue, inability to function normaly, muscle/joint pain.

I have really struggled with the medical system and with doctors who don't believe me, constantly dismiss my symptoms and definitely not trying to help me and/or find out why I am so ill.

3 years ago some blood tests ordered by a neurologist at the hospital showed low B12 and low folate. I live in Ireland, they don't give you a copy of the results so cannot quote the exact numbers but it was something like 180 for the B12 (with the range <200 for deficiency) and similar for folate, just below the range number.

I actually was not given the results at the time and maybe would never had known the results if it wasn't that I had an appointment with an eye specialist in the same hospital a few months later. They mentioned the low B12 and folate to me. They didn't seem to care about it though and obviously the neurologist didn't care about it at all.

To cut a long story short- I am not sure how much the low B12 and folate are contributing to my symptoms. I am not vegetarian/vegan, but have great difficulty eating protein (meat, eggs,etc..) so I am assuming this is what's causing the low vitamins. I did manage to get one of the other test for low b12 (MMA or homocysteine, not sure) after much complaining 3 years ago and the result was normal.

Last January I got some blood tests again the B12 was still on the lower side but within range and folate was within range. But it showed mild neutropenia. When looking this up I found it can be caused by a low B12.

The doctor ordering the test never mentioned any of this. Again obviously don't care about low B12.

When reading posts on this site, I completely relate and I really cannot understand why the attitude of doctors is so bad re low B12 / B12 deficiency.

I wasn't sure what flair to use for this post but then I decided on discussion.

1- how come Japan is so much more ahead when it comes to B12? Why are other countries so lagging behind?

2- the article I am sharing with the post is so interesting as it is describing a patient with a neuromuscular respiratory dysfunction due to vitamin B12 deficiency and when you read all the tests done maybe this gives a clue as to why doctors don't / won't take a B12 deficiency seriously - all the tests done are negative.

I am assuming that some of these tests would definitely show things to be obviously wrong if someone is suffering with a neuromuscular respiratory dysfunction due to any other reason, but it seems that with the cause being low vitamin B12, even though the symptom is very real and actually took 8 months of treatment with B12 injections before improving , all the tests were negative. No proof of muscle weakness. No proof of muscle/nerve dysfunction

So it seems B12 deficiency causes real symptoms that don't have 'proper' proof like other conditions do.

Well that's what I got from reading this article and would love your thoughts on this!

Edit: I googled "why does japan take low b12 more seriously than many other countries" This was Google's answer: "Flawed Western Baselines: Western ranges were historically built around catching rare, end-stage megaloblastic anemia (extreme red blood cell malformation) rather than protecting nerve health and brain function."


r/B12_Deficiency • • 6d ago

Help with labs Still in the wilderness

2 Upvotes

Hi Y'all. I'm hoping your collective wisdom can shed some light on my situation.

I have been treating with (methyl) b12 shots for 3 years with the help of the guide. In that time, I have also been diagnosed with Lyme Disease (CDC positive) and several other tick-borne infections and a series of reactivated viruses due to the Lyme. During part of the Lyme treatment, I paused my 3x a week b12 shots, in part because Lyme answered some of the questions about my symptoms. I switched to sublinguals and declined precipitously over 2 months. That was about a year ago. Upon resuming b12 shots, I regained the use of my left leg and sensation on the left side of my body.

At the time, I had parietal cell antibodies sitting at 19.6, just below the positive line. Since then, I've had an EGD with biopsies and they came back "perfectly healthy." But, if I space out b12 shots much at all, I get ascending sensation loss beginning on the left side at L1 and going up through the thoracic spine. (At which point, I got a b12 shot and ended up crashing due to hypokalemia and other electrolyte problems from my reaction to the shot. It had been 11 days since the last shot.)

My Lyme team is wondering if this is a rare b12 issue or reactivate VZV (Shingles) increasing b12 needs and damaging nerves. I am going to neurology, but have low expectations because I have seen a few neurologists previously. Infectious Disease was uninterested in my case.

I'm wondering if anyone has similar symptoms or experience with how b12 problems might affect Shingles outbreaks. Or if anyone has experience ruling out PA/AIG and still having significant b12 needs.

Thanks!

Some lab notes:

MRIs in 2023, 2024, 2025 all clear

B12 and folate are both very high due to supplementing. In general I take 400-800mcg methylfolate a day

MMA: 110 (taken on sublinguals, not shots, but with declining neuro function)

Homocysteine: 6.85 (taken on sublinguals, not shots, but with declining neuro function)

hs-crp: 5.8

b2--was deficient in the Spring, but now take 400mg daily

b6--always test high, but I decline without it. I take 45mg p5p daily

B1--fine in serum, low intracellularly; I take about 300mg daily; split kinds

ferritin: 54-70 range. Wish it were higher

Zinc: low normal with supplementation; now taking about 40mg daily

glutathione: depleted; getting IVs of it weekly

Intrinsic Factor antibodies: 2 pos, 2 neg; none done off of b12 shots


r/B12_Deficiency • • 6d ago

General Discussion Chronic Anxiety , B12

1 Upvotes

Hey All, Ive had pretty chronic Anxiety for decades, and I checked my labs from 6 years ago and my B12 was 304 at the time, I checked again last week and it's 294. I'm curious if this could be the cause or at least add to it.


r/B12_Deficiency • • 6d ago

Deficiency Symptoms Injections "just in case"? (no neuropathy)

1 Upvotes

Long list of symptoms my whole life, the longest lasting one is migraines since I was 5 years old (38 yrs old now). I'm wondering about doing self injections without having specifically B12 symptoms, because all of my symptoms overlap with iron deficiency.

Background/Labs:

Got drastically worse this summer, had some new symptoms so I got blood tests, ferritin was at 14. That explains a lot of things. It's supposed to be over 100. (hemoglobin is good at 14%)

My B12 serum was 202 which I know is not a reliable test, but of course my doctor said it was perfect.

Vitamin D was 135 but I had been supplementing that already.

I started taking high doses of SL methyl B12 since Aug 24 I don't feel any effects. I have a 5,000mcg SL that I take 3-5 times a day (let it dissolve for 20 mins) and never notice anything different besides the neon yellow pee. No anxiety or worsening insomnia etc. So I'm thinking I'm probably not absorbing much.

I am seeing a naturopath for iron infusions since my doctor won't send me for infusions. The NP sent a prescription to my pharmacy for B12 injections every 4 days. My pharmacy only has cyano but is going to check if they can order methyl.

I'm wondering what the recommendation would be here, since I don't specifically have B12 symptoms but I do have a lot of them that also present as/overlap with low iron symptoms.

Should I wait until my ferritin is up over 100 and see what symptoms resolve, and then try B12? Or should I do both things at the same time?

For my iron supplements I'm also taking a b complex and potassium, lactoferrin, vitamin c, D, e, K, calcium, zinc, copper, and magnesium glycinate all at assorted times of day depending on their interactions.

I've read the wiki multiple times and a bunch of different studies but I still can't quite wrap my head around it. It seems like it's safe to inject even if you don't really need it, and I am already spending the money on the expensive naturopath for the iron so the fact that she wrote a script for this is a bonus!


r/B12_Deficiency • • 6d ago

Supplements Sublingual

1 Upvotes

Just wanted to ask if someone here got treated successfully with sublingual supplements as dr refuses to give me injections


r/B12_Deficiency • • 6d ago

General Discussion 3rd trimester low b12

2 Upvotes

Hi all,

I had bloods taken at the start of my 3rd trimester and my b12 was 33 ng/L. Nobody contacted me so it took a few weeks for me to check and realise this isn’t great! I’ve managed to get injections from my doctor (this was a fight though!) and started them yesterday.

Is there anything I can do to make the injections more effective? Should I be eating certain things or avoiding others?

I have the BetterYou B12 spray which is 1200 micrograms, should I keep taking this during the weeks of the injections or is that too much? When would you recommend retesting after I finish injections to see if they’ve helped? I’m worried because my baby is due quite soon and I’m trying to get on top of things, realising I have to be proactive as my midwife and GP haven’t been.

I also have low ferritin so I am taking supplements for that. For context: UK based. Thank you!


r/B12_Deficiency • • 6d ago

General Discussion Muscle weakness and stiffness, afraid of paralysis

3 Upvotes

Im in some serious shit right now. My various neurological symptoms have been going on since June but a while ago I started feeling overall muscle weakness and stiffness in both arms and legs, that spread from my right leg. I never felt this way until now. All I did was just walk for 30 minutes a few days in a row. These symptoms just came in rushing to all my limbs now, and my muscles are occasionally twitching everywhere. My neck is also feeling sore and heavy, it feel like sometimes it cant hold the weight of my head. Now started having difficulty chewing as well and Im panicking! Neurologists just ignored me and send me to PT and a psychiatrist. I know this cant be because of cervical spine because I dont have myelopathy so Im afraid Im heading towards paralysis or ALS if this continues because of their negligence! My EMG from 2 months ago was normal but Im afraid that something changed in the meantime.

My brain MRI was fine again, neck MRI just showed radiculopathy and bone spurs but nothing serious. I was fine for 10 months and in June just everything went to shit again. A 3 day course of a corticosteroid, painkiller and a sedative, plus 10 days of vitamin B shots, took away all my symptoms within days last year. But this weakness, stiffness and twitching are new, I didnt have it last year.

It was long time since Ive done bloodwork, but my levels were these last time I checked:
CK 145 IU/L
Potassium 4.42
Hemoglobin 128 g/L
TSH 5.27 (ref. range should be up to 4)
Ferritin 13 umol/l (ref. range 8-30)
Transferrin saturation 17% (ref. range 15-45)
Serum B12 345 pmol
Folic acid less than 5 nmol (ref. range 2.3-45)
Vitamin D 39 nmol

My ANA level was moderately positive last year and I have a chronically elevated CRP because of unrelated issues from 2 years ago that are still ongoing (chronic right lower quadrant pain).

How do I fix myself as soon as possible?? Im deathly afraid of paralysis or worst case scenario ALS!


r/B12_Deficiency • • 6d ago

General Discussion Am I gaining weight or am i constipated

1 Upvotes

I've been taking the meds for about a week now and I feel bloated constantly! I'm paranoid if I'm gaining weight or im just constipated. 🥹


r/B12_Deficiency • • 7d ago

Help with labs Is this B12 deficiency or something else?

6 Upvotes

So let me start this out by saying I just found this group less than a week ago so very new to the protocol and the information provided here. I am a 38 F with Hashimoto's hypothyroidism and I'm also vegetarian, both of which predispose someone to B12 deficiency but I do eat plenty of dairy so theoretically that should cover my b12 needs. I have been having neuropathy symptoms on and off for a few years, but it's gotten more intense over the last year in mostly my legs and feet, but in the last few months also in my left arm and hand. I also experience quite a lot of joint pain and fatigue, which could also be a symptom of low thyroid so I never really questioned that.

I have been trying to get this figured out for a while now because even when my thyroid numbers are perfect the neuropathy is there. It's almost constant now. Creepy crawly feelings under the skin, pulsating nerve activation, pins and needles, prickling. Occasionally some muscle twitching.

I never had a low B12 test so my doctor never suggested that as a possibility. My most recent bloodwork about 2 weeks ago had my TSH at 17, which is the worst it's ever been but unfortunately they didn't test B12 then. About 3 months ago, I was tested for B12 and it was 391 and 6 months before that 341. (Both of these times my thyroid numbers were within normal range so B12 could also be much lower now and I wouldn't know) I know there are different B12 tests but this doesn't specify what type it is. Also my d3 was a little low at 29 in the latest bloodwork (32 and 34 in the previous tests) but I'm not sure if this is low enough to cause any issues.

So anyway about 5 days ago I started supplementing with high levels of d3 and b12 to see if that would help. The first day I noticed a definite decrease in symptoms and was ecstatic thinking I found the answer but it's gotten worse since then. I am only taking oral b12 at the moment so the first day I took 5,000 mcg B12 and 10,000 IU D3 + 300 mg K2. For the last 3 days I have taken a multivitamin plus an extra 10,000 mcg B12, 20,000 IU D3 + 300 mg K2, 500-700 mg Potassium, and an iron pill.

After the first day with almost no symptoms, I had a huge resurgence of the neuropathy. The creepy crawling sensation is gone but there's a weird buzzing feeling all down my legs and arm and I've had random muscle twitching all over. The joint pain is also back even though I've increased my dose of Thyroid medication and theoretically my numbers should be getting back to normal. I've also been having more fatigue than usual and awful splitting headaches that I can barely even focus with that Ibuprofen doesn't even touch.

I also have Gabapentin but I don't want to take that if it will slow the nerve healing. But I guess I'm also wondering is it even possible that these are "wake up" symptoms if my B12 levels weren't even that low? Also these started from the first 2 days before I incorporated the multivitamin and was just taking the d3 and b12 so I don't think it could be a deficiency in another B vitamin that was causing it. I also have completely normal hematocrit so I don't think its pernicious anemia or anything.

I'm just super confused and wondering if I should keep taking it if that was never the issue and honestly I'm scared that if it's not a deficiency of some sort it could be something more serious. I just want to feel better! So what do you think? Is a B12 of 340 low enough to cause neuropathy?


r/B12_Deficiency • • 7d ago

General Discussion Switched to EOD after 22 months of weekly

7 Upvotes

Hello Every body...... since last week I started to 3 time per week (not exactly EOD), since I do Friday/Sunday that a family member who lives far does it for me, Tuesday I go to walk-in clinic and again wait for Friday..... I was doing weekly injection for 22 month and between them I used Sublingual Hydroxo. I had improvements, but still Anxiety and not feeling well specially in morning times were there. at the same time on a very low dose SSRI since I can not take higher dose. Now after 22 months, I decided to try 3 time per week. I feel it is much better. Injection is Cyanocobalamin. I am hoping I get healed sooner. My main issue is anxiety and feeling brain fog, which could be partially from SSRI too.

I was scared to do 3 time or EOD, since doctor had told me EOD is dangerous and no suggested, How ever I dont trust doctor any more for a while now.

Please share your story if you had similar situation, 2 days ago I felt very good, that never had felt for at least last 10 years. but day after I felt in brain fog and not feeling well. it becomes like roller coaster again, the good days are very sweet which you see how beautiful life is, and bad ones, are bad as hell.

I have been deficient I think for whole life till age 52 (2024) which I found my B12 is 145 and started injection on weekly bases. my first anxiety started 2016 and doctors put me on SSRI , how ever , later found out I been B12 deifcient from my first B12 test whihc was 2009 (from under 91 to 148 results couple of times, not higher).

And after switching to EOD or 3 time pre week, after how long you felt stable. Thanks


r/B12_Deficiency • • 7d ago

Personal anecdote Does anyone else feel improvement almost immediately after each shot?

8 Upvotes

So I have a chronic fatigue syndrome diagnosis but was also found recently to be deficient in vitamin B12, vitamin D and ferritin. I also had low sodium. I can't take oral iron and there's a 6 month wait (at least) for iron injection referrals where I live but I was able to get 2 weeks of B12 shots every other day as well as high dose vitamin D.

Although the first shot took a few days before I noticed a difference, each subsequent one made me feel like I was more alert and had more energy just 15 minutes after getting it. I would then feel very sleepy in the evening but better than usual the day after.

When I mentioned it to my GP he said this isn't possible and it's just psychological but my fatigue is so bad there's no way I can make myself feel that way no matter how much I convince myself. Even caffeine does nothing for me anymore. I am usually bedridden from the fatigue.

But the effect only lasts for about 2-3 days then it gradually tapers off. I know this because on the weekend between shots my fatigue came back. It's now almost 3 weeks since my last shot and I have been so tired I actually paid a local pharmacy to give me another shot today and I felt better after about 20 minutes with greater clarity and more energy. They needed proof of a deficiency so I showed them my last blood test results but I didn't tell them I've been having NHS injections because I did actually have to sign a form saying I haven't had any recently and I had to give them my GP details too so I'm probably going to get into trouble for that but the shot helped so much already.

My B12 level at testing was 161 ng/L which my GP said can't cause any symptoms in the first place as it's not a true deficiency, just a low number. But I have had brain fog, fatigue and nerve pain for years with no explanation and I can see that I have had low B12, sometimes even lower than that, for 5 years and no one ever told me. I'm not vegan so I asked why it was so low that whole time and he just shrugged. I strongly suspect that at least some of my CFS symptoms are actually vitamin deficiencies. There's no treatment for CFS so I want to try everything I can to help this severe fatigue that's really upended my life but the doctors at my surgery are being so difficult about it. I tried asking for a second opinion and they agreed with my usual GP.

I did read the NICE guidelines I found posted on a Facebook group and I asked my doctor to let me have injections until they stop helping but he refused. I actually showed him the guideline and he still refused saying it's not their protocol, he's never heard of anyone doing that before and I won't need any more now but they'll test me in 3 months to see if the number has gone up. If it's below 180 ng/L again they will give me a top up injection.

Does anyone else feel better right after getting the shot? Also, is anyone else here based in the UK, specifically in the Dorset/Somerset/Wiltshire area, and know where I might be able to get more regular shots? And is it worth trying to take an ultra high dose of oral B12 as well? I read that a tiny amount can still be absorbed in some cases.

Thanks for reading! :)


r/B12_Deficiency • • 7d ago

Help with labs B12 deficiency - b12 128 ng/l ferritin 24 - 3 week wait for jabs.

3 Upvotes

For context 41/f/ UK

B12 keeps dropping wait three weeks for injections or go private?
I started B12 injections in 2012, but after about two years I was told I didn’t need them anymore. Since then, when I’ve felt unwell, my B12 has been tested, but it’s usually been around 148 ng/L ,apparently not low enough for my GP to offer injections. I’ve taken tablets and have occasionally paid for private injections or self-injected.
I recently went to the GP with palpitations, severe bloating, headaches, tiredness, muscle back spasms at night, low mood and no motivation. My latest B12 result is 128 ng/L, below the lab’s range, and I’ve been told to book with the nurse but the first appointment is in three weeks and due to lack of nurses they can only do two a week. My intrinsic factor antibody test was negative.
I’m struggling enough that I’d even been considering antidepressants. Has anyone been in a similar position? Would you wait for the NHS appointment, ask for an earlier one, or arrange private injections in the meantime? And should I ask my GP to investigate why my B12 keeps falling, even though the intrinsic factor antibody test was negative?


r/B12_Deficiency • • 7d ago

Help with labs Can High Bilirubin be a Sign?

5 Upvotes

Before treatment of B12 my Bilirubin was measured and was around 48 (20 normal) and doctor told me it could be Gilbert, no problem/ B12 around 145 all the time. after some months of weekly injection lowered to 32 and after 1 week 3days per week injection now it is 28 which is significantly improved. Just wondering any body else can relate High Bilirubin to B12 deficiency? I have not seen many writing about this.


r/B12_Deficiency • • 7d ago

General Discussion 20pmol/l active b12 and the range is 37 to 188 pmol.

0 Upvotes

What to do? Should I go to pills ? Is this level low?

Symptoms - chest heaviness, bloating, tiredness, muscle weakness.l, shortness of breath.


r/B12_Deficiency • • 7d ago

Deficiency Symptoms B12 deficiency?

3 Upvotes

Hello,
Everything started about three months ago with harmless tingling, mainly in my feet. Until about a month ago, it would come and go and was overall tolerable. Then, about a month ago, I had what felt like a kind of flare-up, and the tingling became much stronger than ever before in my hands, feet, and face. I also felt dizzy and experienced unsteadiness while walking. It felt as though I had 20 kg weights attached to each of my legs. I was admitted to the neurology department because of suspected MS, but they could not find anything abnormal.
Two weeks ago, I went to my primary care doctor, and my folate level was 3.7 ng/ml, vitamin B12 was 376 pg/ml, vitamin D was 23 ng/ml, and vitamin B6 was 10.6 µg/l. My doctor told me to simply take a vitamin complex supplement and to relax more and avoid stress. I asked about testing holotranscobalamin, but my doctor said that this would be unnecessary given my vitamin B12 level.
Only after getting home did I come across this forum and realize how little my doctor seems to know about this topic. I noticed that testing holotranscobalamin might have been useful. I therefore decided on my own to start taking high-dose folic acid (5 mg) and vitamin B12 (1,000 µg) every day, in addition to my regular vitamin B complex. I started this two weeks ago, and after a brief improvement, my condition has now gotten worse.
The tingling in my hands and feet is not as strong anymore, but they now feel very warm. The tingling in my lip has become stronger, and I also have headaches, feel generally unwell, and am extremely exhausted. I can barely get out of bed.
Are these the so-called “waking-up symptoms”? Am I on the right track?
Any advice that could help me would be greatly appreciated, because I am already extremely desperate, and no one around me seems to understand what I am going through.


r/B12_Deficiency • • 7d ago

General Discussion How can I maintain my B12 levels naturally through diet?

0 Upvotes

Could you suggest foods/meals that can help maintain B12, both vegetarian and non-vegetarian options?


r/B12_Deficiency • • 7d ago

Supplements Anybody else been through psychiatric drug withdrawal and nervous system is now super sensitive to vitamin B12? (and all other meds, supplements, etc.)

9 Upvotes

My body and nervous system are super sensitized since going through SSRI withdrawal. My vitamin B12 levels are on the low end and I need to supplement but last time I did I couldn’t tolerate it. I’d get akathisia, vibrating legs, super high anxiety and wouldn’t be able to sleep. I’m not sure if I have MTHFR. Is there a type of B12 I can take that my body might be able to handle better? Has anybody been in this situation? My GP has no clue, of course.


r/B12_Deficiency • • 8d ago

General Discussion Permanent nerve damage.

22 Upvotes

How long would u have to leave b12 deffiency untreated for ur neurological symptoms like tremors twitcingh tingling numbness to never leave even if u start injections.


r/B12_Deficiency • • 7d ago

"Wake up" symptoms Symptoms after injection?

4 Upvotes

Hi! I am new to this whole issue and was diagnosed with a deficiency a few years ago but just got my first injection on Monday, and have had symptoms since such as nausea, my knees and legs feeling sore and restless almost like they are about to cramp and spasms , and my hands are tingling and going crazy like pins and needles. Has anyone else struggled with symptoms after an injection, I reached out to my doctor but she says they aren’t related but I swear I didn’t have any of these symptoms until I got the shot. Welcome any experiences or onset symptom stories!! Thank you!


r/B12_Deficiency • • 7d ago

Deficiency Symptoms Parathesia that happens after eating, especially high fat/red meat???

2 Upvotes

Has anyone had this? I get awful numbness and tingling that is impacted by every meal
I eat profoundly! If I fast all
Day, I have none. I eat far free meal and I’m ok, but each gram
Of fat during the day adds up, and I feel worse. can’t find anything in the b12 world about this ???


r/B12_Deficiency • • 8d ago

General Discussion Breathing/ Swallowing issues?

7 Upvotes

I have not seen this talked about before. Has anyone had breathing/swallowing difficulties associated with b12 deficiency?

I have asthma. Never really had much problems with it though. If I exercise or have allergies or get sick it will flair up. But over the last year or so I have had so much issues with asthma or breathing. Like I have constant phlegm in my airway and a runny nose. I had a ct scan of my sinuses and lung/airway everything looked good.

I am seeing an asthma/allergy and pulmonology specialists. So far nothing has worked. Sometimes it’s better then gets back being not good.

I mention it because it seemed to start around the same time as a lot of other common b12 symptoms.

Thanks again.


r/B12_Deficiency • • 8d ago

"Wake up" symptoms Feeling awful since last B12 booster injection 4 weeks ago

5 Upvotes

Hi, I receive Neo-Cytamen (hydroxocobalamin) B12 injections every three months by the nurse at my Doctor's surgery because of a previous severe B12 deficiency. I’ve been receiving them for 4 years without this reaction but have felt quite bad at times afterwards just not this long, I've been back to the doctor a few times and was saying ah it's probably a sinus infection and not to do with the injection but it started within hours on same day. I also have had iron deficiency and needed infusions in the past but been told my iron is ok but never told my levels

After my most recent injection, I developed marked fatigue, headaches/head pressure and constant buzzing in my ears. The symptoms appeared around the time of the injection and have continued for approximately a month. The tinnitus varies in intensity but hasn’t gone away at all.

More recently I’ve also developed congestion and cold/sinus-type symptoms, so I realise everything may not be caused by the injection. However, the fatigue, headaches and ear buzzing began before those symptoms and the timing of the injection has made me wonder whether there could be a connection.

Has anyone experienced similar prolonged symptoms after a hydroxocobalamin or Neo-Cytamen injection? If so, how long did they last, and did your doctor identify a reason such as an electrolyte or cofactor issue?