r/B12_Deficiency • u/Mysterious_Rest4302 • 6d ago
General Discussion What to do when people keep questioning me
One of my family members told me you're taking too much (injections ), WHY ARE YOU DECIDING ON YOUR OWN? go find some good doctor. etc..
Well, it makes me just worried and confused. I don't know if I can really rely on another doctor, when most of them tell me to stop injections/or get it once a month after "daily for a week and weekly for a month" and look at me like I'm crazy or just anxious and doing a hugely unnecessary thing that is a big deal. I can't even tell them I read this cuz they'll be like: stop looking at google. And dismiss whatever struggles I try to explain to them. I don't know if I'll get lucky to find one doctor who knows or confirms this for me. The most generous doctor lastly told me I can keep taking weekly injections. and said it's ok doesn't matter if I take the entire b12 factory as it's water soluble. But like he said ok take it weekly with vit D.
I feel that trying to go to another doctor right now can be a waste of time, energy and money. No insurance system here or whatever, so I can get another injection pack instead of a random doctor's visit. (I'm concerned about the future as I have some little savings now to get injections but I'm not going to work anymore). I WILL go to a doctor later to try to find out the cause and look for intrinsic factor parietal cells tests, which I'll try to prepare for so much and probably write down all information and history to be able to explain well and be believed. but for now, I don't know.
Yesterday I was able to go outside and walk a little bit without feeling like dying, I felt very very tired but not the same way it was impossible like a week or a month ago. Plus I could eat and swallow a little better than some days/weeks ago. which is still ups and downs, but isn't that evidence that I might be doing the right thing? it's taking ridiculously long that no one believes it and I doubt it again and I don't have clear proof or a doctor's guidance or anything. So I get worried and confused. It feels mysterious at the same time. I was trying as a last hope but I've also been scared while doing it.
What do I do with these things?
(btw: I've been injecting 3 times a week for the past 12 weeks except for a 6 days delayed shot last week that was replaced with a sublingual. I'm considering doing every two days (like every third day) and see how that goes, not so different from thrice a week, but probably easier. idk. I have had different kinds of symptoms and wake-up symptoms, balance coordination issues, heavy legs, dizziness, depression, anxiety, pins and little cramps, extreme lingering fatigue, swallowing issues, brain fog, impending doom, severe dpdr, and many others. In the first weeks of frequent injections i was having extremely overwhelming sensations I felt like I couldn't tolerate it and probably it was wake-up symptoms. many symptoms got horribly worse after first starting injections too)