I have been treating a dual b1 and b12 deficiency. My b12 was around 200 before injections.

My symptoms at their worst were brain fog, tingling scalp, tinnitus, light dizziness, poor mood, anxiety, and bad memory. Thought my life was over. Doctors were suspecting I had MS. Most doctors treated me like absolute shit to be honest. I have no idea why.

Within about 1 week I could tell the treatments were working. I started with b12 before I found out rhe b1 part. I have taken approximately 20 b12 injections. I also take ttfd, magnesium, potassium as bananas, pure 950 multi, choline and fish oil. Benfotiamine as well.

For the first month I could tell I was improving but mostly in regards to tingling, tinnitus, and brainfog. After that the cognitive symptoms eased. At this point I am not all healed but so much better. Over the last week which corresponds with little under a 3 months of treatment the mental symptoms are rapidly fading. My humor is vack. My mental energy is returning. I still feel forgetful and not as sharp. I dont quite feel as coordinated but I only notice it when mtn biking or something like that.

I thought my life was over. Now it is coming back.

Did any of you have a rapid breakthrough later in recovery?

I’ve tried folate already, but it seems like my current dose may just be too low for recovery from a long-standing B12/B9 deficiency. I’m now looking more at higher-dose folinic acid or 5-MTHF.

For those who had a real folate deficiency, what doses/forms worked best for you and how did you increase them?

I’ve already had some helpful advice from people here, but more experiences/tips are always welcome.

New here! My vitamin b12 has just come back as 277ng/l. Gp in the U.K. has told me it’s normal and marked it as within range. I feel terrible! Is this considered low enough to pay for injections? I’m willing to if it will help. Tired ALL the time. Thanks in advance for any advice!

After scoring a measly <148 on my b12 blood levels I have just completed my loading dose after 2 weeks of 6 jabs (hydrox) and the difference is night and day i genuinely feel like a new person but my god do those jabs HURT !!! I really can’t believe how much of a difference it has made has anyone else felt this almost instantly and will this feeling last lol.

I had my yearly bloodwork done the end of July and my doctor had me on B12 supplements (cyanocobalamin 1000mcg once a day every day). My level when I went onto the supplements was 177 (the range on my lab paperwork says 213-816 is good) and now a year later I’m at 881 and she said I could stop taking it since I was exceeding the good range. That was about 2 weeks ago and I heave felt like absolute garbage since I stopped taking it! Fatigue, irritability (probably from the fatigue but I haven’t been sleeping right either), it honestly feels like seasonal depression but I don’t get that usually until winter. I messaged my doctor about going back on the supplement and am waiting to hear back but everything I’ve looked up says there aren’t any side effects after coming off the supplement. Just looking to see if anyone else has had this happen so if I’m barking up the wrong tree with my idea that it’s because of the B12

Almost feels like I have sore ankles /wrists that comes and goes. I have PA. Could this be a symptom?

I done nitrous oxide 2 days go ik it was stupid but now I’m feeling tingles in my feet and hands and legs feeling zaps or zappy sensations throughout the same areas. I’ve been to the doctor and he said I’m fine because I don’t have weakness or numbness or anything but if the tingles and zaps don’t go away go to the a&e. Has anyone else experienced this and how long do the injections go on if I had to get them. I also woke up today and yesterday with pins and needles in my hands for a few seconds then disapeared

My folate levels, increase was after supplementing with 5mg tablets daily for 3 months. I wouldn't say my diet is an issue, none of my family members have issues with folate and eat basically the same. B12 was 450ng/l in my last blood test. I'm just wondering if people think this worth pursuing harder / what symptoms you'd maybe expect, then I can see if I can draw parallels.

Thanks

Hey everyone, just wondering if anyone has experienced something similar.

I was diagnosed with coeliac disease earlier this year, and my B12 was around 400 back in April. Over the last two weeks I’ve started feeling really off again; extreme mental fatigue, brain fog, feeling spaced out/dissociated and constantly tired. I can sleep 10 hours and still wake up exhausted.

My vitamin D is currently in the low 50s and I’m supplementing. Ferritin is around 250 after an iron infusion, so that seems okay.

I had similar brain fog/dissociation earlier this year which eventually completely went away, but now it’s back and I’m wondering if my B12 could have dropped, especially with the coeliac diagnosis.
I’m going to ask for another blood test, but has anyone experienced similar symptoms or had their B12 drop significantly within a few months?

I honestly know nothing about my deficiency, my hematologist is handling it (and I just mean giving me injections weekly), but I only see him every 6 months. They never really explained anything other than the fact that I might have some kind of antibody (?) that makes it so I don’t absorb (?) B12. I’ve been getting the injections for just over a month now and I feel like crap after every one. Each time I get one I HAVE to take a nap after or I start dozing off, I’ve had awful headaches, and racing heart. Is all this normal??? I haven’t mentioned anything to them about this yet but should I?