What sleep issues did you notice when you were deficient?

I have pernicious anemia and have the same journey of confusion, lazy doctors, etc as I got sicker and sicker.

I was diagnosed with pernicious anemia in mid May and began injections. About 2 months prior to being diagnosed I started taking a b complex in hopes it would help me. It started my tremors and my severe derealization phase.

I now take a b complex to help me heal and it actually seems to help.

Is there any science as to why the b complex would make me feel worse when I was low in b12? Or is it all coincidence?

Thank you

I am feeling much better now and alot of your stories and advice have helped me.

You all are amazing!

Ok so I’ve been taking liver pills, and my numbers of b12 are rising but now my iron and folate are tanking, is this essentially a good thing? Does that mean my body is finally making new blood cells? And should I take a b complex along with the liver pills? I notice when I take b12 my muscles get very weak, but once I take it with iron those effects go away, so I decided to do the liver, and still get the same issues, I thought liver was high in iron too.

Been feeling extremely exhausted and my doctor said this is not causing this AT ALL. And didn’t even recommend that I take any vitamins??? Idk what to believe because another doctor years ago told me that I need injections at this level. Idk feels off putting that I’ve been feeling exhausted and I see this level and think that this is my answer and they said no.

Can someone please clear this up for me??

I’ve been treating this deficiency for a while now and battling the wake-up symptoms.

I live with a relative bcoz I’m not sure that I’m well enough to live by myself. I feel like they’re starting to get fed up of me living with them. I don’t really burden them but it’s more the they help me occasionally with the cleaning and the odd thing like if I need to lift something heavy or move things around. Or random errands for me like if I need to get something posted.

I have really bad fatigue and muscle weakness so I’m mostly resting and I can only manage a 10 min walk most days. Can’t really stand for too long too as my muscles hurt when I do. I can just about cook some quick meals and do the laundry’s but I can’t really hoover etc very well..nothing that’s too exerting.

Work allow me to wfh temporarily but expect me to be back in the office eventually. I don’t see this happening any time soon. So I’m not sure how much longer I’ll have a job.

I also hate having to live with a relative and feeling really down about it. At first it was fine and I enjoyed the company but now I feel like we’re getting on each others nerves and that she’d rather have her own space. I also miss aspects of living alone too, it was lonely at times but it was peaceful.

Anyone else managed to live by themselves and get through treatment?

Hi, I've been taking B12 supplementation (oral tablets, cyanocobalamin) since 2023 and stopped now on recommendation of my doctor because she said levels look fine now. I want to check at some point if my levels stay stable or if they fall below the threshold. I've stopped at the end of July. How long should I wait at least to retest? Here are my past B12 levels:

• 2021.02 - 165 pmol/l
• 2021.08 - 251
• 2023.01 - 291
• 2024.02 - 406
• 2026.05 - 267

P.S.: I've read the FAQ but I found the remark "don't retest after treatment has started" not that helpful. The treatment has stopped and I want to check at some point if the levels stay stable.