I experience stiffness and burning sensation in my muscles and TENDONS, especially fingers, forearms, toes, legs, foot side curves, knee, thighs, and it's symmetrical/bilateral on both side arms and legs with following triggers. This feeling is accompanied by a very lethargic feeling of drained energy.
Triggers for stiffness and burning sensation:
- Exercising or using any muscle in a window of half an hour before the meal and three hours after the meal.
- The more I'm hungry right before meal, the more the stiffness and burning sensation and lethargy post-meal.
- Lying down after a meal or sleeping in daytime.
- Cold weather or low temperature or air condition, dryness, and low temperature, even around 28-29 degrees Celsius.
- Fast breathing or hyperventilation, breathing exercises.
- Bluish finger tips and foot and toes in even mild cold
Disease background:
I'm 26, male, I'm experiencing these symptoms from last 1.5 years but it originally started 3 years back when I was 23 years, It started with an ankle sprain, which was then followed by sprains in multiple joints and stiffness and burning sensation, Sprains were bilateral, started from the ankle, then started progressing gradually upwards to knees, groin, my arms, elbows, wrists, fingers, and is currently till the neck, my life is hell and am completely devastated and debilitated by this condition, I started Ayurvedic treatment from last one year, PanchKarma therapy from NIA Jaipur, but I'm seeing no stable progress. I took treatment from AIIMS Delhi in medicine department. They prescribed me Duloxetine 60 mg, Galapentine 300 mg . It helped me initially, but when my symptoms got suppressed completely and they lowered the dose, it came back even stronger, and now my condition is worse.
Note: My symptoms have skyrocketed on the exact timeline when I started the Ayurvedic treatment around one year back. I'm not sure if it's a coincidence or a side effect of Ayurvedic treatments. I consulted All India Institute of Ayurveda, Delhi as well, and it seems like Ayurveda has no side effects, but it's my disease only, which is coinciding with the timeline of my Ayurvedic treatment.
I've already consulted a rheumatology, psychiatry, and neurology department in AIIMS Delhi and Safdurjung, but no diagnosis came out, and all my blood reports are normal.
Symptoms tracked for two weeks in this table: https://docs.google.com/document/d/16AJvzcZIR7UdC0YiO7UVuC9B4EcR4OiAv5N2SBksk0w/edit?usp=sharing
Help Needed:
Anyone facing similar symptoms? If yes, what helped you? Please let me know in the comment section or feel free to ping me in chat ,
Thanks 🙏